Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 Ritch, Plenty of floaters and I have Lyme Nelly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 Many floaters - my optometrist has commented on the number of them. Been tested for Lyme - Negative. Have had CFIDS (classic case according to Dr. ) since Sept, 1976 (that is NOT a misprint). FWIW - I also have recently been diagnosed with glaucoma and borderline macular degeneration. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 Bob and Rich, My opinion for what it is worth. Floaters are floaters. Get your eyes examined once a year and then focus on something else. As to testing for Lyme, again my opinion, Igenex is the best place to get tested. a Carnes > > As you know, we badly need a better way to distinguish long-term Lyme > disease from other disorders that get diagnosed as CFS. > > Rich, welcome back. I don't know if you suggested we do a informal survery on this list. sounds good to me. > > Yes, I have had floaters for years, maybe as long as I have been ill. I have not been tested for Lyme. I am sending bood samples to Garth Nicholson for testing and I think Lyme is one of his test. Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 Yeah, Bob. That is why I said this was my opinion. My point was that no one is ever going to use floaters as a difinitive diagnosis of any form of Lyme disease. A lot of people have floaters. If one suspects floaters may be serious or getting worse the place to go for treatment or diagnosis is an opthamologist, not a Lyme specialist. Again, just my opinion. The only thing I am an authority on is education, and I don't brag about that. a > > Bob and Rich, > My opinion for what it is worth. Floaters are floaters. Get your eyes > examined once a year and then focus on something else. As to testing for > Lyme, again my opinion, Igenex is the best place to get tested. > a Carnes > > a, I feel if a dr believes this might be an indicator of Lyme, I want to know his/her thinking. Not that I think a dr is anymore of an authority than you are but if they have treated plenty of Lyme patients then maybe they are?? Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2003 Report Share Posted January 11, 2003 Rich, I have floaters, and have tested negative for Lyme through Igenex Lab's three day antibiotic challenge test. My husband, who is healthy, has what he was describing as floaters, but turn out to be a form of ocular migraine, according to the top migraine neurologist at s Hopkins. I say this only because he and I thought we were talking about the same thing until he was asked to describe his " floaters. " Then we realized that what I had in fact lumped together under the general description floaters, in my case, were some of what you describe in your definition of floater, and some component of ocular migraine also. My migraines began when I was in my early 20's (we think, as I have had horrible headaches since I was 6), and were always preceded by an " aura " . Over time the aura disappeared, or so I thought. What replaced the aura were these things, at least some of which I called floaters, that were actually now a form of ocular migraine. So the moral is, not all floaters are floaters. When I asked my optometrist about floaters, he said they are very common, and from the standpoint of eye health, if any area within your field of vision should become grayish, get thee to an eye doc quick. That's a good time to be concerned about detached retinas, otherwise, floaters themselves are not harmful. Granted he's no scientist, but is pretty open-minded, and reads constantly, but he did reassure me. I will note however, that I am positive on Shoemaker/Hudnell's VCS test, both online and via card reader in person. Donna in NC Floaters as a Lyme discriminator? > Hi! > > As you know, we badly need a better way to distinguish long-term Lyme disease from other disorders that get diagnosed as CFS. > > Dr. Kit Humphrey (from another list) suggested to me that the > presence of a lot of floaters in the vitreous humor (the gel inside the eyeball) might serve as a way to distinguish chronic Lyme disease from other disorders in the CFS bin. I wonder if anyone could shed some light on their own situation in this regard. In particular, do you have many floaters, and what is your Lyme testing status? (For those not familiar with floaters, they are dark spots that you can see in your field of view when looking at a white or light-colored background, such as a clear sky. When you shift your gaze, they drift around some and then settle down. They are thought to be caused usually by contraction of the vitreous gel and separation of it from the retina, forming little fibers of material that scatter light. > > I realize that many PWCs may have Lyme disease and haven't tested for it, or haven't had a positive test, so the results of this will be a little murky. > > But maybe if those who know they have Lyme show up with lots of floaters, and there are also some other PWCs who both don't have floaters and don't have certain knowledge that they have Lyme, this may be an indication that it's worth following up on this as a hypothesis. > > Rich Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2003 Report Share Posted January 11, 2003 > Boy, I'm glad you mentioned eyes b/c the whole time I was actually thinking > about stools! > Ha, ha, ha, had my laugh of the day. There is some research actually on what makes them float or not float, but really who gives a **** a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2003 Report Share Posted January 11, 2003 > > > a Carnes <pj7@...> wrote: > Yeah, Bob. That is why I said this was my opinion. My point was that no one > is ever going to use floaters as a difinitive diagnosis of any form of Lyme > disease. > > a, Are you familiar with the VCS test for neurotowxins? Some Dr discovered the vision problems people with neurotoxins had. If the VCS can used to test for neurotoxins, why would it be impossible that eye-floaters are symptoms of Lyme? I am open-minded to that possibility until proven otherwise. > > Rich, would you tell tell us why this doc thought that floaters were an indication of Lyme? Thanks, Bob Floaters might get worse with Lyme. Trouble is virtually everyone has floaters. The title of this post was " floaters as a Lyme discriminator. " A discriminator is very different than another symptom. For instance NMH is a symptom of cfs but not a discriminator. a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2003 Report Share Posted January 11, 2003 In a message dated 1/11/03 8:31:43 PM Eastern Standard Time, writes: > Ha, ha, ha, had my laugh of the day. There is some research actually on what > makes them float or not float, but really who gives a **** > a > Seems like I got the whole group laughing on that one, even though it was absolutely true. I remember from Keep Hope Alive site that floaters are good as it is suggestive of digestive tract being in good shape with good bacteria while " Sinkers and stinkers " and dark or black are bad. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2003 Report Share Posted January 12, 2003 floaters are good as it is suggestive of digestive tract being in good shape with good bacteria while " Sinkers and stinkers " and dark or black are bad. When they start doing the backstroke is when you really gotta worry. PJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2003 Report Share Posted January 13, 2003 Hi: I have heard that floaters increase with age, I don't know if that helps your question but just thought I would mention it. Teena Re: Floaters as a Lyme discriminator? Bob and Rich, My opinion for what it is worth. Floaters are floaters. Get your eyes examined once a year and then focus on something else. As to testing for Lyme, again my opinion, Igenex is the best place to get tested. a Carnes > > As you know, we badly need a better way to distinguish long-term Lyme > disease from other disorders that get diagnosed as CFS. > > Rich, welcome back. I don't know if you suggested we do a informal survery on this list. sounds good to me. > > Yes, I have had floaters for years, maybe as long as I have been ill. I have not been tested for Lyme. I am sending bood samples to Garth Nicholson for testing and I think Lyme is one of his test. Bob This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2003 Report Share Posted January 13, 2003 I recently heard an advertisement for a supplement called " Ocular Nutrition " , and they had a testimony from a person who said their floaters disappeared a few weeks after starting the supplement. There are many similar formulations, and here is a chart comparing the ingrediants: http://www.i-care.net/compare.html Whether any of these really can help, I don't know. However, they do contain a lot of quercetin, something which I found very useful for stopping my corneal erosions (or perhaps it's the bromelain in my supplement, or a combination of the 2). Ironically, my eye doctor had been selling nutritional products for eyes for a while, but never bothered to consider recommending it to me. I took quercetin for a totally different problem, and was, of course, very happy that it seems to have helped my eyes (corneal erosion problems are a 10 on the pain scale of 1 to 10, not to mention not be able to use the eye). What I'm saying is that basically eye doctors don't know a lot about the use of supplements for a lot eye problems, so it may be worth trying one of these supplements. > Hi: I have heard that floaters increase with age, I don't know if that helps your question but just thought I would mention it. > Teena > Re: Floaters as a Lyme discriminator? > > > > Bob and Rich, > My opinion for what it is worth. Floaters are floaters. Get your eyes > examined once a year and then focus on something else. As to testing for > Lyme, again my opinion, Igenex is the best place to get tested. > a Carnes > > > > > As you know, we badly need a better way to distinguish long-term Lyme > > disease from other disorders that get diagnosed as CFS. > > > > Rich, welcome back. I don't know if you suggested we do a informal survery > on this list. sounds good to me. > > > > Yes, I have had floaters for years, maybe as long as I have been ill. I > have not been tested for Lyme. I am sending bood samples to Garth Nicholson > for testing and I think Lyme is one of his test. Bob > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
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