Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 Look what Jane, UK has to say (Her son 13 year old, suffers from ME-CFIDS) I wish: That we could coalesce as an International ME/CFS/CFIDS/PVFS et al Community worldwide. That we would recognise that the SHEER WEIGHT of our numbers is our strength. That through the use of our numbers, we would force proactive change. That we could agree on just *one* issue to start with. One at a time. With no arguments and no dissent. That we would help each other to build the One Click engine to achieve our objectives. That we would build our One Click engine with peace, with harmony, with cohesion and with style in the most utterly legal fashion. That we would focus our engine on specific and agreed problems in each country, turn by turn. That ALL would join us in this endeavour. Thousands upon thousands upon thousands of us. Millions. That we would feel sufficiently confident in our endeavour that other Communities would join us. Those from Well World and Ill World alike. Those who understand our plight, who sympathise and would help us. That this would be the first time that a community of the disenfranchised and so sick has achieved such an historic objective. From our sick beds. The internet has made such a difference to us and our ability to communicate. LET US USE THE INTERNET PROACTIVELY! That our plea for research on this physiological illness would be listened to. That massive amounts of money would be poured into studying the aetiology and the epidemiology of our illness. That the diagnostic bio markers that we so badly need found at last. It is this that will make the medical industry, the insurance industry, the pharmaceutical industry and government take note. This above all. I wish that through the coalescing of our ME/CFS Community, we would make a huge and substantial difference for all sufferers worldwide. I wish for all sufferers to be treated with understanding and compassion. That efficacious treatments backed by sound research be made available to our ME/CFS alphabet soup diagnoses Community. I wish for Ben to get better. I wish for all ME/CFS/CFIDS/PVFS et al sufferers to get better. I wish you all a very Happy New Year. And lastly, I wish to thank those people who have helped me and Ben personally. And those people who have helped me so much with One Click. Who have used a proportion of their valuable Up Time to give me sound advice and counsel. You know who you all are. Thanks from the heart. Jane London UK ********* Join us right NOW: THEONECLICKPROTEST or see here what its all about: www.feel.ch/cfs.htm thanks and lot of strength fox Switzerland Quote Link to comment Share on other sites More sharing options...
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