Re: Low oxygen levels in M.E.

[Guest guest]

hi all

excellent ? i have thought about at odd times

having low blood volume and doucmented low oxygen in multiple areas

of my brain, i imagine long term our organs get overworked and perhaps exhaust

themselves alot earlier than a healthy perons without these promblems. ....i

myself have every major organ isnt working properly , each one slowly

developing promblems with poor functioning as i sick longer and longer with the

dd

i wonder if the repair rate is increased or mroe likely our faulty

metabolisms contribute to further poor funcitoning of our organs

.... does the increased rate of cell death be in some way caused by this?

( thinking out loud) as higher for cfids patients and documented.

i did have a pet scan the same day as my spect scan and apparently my brain

tissues are getting enuf glucose but not enuf oxygen.

maybe there is some oxygen threshold that the organs reach if too low

that they deteriorate in functioning ablity.

another wonderful long term promblem with this illness.

i think if u can get your blood to be less hypercoagulated, reduce the

microrganisms in the blood, change the cell (red blood cell) shape per les

simpson, develope more normal blood pressure and other things , maybe its

possible to

reverse some or all of the adverse effects.

love a definative answer to this ?

my two cents. somish.

[Guest guest]

Hmm, Somish;

In recent years my brain is miraculously improved, thanks to b12, my digestive

symptoms and esophagus pain is way better thanks to a combination of things, my

joint pain is diminished thanks to prayer, muscle pain less due to more rest and

less stress, I have less infections, less headaches, less eyestrain. Mood is

generally less depressed thanks to St. 's Wort. As to the state of the organ

systems I have not mentioned, I have no idea. I don't get them tested.

My mcs and cat allergy may be a little worse, I am having a hard time healing a

sore where I sit. It used to be easier to heal it. I already beat off the flu's

first attempt to catch me thanks to Osha root. (Porters loveage). I think my

biggest handicap, besides joint pain which still returns at times, is-tahdumm-

fatigue. I get tired so easily! And have to rest long.

If I go past my limit, all the improvements I mention above disappear pretty

quickly. It has cost me much agony to learn to stay within those everchanging

limits. I spend a lot of time in bed, but it doesn't seem so awful, since I have

my brain back.

I have been continuously ill for22yrs, I think, and before that intermittently

at least since I took LSD in 1958. I think I have those dates right.

So of course I am getting older, but I don't know about sicker. I imagine I

could go quite a lot further this way.

Adrienne

Re: Low oxygen levels in M.E.

hi all

excellent ? i have thought about at odd times

having low blood volume and doucmented low oxygen in multiple areas

of my brain, i imagine long term our organs get overworked and perhaps exhaust

themselves alot earlier than a healthy perons without these promblems. ....i

myself have every major organ isnt working properly , each one slowly

developing promblems with poor functioning as i sick longer and longer with

the dd

i wonder if the repair rate is increased or mroe likely our faulty

metabolisms contribute to further poor funcitoning of our organs

.... does the increased rate of cell death be in some way caused by this?

( thinking out loud) as higher for cfids patients and documented.

i did have a pet scan the same day as my spect scan and apparently my brain

tissues are getting enuf glucose but not enuf oxygen.

maybe there is some oxygen threshold that the organs reach if too low

that they deteriorate in functioning ablity.

another wonderful long term promblem with this illness.

i think if u can get your blood to be less hypercoagulated, reduce the

microrganisms in the blood, change the cell (red blood cell) shape per les

simpson, develope more normal blood pressure and other things , maybe its

possible to

reverse some or all of the adverse effects.

love a definative answer to this ?

my two cents. somish.

[Guest guest]

A related question:

I have seen postings about Hyperbaric Oxygen, but none I can recall

about the plain, at-home Oxygen tank and face mask system. Does anyone

have info on that?

There is indication that it can do something substantial and beneficial,

especially to the brain. In aborting the notoriously intractable Cluster

Headache, it is as effective as the strongest RX meds. It acts within

minutes, and has no apparent tolerance effect over time.

--

[Guest guest]

Adrienne,

What is your dosage of St. 's Wort? I tried it once at 300 mg. I got very

sick?I was in bed for about 6 hours to recover. I could not stand up.

Do you use it regularly? How long have you been using it?

Thanks

Nil

Re: Low oxygen levels in M.E.

Hmm, Somish;

In recent years my brain is miraculously improved, thanks to b12, my digestive

symptoms and esophagus pain is way better thanks to a combination of things, my

joint pain is diminished thanks to prayer, muscle pain less due to more rest and

less stress, I have less infections, less headaches, less eyestrain. Mood is

generally less depressed thanks to St. 's Wort. As to the state of the organ

systems I have not mentioned, I have no

[Guest guest]

Our model is simple: CFIDS is a manifestation of acquired Brain

Trauma. The brain is " tender " and hence does not handle much

stimulation and activity:

example: bouncing around in stop and go traffic, telling the legs

and arms how to move, processing light stimulation, noise stimulation

etc. When the brain gets exhausted it sends false signals and

misinterprets signals.

At the lowest level: reducing brain stimulation (stress etc) will

allow the brain to recover better (all be it slowly).

The CAUSE of the acquired Brain Trauma is blood flow problems to the

brain. This is typically caused by coagulation, and occasionally,

directly by infection of brain tissue. These are what needs to be

treated to reduce the ongoing trauma. Science tells us that the brain

constantly regrows cells -- so, in time, the trauma will repair

itself.

Coagulation may be caused by illness or chemical exposure. In our

case, we know that there are infections involved -- BUT there may

also be chemicals involved... on the property next to us, they just

discover residue from an old military site.. Methylene chloride,

dibenzyl phrenon.

http://www.northkitsapherald.com/portals-code/list.cgi?

paper=95 & cat=23 & id=159802 & more=

We were drinking unfiltered well water when things got worst for

everyone...

So the complexities of this illness are not simple....

> This means our organs are not getting the oxygen it should so they

have to try

> and work harder to do the same tasks. What are the long term

effects of the

> lower level of oxygen on the organs and the overworking of them???? "

> Thanks,

> Du Pre

> Website:

http://www.angelfire.com/jazz/isaiah40soaringeagle/index.html

> " By words the mind is winged. " Aristophanes

>

>

>

[Guest guest]

Glad you asked, Nil.

I am using a tincture. Och. I just picked it up so I could see the strength, and

all the print has come off the label. Sorry. But it doesn't really matter in a

tincture.

I take it by the drop, and so far, I have been varying how much I take by the

circumstances. When I know I must be a little more active I take more. I use it

daily. It works best if I use less and do it several times a day, at least two

times. If I take too much at once, I get speedy and confused.

But the important feature is that you can take it by the drop. It is hard to get

in trouble with it that way, I think, one drop at a time.

I believe it is in the same category as SSRI pharmaceutical antidepressants, and

those have always made me very sick.

I don't recall what form of SJW I was using originally, but about 2-3 months

ago, my helper made a wonderful mistake; the store was out of it, and she

brought me this tincture instead, and it has made a big difference. The brand is

Herbs Etc. It is produced right here in Santa Fe, a good company. (No financial

interest.)

It can be used sublingually too. I think you may find them online.

Best,

Adrienne

Re: Low oxygen levels in M.E.

Hmm, Somish;

In recent years my brain is miraculously improved, thanks to b12, my

digestive symptoms and esophagus pain is way better thanks to a combination of

things, my joint pain is diminished thanks to prayer, muscle pain less due to

more rest and less stress, I have less infections, less headaches, less

eyestrain. Mood is generally less depressed thanks to St. 's Wort. As to the

state of the organ systems I have not mentioned, I have no

[Guest guest]

I get prescription oxygen and use it at home on most days. It helps me pull

out of severe crashes, and helps with MCS symptoms. I don't use the

rebreather mask, as Dr. Cheney recommends, as conventional masks and tubing are

too

toxic for me, due to the MCS. I order special tubing from The Living Source.

Peggy

<<I have seen postings about Hyperbaric Oxygen, but none I can recall

about the plain, at-home Oxygen tank and face mask system. Does anyone

have info on that? >>