ME/CFS and ankylosing spondylitis (HLA B27+)?

January 6, 2004

In 1989 when I was diagnosed I was told by my rheumatologist that i had

ankylosing spondylitis. In 1993, the MD my ex hired to evaluate me during my

divorce said I was misdiagnosed and I had FM. I since learned that many CFIDS

patients are misdiagnosed w/ AS at the begining when they are in an acute phase.

I

do not have AS.. Hope this helps.

January 6, 2004

Hi everyone,

Any experience here with a dx of ME or CFS and swollen joints with an earlier

diagnosis of possible ankylosing spondylitis?

This is a question from a friend who is trying to piece together his health

problems since a bad bout of campylobactor food poisoning brought on ME/CFS a

few years ago.

He started with swollen joints as a child and was diagnosed with possible

juvenile AS (due to his HLA B27+ status). He made a full recovery.

Years later he developed ME/CFS after the food poisoning. Now his joints

(particularly knees) are again swollen and red like they were as a child.

If anyone has any ideas/experience pls let me know on or off list.

With kindest regards,

Annette

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January 6, 2004

Hi Annette

my Dr recently checked me for AS (hlab270) and I don't have the gene.

However while I was waiting for the test results to arrive I decided

to adopt the low starch diet which some people recommend. I was

already avoiding all gluten containing grains so I decided to cut out

potatoes and then maybe rice. After about 4 days potatoe free I

noticed I had much less pain in my upper and lower spine and less IBS.

The theory is that undigested starch feeds Klebsiella bacteria and

it breeds proportionally. In my case I am not getting an autoimmune

reaction to the b270 gene but the toxins from the Kleb. are having

some detrimental effect.

I know this is a bit garbled but it's 2am and my nicotinamide hasn't

kicked in yet.

Regards

Mx

> Hi everyone,

>

> Any experience here with a dx of ME or CFS and swollen joints with

an earlier diagnosis of possible ankylosing spondylitis?

>

> This is a question from a friend who is trying to piece together

his health problems since a bad bout of campylobactor food poisoning

brought on ME/CFS a few years ago.

>

> He started with swollen joints as a child and was diagnosed with

possible juvenile AS (due to his HLA B27+ status). He made a full

recovery.

>

> Years later he developed ME/CFS after the food poisoning. Now his

joints (particularly knees) are again swollen and red like they were

as a child.

>

> If anyone has any ideas/experience pls let me know on or off list.

>

> With kindest regards,

> Annette

>

> ---------------------------------

> Messenger - Communicate instantly... " Ping " your friends

today! Download Messenger Now

>

January 6, 2004

I have heard that potatoes, a member of the deadly nightshade family, can cause