Re: Digest Number 30

October 17, 1998

Hi Ginny

I quit taking my son to the ped for his " well visits " after the 6 month appt.

I felt it wasn't worth the greif he was giving me over not vaccinating, but

more importantly, I felt taking a well baby into a place where sick babies are

was not in his best intrests. He's never been back to the ped and is now 20

mos. If he is ever in need of medical treatment, I've decided to bring a

file of my best articles and studies to leave with him. I'll ask him to read

them and then we'll talk.

Robin

May 3, 1999

Maybe if the world realized these children had the potential to be bright

and intelligent, the Calif. State legislature announcement of the

significant increase might (??) have gathered some of the appropriate

coverage it deserved.

Cornelia, I have come to truly realize the torture your son and many of

these children must be suffering, I would like to hope it is time to change

this.

Take care,

MJG

Mental " retardation " and autism

Hi,

I had the same exact thought when I read the article. The MR thing was

added to autism package in the late sixties or early seventies I

believe. Our son ,26, suffered greatly from this: his

educational placements made no attempt largely to develop his marvelous

little intellect. He began to use FACILITATED COMMUNICATION (and yes, I

am screaming that word) when he was twenty. That was in 1993 and that

same summer the method got trashed big time by Frontline and other

tabloid tv programs. I do not have time here to defend the method;

those of you who are interested can contact the FC Institute in Syracuse

NY to learn more about.

But as soon as I realized that my child could understand what we were

saying, what radio and tv folks were saying, and what teachers and peers

and neighbors might be telling him, the long depression I had suffered

lifted like a fog burning off. He became much happier too, only to hit

the bottom again when local schools fought us in our effort to gain some

meaningful educational programming not based on " life skills " whatever

that is.

has Autism/Apraxia. That means he is not in control of volitional

movements. He may have the intention to put out his hand to you in

greeting but instead lash out with a leg. Because of FC we learned to

" facilitate " not only his typing and communication but also other

movements such as getting into a swimming pool helped by a gentle touch

on the shoulder.

No wonder our children lash out with " behaviors " when doctors and

teachers talk about them in their presence in unfavorable terms. They

are in effect prisoners of their own bodies. Until we come to grips

with their intelligence and start to treat them like the intelligent

human beings they are, all the medical research in the world is wasted.

Feel free to write to me anytime about FC!

Cornelia

____________________________________________________________________________

___

____________________________________________________________________________

___

January 29, 2000

Dear All:

If you want to go further back, there is a theory that the origins

of HCV go back to WWII. Many of the soldiers were getting extremely sick

from HBV, and rendered them unable to fight. There are some links that,

inorder to alleviate the symptoms of HBV, between all the normal shots,

etc., that were given as a routine to soldiers, was one to prevent them

from getting really sick from HBV.

The theory goes that, by finding a " vaccine " to minimize HBV, the

" Non A, Non B " was a by product. We now know that the Non A/Non B is

really HCV. Interesting correlation, and one that if ever proven, will

bankrupt this and every other civilized Country in the World. Another

reason to keep information " under raps " . We may never find the truth,

but that does not mean to stop looking. Marty

January 29, 2000

Dear All:

If you want to go further back, there is a theory that the origins

of HCV go back to WWII. Many of the soldiers were getting extremely sick

from HBV, and rendered them unable to fight. There are some links that,

inorder to alleviate the symptoms of HBV, between all the normal shots,

etc., that were given as a routine to soldiers, was one to prevent them

from getting really sick from HBV.

The theory goes that, by finding a " vaccine " to minimize HBV, the

" Non A, Non B " was a by product. We now know that the Non A/Non B is

really HCV. Interesting correlation, and one that if ever proven, will

bankrupt this and every other civilized Country in the World. Another

reason to keep information " under raps " . We may never find the truth,

but that does not mean to stop looking. Marty

January 30, 2000

I am a volunteer guinie pig at The U of Michigan. We are now testing

Hep G (wow).

I was a blood donor at one time and ma have infected 10 of you or more.

This is my way of doing penance.

ny of you in SW Michigan? I know some good GI/Hepatologists in this

area if you need names. I also am good friends with Dr Lok at UofM.

She is doing research in Hep C and was my main Doc when I stay there.

My list is slowly growing on good GI docs. Working on North Carolina

drs next.

-

" ...I dream then ask why not "

January 30, 2000

I am a volunteer guinie pig at The U of Michigan. We are now testing

Hep G (wow).

I was a blood donor at one time and ma have infected 10 of you or more.

This is my way of doing penance.

ny of you in SW Michigan? I know some good GI/Hepatologists in this

area if you need names. I also am good friends with Dr Lok at UofM.

She is doing research in Hep C and was my main Doc when I stay there.

My list is slowly growing on good GI docs. Working on North Carolina

drs next.

-

" ...I dream then ask why not "

January 30, 2000

i would just like to ask two questions

1) how many of you feel those with hep c should get vaccinated for hep a

and b?

i hear it can be quite dangerous if hep c people get hep a or b.

2) how often do u feel hep c pos people should have biopsies?

I had my first i 1991 i think, then a year later. Back then they told me

i should have them yearly, but after two, the decided it was not the

way. But since its been eight years, i feel like i should have another

one, atleast after i finish treatment in august. So how often should we

get them, since it is the only accurate way to see if there is liver

damage. even if your doc considers you persistent hepper or chronic

hepper, biopsies are the only true way of seeing how your liver is.

Now about brain fog, i have had it for years, even before my

diagnosis,and my teenage drug years. One reason why i feel I've had hep

longer than they think. But since i am an x junkie, docs just assume.

Does anyone else find they had symptoms way before risky behavior or

diagnosis.

I hope everyone hangs in there. This disease is my number one concern

right now, and i wish everyone who is on the combo could work less, and

i wish anyone who is not working, could have insurance. I suggest

finding out what hospitals give free care, which usually depends on your

income, and also welfare or state assistance. I am on disability, so my

meds are paid for, otherwise i could not afford $600 every two

weeks.Prior to this, i prided myself in how much i worked, and thought

people who took assistance were weak and not pulling there load. I feel

different now, l now i need assistance, and the government or state or

whom ever can help me for a little bit until i get my feet back on the

ground.

My blessings to you all, and thaks for giving me a place toexpress my

feelings

Corey

January 30, 2000