Re: Digest Number 45

November 6, 1998

On another note...not just the fact that vaccines are grown in animal tissues

and even in the tissues of aborted fetuses. When animal tissues are used and

then introduced into the bodies systemically (into the tissues and blood

stream) They can contain animal viruses which are made up of DNA and RNA.

That make up allows those viruses to combine with our own human DNA. This can

cause a mutation in cells and then make us suseptible to viruses that would

otherwise have been harmless to us if exposed externally. These viruses have

been PROVEN to cause extreme illness in animals, immune dysfunction, disease,

cancer/leukemia once the viruses have bonded with our own DNA, thus making us

suseptible (that is a virus effectively jumping species when it never would

have externally) How do we expect it will affect us as humans?

It would be interesting to know just how many politicians, executives of drug

companies, members of the CDC and other like organization have been vaccinated

and had their own families vaccinated. I mean with the real immunization not

a placebo to make us think they were vaccinated. (That sounds like a trick

that President Clinton might pull to pull the wool over the eyes of the

American public) Nothing would surprise me now days.

Robin Guilfoyle, RN, BSN, BA

November 6, 1998

The whole whether or not to vaccinate question aside, I have a problem

with them using animals to grow them.....like they are negligible

utilities, designed for our use!! Give me a break. Even if we do

decide to get the vaccines they are talking about, guess the milk one is

out of the question, since our household doesn't really do dairy!! Just

my .02.

( I personally wouldnt mind not having to deal with needles though )

Sue

May 15, 1999

JOAN,If God didn't give us more than we can handle, why are they so many

people in the cemetary?

May 15, 1999

>JOAN,If God didn't give us more than we can handle, why are they so many

>people in the cemetary? <

Maybe that was what they could handle.

Geri

May 17, 1999

Very good response Geri.

> Re: [ ] Digest Number 45

>

> From: Geri Spang <spangs@...>

>

> >JOAN,If God didn't give us more than we can handle, why are they so many

> >people in the cemetary? <

>

> Maybe that was what they could handle.

> Geri

>

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May 25, 1999

Dear Liz,

While the GI tract is certainly " out of balance " in these children, and in

turn one could argue subject to accumulation of " negative " factors, I do not

as a Pediatrician feel comfortable with any repeated usage of " ex-lax. " If

an " occasional " usage helped you son, I couldn't say that was wrong, but as

I have tried to stress, the gut Is only a secondary part of the

neuro-immune-gut triad, and the overall focus should be to help a child's

body become healthy (in which case the gut will heal / clear itself).

Take care,

MJG

Date: Wed, 19 May 1999 13:25:53 EDT

From: Lizanj@...

Subject: 'Autistic Gut'dx today!

....Dear All,

am boggled indeed that today my GP reluctantly(!!)

informed me that our local Ped.Gastroenteroligist has diagnosed my son as

suffering from 'autistic gut' and the only treatment available is

laxatives....''try 'Ex-Lax''....and'' we'll review the situation in four

months' time. '' Well, I would be grateful for any suggestions as to how I

can boost s immune system to fight the viruses (if measles is one of

them....there isn't a treatment) and to help heal his, obviously, painful

guts....I cant believe they have actually comitted this diagnosis to

paper...At least Dr.Wakefield has opened the eyes of the medical profession

to this problem and made them sit up and listen....( though I wish he had a

cure for it, as I know he doesn't to- date) but good on him and AiA for

getting the problem highlighted this far... this has to at least help

identify certain 'sub-groups' of Autism. Liz Lucy (still in shock!!).

February 13, 2000

Dear Suzy:

A couple of things that may offer a slightly different picture.

First, I do not have HCV, but my wife does. Second, I am a Family Nurse

Practitioner, and because of where I am in Florida, my wife's situation,

and the lack of any really good gastroenterologists, and no

hepatologist, I have learned a great deal very quickly, both because of

my wife's situation, and because I found myself the source of many HCV

patients looking for some continuity of care, and someone who would

care.

I was soon plunged into the whole hepatitis thing very carefully,

and because of my wife's responses, I felt like I was taking a crash

course in microbiology, pathophysiology, and biochemistry to name a few.

Since I was not originally prepared to specialize in this area, I

learned and relearned in greater depth. I also, used any and every

available resource, experts, studies, conferences, etc., to learn, and

gain as much support from others who had specialized in this field, as

possible.

I am also speaking on the first hand knowledge of what I have seen,

others I have discussed HCV with, on what they seen, etc.

I can not speak from being the patient, but I also have seen enough

similarities, and experiences, that I do feel like I can speak from both

sides. My practices have always been to take however much time is needed

to speak to each and everyone I see, and to encourage them to also

learn, so they can help us both.

From what I know, there are mixed reports on the combo therapies,

but, if this is your first trial of any meds, it is probably one of your

best shots. Straight interferon has not worked as well as has the combo,

for a large number of people. There are various side effects, some are

experienced by the majority, and some have better or worse experiences.

Usually the first week or so the interferon injections make most

people pretty wiped out. Getting premedications for nausea, ibuprofen

for temp, and taking it easy, with some gatorade, may be handy to have

around. The usual symptoms are " flu " like, in that, people get very

achy, may run low temps, loss of appetite, fatigue, nausea, headaches,

and just feeling like you were hit by a truck. Also, many do well

starting with an antidepressant, not only because of the meds, but just

because you are hit with this lousy disease, if nothing else.

The interferon seems to be what causes a large part of your

feelings, but, the ribaviran is also have some affect. Most people get

anemic, and this does not help the fatigue. While in many people this

does get less problematic, for some it becomes a problem throughout

therapy.

If you respond to the meds, then a year is probably worth the flu

symptoms. If not, there are other treatments that are in the works. I

have personally met a fairly large number of people who have responded

very positively, and one is about 8 years with any detectable viral

load. As many on this list have also said, it does have it's failures.

Whether to start or not start therapy must be YOUR decision. I would

suggest you read what you can, join a support group, and if you are a

true candidate, consider the pros and cons of therapy. It is expensive,

will consume a great part of the year of therapy, may make you feel like

?????, and may not work for you. On the other hand, it may place the

virus into a long term or permanent remission, and if nothing else, keep

the virus in check until a cure, or better things come along.

As I believe and have stated, everyone's body chemistry reacts

differently. If we could look into the future and see both scienaros,

and then make our decision on what we have in hindsight, it would be

much easier. We can't, so you have to make the best guess on what you

know now.

In my wife's case, she hates the shots and does have some achiness

the next day. Her blood counts have remained on the low side, but are

stable. Her liver function tests have remained normal from the begining

of therapy, and her viral counts have remained undetectable. She is

genotype 1b, so we are hoping this will work for her. She only has about

12 weeks to go before she has completed her year. Was it worth it, only

time will tell. But, if it meant this or chancing her liver would be

destroyed, this was the better. It has not been easy for her, or for me,

since some type of friend, spouse or significant other, who really

cares, feels a different kind of pain.

The only thing I feel really strongly about is that you should make

as informative decision as possible, and the decision should be yours.

Neither your provider, husband, etc., has to live with whatever happens,

and you will. Don't let anyone talk you into it or out of it, unless

there are some good, medically based information for them. Everyone's a

different person, and, since you are HCV positive, you have to make the

choices, and then live with them no matter which way they go.

The only other suggestion I can make is to try and have something to

take your mind off things, and use the list serves, support groups,

etc., as much as possible when you need it. If you can find something to

laugh about every day, it will not only help you through this period,

but, with the HCV and life as well.

I hope this helps some. Please keep me informed. Marty

February 18, 2000

Marty:

I wanted to write right away but you write such nice long messages I wanted

to do the same. I am also a procrastinator so consider this time period

excellent. Thank You so much for all the support and hope the tx works for

your wife. I feel like I am informed, probably could read more studies but

don't always understand it all but most of it. Maybe I'm not ready I still

have doubts, mostly scared of the side effects because of the fact that I

am very sensitive to medications, The people;e of Florida are lucky to have

you around , you are a very sensitive and caring individual. I go to talk

to my GI doc Mon so will discuss it with him, although I know he will want

me to start, I would like to know my genotype first, can't believe how

much I vacillate between to start or not to start. Its just that the bio

tech companies all seem to have something on the horizon, all of which

sound very promising. I think they will have something in the next 5

years if not sooner. I am not feeling that poorly , have my days of not

feeling well at all, but for the most part am okay but the thought of not

feeling well for a year yuck!!

Some part of me is holding back for some reason, its not the money really

although thats a lot to spend if it doesn't work, but its only money, the

price of a new car, hopefully I will outlive that. Think the procedures on

the horizon are going to be a lot cheaper also. Do you know of anyone that

goes to Mexico to get meds, wonder if they would be cheaper down there

suppose you would have to worry about the quality of course with the kits

prob does not make to big of a diff.

Its funny the curves life throws you. I wish you well . guess the chances

of this working are much better than going to the casinos, and people throw

their money away on that all the time, with astronomical odds against them

30-40% chance is pretty good . I was wondering if knowing my genotype will

help me make the decision? Your wife has 1 b and that is one of them that

has a lower % chance and are her counts staying low? Never mind I guess so,

was this from the beginning? Was she able to work? that is another

concern I work and am tired now at work what will it be like on tx. I

think it will not help also that I work nights, even though there is less

stress but biorhythms are out of whack .

I will pray for you and your wife that the viral count remains undetectable

and strength to continue on. I'm sure every day is a journey for her and

you. I will sign off now but may the peace of God be with you.

Suzy

From: " byteme " <byteme@...>

Reply-Hepatitis Conelist

Hepatitis Conelist

Subject: Re: Digest Number 45

Date: Sun, 13 Feb 2000 03:09:13 -0600