New here - recent CFS diag - brain fog/headache suggestions......thanks.

December 31, 2003

I have a 24/7 brain swelling headache and massive brain fog that

came on 1 month after the birth of my 3rd boy - in Feb this year.

Since then, I had a total dental revision - removed 9 amalgems -

done detox, lots of vitamins and special diets to no avail

whatsoever. I'm sure this is no suprise to any of you - as that's

how this nasty CFS disease seems to be.

I am basically completely disabled, can't think much, drive, work or

do anything else.

I need suggestions on any good docs in US, and any help to help my

family understand how a 'previous' engineering manager, runner, very

busy healthy Mom of 35 years could become so disabled so fast.

I have tried so many antidepressants 'pushed' on me that 'just one

dose' sent my 24/7 headache & CNS into 'the super-crazys' that I

KNOW THEY WILL NOT HELP ME.

Thanks for your replys-

Another one who has 'lost her life to CFS' (why live?)

December 31, 2003

> I have a 24/7 brain swelling headache and massive brain fog

I use to have the same headaches. I even had an MRI but it was

positive. Coffee enema's will relieve my headaches. If you want to

know the protocol, back-channel me. Don't do them after noon unless

you take something to help you fall asleep. Also recently most of us

have found that doing sauna's will stop the headaches and other

symotoms. Most I know are helped by hydroxycolobalim or

methylcolobalim (B-12) injections we give ourselves in the thigh.

>

> I need suggestions on any good docs in US, and any help to help my

> family understand how a 'previous' engineering manager, runner,

very

> busy healthy Mom of 35 years could become so disabled so fast.

Where do you live. I wished my ex-wife and children had believed I

suddenly became ill and had to resign a VP's job.

> Another one who has 'lost her life to CFS' (why live?)

I understand the feeling. I got ill at 28 (I am now 56)and I use to

have these fears of death but I no longer fear death. I attempted

suicide by overdose in august of '95. Laying on the bed made me think

of the scenario of the maid finding me, the police having to tell my

mother, wife and kids what I had done. I imagined how hard it was

going to be on them and the kids may have to live in poverty. I got

up and went to the ER. There have been so, so many times since then

that I have prayed for cancer or some kind of respectable death but

it hasn't come. Knowing how my suicide would affect my living 5

children and grandchildren has been enough of a motivation to not

take my life. There has been times I could not make it another 10

minutes and I went to the store and got some beer or wine and got

drunk, which isn't hard for us to do. amazingly it worked. I would

wake up hours later and the heavy weight on my brain causing the

unbearable feeling was gone!!! This was before finding out about

coffee enema's.

Hang on. I really think that CFS, AIDS, MS, RA and other chronic

illnesses will be finally cured in a year or two. It could be quicker

but the two different researchers need research money. Surely there

is a rich PWC who could donate the funds to both of the researchers

and let them compete.

Bob Harrington

December 31, 2003

He means hydroxycobalamin or methylcobalamine. And there are other things that

work. We have been there. Many of us learn to relieve some of the worst of it.

Keep coming back; you will find help here.

HAppy New Year!

Adrienne

Re: New here - recent CFS diag - brain

fog/headache suggestions......thanks.