Guest guest Posted October 31, 2003 Report Share Posted October 31, 2003 I tried it and it seemed to be a real energy raiser. I had to back off temporarily tho; I think it was pushing me beyond the limit of my immune system. I am not sure and will take it again. Adrienne NT Factor Anyone had any experince/info with NT Factor? I think it may be what's kicked me into a more active stage the past 2 weeks or so. It has a conglomeration of familiar vitamins and supplements, but also phosphoglycolipids. Any info on that? anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2003 Report Share Posted November 12, 2003 Pretty much what I gathered is that NT Factor is phosphoglycolipids. (also called glycophospholipids) Supposedly it is only available through health care professionals. http://www.immunesupport.com/library/showarticle.cfm/ID/4395/T/CFIDS_FM/ I know on the Lyme lists I'm on there has been recent talk about using lipid exchange, which I think is the same kind of principle. Right now the lipid that has been talked about is one called PhosChol, (which is available through Needs) which is basically phosphatidyl choline, which seems to be the primary ingredient in the NT Factor. The PhosChol is also the primary ingredient in the lipid exchange IV's that have been talked about on Lyme lists recently. There is another glycophospholipid that I ran across in reading research about NT Factor called Propax, which has NT Factor in it and can be ordered via the net. It is a multi-pill system that comes in little packets, and you take one packet per day or per meal. Here's one web site that sells it, and there were myriad's more: http://www.cancer-fatigue.com/ I am interested in this stuff, except that it is expensive, and I already spend a small fortune on supplements. So if I do this, something else will have to go, and at this point everything I'm taking is essential. So I can't report on my personal experiences, except that a couple years ago I had read a dissertation from a dentist down in Australia, who connected CFS, FM and Tempromandibular Joint Disorder with chronic staph infections. And among the recommendations was the use of lecithin to decrease the production of toxins from the staph. For some reason lecithin shut down the staph's toxin productions. So I tried taking lecithin to see if it would help, since I've been plagued with staphylococcus aureus infection in my sinuses and intestinal tract. Since I have IBS, (probably from the staph. aureus) the lecithin just aggravated everything somewhat, and I ended up feeling extremely irritable and wired. And of course we had a cascade of major stressors that hit after I got to the point of being wired and irritable, and I ended up crashing emotionally, and physically. It was a horrible ordeal, and I stopped the lecithin. Since phosphytidyl choline is made from lecithin, I have had concerns about doing this, and possibly bringing on the same problems as the lecithin caused. But the lipid exchange IV concept of replacing the damaged lipids in cell walls with good lipids, and also giving enough lipids to latch onto the fat soluble toxins to transport them out through the bile seems to make sense. lindaj@... NT Factor Hi all, You probably saw the paragraph below on Co-Cure this morning. Does anyone know what NT Factor is? It's not in my medical dictionary. ==================================== NT FACTOR FOR FATIGUE-A PILOT STUDY Agadjanyan et al. have presented the findings of their trial of the use of NT FactorT in fatigued patients. The NT FactorT treatment seems to have resulted in increased mitochondrial function with improvements in the patients fatigue status. A trial to evaluate the use of NT FactorT in the treatment of CFS patients would appear warranted in appropriate blinded, placebo controlled studies Best, Sue B., Upstate New York This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2003 Report Share Posted November 12, 2003 I am using Propax with NT factor. I am getting an overall feel better-more energy w.out buzz-benefit that I like. I am not yet on the full recommended dose. A lot of it is just a duplicate of my multi, so I have cut way back on it. I get it from ProHealth. NT Factor Hi all, You probably saw the paragraph below on Co-Cure this morning. Does anyone know what NT Factor is? It's not in my medical dictionary. ==================================== NT FACTOR FOR FATIGUE-A PILOT STUDY Agadjanyan et al. have presented the findings of their trial of the use of NT FactorT in fatigued patients. The NT FactorT treatment seems to have resulted in increased mitochondrial function with improvements in the patients fatigue status. A trial to evaluate the use of NT FactorT in the treatment of CFS patients would appear warranted in appropriate blinded, placebo controlled studies Best, Sue B., Upstate New York This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2003 Report Share Posted November 12, 2003 I thought I posted on this.. a doctor just gave me some a month ago. I had a fantastic reaction to it. Do a 'google' search. That may be the easiest way to read about it. There are not many hits. It came out in 2000. As far as I can see the ingredients are natural- vitamins, fats, herbs. The only words I do not recognize are phosphoglycolips (not sure of spelling, bottle at home). This was originally intended for chemo patients, to give them energy. I was amazed at the energy I had. A couple of cautions. First, my body got ahead of me. I knew I was getting over-tired from too much activity but it was hard to stop. The first day it hit me I went from no more than a 2 hour energy stretch of the past four years to an 8 HOUR DAY. It was unbelievable. I was in bed all the next day, however. That was my first and last 8- hour day, although I had a couple of 6-hour days. However, I could not 'rest' mentally. I kept wanting to do stuff, couldn't rest or concentrate enough to read (which is my favorite 'rest' activity). I loved getting stuff done (mostly cleaning and cooking) but I had to sacrifice concentration for anything else. Next, the pills only work as long as you take them. I ran out and crashed back to point 'zero'. Had another CFS'r tell me he set himself back after getting energy from alternative? pills/substances. I would like to understand the vitalizing source of this stuff. I'm wondering if it affects the fats and/or liver. Maybe one of you here that understand chemistry better can figure it out. anne > Hi all, > > You probably saw the paragraph below on Co-Cure this morning. Does anyone > know what NT Factor is? It's not in my medical dictionary. > ==================================== > NT FACTOR FOR FATIGUE-A PILOT STUDY > > Agadjanyan et al. have presented the findings of their trial of the use of > NT Factor™ in fatigued patients. The NT Factor™ treatment seems to have > resulted in increased mitochondrial function with improvements in the > patients fatigue status. A trial to evaluate the use of NT Factor™ in the > treatment of CFS patients would appear warranted in appropriate blinded, > placebo controlled studies > > Best, > Sue B., > Upstate New York Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2003 Report Share Posted November 12, 2003 " phosphytidyl " is this represented by the initials " PS " ? If so, I also crashed using it. anne > Pretty much what I gathered is that NT Factor is phosphoglycolipids. (also > called glycophospholipids) Supposedly it is only available through health > care professionals. > http://www.immunesupport.com/library/showarticle.cfm/ID/4395/T/CFIDS_F M/ > > I know on the Lyme lists I'm on there has been recent talk about using lipid > exchange, which I think is the same kind of principle. Right now the lipid > that has been talked about is one called PhosChol, (which is available > through Needs) which is basically phosphatidyl choline, which seems to be > the primary ingredient in the NT Factor. The PhosChol is also the primary > ingredient in the lipid exchange IV's that have been talked about on Lyme > lists recently. > > There is another glycophospholipid that I ran across in reading research > about NT Factor called Propax, which has NT Factor in it and can be ordered > via the net. It is a multi-pill system that comes in little packets, and you > take one packet per day or per meal. Here's one web site that sells it, and > there were myriad's more: > http://www.cancer-fatigue.com/ > > I am interested in this stuff, except that it is expensive, and I already > spend a small fortune on supplements. So if I do this, something else will > have to go, and at this point everything I'm taking is essential. So I can't > report on my personal experiences, except that a couple years ago I had read > a dissertation from a dentist down in Australia, who connected CFS, FM and > Tempromandibular Joint Disorder with chronic staph infections. And among the > recommendations was the use of lecithin to decrease the production of toxins > from the staph. For some reason lecithin shut down the staph's toxin > productions. So I tried taking lecithin to see if it would help, since I've > been plagued with staphylococcus aureus infection in my sinuses and > intestinal tract. Since I have IBS, (probably from the staph. aureus) the > lecithin just aggravated everything somewhat, and I ended up feeling > extremely irritable and wired. And of course we had a cascade of major > stressors that hit after I got to the point of being wired and irritable, > and I ended up crashing emotionally, and physically. It was a horrible > ordeal, and I stopped the lecithin. Since phosphytidyl choline is made from > lecithin, I have had concerns about doing this, and possibly bringing on the > same problems as the lecithin caused. But the lipid exchange IV concept of > replacing the damaged lipids in cell walls with good lipids, and also giving > enough lipids to latch onto the fat soluble toxins to transport them out > through the bile seems to make sense. > > > lindaj@h... > > NT Factor > > > Hi all, > > You probably saw the paragraph below on Co-Cure this morning. Does anyone > know what NT Factor is? It's not in my medical dictionary. > ==================================== > NT FACTOR FOR FATIGUE-A PILOT STUDY > > Agadjanyan et al. have presented the findings of their trial of the use of > NT FactorT in fatigued patients. The NT FactorT treatment seems to have > resulted in increased mitochondrial function with improvements in the > patients fatigue status. A trial to evaluate the use of NT FactorT in the > treatment of CFS patients would appear warranted in appropriate blinded, > placebo controlled studies > > Best, > Sue B., > Upstate New York > > > > This list is intended for patients to share personal experiences with each > other, not to give medical advice. If you are interested in any treatment > discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2003 Report Share Posted November 13, 2003 I wonder if someone has already tried the NF factor, I got of two days ago from De Meirleir annemie -----Oorspronkelijk bericht----- Van: ms4runr2 [mailto:ms4runr2@...] Verzonden: donderdag 13 november 2003 1:14 Aan: Onderwerp: Re: NT Factor " phosphytidyl " is this represented by the initials " PS " ? If so, I also crashed using it. anne > Pretty much what I gathered is that NT Factor is phosphoglycolipids. (also > called glycophospholipids) Supposedly it is only available through health > care professionals. > http://www.immunesupport.com/library/showarticle.cfm/ID/4395/T/CFIDS_F M/ > > I know on the Lyme lists I'm on there has been recent talk about using lipid > exchange, which I think is the same kind of principle. Right now the lipid > that has been talked about is one called PhosChol, (which is available > through Needs) which is basically phosphatidyl choline, which seems to be > the primary ingredient in the NT Factor. The PhosChol is also the primary > ingredient in the lipid exchange IV's that have been talked about on Lyme > lists recently. > > There is another glycophospholipid that I ran across in reading research > about NT Factor called Propax, which has NT Factor in it and can be ordered > via the net. It is a multi-pill system that comes in little packets, and you > take one packet per day or per meal. Here's one web site that sells it, and > there were myriad's more: > http://www.cancer-fatigue.com/ > > I am interested in this stuff, except that it is expensive, and I already > spend a small fortune on supplements. So if I do this, something else will > have to go, and at this point everything I'm taking is essential. So I can't > report on my personal experiences, except that a couple years ago I had read > a dissertation from a dentist down in Australia, who connected CFS, FM and > Tempromandibular Joint Disorder with chronic staph infections. And among the > recommendations was the use of lecithin to decrease the production of toxins > from the staph. For some reason lecithin shut down the staph's toxin > productions. So I tried taking lecithin to see if it would help, since I've > been plagued with staphylococcus aureus infection in my sinuses and > intestinal tract. Since I have IBS, (probably from the staph. aureus) the > lecithin just aggravated everything somewhat, and I ended up feeling > extremely irritable and wired. And of course we had a cascade of major > stressors that hit after I got to the point of being wired and irritable, > and I ended up crashing emotionally, and physically. It was a horrible > ordeal, and I stopped the lecithin. Since phosphytidyl choline is made from > lecithin, I have had concerns about doing this, and possibly bringing on the > same problems as the lecithin caused. But the lipid exchange IV concept of > replacing the damaged lipids in cell walls with good lipids, and also giving > enough lipids to latch onto the fat soluble toxins to transport them out > through the bile seems to make sense. > > > lindaj@h... > > NT Factor > > > Hi all, > > You probably saw the paragraph below on Co-Cure this morning. Does anyone > know what NT Factor is? It's not in my medical dictionary. > ==================================== > NT FACTOR FOR FATIGUE-A PILOT STUDY > > Agadjanyan et al. have presented the findings of their trial of the use of > NT FactorT in fatigued patients. The NT FactorT treatment seems to have > resulted in increased mitochondrial function with improvements in the > patients fatigue status. A trial to evaluate the use of NT FactorT in the > treatment of CFS patients would appear warranted in appropriate blinded, > placebo controlled studies > > Best, > Sue B., > Upstate New York > > > > This list is intended for patients to share personal experiences with each > other, not to give medical advice. If you are interested in any treatment > discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2003 Report Share Posted November 13, 2003 Yes, and I got a huge boost of energy. Huge. However, my concentration degraded, I could not rest mentally, nor read and rest. And I could not stop 'doing' which means I crashed every other day. I am trying again, with a smaller dose. I notice the difference in my concentration, in my ability to relax. anne > > Pretty much what I gathered is that NT Factor is > phosphoglycolipids. (also > > called glycophospholipids) Supposedly it is only available through > health > > care professionals. > > > http://www.immunesupport.com/library/showarticle.cfm/ID/4395/T/CFIDS_F > M/ > > > > I know on the Lyme lists I'm on there has been recent talk about > using lipid > > exchange, which I think is the same kind of principle. Right now > the lipid > > that has been talked about is one called PhosChol, (which is > available > > through Needs) which is basically phosphatidyl choline, which seems > to be > > the primary ingredient in the NT Factor. The PhosChol is also the > primary > > ingredient in the lipid exchange IV's that have been talked about > on Lyme > > lists recently. > > > > There is another glycophospholipid that I ran across in reading > research > > about NT Factor called Propax, which has NT Factor in it and can be > ordered > > via the net. It is a multi-pill system that comes in little > packets, and you > > take one packet per day or per meal. Here's one web site that sells > it, and > > there were myriad's more: > > http://www.cancer-fatigue.com/ > > > > I am interested in this stuff, except that it is expensive, and I > already > > spend a small fortune on supplements. So if I do this, something > else will > > have to go, and at this point everything I'm taking is essential. > So I can't > > report on my personal experiences, except that a couple years ago I > had read > > a dissertation from a dentist down in Australia, who connected CFS, > FM and > > Tempromandibular Joint Disorder with chronic staph infections. And > among the > > recommendations was the use of lecithin to decrease the production > of toxins > > from the staph. For some reason lecithin shut down the staph's toxin > > productions. So I tried taking lecithin to see if it would help, > since I've > > been plagued with staphylococcus aureus infection in my sinuses and > > intestinal tract. Since I have IBS, (probably from the staph. > aureus) the > > lecithin just aggravated everything somewhat, and I ended up feeling > > extremely irritable and wired. And of course we had a cascade of > major > > stressors that hit after I got to the point of being wired and > irritable, > > and I ended up crashing emotionally, and physically. It was a > horrible > > ordeal, and I stopped the lecithin. Since phosphytidyl choline is > made from > > lecithin, I have had concerns about doing this, and possibly > bringing on the > > same problems as the lecithin caused. But the lipid exchange IV > concept of > > replacing the damaged lipids in cell walls with good lipids, and > also giving > > enough lipids to latch onto the fat soluble toxins to transport > them out > > through the bile seems to make sense. > > > > > > lindaj@h... > > > > NT Factor > > > > > > Hi all, > > > > You probably saw the paragraph below on Co-Cure this morning. Does > anyone > > know what NT Factor is? It's not in my medical dictionary. > > ==================================== > > NT FACTOR FOR FATIGUE-A PILOT STUDY > > > > Agadjanyan et al. have presented the findings of their trial of the > use of > > NT FactorT in fatigued patients. The NT FactorT treatment seems to > have > > resulted in increased mitochondrial function with improvements in > the > > patients fatigue status. A trial to evaluate the use of NT FactorT > in the > > treatment of CFS patients would appear warranted in appropriate > blinded, > > placebo controlled studies > > > > Best, > > Sue B., > > Upstate New York > > > > > > > > This list is intended for patients to share personal experiences > with each > > other, not to give medical advice. If you are interested in any > treatment > > discussed here, please consult your doctor. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2003 Report Share Posted November 14, 2003 PS is phosphatidylserine and PC is phosphatidylcholine RE: Re: NT Factor I wonder if someone has already tried the NF factor, I got of two days ago from De Meirleir annemie -----Oorspronkelijk bericht----- Van: ms4runr2 [mailto:ms4runr2@...] Verzonden: donderdag 13 november 2003 1:14 Aan: Onderwerp: Re: NT Factor " phosphytidyl " is this represented by the initials " PS " ? If so, I also crashed using it. anne > Pretty much what I gathered is that NT Factor is phosphoglycolipids. (also > called glycophospholipids) Supposedly it is only available through health > care professionals. > http://www.immunesupport.com/library/showarticle.cfm/ID/4395/T/CFIDS_F M/ > > I know on the Lyme lists I'm on there has been recent talk about using lipid > exchange, which I think is the same kind of principle. Right now the lipid > that has been talked about is one called PhosChol, (which is available > through Needs) which is basically phosphatidyl choline, which seems to be > the primary ingredient in the NT Factor. The PhosChol is also the primary > ingredient in the lipid exchange IV's that have been talked about on Lyme > lists recently. > > There is another glycophospholipid that I ran across in reading research > about NT Factor called Propax, which has NT Factor in it and can be ordered > via the net. It is a multi-pill system that comes in little packets, and you > take one packet per day or per meal. Here's one web site that sells it, and > there were myriad's more: > http://www.cancer-fatigue.com/ > > I am interested in this stuff, except that it is expensive, and I already > spend a small fortune on supplements. So if I do this, something else will > have to go, and at this point everything I'm taking is essential. So I can't > report on my personal experiences, except that a couple years ago I had read > a dissertation from a dentist down in Australia, who connected CFS, FM and > Tempromandibular Joint Disorder with chronic staph infections. And among the > recommendations was the use of lecithin to decrease the production of toxins > from the staph. For some reason lecithin shut down the staph's toxin > productions. So I tried taking lecithin to see if it would help, since I've > been plagued with staphylococcus aureus infection in my sinuses and > intestinal tract. Since I have IBS, (probably from the staph. aureus) the > lecithin just aggravated everything somewhat, and I ended up feeling > extremely irritable and wired. And of course we had a cascade of major > stressors that hit after I got to the point of being wired and irritable, > and I ended up crashing emotionally, and physically. It was a horrible > ordeal, and I stopped the lecithin. Since phosphytidyl choline is made from > lecithin, I have had concerns about doing this, and possibly bringing on the > same problems as the lecithin caused. But the lipid exchange IV concept of > replacing the damaged lipids in cell walls with good lipids, and also giving > enough lipids to latch onto the fat soluble toxins to transport them out > through the bile seems to make sense. > > > lindaj@h... > > NT Factor > > > Hi all, > > You probably saw the paragraph below on Co-Cure this morning. Does anyone > know what NT Factor is? It's not in my medical dictionary. > ==================================== > NT FACTOR FOR FATIGUE-A PILOT STUDY > > Agadjanyan et al. have presented the findings of their trial of the use of > NT FactorT in fatigued patients. The NT FactorT treatment seems to have > resulted in increased mitochondrial function with improvements in the > patients fatigue status. A trial to evaluate the use of NT FactorT in the > treatment of CFS patients would appear warranted in appropriate blinded, > placebo controlled studies > > Best, > Sue B., > Upstate New York > > > > This list is intended for patients to share personal experiences with each > other, not to give medical advice. If you are interested in any treatment > discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2003 Report Share Posted November 14, 2003 Anne, I appreciate your description of your experience. I often feel like I can't get my brain and the rest of my body to play in the same game. One is usually ahead of the other. Right now, thanks to a couple of years of b12 my brain is pretty consistently ahead of my body energy- and my immunity. Either the mental capacity to desire and plan activity or the physical rush you had can make it hard for me not to overdo it. I do find that if I take helpful things in small doses to start, I can better stay out of trouble. I took a full dose of Propax (w. NT factor), and body was out ahead of brain right away. Couldn't think straight. Now am taking half a packet. I have cut back on my multi, to save money, since most of what is in it is also in the Propax. Adrienne ----- Original Message ----- From: ms4runr2 I thought I posted on this.. a doctor just gave me some a month ago. I had a fantastic reaction to it. Do a 'google' search. That may be the easiest way to read about it. There are not many hits. It came out in 2000. As far as I can see the ingredients are natural- vitamins, fats, herbs. The only words I do not recognize are phosphoglycolips (not sure of spelling, bottle at home). This was originally intended for chemo patients, to give them energy. I was amazed at the energy I had. A couple of cautions. First, my body got ahead of me. I knew I was getting over-tired from too much activity but it was hard to stop. The first day it hit me I went from no more than a 2 hour energy stretch of the past four years to an 8 HOUR DAY. It was unbelievable. I was in bed all the next day, however. That was my first and last 8- hour day, although I had a couple of 6-hour days. However, I could not 'rest' mentally. I kept wanting to do stuff, couldn't rest or concentrate enough to read (which is my favorite 'rest' activity). I loved getting stuff done (mostly cleaning and cooking) but I had to sacrifice concentration for anything else. Next, the pills only work as long as you take them. I ran out and crashed back to point 'zero'. Had another CFS'r tell me he set himself back after getting energy from alternative? pills/substances. I would like to understand the vitalizing source of this stuff. I'm wondering if it affects the fats and/or liver. Maybe one of you here that understand chemistry better can figure it out. anne > Hi all, > > You probably saw the paragraph below on Co-Cure this morning. Does anyone > know what NT Factor is? It's not in my medical dictionary. > ==================================== > NT FACTOR FOR FATIGUE-A PILOT STUDY > > Agadjanyan et al. have presented the findings of their trial of the use of > NT FactorT in fatigued patients. The NT FactorT treatment seems to have > resulted in increased mitochondrial function with improvements in the > patients fatigue status. A trial to evaluate the use of NT FactorT in the > treatment of CFS patients would appear warranted in appropriate blinded, > placebo controlled studies > > Best, > Sue B., > Upstate New York Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2004 Report Share Posted April 2, 2004 Absolutely very good for me. I have been on it for a few months now. I could feel my energy change pretty quickly. I have decreased the amt. of multi-vitamin I was using in favor of Propax w. NT FActor. NT Factor alone is only sold to practioners, but I checked w. Pro-Health, and the research they are reporting, at least one of those studies (the one on fatigue?) was actually done w. the Propax product, not the NT alone. I can't recall clearly, (never can, dammit), but I do know I felt assured that I would be in the ballpark doseagewise if I took the Propax, and did not need to bother with getting the NT alone. I have to say that for some months now, everything I try seems to help, at least a little. Something good is happening for me at last, after being in a pit for many years. Adrienne NT Factor Anybody try this? It's in the current pro-health newsletter as a phoshpolipid. I haven't looked it up yet. One doctor was saying how great it was and increased energy. This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2004 Report Share Posted April 2, 2004 Hmm, thanks for your observations. Just in time. I increased my dosage recently, and I am starting to feel a little unbalanced. Will cut back. I think I need more b12 to balance it, too. Maybe back to daily shots. As for a cure; I am well aware nothing so far cures my condition. There's lots of stuff I take,(all " natural " ), that i would crash really badly if I stopped. After many years I am just now getting back the muscle strength I lost when I mistakenly quit Magnesium. Wrecked my brain from lack of Mg.at that time, too. And then there was a slow awful decline when I could not afford massage for several years. Adrienne NT Factor > > > Anybody try this? It's in the current pro-health newsletter as a > phoshpolipid. I haven't looked it up yet. One doctor was saying how > great it was and increased energy. > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > > > -------------------------------------------------------------------- ---------- > Quote Link to comment Share on other sites More sharing options...
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