Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 Donna, I've heard a couple of talks lately by Dr. Kunin from San Francisco, who is president of the Orthomolecular Health Medicine Society and a very sharp guy. His latest thing is this MTHFR defect, which he's finding in as many as 90% of his patients who are chronically ill with various disorders. His son's company has put out some kind of product to deal with this, and he says it has really helped a lot of people. I don't know the name of the product. I think it uses folitic acid, which is the chemically reduced form of folic acid, as well as some other things, I think B- 12 among them. He's writing a book about this defect. His testing found a genetic > disorder that Hemex tests do not - the MTHFR defect, which has cardiac as > well as neuropathic implications. > > Donna in NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 Thanks Rich, I'm homozygous for this defect, and am not really surprised as I look at both of my parents' family histories. My mother is chronically ill, though my father seems to be ok. I was told to take 2 mg folic acid twice/day, at least 5000 mg B-12 (covered by my B-12 injections ala Cheney), and 100 mg B-6 per day. I was told this was for the rest of my life. I also have a Protein S deficiency, and between these coag defects and the Lyme/mycoplasma, I certainly notice when I give myself a break from my heparin. Since I was already on the B-12 and B-6 when diagnosed with the MTHFR defect, I think that is the reason my LpA was ok. When Dr. Cheney was sent the results along with a letter from my oral surgeon, he immediately bumped up my Neurontin to 4800 mg/day, and it made a tremendous difference in my pain levels. I did I Medline search when I was dx with this (Aug 2001), and found several abstracts with regard to spina bifida, but nothing with regard to cardiac problems, coagulation/thrombosis problems or even neuropathic symptoms in a patient population. Is it a fairly recent discovery in this regard? Do you happen to know the name of Dr. Kunin's son's company? If not I'll try to do a search for it. Donna MTHR defect--Donna > Donna, > > I've heard a couple of talks lately by Dr. Kunin from San > Francisco, who is president of the Orthomolecular Health Medicine Society and a very sharp guy. His latest thing is this MTHFR defect, which he's finding in as many as 90% of his patients who are chronically ill with various disorders. His son's company has put out some kind of product to deal with this, and he says it has really helped a lot of people. I don't know the name of the product. I think it uses folitic acid, which is the chemically reduced form of folic acid, as well as some other things, I think B- 12 among them. He's writing a book about this defect. > > > > His testing found a genetic disorder that Hemex tests do not - the MTHFR defect, which has cardiac as well as neuropathic implications. Donna in NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 Donna, Dr. Kunin himself is heterozygous for this defect. I think the product is called Ola Loa. I'll try to learn more about this defect and what its effects are. Rich > > > > His testing found a genetic disorder that Hemex tests do not - the MTHFR > defect, which has cardiac as well as neuropathic implications. > > Donna in NC Quote Link to comment Share on other sites More sharing options...
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