AACFS Conference--Jan--CNS and Staph. aureus

[Guest guest]

Jan asked me to raise the subjects of CNS and Staph aureus at the

conference. Dr. Hay was the chairman of the Infections and

Immunologic session. He didn't mention these during his talk, so I

raised the subject of coagulase negative staphylococcus during the

question session, asking him to comment on it. He said he didn't

have any comments, and in turn asked me if I had any. I mentioned

the past work of Dr. Neil McGregor in Australia and the more recent

work of Dr. Ritchie Shoemaker. I said that my understanding was

that in the past CNS had not been considered to be very pathological

except in the case of catheters, where biofilms could form on

polymer surfaces, but that more recently CNS has been reported to be

a serious issue in PWCs. He thanked me, and nobody offered any more

comment on this, even during the breaks, so I gathered that the

folks there didn't see this as a big issue, at least not at this

point. I think it's important to point out that in many cases, we

may have better contact with developments that come from certain

sectors than the people in this organization do. I don't think the

research scientists have a terribly high regard for things that come

from practitioners, such as Dr. Shoemaker. I also don't think they

keep up with things coming out of the National CFIDS Foundation very

much. At any rate, that was the response I got on this subject.

Rich

[Guest guest]

Hi Rich!

Good to see you are back from the conference. Thanks so much

for asking. You are a very valuable asset to this group.

-Jan

> Jan asked me to raise the subjects of CNS and Staph aureus at the

> conference. Dr. Hay was the chairman of the Infections and

> Immunologic session. He didn't mention these during his talk, so I

> raised the subject of coagulase negative staphylococcus during the

> question session, asking him to comment on it. He said he didn't

> have any comments, and in turn asked me if I had any. I mentioned

> the past work of Dr. Neil McGregor in Australia and the more recent

> work of Dr. Ritchie Shoemaker. I said that my understanding was

> that in the past CNS had not been considered to be very

pathological

> except in the case of catheters, where biofilms could form on

> polymer surfaces, but that more recently CNS has been reported to

be

> a serious issue in PWCs. He thanked me, and nobody offered any

more

> comment on this, even during the breaks, so I gathered that the

> folks there didn't see this as a big issue, at least not at this

> point. I think it's important to point out that in many cases, we

> may have better contact with developments that come from certain

> sectors than the people in this organization do. I don't think the

> research scientists have a terribly high regard for things that

come

> from practitioners, such as Dr. Shoemaker. I also don't think they

> keep up with things coming out of the National CFIDS Foundation

very

> much. At any rate, that was the response I got on this subject.

>

> Rich

[Guest guest]

Rich, i had communicated with Dr. Hay prior to the conference. He seemed

oblivious to any indications that cfs might be caused by any infection. I

sent him my summary of the ICAAC conf and was surprised to learn he had

already read it. Still I wonder if he did comment on any POSSIBLE infectious

causes?

a Carnes

> Jan asked me to raise the subjects of CNS and Staph aureus at the

> conference. Dr. Hay was the chairman of the Infections and

> Immunologic session. He didn't mention these during his talk, so I

> raised the subject of coagulase negative staphylococcus during the

> question session, asking him to comment on it. He said he didn't

> have any comments, and in turn asked me if I had any. I mentioned

> the past work of Dr. Neil McGregor in Australia and the more recent

> work of Dr. Ritchie Shoemaker. I said that my understanding was

> that in the past CNS had not been considered to be very pathological

> except in the case of catheters, where biofilms could form on

> polymer surfaces, but that more recently CNS has been reported to be

> a serious issue in PWCs. He thanked me, and nobody offered any more

> comment on this, even during the breaks, so I gathered that the

> folks there didn't see this as a big issue, at least not at this

> point. I think it's important to point out that in many cases, we

> may have better contact with developments that come from certain

> sectors than the people in this organization do. I don't think the

> research scientists have a terribly high regard for things that come

> from practitioners, such as Dr. Shoemaker. I also don't think they

> keep up with things coming out of the National CFIDS Foundation very

> much. At any rate, that was the response I got on this subject.

>

> Rich

[Guest guest]

a,

I got involved in a discussion with someone in the exhibit area, and

got into Dr. Hay's talk late. However, he was discussing some

pathogens one by one when I got there. I don't know if he had

introduced them as causes or as opportunistic. I do know that he

did not discuss coagulase negative staph, and I did bring this up

with him in the question session, as I mentioned.

Rich

> Rich, i had communicated with Dr. Hay prior to the conference. He

seemed

> oblivious to any indications that cfs might be caused by any

infection. I

> sent him my summary of the ICAAC conf and was surprised to learn

he had

> already read it. Still I wonder if he did comment on any POSSIBLE

infectious

> causes?

> a Carnes

[Guest guest]

Thanks, Rich. Again I have only a couple of hours. Do you know if abstracts

will be posted from this conference? I assume they will. However it was of

interest to me that whoever summarized DeMeirleir's speech from 2001 left

out details which I considered the heart of his presentation. Just wondering

if you know when and if such summaries and abstracts will be forthcoming.

Thanks.

a

Re: AACFS Conference--Jan--CNS and Staph.

aureus

> a,

>

> I got involved in a discussion with someone in the exhibit area, and

> got into Dr. Hay's talk late. However, he was discussing some

> pathogens one by one when I got there. I don't know if he had

> introduced them as causes or as opportunistic. I do know that he

> did not discuss coagulase negative staph, and I did bring this up

> with him in the question session, as I mentioned.

>

> Rich

>

>

> > Rich, i had communicated with Dr. Hay prior to the conference. He

> seemed

> > oblivious to any indications that cfs might be caused by any

> infection. I

> > sent him my summary of the ICAAC conf and was surprised to learn

> he had

> > already read it. Still I wonder if he did comment on any POSSIBLE

> infectious

> > causes?

> > a Carnes

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

[Guest guest]

a,

They printed a conference syllabus that has only early abstracts and

only some of the viewgraphs that were presented by the speakers. I

don't know if this will be posted, but it is incomplete. This is a

real weak point about this conference, and as I said, I talked to

the new president about it as soon as he was announced and took over

the job. So hopefully next time it will be better. One encouraging

thing is that the lady from New Zealand who has written brief

summaries of the high points for conferences in the past was there

(sorry, her name slips my mind at the moment), and I think she was

planning to do this again this time, so hopefully that will be

posted eventually. I spoke to her and expressed how I had

appreciated her efforts in the past.

Rich

> > > Rich, i had communicated with Dr. Hay prior to the conference.

He

> > seemed

> > > oblivious to any indications that cfs might be caused by any

> > infection. I

> > > sent him my summary of the ICAAC conf and was surprised to

learn

> > he had

> > > already read it. Still I wonder if he did comment on any

POSSIBLE

> > infectious

> > > causes?

> > > a Carnes

> >

> >

> >

> > This list is intended for patients to share personal experiences

with each

> other, not to give medical advice. If you are interested in any

treatment

> discussed here, please consult your doctor.

> >

> >

[Guest guest]

Hi Rich,

Was that Ros Vallings from Auckland?

Kindest regards,

Annette

<snip>

One encouraging thing is that the lady from New

Zealand who has written brief summaries of the high

points for conferences in the past was there

(sorry, her name slips my mind at the moment <end of

snip>

__________________________________________________

[Guest guest]

Annette,

Yes, thank you, that's who I was talking about. It was good to

meet her. She seems like a very nice person. I have read

several of her summaries of the Sydney conferences and of the

AACFS conferences.

Rich

> Hi Rich,

>

> Was that Ros Vallings from Auckland?

>

> Kindest regards,

> Annette

>

> <snip>

> One encouraging thing is that the lady from New

> Zealand who has written brief summaries of the high

> points for conferences in the past was there

> (sorry, her name slips my mind at the moment <end of

> snip>

>

>

>

>

__________________________________________________

>