Allergies, CFIDS, and NAET

[Guest guest]

Many people with CFIDS have MCS and environmental allergies. I have

severe allergies and my fatigue and other sxs are much worse in the

Spring and Summer. I have tried traditional allegy shots and

neutralizing allergy shots, from computer testing, from clinics in

South Carolina, Tennessee, Nevada, and Washington. None of these

have really helped. Has anyone tried NAET and if so what were your

results. From my limited research NAET seems to be very practioner

dependent. So if you don't mind, please include where you got your

treatment.

Thanks

[Guest guest]

Yes, I did NAET for 1 and 1/2 years when I ran out of money. The only thing

it helped was my allergies. I only go back now if something like that crops

up again. Joyce in GA

Allergies, CFIDS, and NAET

Many people with CFIDS have MCS and environmental allergies. I have

severe allergies and my fatigue and other sxs are much worse in the

Spring and Summer. I have tried traditional allegy shots and

neutralizing allergy shots, from computer testing, from clinics in

South Carolina, Tennessee, Nevada, and Washington. None of these

have really helped. Has anyone tried NAET and if so what were your

results. From my limited research NAET seems to be very practioner

dependent. So if you don't mind, please include where you got your

treatment.

Thanks

[Guest guest]

I have MCS, along with everything else, and have been doing BioSET

treatments for the last couple years out in Denver Colorado. Actually, my

current BioSET practitioner is trained in a number of different boimeridian

based therapies, including JMT, NET, and others, so she doesn't just do

BioSET on me. We've done some metabolic NAET treatments, (She's had some

training from Omiecinski) a lot of JMT pathogen treatments, a lot

of food and chemical treatments, and some emotional treatments. (Actually,

so far, we haven't connected any emotional treatments with my underlying

problems, but I'd developed anxiety, panic attacks and Post Traumatic Stress

disorder problems, and so we've worked on some of the emotions that are

triggers for me.)

The treatments made all the difference in the world for getting me to a

point where I could eat a balanced diet without reacting, although I still

have a lot of foods I have to avoid. But I was literally reacting to

everything I ate when I first started getting treatments, and now I have a

wide variety of foods I can eat.

It has been much harder trying to clear some of my environmental allergies.

The treatments got me to the point where I could do shopping and not react,

as long as I didn't spend more than a few minutes in the cleaning supplies

aisle, or more than 45 minutes in a store. But many of my symptoms seem to

be allergy related, and worsen when I have an allergic reaction. And I have

to be very careful to avoid exposure to outgassing of construction chemicals

or new furniture or fabric or people wearing perfume or strong smells. I've

currently got a mold problem in my house that I'm working on trying to

resolve, which I think is aggravating things, and there are a bunch of

things that we haven't yet treated; some neurological things, quite a number

of other metabolic things, certain phenolics, geopathic stresses,

detoxification pathways, mercury and other heavy metals, etc. And I keep

loosing some of the basic treatments. I've been treated for B vitamins both

together and individually a number of times, and so far I haven't been able

to hold a treatment for soy and dried legumes.

I've had more than 300 treatments so far, and I don't think I'm making the

progress that I had hoped, because I keep developing new

allergies/intolerance's, and I'm occasionally loosing treatments that I had

cleared ages ago. I've had to switch practitioners because my first

practitioner started doing really weird treatments that were making me

sicker, not better, and changed her hours so that I couldn't get as many

treatments per trip. (I have to travel to a different state to get

treatments, every couple months, so I try to cram in as many treatments as

possible, each trip.) So far I'm on my fourth practitioner. My current

practitioner has had to go out and get training in other things to try to

find ways to help me because I've challenged her to pieces. I'm told that

I'm her most difficult client, and I've also been told that by my

naturopath, and my bioneurofeedback therapist. Not difficult as in being a

difficult person to deal with, but difficult in that my problems are

incredibly complex, and I have a lot of things contributing to the problems.

I've got MCS, IBS, CFS, PTSD, FM, and more. I'm a real alphabet soup of

problems!

I've considered doing NMT treatments, which have been reputed to treat

things in much fewer treatments, but I've talked with some others who have

had them done and been made much worse rather than better from them, and the

developer of NMT is on one of my e-mail lists, and I haven't gotten a very

good impression of her between her and an argument that has sprung up from

someone else on that list who was made worse by NMT treatments. I might

consider it if my current practitioner did the training, which I wouldn't be

surprised if she eventually did, because she seems to have the goal of being

trained in everything, but I'm leery of going to someone new, because I've

met a couple practitioners with no talent, and talked with people who have

had practitioners who were downright charlatans, and so I'm not so eager to

go out and try someone new. Unless I get to the point where I'm not making

any more progress with my current practitioner at all, I probably won't

switch.

I've tried using EFT and TAT to treat the emotional issues myself, but

didn't have any luck at all. My practitioner has been using NET and the NET

homeopathic drops, and some other type of treatment that uses neutralizing

extracts (not Bach flower remedies, but something else), and I've finally

begun making progress with the emotional issues, but EFT still doesn't work

on me for anything more than minor emotional issues. And I've got some major

things. My life has been one trauma after another. It's been surprising that

so far no emotions have been connected with my health problems. Even my

practitioner has been surprised. But none of the other practitioners that

I've been to have found any emotions connected with the underlying problems,

either, and they've all checked.

We've treated some rather weird things, such as problems from " past lives " .

For example, my practitioner told me that in some past life I had been stung

by a bee, and it had killed me, and that was the basis for my allergy to bee

products. (I think it is more likely that I used to eat a honey every day

when I was a kid, and use bees wax on everything, and being exposed to

something so much increases the likelihood of developing an allergy to it.)

I'm not a believer of reincarnation, and we've discussed that she really

isn't, either, but " reading " the muscle testing is somewhat of an art,

rather than a science, and so the interpretations are probably not accurate,

and there is still a lot to learn about how to interpret muscle testing. So

we just go with the flow, and regardless of how things are interpreted, we

just accept if something needs cleared, and if it helps, it helps. It

doesn't matter if the interpretation is true or not, it only matters if it

helps me. There are practitioners out there who are a lot more dogmatic

about their beliefs, and are really emersed into Eastern Oriental religions.

My husband refuses to have any treatments done on himself, and I think that

he thinks they are somehow satanic, or something, but he at least doesn't

try to discourage me from doing it. I probably wouldn't be able to accept it

if I didn't have some concept about the physics behind it, because it can

seem rather creepy.

I think it is good at treating most allergies, although severe allergies

often require multiple treatments. I don't think I would depend on it as my

sole source of treatment for all the things I'm dealing with, and not just

because I'd be doing treatments forever to try to clear all my problems. Not

putting all my eggs in one basket, so to speak. I'm too impatient to wait

that long to get well, and I don't want to loose out on something else, if

something else helps. And if something else cures me, I'd probably not

regret getting the treatments I have, because it has improved the quality of

my life, and helped keep me from slipping down any worse than I have. I know

that most people have much bigger improvements than I have. And there are

some who don't have any improvements from it at all.

I don't have the advantage of having a knowledgeable allopathic doctor who

is aggressively treating me. And even the BioSET treatments have been

something that has required me to travel out of state in order to get,

because most alternative medicine fields are not allowed in my state, and

the doctors in my state are very conservative and conventional to a fault,

not doing anything that's not FDA or AMA approved, and certainly not reading

and applying any current research. So my only options are to go outside my

state to get help.

I've been going to a naturopath for a couple years, whose probably my

primary source of help. I've also been doing bioneurofeedback therapy for

the past year. I've been to Dr. Brewer, who is an infectious disease

specialist in Kansas City who treats CFS, but he's very difficult to

actually get in to see, and I didn't make a whole lot of progress on his

protocol. And I'm going to be going to Dr. Shoemaker in a week and a half,

and see what pans out with him. So it's not like I'm using the BioSET as my

only treatment, or even expecting it to be the sole answer. But it has been

an invaluable aid. I just don't want to mislead someone into thinking that

it's " THE " answer, even if it might be for some.

lindaj@...

[Guest guest]

I did NAET for 6-8 months and actually got worse during that time, though I

don't know if NAET caused the worsening. After the worsening, I even went

to Dr. Nambudripad for a while and still was not helped. I live in the L.A.

area. I know one person who feels she was helped a lot, though her husband

was not (it turns out he has Lyme, as do I, along with MCS, FM, CFS). I also

found it expensive and time consuming.

Minimizing my allergies, especially to foods, doing mostly the pulse test,

has helped many symptoms (see Issue 5 and 2, and preview/update for free on

web site, members.aol.com/SynergyHN).

Joyce Waterhouse, Ph.D.

members.aol.com/SynergyHN

In a message dated 5/5/03 8:14:46 AM Pacific Daylight Time,

bjeaton@... writes:

>

> Yes, I did NAET for 1 and 1/2 years when I ran out of money. The only thing

> it helped was my allergies. I only go back now if something like that crops

> up again. Joyce in GA

> Allergies, CFIDS, and NAET

>

>

> Many people with CFIDS have MCS and environmental allergies. I have

> severe allergies and my fatigue and other sxs are much worse in the

> Spring and Summer. I have tried traditional allegy shots and

> neutralizing allergy shots, from computer testing, from clinics in

> South Carolina, Tennessee, Nevada, and Washington. None of these

> have really helped. Has anyone tried NAET and if so what were your

> results. From my limited research NAET seems to be very practioner

> dependent. So if you don't mind, please include where you got your

> treatment.

>

> Thanks

>

>

>

[Guest guest]

pointerz71 wrote:

> Many people with CFIDS have MCS and environmental allergies. I have

> severe allergies and my fatigue and other sxs are much worse in the

> Spring and Summer. I have tried traditional allegy shots and

> neutralizing allergy shots, from computer testing, from clinics in

> South Carolina, Tennessee, Nevada, and Washington. None of these

> have really helped. Has anyone tried NAET and if so what were your

> results. From my limited research NAET seems to be very practioner

> dependent. So if you don't mind, please include where you got your

> treatment.

What is NAET?

Teewinot

@>--}-- * --{--<@

Teewinot13@...

[Guest guest]

I did the Biosets for foods, viruses, bacteria, candida, and then I did

a box that was created for CFIDS specifically, my TCM doc went to the

CFIDS seminars just for me! I was her only CFIDS patient. We both

agree that after trying for 2 years, the Bioset just wasn't able to

clear enough or that things that it cleared kept becoming a problem for

me. Also, the acupuncture was only making me more exhausted and the

herbs (no matter how many changes she made) were causing me digestive

probs. Although I had some good weeks for a while there, then again, I

was doing the strict candida diet at the same time and then fell off it

again. (That was all before I found out I have candida Krusei at a 4+.

Now I'm much more serious about the c diet.)

My TCM doctor is in Alameda, CA and she is excellent! She graduated at

the top of her class. She really cares and she spends a half hour at

each appt. just talking about how my sx were and how the treatments

seemed to be working. I saw her once a week. She is located a few

blocks away from me so I thought that it was all meant to be. She said

I was her toughest case too. She wishes she could have helped me and I

do too.

I have CFIDS and FMS btw. I believe that we can't gauge a treatment by

how well it helps pw/outcs. That's why I'm glad there are lists like

this one for us!

Tracey

pointerz71 wrote:

>Many people with CFIDS have MCS and environmental allergies. I have

>severe allergies and my fatigue and other sxs are much worse in the

>Spring and Summer. I have tried traditional allegy shots and

>neutralizing allergy shots, from computer testing, from clinics in

>South Carolina, Tennessee, Nevada, and Washington. None of these

>have really helped. Has anyone tried NAET and if so what were your

>results. From my limited research NAET seems to be very practioner

>dependent. So if you don't mind, please include where you got your

>treatment.

>

>Thanks

>

>

>

>This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

[Guest guest]

What is TCM doctor?

Thanks,

Doris

[Guest guest]

traditional Chinese medicine

Doris Brown wrote:

>What is TCM doctor?

>Thanks,

>Doris

>

>