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I would like to second Zippy's suggestion that people do what they can to

make this list more manageable. In recent weeks, I have almost totally

dropped off the list, which is fairly uncommon for me (as most of the oldies

know), just because it seems like some new members are posting SO many posts

per day and the list is generating a lot more mail. I just can't keep up --

I don't know about the rest of you. Zippy's suggestion to utilize sites like

RemedyFind.com is a great idea. Also, we can utilize the polls on the

page for this group to compile information. Also, I have noticed a lot of

people posting articles on the list lately. I think it is fine to post some

articles, but if they are long it might be better for many of us to simply

have a web link, or highlighted passages, instead of the whole article.

Thanks.

Peggy

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Stricken: Voices from the Hidden Epidemic of Chronic Fatigue Syndrome:

http://www.angelfire.com/ri/strickenbk

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My humble suggestion:

keep the subject line on track. Sometimes a subject will change

midstream but the subject line stays the same and the message is

totally unrelated. I receive a digest form (25 posts in 1 email) so

I tend to scan the subject headers and just hone in on those that

interest me. It would be good to know when it's appropriate to change

the subject line also.

Thanks.

Anne

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The problem with a web link is that the web site can disappear and the

information is gone. If the entire article is sent, we can store it on our

computers forever. It doesn't matter to me whether the post is long. What

is more important is that the new response be posted at the beginning so I

know from the first few sentences whether to read or delete. Some people

post at the bottom of a message and you have to scroll way down, and that

takes a long time. People should also remove most of the post they are

answering except the few sentences that help explain their response.

Thanks,

Doris

> I think it is fine to post some articles, but if they are long it might

be better for many of us to simply have a web link, or highlighted passages,

instead of the whole article. Peggy

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Not true with files, which was the suggestion. You download the file and

keep it.

As for saving web pages, I suggest you go to http://www.surfsaver.com and

download their free version. I paid for the Pro version and it's become an

essential research tool.

++PLS

Re: Re: Managing this list

The problem with a web link is that the web site can disappear and the

information is gone. If the entire article is sent, we can store it on our

computers forever. It doesn't matter to me whether the post is long. What

is more important is that the new response be posted at the beginning so I

know from the first few sentences whether to read or delete. Some people

post at the bottom of a message and you have to scroll way down, and that

takes a long time. People should also remove most of the post they are

answering except the few sentences that help explain their response.

Thanks,

Doris

> I think it is fine to post some articles, but if they are long it might

be better for many of us to simply have a web link, or highlighted passages,

instead of the whole article. Peggy

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

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Just my thoughts here.

I've been on the list since 2001, although I unsubscribed twice when I

crashed, not realizing that I could have gone No Mail. Regarding the volume

of posts, if you check the archive summary, there were actually more posts

in year 2000, some as high as 2200 per month. So I think it just depends on

how many new people join and what's happening out in the world re CFS.

I have two suggestions, and I hope you can bear with me as I say this.

1. Limit the Number of Posts Per Day, per Person. This would help cut

down the volume. I'm not suggesting anyone should monitor this, but that we

could moderate ourselves. Do we really need to post more than 2-3 times per

day (unless someone is specifically asking for our input).

2. Check Your Emotions at the Door. So many times, I've wanted to write

back a sharp, zingy email to various posts that have riled me up. But I've

seen what happens when people let their emotions rule them. So when I can't

hold back and I just have to let xxx know how I feel about their comments, I

write an email in my 'drafts' folder in Outlook. Then I keep it there for

awhile until I've gotten over my anger. Then I press the 'delete' button.

So far I've been lucky and haven't slipped up and sent it out accidentally

:o)

Thanks for listening and now I'll go back to my nest.

Anne

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Thanks for your input Peggy.

I think using the polls is a good idea too. I noticed one flaw

though.

I could not access a poll to " research " it, unless I voted.

Some things I have no experience with, or opinion on. So, it would

be unfair on others for me to vote on it. It would skew the results

when I have no idea what I'm talking about.

But, I would like to be able to see the experiences that others have

had with it, to see if it might be something I wanted to try also.

Does anyone have any ideas on how this flaw in the polls might be

corrected?

Zippy

====================================================================

> I would like to second Zippy's suggestion that people do what they

can to

> make this list more manageable. In recent weeks, I have almost

totally

> dropped off the list, which is fairly uncommon for me (as most of

the oldies

> know), just because it seems like some new members are posting SO

many posts

> per day and the list is generating a lot more mail. I just can't

keep up --

> I don't know about the rest of you. Zippy's suggestion to utilize

sites like

> RemedyFind.com is a great idea. Also, we can utilize the polls on

the

> page for this group to compile information. Also, I have noticed a

lot of

> people posting articles on the list lately. I think it is fine to

post some

> articles, but if they are long it might be better for many of us to

simply

> have a web link, or highlighted passages, instead of the whole

article.

> Thanks.

>

> Peggy

>

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> Stricken: Voices from the Hidden Epidemic of Chronic Fatigue

Syndrome:

> http://www.angelfire.com/ri/strickenbk

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All, it is much easier to just read the posts from the website. I

have been on digest, but I find it much easier to read from the

site and simply pick out which posts you want to read

without having to scroll through a digest.

Mike C

> >

>

> Good point Anne, and that's another good sign taht someone is

probably

> not on Digest mode. It's one thing if one brainfoggedly forgets to

change

> the subject title but to not even make an effort to do it is

shameless and

> selfish. I hope everyone here makes a sincere effort.

>

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I think some great ideas are being raised regarding management of this list,

and since this topic seems to come up frequently, how about if we compile

these ideas into guidelines? Instead of making the moderators/listowners do

all the work, I would like to suggest that we listmembers comprise a set of

guidelines that would be emailed to new members when they join and would

also be available on the website. They would have to be approved by the

listowners, of course, and then I would suggest a post from the

moderators/listowners announcing them so everyone will know. (I don't think

many members are following this thread because it's off-topic.)

These new guidelines could be merged with the existing ones. They would

need to be short (so people would read them) and easy to understand. The

idea is to reduce the number and length of postings, without sacrificing

content or topics, of course.

Also, it should be stressed that we are not trying to turn this list into a

police state. No one will be penalized for going outside the rules, and a

friendly reminder *backchannel* is all that is needed to enlighten someone

who is not following them.

In that spirit, I'd like to take a stab at a few, to get things started.

Feel free to rework them and add others:

1. Please do not post thank-you notes, acknowledgements, jokes, or chat to

the list. These are best sent backchannel.

2. If the topic of a thread changes in the course of discussion, please

change the subject line to accurately reflect it. It is sometimes helpful

to append the new subject line with " Was " followed by the original subject

line so readers can follow the whole thread.

3. When replying to a message, please quote a few lines from the original

posting so that readers know what you are replying to. Try to avoid quoting

the entire message unless necessary for clarity. Shorter is better. Please

make it clear where the quote ends and your reply begins.

Thoughts?

Thanks,

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I'm for it.

Zippy

(With the inclusion of double line seperators between posts and

replies, like the one below)

==================================================================

> I think some great ideas are being raised regarding management of

this list,

> and since this topic seems to come up frequently, how about if we

compile

> these ideas into guidelines? Instead of making the

moderators/listowners do

> all the work, I would like to suggest that we listmembers comprise

a set of

> guidelines that would be emailed to new members when they join and

would

> also be available on the website. They would have to be approved

by the

> listowners, of course, and then I would suggest a post from the

> moderators/listowners announcing them so everyone will know. (I

don't think

> many members are following this thread because it's off-topic.)

>

> These new guidelines could be merged with the existing ones. They

would

> need to be short (so people would read them) and easy to

understand. The

> idea is to reduce the number and length of postings, without

sacrificing

> content or topics, of course.

> Also, it should be stressed that we are not trying to turn this

list into a

> police state. No one will be penalized for going outside the

rules, and a

> friendly reminder *backchannel* is all that is needed to enlighten

someone

> who is not following them.

>

> In that spirit, I'd like to take a stab at a few, to get things

started.

> Feel free to rework them and add others:

>

> 1. Please do not post thank-you notes, acknowledgements, jokes, or

chat to

> the list. These are best sent backchannel.

>

> 2. If the topic of a thread changes in the course of discussion,

please

> change the subject line to accurately reflect it. It is sometimes

helpful

> to append the new subject line with " Was " followed by the original

subject

> line so readers can follow the whole thread.

>

> 3. When replying to a message, please quote a few lines from the

original

> posting so that readers know what you are replying to. Try to

avoid quoting

> the entire message unless necessary for clarity. Shorter is

better. Please

> make it clear where the quote ends and your reply begins.

>

> Thoughts?

>

> Thanks,

>

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I agree with Peggy. Information overload. My e-mail keeps filling up.

Steve B.

>From: Peggomatic@...

>Reply-

>

>Subject: Re: Managing this list

>Date: Thu, 23 Jan 2003 21:39:51 EST

>

>I would like to second Zippy's suggestion that people do what they can to

>make this list more manageable. In recent weeks, I have almost totally

>dropped off the list, which is fairly uncommon for me (as most of the

>oldies

>know), just because it seems like some new members are posting SO many

>posts

>per day and the list is generating a lot more mail. I just can't keep up

>--

>I don't know about the rest of you. Zippy's suggestion to utilize sites

>like

>RemedyFind.com is a great idea. Also, we can utilize the polls on the

>

>page for this group to compile information. Also, I have noticed a lot of

>people posting articles on the list lately. I think it is fine to post

>some

>articles, but if they are long it might be better for many of us to simply

>have a web link, or highlighted passages, instead of the whole article.

>Thanks.

>

>Peggy

>

>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>Stricken: Voices from the Hidden Epidemic of Chronic Fatigue Syndrome:

>http://www.angelfire.com/ri/strickenbk

_________________________________________________________________

MSN 8 with e-mail virus protection service: 2 months FREE*

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Great idea. However, I would be in favor of someone (with better

writing skills than me) summarize the guidelines and put them on

the website so that new members will see them, and, when someone

violates the guidelines, that person can simply be directed to the

CFSExp home page.

Mike C.

- In , " purplesparrow "

<purplesparrow@e...> wrote:

> I think some great ideas are being raised regarding management of

this list,

> and since this topic seems to come up frequently, how about if we

compile

> these ideas into guidelines?<<snip>> They would have to be

approved by the

> listowners, of course, . (I don't think

> many members are following this thread because it's off-topic.)

>

> These new guidelines could be merged with the existing ones. They

would

> need to be short (so people would read them) and easy to

understand. The

> idea is to reduce the number and length of postings, without

sacrificing

> content or topics, of course.<<<snip<<

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