Guest guest Posted May 16, 2003 Report Share Posted May 16, 2003 Katrina, There's been research (don't have refs) re physiological reasons why we are more subject to osteoporosis, not to mention less activity. Aside from l500 mg of calcium citrate (not carbonate--risk of kidney stones) and Vit K 200 mcg , Actonel once per week is considered by the straight medical community to be as effective as Fosamax and far less risky to the gut. Some studies also show that magnesium (which we need anyway) also helps so you might look into upping that too. There's a blood test that shows calcium loss from bones , which indicates effectiveness of the drug. It's called n-teleopeptide. And of course Vit D about 800 mg / day. Judith Wisdom > I had my second bone scan while at Mayo Clinic.( I am in menopause) .Results were " significant bone loss for her age " and Fosmax was presribed. I'm very concerned w/ these results...unless it's just the interpretation/wording, this seems a bit rapid since my 1st test a couple of years ago showed minimal andno red flag indicated. > Info on Fosmax so far: > > Very dangerous if one does not take properly (Burn esophagus). Have to stay upright 30 min. It is taken once a week. > Can prevent AND replace bone mass. > My osteopath not impressed and concerned w/side effects. > My PC mixed. Helps some, some not. Not as concerned w/side effects (if taken correctly). > My 80 something friend HAS replaced bone mass, no side effects. I am taking natural prescription progesterone and estrogen. My compounding pharmacist thinks some prevention may be gained from the estrogen. But agrees if it does not seem to be helping, Fosmax would be indicated. While addressing everything else health wise, I feel I have seriously lagged on this. Have several risk factors for osteo. > I also have degenerative spine disease (is that osteoarthritis?), a seperate problem but having both (and more) is freaking me out. > What are other PWC women in menopause doing or researching about their bones? What are most potent routes for prevention wholistically? Are there some for REVERSAL? How promising or dangerous do you think Fosmax is (if taken properly)? Do we have any extra concerns with it? (Besides having to stay upright or forgetting this!!!!) With a wholistic background, this time of increasing complication, dwindling supplement funds, cross-eyed from researching,more prescription decisions... not in the least thrilled. Yet, if they are tool to save my ass, can not just dismiss them. Really feeling between rock and hard place and hate that. Can ya relate? > > Katrina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2003 Report Share Posted May 16, 2003 I would read up on new research on Vitamin K. I you don't have enough, your body lines your arteries with calcium instead of getting in your bones. www.Lef.org has some good articles on V. K. Also, you say you are taking " natural prescription " estrogen and progesterone. I am not an expert in this, but that confuses me a litte. Because the article I just read on natural progesterone said that the drug companies all change the hormones some because that is they only way they can get a patent. So they aren't natural. But if you aren't getting it from a drug company, then I don't know why you would need a prescription. They recommended rub on progesterone cream for rebuilding bone, and said most people had too much estrogen. But I'm sure that must vary. Thanks, Doris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2003 Report Share Posted May 16, 2003 (Thanks Skee) >>>Which reminds me, I have heard about some research done > with standing on a vibrating platform to increase bone mass. > The idea is that it simulates the vibrations on your bones that you > would get from exercise, and stimulates the bones to increase > their mass. Last I heard, it is still in the experimental stage, but > they are trying to develop it for commercial use.<<< Hmmm, well that is extremely interesting. Wonder where I might find a vibrating platform?? God knows what else that might do to the CFIDS/ME system!? K > > Skeesix > Hi, > My mom also has CFS ... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2003 Report Share Posted May 16, 2003 hi - my doc suggested the following alternatives to Fosamax (after what I've read about the drug, I'm not all that impressed with the results) - 1 mg. vit. K, 3 mg. Boron, 2 AEP Calcium (from Needs or Beyond a Century, a new form of calcium supposed to be absorbed into the *cell*), and Ipriflavone. Weight bearing execise is the best way to stabilize and increase bone mass, and my ob-gyn highly recommends this! " Strong Women Stay Young " on book and tape by Miriam is a great resource. If you feel you can't even lift 1 lb weights to start with, find a good local physical therapist who will work with you on this. Lifting light weights isn't as hard as it might seem, since its not aerobic. Judith G Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2003 Report Share Posted May 17, 2003 Here are some links in regards to the vibrating platform. http://www.nature.com/nsu/010809/010809-10.html http://content.health.msn.com/content/article/49/39952.htm?pagenumber=3 http://my.webmd.com/content/Article/34/1728_85890.htm?printing=true http://abclocal.go.com/wabc/health/WABC_oncall_081601osteoporosis.html ============================================================================ >>>> Which reminds me, I have heard about some research done >> with standing on a vibrating platform to increase bone mass. >> The idea is that it simulates the vibrations on your bones that you >> would get from exercise, and stimulates the bones to increase >> their mass. Last I heard, it is still in the experimental stage, but >> they are trying to develop it for commercial use.<<< > > Hmmm, well that is extremely interesting. Wonder where I might find a > vibrating platform?? God knows what else that might do to the CFIDS/ME > system!? > K >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2003 Report Share Posted May 17, 2003 I heard that murmurs of cats helps with osteoporosis. Thanks. Nil Osteopenia/Fosmax/Alternative? | Hi, | My mom also has CFS (undiagnosed but she has all the same | symptoms that I do). She's had it pretty much ever since I can | remember. She's now in her late 70's. At any rate, she is taking | Fosamax for osteoporosis and seems to be doing ok with it. The | first year she had a couple of percent increase in bone mass. | But after that she seems to be holding even, not gaining, but not | losing. | | Which reminds me, I have heard about some research done | with standing on a vibrating platform to increase bone mass. | The idea is that it simulates the vibrations on your bones that you | would get from exercise, and stimulates the bones to increase | their mass. Last I heard, it is still in the experimental stage, but | they are trying to develop it for commercial use. | | Skeesix | | | | This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. | | Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2003 Report Share Posted May 17, 2003 I have severe osteoporosis. It was detected about 6 years ago.I was prescribed Fosamax but I stopped using it after I read the info at Dr.Mercola's site.It is also said that it should not be used until 5 years after menopause.(This well explained in Mercols's site. It is because bone replacement continues until some years after menopause.Fosamax interferes with natural bone replacement process.) It is also said that long term effects on liver is not known yet.With the liver detox problems I have I am scared to use Fosamax. So,I am right now using Calcium Hydroxyapatite my metagenics which is said to be the most absorbable form of calcium.I can feel that my osteoporosis is increasing (increasing pain around hips)both because I am pre menopausal and immobile.I will have another bone mass density scan. I might have to restart Fosamax even though I would not like to. Thanks Nil Osteopenia/Fosmax/Alternative? | I had my second bone scan while at Mayo Clinic.( I am in menopause) ..Results were " significant bone loss for her age " and Fosmax was presribed. I'm very concerned w/ these results...unless it's just the interpretation/wording, this seems a bit rapid since my 1st test a couple of years ago showed minimal andno red flag indicated. | Info on Fosmax so far: | | Very dangerous if one does not take properly (Burn esophagus). Have to stay upright 30 min. It is taken once a week. | Can prevent AND replace bone mass. | My osteopath not impressed and concerned w/side effects. | My PC mixed. Helps some, some not. Not as concerned w/side effects (if taken correctly). | My 80 something friend HAS replaced bone mass, no side effects. I am taking natural prescription progesterone and estrogen. My compounding pharmacist thinks some prevention may be gained from the estrogen. But agrees if it does not seem to be helping, Fosmax would be indicated. While addressing everything else health wise, I feel I have seriously lagged on this. Have several risk factors for osteo. | I also have degenerative spine disease (is that osteoarthritis?), a seperate problem but having both (and more) is freaking me out. | What are other PWC women in menopause doing or researching about their bones? What are most potent routes for prevention wholistically? Are there some for REVERSAL? How promising or dangerous do you think Fosmax is (if taken properly)? Do we have any extra concerns with it? (Besides having to stay upright or forgetting this!!!!) With a wholistic background, this time of increasing complication, dwindling supplement funds, cross-eyed from researching,more prescription decisions... not in the least thrilled. Yet, if they are tool to save my ass, can not just dismiss them. Really feeling between rock and hard place and hate that. Can ya relate? | | Katrina | | | | This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. | | Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2003 Report Share Posted May 17, 2003 Hi, All, Dr. Mercola's newsletter today addresses osteoporosis and the connection to Vitamin K. He is recommending Vitamin K drops by Biotics. You can read about this at mercola.com. > I have severe osteoporosis. It was detected about 6 years ago.I was > prescribed Fosamax but I stopped using it after I read the info at > Dr.Mercola's site.It is also said that it should not be used until 5 years > after menopause.(This well explained in Mercols's site. It is because bone > replacement continues until some years after menopause.Fosamax interferes > with natural bone replacement process.) It is also said that long term > effects on liver is not known yet.With the liver detox problems I have I am > scared to use Fosamax. So,I am right now using Calcium Hydroxyapatite my > metagenics which is said to be the most absorbable form of calcium.I can > feel that my osteoporosis is increasing (increasing pain around hips)both > because I am pre menopausal and immobile.I will have another bone mass > density scan. I might have to restart Fosamax even though I would not like > to. > Thanks > Nil > Osteopenia/Fosmax/Alternative? > > > | I had my second bone scan while at Mayo Clinic.( I am in menopause) > .Results were " significant bone loss for her age " and Fosmax was presribed. > I'm very concerned w/ these results...unless it's just the > interpretation/wording, this seems a bit rapid since my 1st test a couple of > years ago showed minimal andno red flag indicated. > | Info on Fosmax so far: > | > | Very dangerous if one does not take properly (Burn esophagus). Have to > stay upright 30 min. It is taken once a week. > | Can prevent AND replace bone mass. > | My osteopath not impressed and concerned w/side effects. > | My PC mixed. Helps some, some not. Not as concerned w/side effects (if > taken correctly). > | My 80 something friend HAS replaced bone mass, no side effects. > I am taking natural prescription progesterone and estrogen. My compounding > pharmacist thinks some prevention may be gained from the estrogen. But > agrees if it does not seem to be helping, Fosmax would be indicated. > While addressing everything else health wise, I feel I have seriously lagged > on this. Have several risk factors for osteo. > | I also have degenerative spine > disease (is that osteoarthritis?), a seperate problem but having both (and > more) is freaking me out. > | What are other PWC women in > menopause doing or researching about their bones? > What are most potent routes for prevention wholistically? Are there some for > REVERSAL? How promising or dangerous do you think Fosmax is (if taken > properly)? Do we have any extra concerns with it? (Besides having to stay > upright or forgetting this!!!!) > With a wholistic background, this time of increasing complication, dwindling > supplement funds, cross-eyed from researching,more prescription decisions... > not in the least thrilled. Yet, if they are tool to save my ass, can not > just dismiss them. Really feeling between rock and hard place and hate that. > Can ya relate? > | > | Katrina > | > | > | > | This list is intended for patients to share personal experiences with each > other, not to give medical advice. If you are interested in any treatment > discussed here, please consult your doctor. > | > | Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2003 Report Share Posted May 17, 2003 Vitamin K is synthesized in the body by the beneficial gut flora. Restore gut flora and supplementation of vitamin K is not necessary, IMO. The biggest problem that I see with taking a supplement is that the person that takes the pill/capsule actually believes that their body is getting the same nutrients as those found in foods. (this may be true for some supplements but many are synthetic.) For example B vitamins (another vitamin also synthesized by gut flora) Most B1 found in multivitamins are manufactured from coal tar. I've read one account that showed that a group of people treated for a condition that resulted from a B1 deficiency did not respond to a supplemented synthetic form of B1 but when the food that is known to be high in B1 was supplied in the diet the people responded and their health improved. Too many people think that they are actually providing the nutrients that the body needs by taking a supplement. When I suggests they add certain foods to their diet for this or that nutrient some have told me they are taking a supplement that contains that nutrient so did not feel a need to take the food. (There are good supplements on the market, but a person needs to be educated to know the difference between a synthetic form and natural form.) There was not a One-A-Day tree in the Garden of Eden. Pertaining to osteoporosis. Vitamin D, magnesium, phosphorous, and calcium are all required. One of the best food sources for Vitamin D is sardines, which will also provide phosphorous. Most people know that the body needs calcium, but too much calcium will upset the level of magnesium. Also, calcium taken in the wrong form can actually cause the body to become depleted of calcium. Calcium carbonate neutralizes stomach acid, without stomach acid the minerals in the food cannot be properly ionized and absorbed. Also, serum sodium keeps calcium in solution in the blood. When sodium goes low, calcium falls out of solution. When blood calcium goes low, the body is designed to get calcium from the bone. This may be why a person can have bone spurs (calcium deposits outside the bone) and have a lessening of calcium in the bone mass. Another thing to build up bone mass, is load bearing exercise. When the muscles lift weights the body recognizes a need for a stronger support system for the muscle and will begin to build up bone mass (assuming that the body has all the nutrients needed to build bone). start out with light weights and slowly build up the number of repetitions and the total weight. Eliminate soft drinks from your diet. Eat more leafy green vegetables. It is never too late to build more bone density and it can be done if the correct things are done. But through ignorance, most people do not know what must be done. Knowing the need calcium, and being told on TV that an antacid tablet supplies calcium, they further aggravate the condition, believing that they are doing what is needed. All the best, Jim > > I have severe osteoporosis. It was detected about 6 years ago.I was > > prescribed Fosamax but I stopped using it after I read the info at > > Dr.Mercola's site.It is also said that it should not be used until > 5 years > > after menopause.(This well explained in Mercols's site. It is > because bone > > replacement continues until some years after menopause.Fosamax > interferes > > with natural bone replacement process.) It is also said that long > term > > effects on liver is not known yet.With the liver detox problems I > have I am > > scared to use Fosamax. So,I am right now using Calcium > Hydroxyapatite my > > metagenics which is said to be the most absorbable form of > calcium.I can > > feel that my osteoporosis is increasing (increasing pain around > hips)both > > because I am pre menopausal and immobile.I will have another bone > mass > > density scan. I might have to restart Fosamax even though I would > not like > > to. > > Thanks > > Nil > > Osteopenia/Fosmax/Alternative? > > > > > > | I had my second bone scan while at Mayo Clinic.( I am in > menopause) > > .Results were " significant bone loss for her age " and Fosmax was > presribed. > > I'm very concerned w/ these results...unless it's just the > > interpretation/wording, this seems a bit rapid since my 1st test a > couple of > > years ago showed minimal andno red flag indicated. > > | Info on Fosmax so > far: > > | > > | Very dangerous if one does not take properly (Burn esophagus). > Have to > > stay upright 30 min. It is taken once a week. > > | Can prevent AND replace bone mass. > > | My osteopath not impressed and concerned w/side effects. > > | My PC mixed. Helps some, some not. Not as concerned w/side > effects (if > > taken correctly). > > | My 80 something friend HAS replaced bone mass, no side effects. > > I am taking natural prescription progesterone and estrogen. My > compounding > > pharmacist thinks some prevention may be gained from the estrogen. > But > > agrees if it does not seem to be helping, Fosmax would be > indicated. > > While addressing everything else health wise, I feel I have > seriously lagged > > on this. Have several risk factors for osteo. > > | I also have > degenerative spine > > disease (is that osteoarthritis?), a seperate problem but having > both (and > > more) is freaking me out. > > | What are other PWC > women in > > menopause doing or researching about their bones? > > What are most potent routes for prevention wholistically? Are > there some for > > REVERSAL? How promising or dangerous do you think Fosmax is (if > taken > > properly)? Do we have any extra concerns with it? (Besides having > to stay > > upright or forgetting this!!!!) > > With a wholistic background, this time of increasing complication, > dwindling > > supplement funds, cross-eyed from researching,more prescription > decisions... > > not in the least thrilled. Yet, if they are tool to save my ass, > can not > > just dismiss them. Really feeling between rock and hard place and > hate that. > > Can ya relate? > > | > > | Katrina > > | > > | > > | > > | This list is intended for patients to share personal experiences > with each > > other, not to give medical advice. If you are interested in any > treatment > > discussed here, please consult your doctor. > > | > > | Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2003 Report Share Posted May 18, 2003 My bone mass was below normal. I took 400 IU Vitamin D, 3 mg Boron, 1500 mg Ca supplement (Tums), ate lots of soy milk with natural isoflavones, tofu, low fat (all natural) cheese, and canned salmon with bones. Cut out all caffeine and all soda (both leach calcium from your bones). Didn't exercise at all due to CFIDS. Increased my bone mass 4% in one year. The doctor was thrilled. I, personally, would *NEVER* take Fosamax or any other prescription drug. They have horrible side effects. Fix one problem and cause others? No thanks! Teewinot @>--}-- * --{--<@ Teewinot13@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2003 Report Share Posted May 18, 2003 It is a good concept, but studies have shown that our food supply is lousy, and even if you try to eat good we don't have nearly as much vitamins in our food that we used to have. Plus people could be taking other supplements that cause them to become depleted in Vit K more rapidly that you can get from food. Thanks, Doris ----- Original Message ----- Vitamin K is synthesized in the body by the beneficial gut flora. Restore gut flora and supplementation of vitamin K is not necessary, IMO. Jim Quote Link to comment Share on other sites More sharing options...
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