Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 x Hello! I am trying once again to get some more clarity about the function of antibiotics in relation to CFS. More than a year ago I was giving a long-term antibiotics treatment, over a few months, and in that period I improved singificantly. I don't know if it was because of the antibiotics or whether it was a correlation. But I do find it interesting, because I think I have had a CFS relapse because of an infection. I have read some of Nicolson's comments on antibiotics. Accordining to my father seems to claim that everyone improves with antibiotics treatment. Is this true, and can this really be the case. Nicolson also suggests that one can get really ill in the beginning of the antibiotics treatment. One thing that can happen is for instance headaches, due to reparations in the brain. I have tried antibiotics for about 4 weeks now recently, and I felt worse, then took a break and seemed to be getting better. But I don't really feel well, and wonder if the antibiotics can do harm, or whether it is just the initial reaction that Nicolson talks about. Any comments? I know that both Nicolson and Meirleir recommends long-term antibiotics for many patients, but as has been discussed on the list this treatment is not without side-effects, so it would be good to see if anyone had any opinions. Best wishes, s Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 When I've tried antibiotics, s, I haven't been able to tolerate them for more than a week at most and then it's taken my immune system several weeks to recover. Hope this helps, Rob Antibiotics and CFS Hello! I am trying once again to get some more clarity about the function of antibiotics in relation to CFS. More than a year ago I was giving a long-term antibiotics treatment, over a few months, and in that period I improved singificantly. I don't know if it was because of the antibiotics or whether it was a correlation. But I do find it interesting, because I think I have had a CFS relapse because of an infection. I have read some of Nicolson's comments on antibiotics. Accordining to my father seems to claim that everyone improves with antibiotics treatment. Is this true, and can this really be the case. Nicolson also suggests that one can get really ill in the beginning of the antibiotics treatment. One thing that can happen is for instance headaches, due to reparations in the brain. I have tried antibiotics for about 4 weeks now recently, and I felt worse, then took a break and seemed to be getting better. But I don't really feel well, and wonder if the antibiotics can do harm, or whether it is just the initial reaction that Nicolson talks about. Any comments? I know that both Nicolson and Meirleir recommends long-term antibiotics for many patients, but as has been discussed on the list this treatment is not without side-effects, so it would be good to see if anyone had any opinions. Best wishes, s This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 andreas i think it is important to find out what you might be taking the abx for. as for nicholson, i have read that he looks for many bacteria including (mycoplasma, chlamydia pneumoniae, brucella, bartonella, lyme, ehrlicia, babesia (a protozoan, i believe)) there are probably others. but if you don't know what you're treating it might be hard to get rid of it. still, the testing for all of these things is not perfect, so it also might be worth trying abx anyway and see how it goes.... there is also Dr Shoemaker (who has been discussed quite a bit recently), who looks for (among other things) a bacteria called coagulase negative staphylococcus deep in the sinuses. if you are interested in his ideas check out: www.chronicneurotoxins.com and follow the postings here and at the stealth site: TheStealthVirusSupportGroup/ personally, if you father is a DR, i would have him contact Dr Shoemaker directly and get all the info from the source. i have read many times that Dr Shoemaker is happy to consult with interested physicians. anyway, if you have any questions, please feel free to ask. thanks bill > > Hello! I am trying once again to get some more clarity about the function > of antibiotics in relation to CFS. More than a year ago I was giving a > long-term antibiotics treatment, over a few months, and in that period I > improved singificantly. I don't know if it was because of the antibiotics > or whether it was a correlation. But I do find it interesting, because I > think I have had a CFS relapse because of an infection. > > I have read some of Nicolson's comments on antibiotics. Accordining to my > father seems to claim that everyone improves with antibiotics treatment. > Is this true, and can this really be the case. Nicolson also suggests that > one can get really ill in the beginning of the antibiotics treatment. One > thing that can happen is for instance headaches, due to reparations in the > brain. I have tried antibiotics for about 4 weeks now recently, and I felt > worse, then took a break and seemed to be getting better. But I don't > really feel well, and wonder if the antibiotics can do harm, or whether it > is just the initial reaction that Nicolson talks about. Any comments? > > I know that both Nicolson and Meirleir recommends long-term antibiotics > for many patients, but as has been discussed on the list this treatment is > not without side-effects, so it would be good to see if anyone had any > opinions. > > Best wishes, > s Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 Hi s I too had a good remission from only 3 weeks of abx, I lost 2/3rds of my symptoms over a 6 month period from that 3 weeks of abx. This is what got me interested in this line of thinking. Bill makes a point which I consider is most important about getting abx to treat us. We must get the bacteria identified completely and abx sensitivities done to see which abx will kill the bacteria. Prescribing abx without getting these sensitivities done completely can cause further problems, such as creating harder to kill/more resistant organisms, or can simply have no effect on your health, or can make you feel worse as the abx tries unsuccessfully to fight the bacteria. Dave > > Hello! I am trying once again to get some more clarity about the function > of antibiotics in relation to CFS. More than a year ago I was giving a > long-term antibiotics treatment, over a few months, and in that period I > improved singificantly. I don't know if it was because of the antibiotics > or whether it was a correlation. But I do find it interesting, because I > think I have had a CFS relapse because of an infection. > > I have read some of Nicolson's comments on antibiotics. Accordining to my > father seems to claim that everyone improves with antibiotics treatment. > Is this true, and can this really be the case. Nicolson also suggests that > one can get really ill in the beginning of the antibiotics treatment. One > thing that can happen is for instance headaches, due to reparations in the > brain. I have tried antibiotics for about 4 weeks now recently, and I felt > worse, then took a break and seemed to be getting better. But I don't > really feel well, and wonder if the antibiotics can do harm, or whether it > is just the initial reaction that Nicolson talks about. Any comments? > > I know that both Nicolson and Meirleir recommends long-term antibiotics > for many patients, but as has been discussed on the list this treatment is > not without side-effects, so it would be good to see if anyone had any > opinions. > > Best wishes, > s Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 Dave, > If you suspect a specific group of bugs, as Penny does, >then a more concise way of diagnosis and treatment is the way to go. But only if you can find them and grow them! You can suspect Bb very specifically, even " prove " its existence with tests, but you can't do sensitivity tests to find the right abx because you can't find and grow it. >... Hence I am >looking towards a possible l-form staph infection. L-forms by their >definition will be slow growing because of their lack of an outer cell >wall to draw in nutrition.... gram stains which are grown in a growth medium >for 2 days then cultured for 3 days which came out negative for me, as >opposed to culturing directly for 7 days which was positive. You have certainly put in the hard yards for trying to identify your problem bugs - were your cultures done from your blood? n Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 Sure were, my little finger was thoroughly sterilised, then pierced, and then blood was dripped onto the pre-warmed petri dish medium directly. See the pdf in http://www.cfsresearch.org/cfs/research/treatment/5nf.htm for a bit more detail. Looking at my cultures, I have been informed they appeared very hemolytic (toxin-producing). Dave > Dave, > > > If you suspect a specific group of bugs, as Penny does, > >then a more concise way of diagnosis and treatment is the way to go. > > But only if you can find them and grow them! You can suspect Bb very > specifically, even " prove " its existence with tests, but you can't do > sensitivity tests to find the right abx because you can't find and grow it. > > > >... Hence I am > >looking towards a possible l-form staph infection. L-forms by their > >definition will be slow growing because of their lack of an outer cell > >wall to draw in nutrition.... gram stains which are grown in a growth medium > >for 2 days then cultured for 3 days which came out negative for me, as > >opposed to culturing directly for 7 days which was positive. > > You have certainly put in the hard yards for trying to identify your > problem bugs - were your cultures done from your blood? > > n Quote Link to comment Share on other sites More sharing options...
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