Guest guest Posted November 25, 2003 Report Share Posted November 25, 2003 Yes, my " pre-CFS " symptoms have always been sluggish mental processing speed or brain fog present, especially following onset at puberty. My deep stage CFS, or the straw that broke the camel's back, was a tonsillectomy and deviated septum surgery in April 99 where my ENT gave me dexamethasone to lower inflammation that would come post surgery. It totally cured my brain fog and in fact I could talk so quick it was scary b/c there were no usual pauses for word recall or subject recall or name recall or anything like that. No doc has ever been able to put together why it did that to me, but to me that is what I want to know most b/c I feel like I cannot pursue life like I need to with damn brain fog holding me back. I have a slow learning curve too b/c of it. Yes I have tried 10,000 mcg hydroxy shots for 30 consecutive days and nothing. Perhaps you have pathogens chomping up your B12 and my levels are/were fine? I'm hoping my dexamethasone experience will be worthwhile information to Shoemaker and he can come up with an explanation which he seemed confident he could do as soon as he got my test results. In a message dated 11/25/03 9:00:47 PM Eastern Standard Time, writes: Are you saying that the dexamethasone temporarily relieved your brain fog? (You can't have it and be cured of it both, can you?) Doesn't b12 work for you? I can't believe how well it has made my fog. Not really any at all,beyond the sort of mild gliches a senior would likely have. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2003 Report Share Posted November 26, 2003 Boy, , From the way you write and stay so active (it seems), it is hard to believe you have got " the fog. " Really. IMO you may not have given the b12 a long enough trial. The first time I used it I felt a mild but definitely discernable effect. Just maybe a little more energy, more sense of wellbeing. I cannot say when I first noticed cognitive improvements, but I doubt it was within a month. It is going on three years now, and I would say that it is only recently beginning to plateau. I only use it now 3-4x/wk. And I had to double the dose to get a continuing benefit after some months on the dose you took. Steve Bullock, at one time at least, was taking 10x your dose, half in morning and half in evening. Adrienne a test to indicate brain fog: VEGF Yes, my " pre-CFS " symptoms have always been sluggish mental processing speed or brain fog present, especially following onset at puberty. My deep stage CFS, or the straw that broke the camel's back, was a tonsillectomy and deviated septum surgery in April 99 where my ENT gave me dexamethasone to lower inflammation that would come post surgery. It totally cured my brain fog and in fact I could talk so quick it was scary b/c there were no usual pauses for word recall or subject recall or name recall or anything like that. No doc has ever been able to put together why it did that to me, but to me that is what I want to know most b/c I feel like I cannot pursue life like I need to with damn brain fog holding me back. I have a slow learning curve too b/c of it. Yes I have tried 10,000 mcg hydroxy shots for 30 consecutive days and nothing. Perhaps you have pathogens chomping up your B12 and my levels are/were fine? I'm hoping my dexamethasone experience will be worthwhile information to Shoemaker and he can come up with an explanation which he seemed confident he could do as soon as he got my test results. In a message dated 11/25/03 9:00:47 PM Eastern Standard Time, writes: Are you saying that the dexamethasone temporarily relieved your brain fog? (You can't have it and be cured of it both, can you?) Doesn't b12 work for you? I can't believe how well it has made my fog. Not really any at all,beyond the sort of mild gliches a senior would likely have. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2003 Report Share Posted November 26, 2003 Hi, Adrienne. Noticed the comments about brainfog. We ran across something odd this week. Someone suggested Mrs. Dash Original Flavor seasoning to aid thinking and dreaming. Am amazed to report, the Mrs. Dash really does make a difference. I eat fairly plain foods (no spicey stuff), due to Fibro, so may have been missing out on some trace minerals or something. Really don't know. But, have been adding Mrs Dash to chicken salad, meat, coleslaw, salad, etc. every chance I get now. Doesn't seem to have anything in it that is bad for me, and is neat to have the good dreams again. Just thought I'd pass that along. Anne H -- Can't go to sleep or back to sleep? Tired, stiff, in terrible pain? Can't think clearly? Weight gain? Acid reflux? Tingling? Fatigue? Read about Fibromyalgia and the first ever completely effective prescription-based treatment. All info is free. http://www.fibrofix.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2003 Report Share Posted November 26, 2003 Anne` I just bet it has Rosemary in it. That is for memory. Unfortunately, I loathe Rosemary. Adrienne Re: a test to indicate brain fog: VEGF Hi, Adrienne. Noticed the comments about brainfog. We ran across something odd this week. Someone suggested Mrs. Dash Original Flavor seasoning to aid thinking and dreaming. Am amazed to report, the Mrs. Dash really does make a difference. I eat fairly plain foods (no spicey stuff), due to Fibro, so may have been missing out on some trace minerals or something. Really don't know. But, have been adding Mrs Dash to chicken salad, meat, coleslaw, salad, etc. every chance I get now. Doesn't seem to have anything in it that is bad for me, and is neat to have the good dreams again. Just thought I'd pass that along. Anne H -- Can't go to sleep or back to sleep? Tired, stiff, in terrible pain? Can't think clearly? Weight gain? Acid reflux? Tingling? Fatigue? Read about Fibromyalgia and the first ever completely effective prescription-based treatment. All info is free. http://www.fibrofix.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2003 Report Share Posted November 27, 2003 Interesting. Doesn't that have pottassium? I remember some people wanting to take potassium for orthostatic hypotension, and the easiest way was said to be salt substitutes. I never heard any connection to potassium and dreaming... Is that one of the ingredients? Doris ----- Original Message ----- From: annehillebrand@... We ran across something odd this week. Someone suggested Mrs. Dash Original Flavor seasoning to aid thinking and dreaming. Am amazed to report, the Mrs. Dash really does make a difference. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.