Guest guest Posted September 17, 1999 Report Share Posted September 17, 1999 What is it specifically about DAN that does not jive with Dr Goldberg. Thank you >From: " Montgomery " <mont@...> >Reply-onelist > " " <onelist> >Subject: Goldberg/Kane/DAN >Date: Thu, 16 Sep 1999 10:53:05 -0500 > >From: " Montgomery " <mont@...> > >Hi all, > >My son is a Goldberg pt. Goldberg has made it clear that he does not jive >with the DAN docs. He has a different opinion. I trust him. I was >planning to attend the DAN conference, but have since changed my mind, as >he >does not agree with what all they are saying. Anyone else in the same >boat? > >Also, I want to implement some of Dr. Kane's ideas, although I >have >not taken my son to see her. I have just read some of her stuff. Has any >Goldberg pts also tried the Kane approach with success?? > >Trina > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 1999 Report Share Posted September 17, 1999 Hi, If I remember correctly, he feels they are focusing on different parts of their illness, instead of looking at the whole picture. I know that he questions the safety of some of the treatments being used. Hopefully with the trials funded by MAT, there will be better treatments available, the immune modulators. Cheryl > From: " Liz Birt " <hope79@...> > > What is it specifically about DAN that does not jive with Dr Goldberg. > Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 1999 Report Share Posted September 17, 1999 From my time spent working with Dr. G, (since 1996), I've come to understand that he agrees , along with the DAN docs, that we are working with immune dysfunction. The primary way that he diverges from the DAN protocol (from my understanding), is that Dr. G's focus is not on figuring out how this happened to our children, but in pushing through the new immunomodulators---in other words , let's fix this problem as fast as possible. I think Dr. G appreciates the contributions of the DAN docs, just differs in what he is doing about the problem. Dr. G does not think that the use of sectetin and IVIG infusion is a safe way to go; since he's gotten good results with kutapressin and since it's been used for years without problem by patients with shingles etc, he feels it's a safe thing to try. What Dr. G has seen in his own practice is that although a lot of interventions (like the megadose vitamins, and other supplements) initially help, when the child's immune system starts regulating , the supplements start having a negative effect. That is why he stresses eliminating problem foods and minimizing supplementation, normalizing the child's immune system as much as possible, and then slowly and systematically trying the extremely safe choices. If you look at the list of doctors making up the board (www.nids.net), you will see that all of the people making it up are in fact MD's. Dr. Goldberg has done a great job working with my children's " mainstream " docs--any divisiveness that has been created has certainly not been generated by him. What I continually hear from Dr. G is that he desires for us all to work together, and thus get our kids helped SOONER. Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 1999 Report Share Posted September 17, 1999 Serotonin selective reuptake inhibitor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 1999 Report Share Posted September 17, 1999 SSRI = a.k.a. the antidepressants (used for our kids to help with oxygenation of the brain ... it's really helped my kid and thousands of others). Includes prozac, celexe. zoloft, paxil. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 1999 Report Share Posted September 17, 1999 I don't agree with this. Dr. Goldberg does not have a different opinion. He stresses this is autoimmune and so do ALL the DAN! docs. I stayed away from DAN! for a long time, too. Then I learned so much from those docs. Dr. Baker who was the author of the DAN! protocol recommends anti-virals, anti-fungals, SSRIs, just like Dr. Goldberg. Nothing has helped my daughter more than the gf/cf diet. I learned about that at the DAN! conference. It is definitely worthwhile. Of all the docs at the DAN! last year, only two had heard of kutapressin. The rest were very interested to hear what it was and how it was being used. Perhaps Dr. G. should continue to share information with these docs instead of being so divisive. Dr. Kalle Reichelt is a DAN! doc, and he does not agree with the use of secretin. Neither does Sudhir Gupta. Even Vijendra Singh is a DAN! doc. Dr. G. chooses to omit the success Vijendra Singh shows in treating autistic kids with sphingolin, prednisone, IVIG and secretin. Dr. Goldberg also stresses that most the DAN! docs are PhDs and not MDs. Yet his own committee has just as many PhDs, and he continues to turn to the chemists in the pharmaceutical industry to create those immune modulators. Dr. G. also talks about lack of science in DAN!. There are no studies on secretin. Prednisone is not safe. Show me a safety study on Kutapressin in pediatrics. Show me a study on the safe use of Valtrex in pediatrics. Show me something that PROVES that SSRIs increase brain profusion. I agree with Dr. G that DAN! does not have all the answers I agree that some of the labs that are used by DAN! are doing stuff that doesn't pass the smell test. We, as parents need to do a lot of our own homework. That includes looking in to as many interventions as we can stand. Jo Silva Goldberg/Kane/DAN From: " Montgomery " <mont@...> Hi all, My son is a Goldberg pt. Goldberg has made it clear that he does not jive with the DAN docs. He has a different opinion. I trust him. I was planning to attend the DAN conference, but have since changed my mind, as he does not agree with what all they are saying. Anyone else in the same boat? Also, I want to implement some of Dr. Kane's ideas, although I have not taken my son to see her. I have just read some of her stuff. Has any Goldberg pts also tried the Kane approach with success?? Trina --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 1999 Report Share Posted September 18, 1999 I think its good that the focus is now becoming more defined. Hopefully all the doctors will work together to find the best possible treatment for our children. Kutapressin has been around for something like 50 years. It is used by some of the doctors who treat CFIDS. IVIG and cortisone is also discussed in CFIDS, along with the possible risks of virus transmission in IVIG as opposed to injection. Cortisone is an immune suppressant, which can make you more susceptable to infections and can make them harder to treat. Secretin could be something helpful, who knows, but until some studies have been done there are so many unknowns. It has never been used repeatedly. We all really need to work together, so we can get some better answers and have a way to tell what treatment works for who. I think alot of the doctors are trying to do that, and thats what we need. Cheryl Goldberg/Kane/DAN > > From: " Montgomery " <mont@...> > > Hi all, > > My son is a Goldberg pt. Goldberg has made it clear that he does not jive > with the DAN docs. He has a different opinion. I trust him. I was > planning to attend the DAN conference, but have since changed my mind, as he > does not agree with what all they are saying. Anyone else in the same boat? > > Also, I want to implement some of Dr. Kane's ideas, although I have > not taken my son to see her. I have just read some of her stuff. Has any > Goldberg pts also tried the Kane approach with success?? > > Trina > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 1999 Report Share Posted September 18, 1999 What does SSRI stand for?Just curious as I have seen it mentioned a few times. Thanks, Goldberg/Kane/DAN > >From: " Montgomery " <mont@...> > >Hi all, > >My son is a Goldberg pt. Goldberg has made it clear that he does not jive >with the DAN docs. He has a different opinion. I trust him. I was >planning to attend the DAN conference, but have since changed my mind, as he >does not agree with what all they are saying. Anyone else in the same boat? > >Also, I want to implement some of Dr. Kane's ideas, although I have >not taken my son to see her. I have just read some of her stuff. Has any >Goldberg pts also tried the Kane approach with success?? > >Trina > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 1999 Report Share Posted September 18, 1999 Can some one please post for me an article or abstract that shows that prozac and the other SSRIs help with oxygenation of the brain or increase brain perfusion? Every time I mention this to a neurologist they are stumped. They have never heard of this. They would like to see some articles on it. I would also like to see some articles about prozac helping " thousands " of kids. I think there was a study at Duke with 8 kids. Jo Re: Goldberg/Kane/DAN From: Valleyhts@... SSRI = a.k.a. the antidepressants (used for our kids to help with oxygenation of the brain ... it's really helped my kid and thousands of others). Includes prozac, celexe. zoloft, paxil. --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 1999 Report Share Posted September 19, 1999 It is worth noting that Dr. Sidney Baker (principal author of the DAN protocol) lists Dr. Goldberg's website on his own site: http://www.sbakermd.com/ We are also currently getting EPD from a protege of Dr. Baker's and he is interested in Dr. Goldberg's work. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 1999 Report Share Posted September 19, 1999 Hi, How is the EPD going? I had looked into that at one time, but the restrictions around the time of the shot(diet,exposures,etc.) seemed like they would be impossible with all the sensitivities my son has. Plus an information exchange group that I had belonged to,kept surveys on what was helpful, no help or harmful. The results were pretty mixed, with a portion of people saying they got worse. Unfortunately this was the case with many of the different treatments people were trying. What some people would list as extremely helpful, others would list as harmful. Cheryl Re: Goldberg/Kane/DAN > From: " Jeff Stone " <ETIGUY@...> > > It is worth noting that Dr. Sidney Baker (principal author of the DAN > protocol) lists Dr. Goldberg's website on his own site: > > http://www.sbakermd.com/ > > We are also currently getting EPD from a protege of Dr. Baker's and he is > interested in Dr. Goldberg's work. > > > > Quote Link to comment Share on other sites More sharing options...
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