Re: I need one dose of Isoprinosine, please.

[Guest guest]

Afrienne, I could send you a pill. The only problem I noticed is

that it is processed with corn, to which I am very allergic. I took

it anyway and got a big stomachache. (I assumed it was the corn) I

spoke to Bill Chick, the man who sells it, and he said that it would

be too much work to change their processing to remove the binding

ingredients.

Back channel me with your address and I will put one in an envelope.

> Recently I wrote to Judith "

>

> " I am wanting to start on Isoprinosine. Am wondering if you have

any and

> could you send me a sample before I invest? "

>

> She replied (in part),

>

> " sorry, I don't have any.... I would be leary about taking this

w/o a dr.'s

> recommendation since its a strong drug. . Does your alternative

doc do

> muscle testing? If so, I'm sure you could get someone on the list

to send

> you just a pill or two for that. "

>

> So: can anyone oblige me with a pill?

> And has anyone had any problems with taking it- before I get

myself in

> trouble, please?

>

> Adrienne

[Guest guest]

Hi Adrienne,

I can send you some Isoprinosine but am in London,

England and we have a mail strike right now and it

make take a few weeks to get to you.

Let me know if you can't get some from a more reliable

and closer source and I will send it to you. Please

let me know your address off-list.

Although I can tolerate it other people have reported

stomach problems, headaches and an increase in viral

symptoms.

With kindest regards,

Annette

annette_barclayuk@...

________________________________________________________________________

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[Guest guest]

Adrienne,

I took isoprinosine about two years ago for two months using Cheney's

pulsing method. It made me much worse, a relapse really to earlier phases of the

illness -- and it took me about 2 months to recover to my " old " level.

I'd read it was fairly mild, didn't have side effects, and the biggest risk

was that it would do nothing. I don't, unfortunately, no any tests or signs

that are predictors of doing well on it.

I still have one unopened bottle that's I think 1.5 years old.

michael

Recently I wrote to Judith "

>

>

> " I am wanting to start on Isoprinosine. Am wondering if you have any and

> could you send me a sample before I invest? "

>

> She replied (in part),

>

> " sorry, I don't have any.... I would be leary about taking this w/o a dr.'s

> recommendation since its a strong drug. . Does your alternative doc do

> muscle testing? If so, I'm sure you could get someone on the list to send

> you just a pill or two for that. "

>

> So: can anyone oblige me with a pill?

> And has anyone had any problems with taking it- before I get myself in

> trouble, please?

>

> Adrienne

>

>

>

>

> This list is intended for patients to share personal experiences with each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

>

>

[Guest guest]

Adrienne,

Here's my Isophrinosine experience, which you should keep in mind. I first

took ISO about 15 years ago, and I was following the AIDS protocol then,

3000 mg a day for a month or two(?, can't remember for sure). I took it on

at least 10 different occasions over the next 5 years. I credit the first

usage with bringing my level of symptoms down a couple of levels, including

getting rid of a 3 year sore throat that I'd had since the beginning of

CFIDS. After the first times I found that the only real noticiable effect I

had from taking it was that 2 or 3 days later I would get stronger

physically. I'm lucky to be able to exercise moderately, I swim and it

almost always makes me feel better (oxygenates my body???). But my swims

are on the weak side (I used to be a surfer and was once very strong, B.C.)

It was noticiable that after I'd take the ISO I would be twice as strong for

a week or so. That effect would only appear if there was a period of months

between the ISO usage.

About the 10th time or so I had a real bad experience and became much

sicker, with a lot of symptoms returning and not subsiding over time. I'd

had a number of EBV antibody panels before this and had one a few months

after this worsening. The interesting thing was that for the first time I

showed antibodies of the EBV IGM class. From what I've read the IGM test

only shows positive when you have active Epstein Barr Virus in your blood.

Isophrinosine is promoted as an immune boosting substance but it's actually

an immunemodulator, and if I understand this correctly that means it can

booster your immune system under certain circumstances, and suppress it

under others. Around that time I had also read a letter in a medical

journal, ls of Internal Medicine I believe, where a doctor was reporting

of an immune suppression case caused by the use of Isophrinosine. Putting

two and two together, especially because of the positive EBV IGM test, I

concluded that I was suffering from an unwanted suppression of my immune

system(or parts of it anyhow) and my own personal EBV was loose.

Six months later with no sign of any abatement of these increased symptoms I

decided the only thing to do was to try Isophrinosine again, in smaller

quantity. I did this, taking 1000mg a day for a month or two and that

seemed to work, the symptoms lessened over the next year or two, although

one of them that I called " throat nausea " (caused by the adrenaline rush I'd

get whenever I was late for something, which was/is quite often) stayed with

me for years after that, and I probably still get it but not enough to

remember the last time.

Since Isophrinosine has become so popular recently, I just started taking it

again but cautiously, only taking one 500mg

pill a day and following the on/off protocal. It still gives me increased

strength occasionally but only if I haven't taken it for several months.

That's my story, not trying to discourage you at all, but just to let you

and everyone know that this stuff is not candy and even though I can't prove

it caused the situation I just wrote about, you have to consider the

possibility. I was taking Piracetan, very high Vit C(40 grams/ day), and

one other substance at the same time so it might have been the combination,

who

knows? Just remember it's an immune modulator so it can push your system to

the other side of the bell shaped curve.

I need one dose of Isoprinosine, please.

> Recently I wrote to Judith "

>

> " I am wanting to start on Isoprinosine. Am wondering if you have any and

> could you send me a sample before I invest? "

>

> She replied (in part),

>

> " sorry, I don't have any.... I would be leary about taking this w/o a

dr.'s

> recommendation since its a strong drug. . Does your alternative doc do

> muscle testing? If so, I'm sure you could get someone on the list to send

> you just a pill or two for that. "

>

> So: can anyone oblige me with a pill?

> And has anyone had any problems with taking it- before I get myself in

> trouble, please?

>

> Adrienne

>

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

[Guest guest]

,

Certainly a mixed experience you had. I will keep it in mind. I am still

considering the instructions I found here on combining inosine w. PABA instead.

And i will have any of it muscle tested before I take any.

Thanks,

Adrienne

Adrienne,

Here's my Isophrinosine experience, which you should keep in mind. I first

took ISO about 15 years ago, and I was following the AIDS protocol then,

3000 mg a day for a month or two(?, can't remember for sure). I took it on

at least 10 different occasions over the next 5 years. I credit the first

usage with bringing my level of symptoms down a couple of levels, including

getting rid of a 3 year sore throat that I'd had since the beginning of

CFIDS. After the first times I found that the only real noticiable effect I

had from taking it was that 2 or 3 days later I would get stronger

physically. I'm lucky to be able to exercise moderately, I swim and it

almost always makes me feel better (oxygenates my body???). But my swims

are on the weak side (I used to be a surfer and was once very strong, B.C.)

It was noticiable that after I'd take the ISO I would be twice as strong for

a week or so. That effect would only appear if there was a period of months

between the ISO usage.

About the 10th time or so I had a real bad experience and became much

sicker, with a lot of symptoms returning and not subsiding over time. I'd

had a number of EBV antibody panels before this and had one a few months

after this worsening. The interesting thing was that for the first time I

showed antibodies of the EBV IGM class. From what I've read the IGM test

only shows positive when you have active Epstein Barr Virus in your blood.

Isophrinosine is promoted as an immune boosting substance but it's actually

an immunemodulator, and if I understand this correctly that means it can

booster your immune system under certain circumstances, and suppress it

under others. Around that time I had also read a letter in a medical

journal, ls of Internal Medicine I believe, where a doctor was reporting

of an immune suppression case caused by the use of Isophrinosine. Putting

two and two together, especially because of the positive EBV IGM test, I

concluded that I was suffering from an unwanted suppression of my immune

system(or parts of it anyhow) and my own personal EBV was loose.

Six months later with no sign of any abatement of these increased symptoms I

decided the only thing to do was to try Isophrinosine again, in smaller

quantity. I did this, taking 1000mg a day for a month or two and that

seemed to work, the symptoms lessened over the next year or two, although

one of them that I called " throat nausea " (caused by the adrenaline rush I'd

get whenever I was late for something, which was/is quite often) stayed with

me for years after that, and I probably still get it but not enough to

remember the last time.

Since Isophrinosine has become so popular recently, I just started taking it

again but cautiously, only taking one 500mg

pill a day and following the on/off protocal. It still gives me increased

strength occasionally but only if I haven't taken it for several months.

That's my story, not trying to discourage you at all, but just to let you

and everyone know that this stuff is not candy and even though I can't prove

it caused the situation I just wrote about, you have to consider the

possibility. I was taking Piracetan, very high Vit C(40 grams/ day), and

one other substance at the same time so it might have been the combination,

who

knows? Just remember it's an immune modulator so it can push your system to

the other side of the bell shaped curve.

[Guest guest]

,

Hi.

I am trying to clean upmy email, and came across this note from you. First of

all, thanks for the warning.

Secondly, would you like to sell me that unopened bottle- presuming it has an

expiration date on it? I sure would like to get a sample before I invest in a

bunch- and I am still having trouble getting my doc to sign off on it.

Even if it is a little past expiration, I would be interested.

Thanks,

Adrienne

Re: I need one dose of Isoprinosine, please.

Adrienne,

I took isoprinosine about two years ago for two months using Cheney's

pulsing method. It made me much worse, a relapse really to earlier phases of

the

illness -- and it took me about 2 months to recover to my " old " level.

I'd read it was fairly mild, didn't have side effects, and the biggest risk

was that it would do nothing. I don't, unfortunately, no any tests or signs

that are predictors of doing well on it.

I still have one unopened bottle that's I think 1.5 years old.

michael

Recently I wrote to Judith "

>

>

> " I am wanting to start on Isoprinosine. Am wondering if you have any and

> could you send me a sample before I invest? "

>

> She replied (in part),

>

> " sorry, I don't have any.... I would be leary about taking this w/o a dr.'s

> recommendation since its a strong drug. . Does your alternative doc do

> muscle testing? If so, I'm sure you could get someone on the list to send

> you just a pill or two for that. "

>

> So: can anyone oblige me with a pill?

> And has anyone had any problems with taking it- before I get myself in

> trouble, please?

>

> Adrienne

>

>

>

>

> This list is intended for patients to share personal experiences with each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

>

>