Guest guest Posted April 25, 2003 Report Share Posted April 25, 2003 It's great to hear that someone on the board is trying Acclydine. Please keep us informed about your progress. Over a year ago, when i contacted the company, they told me it would cost 1650 Euro's for a 14 week supply--not including the initial test. Are you paying a similiar amount for your treatment supply and are they still saying that 14 weeks should do it? Thanks, > I heard about Acclydine a few months ago, am starting the 14 week procedure with Acclydine and amino acids. It is too soon to know what the benefits are. > > For more information, folks can write acclydine@y... and request > the specifics of the 14-week Acclydine protocol being used in Belgium > and for information about how Acclydine can be obtained. > > Joyce A. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 a wrote: I have a real problem with accyldine. I hate to say that as I really admire DeMeirleir who was involved in the study, but... a, Dr. De Meirleir was more than just involved, it is my understanding that he worked closely with OptiPharma to be sure the protocol and the study was developed in such a fashion to produce good scientific data. It was his patients that were the 90 patients in the study. One important factor is this protocol includes amino acids which many CFS patients are lacking. Some of mine are non-dectected. a wrote: 1. So far no oral treatment has been as effective in increasing growth hormone as the INJECTED long chain protein which is growth hormone. a, Acclydine induces the body to produce its own growth hormone. Why would one want to take a synthetic product versus let the body produce what is knows best, its own growth hormone. In the study, Acclydine was very effective in inducing the production of growth hormone. Prior to this study, biochemist have proven that Acclydine induces the production of growth hormone in humans. It is my understanding that OptiPharma spent as much as they did to isolate a natural occurring supply of Acclydine. A natural supply categorizes Acclydine as a food supplement, a synthetic man-made Acclydine would have categorized it as a drug and we wouldn't have seen it for 10 years, if at all. a wrote: 2. The cost of this protocol is WAY more than injected growth hormone which is terribly expensive at $500 or so a month. Even Cheney's low dose protocol is LESS than $500. Some of you who test very low in growth hormone can even get insurance to cover your growth hormone. a, the cost of Acclydine is actually less than the growth hormone you quote at $500 per month. The Acclydine, Amino Acids, Glutamine, and the Antioxidants for the 1 1/2 month protocol is $1,343. That is roughly $100 per week, which is $400 per month. That is a 20% savings over your quoted growth hormone. And this does include the cost of amino acids. Also the the majority of the patients in the study who responded positively, did not need the 250 mg of Acclydine after the 14 weeks, but could switch to another product which only contains 25 mg of Acclydine per capsule. This was a maintenance program for patients. The cost for this it ranged between $50 to $150 depending if they had to take 1, 2 or 3 capsules a day. The majority took 1-2 capsules per day, which kept their growth hormone and their energy levels the same as they had experienced during the study. a wrote: 3. I was told by an outstanding cfs doctor that I am better off getting the injections than taking supplements purported to increase growth hormone. It is not that the supplements won't work for healthy people. It is that if your pituitary is damaged by cfs and will not produce it, then the supplements are relatively ineffective. This new one may be better, but you still have the cost. a, I think your CFS doctor has taken the time to read the research on Acclydine and to understand biochemically what it does. Since both Dr. and Dr. De Meirleir are using Acclydine over the injected growth hormone products, I put my support behind these two world class pioneers. Acclydine has only become available in the United States in the past few weeks. I predict we will see many CFS doctors using it for patients who have an IGF-BP-3/IGF-1 ratio greater than 3.5. Acclydine is only for this subset of CFS patients. If people have questions about Acclydine or if your physician does, I would encourage them to contact the source directly at acclydine@... . I have heard that Dr. De Meirleir might be on the East Coast this fall to present on Acclydine and the study. When I can confirm this, I will post it here. a wrote: 4. On a personal note, my experience over 3 yrs of growth hormone has been that ImmunePro increased my levels of growth hormone for $30 a month, and my endocrinologist tested my levels every 2 months. This was just my experience, but probably worth something. a, I am glad that ImmunePro has helped you. That is great news. I am also glad for you that your heart checked out as well as it did. GREAT NEWS! I Have no financial interest in this company, just think we should have the opportunity to try whatever treatment our doctors suggest. Joyce A. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2003 Report Share Posted May 5, 2003 In my response to a, I said that Acclydine, amine acids, glutamine and antioxidants for the 1 1/2 month protocol is $1,343. OOPS - CFIDS brain, that should read 3 1/2 months protocol is $1,343. Sorry, Joyce A. >a wrote: >2. The cost of this protocol is WAY more than injected growth hormone which >is terribly expensive at $500 or so a month. Even Cheney's low dose protocol >is LESS than $500. Some of you who test very low in growth hormone can even >get insurance to cover your growth hormone. >a, the cost of Acclydine is actually less than the growth hormone you >quote at $500 per month. The Acclydine, Amino Acids, Glutamine, and the >Antioxidants for the >1 1/2 month protocol is $1,343. That is roughly $100 per week, which is >$400 per month. That is a 20% savings over your quoted growth hormone. And >this does include the cost of amino acids. Also the the majority of the >patients in the study who responded positively, did not need the 250 mg of >Acclydine after the 14 weeks, but could switch to another product which only >contains 25 mg of Acclydine per capsule. This was a maintenance program for >patients. The cost for this it ranged between $50 to $150 depending if they >had to take 1, 2 or 3 capsules a day. The majority took 1-2 capsules per >day, which kept their growth hormone and their energy levels the same as >they had experienced during the study. Quote Link to comment Share on other sites More sharing options...
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