Guest guest Posted June 5, 2003 Report Share Posted June 5, 2003 <<Most patients received some kind of night sedation of a simple and non-addicitive kind; and some received low dose antidepressants. Most were provided with nutritional support with iron, vitc and other vits including B12 injections. Thyroid, either Armour thyroid or synethetic thyroid hormones, T4 or T3 was given to more than half of the patients with obvious thyroid symptomology and/or positive blood tests. Cortisone and DHEA was featured in more than half of the patients in the trial. Some men were given testosterone and some women oestrogen where shown to be defiicient. High levels of fungus in the stools was treated with Nystatin (I am hoping to start this treatment shortly), and abnormal bacteria concentrations in the stool (eg closteridium difficile) was treated with Metronidazole. The result of the study was quite unequivocal. They were gratified to find in this trial that 48.5% were much better and 42% were somewhat better; an extradionarily encouraging result. It was concluded that the mulifactorial problems of CFS should all receive attention but that thyroid and adrenal support was a major factor. " >>> Hi I've done all of these things and am definately not much better or even somewhat better. I would say I'm mildly better at best as I'm still house/wheelchair bound. I have spoken to Dr in the UK who agrees also that he has tried Dr Teitlebaums programme on numerous ME patients and has not achieved the results Dr T claims. There is more to CFS/ME than this. Thats why some have to take long-term abx to get better and do a whole number of other things. Not everyone with this illness is the same. What works for you may well not work for another In effect this is what I have done, looking at toxiciity and getting that removed (my mercury amalgams plus chelation), a few tests done for the adrenal/thryoid and then treating them with the result my CFS has gone. Yes I agree that addressing mercury is important but many people still need to do more than this. I'm sure theres many on this list who could confirm this I only want to inform people that it is possible to recover from this devastating illness but there are no simple answers. Yes there are no simple answers. I also think its possible that in some people there is some permanent damage to the brain/organs/metabolism which may explain there lack of success with such treatments. We can all try to get better but it doesn't mean we all will Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2003 Report Share Posted June 5, 2003 > Hi I've done all of these things and am definately not much better or even somewhat better. I would say I'm mildly better at best as I'm still house/wheelchair bound. I have spoken to Dr in the UK who agrees also that he has tried Dr Teitlebaums programme on numerous ME patients and has not achieved the results Dr T claims. There is more to CFS/ME than this. Thats why some have to take long-term abx to get better and do a whole number of other things. Not everyone with this illness is the same. What works for you may well not work for another > > > Yes I agree that addressing mercury is important but many people still need to do more than this. I'm sure theres many on this list who could confirm this > Hi My answer to what you say is that it is highly likely that just having mercury amalgams removed is not sufficient to get people really well. There will be a high amount of mercury still in the brain if people are still having symptoms. The only way to recovery is to do a long course of chelation with breaks inbetween involving a substance that has 2 thiols attached to it to attract the mercury and then to remove it safely from the brain, and the only ones that have proved in trials that they can do this are DMSA, DMPS and alpha lipoic acid (that is they cross the blood/brain barrier). If people have not used any of these substances and a safe protocol they will still have the toxicity in their brains and hence they could be made worse by the reabsorption of mercury if they haven't followed a safe protocol. Many private doctors do not use safe protocols and could therefore make their patients a whole lot sicker. I have been helping somebody here in the UK who also showed he had lymphocyte reactivy to mercury and a low body temperature. He has had his fillings safely removed and is on low dose hydrocortisone plus lots of supplements. Shortly he will be starting chelation with ALA but already he is feeling much better and his depression and brain fog is lifting. He has noticed an increase in energy and is generally more optomistic. I am also in touch with many other people who have got over CFS by following the same protocol I have used. However, I do recognise that we are all different and our bodies are not all the same. Pam Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2003 Report Share Posted June 6, 2003 > | > Dave, > | > > | > I have couple of questions. > | > I have Dr Baschetti's licorice. Dr. Poesnecker said that it is only > | used if > | > the patient has morning low cortisol value.So,he said that he can > | not let me > | > start it before seeing my ASI test results. On the other side I see > | that you > | > have used it and advise others to use it. Can you explain me what > | the reason > | > could be for not using it if the morning cortisol is not low? Do > | you use ASI > | > test to check your cortisol situation while supplementing? If not > | how do you > | > understand that licorice is indicated or not?(I already am using > | adrenal > | > cortex extract.) > | > Also,Have you ever tried pantethine? Do you find it helpful in > | adrenal > | > regeneration or does it act like a stimulator?What about proper > | dosage? > | > > | > Thanks. > | > Nil > | > Re: hydrocortisone - > | > > | > > | > | No Pam. The article was written by me. I was one of the first in > | > | the US to successfully use Dr Baschetti's licorice treatment > | > | protocol. Licorice extract is still a great way to boost low > | cortisol > | > | but its difficult to use it properly. It's also hard to tell > | folks > | > | about licorice cause someone always accuses you of trying to make > | a > | > | dollar off sick PWCs. > | > | > | > | I just hope a few read my words and are helped by my experience. > | As > | > | far as myself, I'm doing real good now and seldom suffer from CFS. > | > | I'm not cured but I've learned a lot about MY illness. It all > | boils > | > | down to adrenal axis problems for me so licorice and hydrocortione > | > | are a god-send. > | > | > | > | Good luck to you. > | > | > | > | This list is intended for patients to share personal experiences with each > other, not to give medical advice. If you are interested in any treatment > discussed here, please consult your doctor. > | > | Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2003 Report Share Posted June 6, 2003 Dave, You appearently you sent a note but there were no answers in it. Thanks. Nil Re: hydrocortisone - | | > Thanks Dave, | > | > I went through your site but still could not find an answer on why | Licorice | > is not used for patients with normal or high morning cortisol | level..I know | > he is very experienced and I also do respect his opinions a lot | but I was | > just wondering why he said that. The reason behing it. | > Thanks | > Nil Quote Link to comment Share on other sites More sharing options...
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