Guest guest Posted October 12, 2002 Report Share Posted October 12, 2002 In a message dated 10/12/02 7:36:19 AM Eastern Daylight Time, writes: << think CFS may be a bad name, perhaps it is better with " ME " which is normally used in Norway and UK now. The association for patients here uses the term " ME " . I s >> I have gotten so fed up with all the red tape about trying to change the name that I have just started using ME myself when I talk to someone that doesn't know about it, explaining that that is how it is known in most of the world but some in the US still use CFS or CFIDS. In writing I sometimes put ME, formerly known as CFIDS. I know this is not accurate, but damn, the whole issue just burns me up. If you read the wonderful book " Osler's Web " it will give you a history of the name of the disease and make your blood boil. Olga Quote Link to comment Share on other sites More sharing options...
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