Re: Cheney-Chronic Lyme is indistinguishable from CFIDS

September 2, 2002

Jan

I do not think Cheney is the one who can tell you if you have lyme.

He has recommended some questionable tests in the past. I would not

have him treat you for lyme if that is all you have. In some cases,

lyme is probably like other infections which can lead or support

CFIDS. In other cases, it is probably just lyme, but who really

knows?

Kell

> Hi all!

>

> I was looking up some literature and watched last years tape of

> Dr. Cheney. He mentions that Chronic Lyme and CFIDS are

> indistinguishable. Does anyone know if Cheney has been able to

> figure out if you truly have Lyme or truly have CFIDS.

> As most of you already know Lyme testing is notorious for being

> inaccurate.

>

> Does anyone know if Cheney has Lyme patients or has treated Lyme?

>

> Any thoughts or comments on this is greatly appreciated!

> -Jan

September 2, 2002

Cheney is getting educated in Lyme as of late. I sent him much info from the

mycoplasma list and from a Lyme list, and he studied that info in great

depth. Had several conversations with directors of the most recommended

labs, and talked with me about the way we would test for it. I was pleased

with what he came up with, and I can tell you I was prepared to find a LLMD

if he was not going to bark up the same tree as I felt we should. My test

was negative (as all my other Lyme tests were, just that this time I felt

better about the labs used - note that Cheney was not the doctor who had the

other Lyme tests done). Since I tested negative, thankfully, I do not know

how he treats Lyme, if at all, but someone on either this list or another I

belong to said that they thought he referred Lyme positive patients to a

LLMD. But I do not know that for certain.

Donna in NC

Re: Cheney-Chronic Lyme is indistinguishable

from CFIDS

> Jan

>

> I do not think Cheney is the one who can tell you if you have lyme. He

has recommended some questionable tests in the past. I would not have him

treat you for lyme if that is all you have. In some cases, lyme is

probably like other infections which can lead or support CFIDS. In other

cases, it is probably just lyme, but who really knows?

>

> Kell

September 14, 2002

Of course Cheney can tell you if you have lyme. His state of

learning is where most other doctors was in the past and his advice

reflected that. He is now using a more advanced lyme test - I cant

remember what its called - which is much more accurate. Whether hes

the one to treat you for lyme - thats another question. I can't

imagine he would be any worse and I do imagine that he would be better

than most doctors who primarily treat CFS. I cant imagine he would be

as effective as doctors who specialize in lyme disease.

In @y..., " pine108kell " <P402wilson@a...> wrote:

> Jan

>

> I do not think Cheney is the one who can tell you if you have lyme.

> He has recommended some questionable tests in the past. I would not

> have him treat you for lyme if that is all you have. In some cases,

> lyme is probably like other infections which can lead or support

> CFIDS. In other cases, it is probably just lyme, but who really

> knows?

>

> Kell

>

> > Hi all!

> >

> > I was looking up some literature and watched last years tape of

> > Dr. Cheney. He mentions that Chronic Lyme and CFIDS are

> > indistinguishable. Does anyone know if Cheney has been able to

> > figure out if you truly have Lyme or truly have CFIDS.

> > As most of you already know Lyme testing is notorious for being

> > inaccurate.

> >

> > Does anyone know if Cheney has Lyme patients or has treated Lyme?

> >

> > Any thoughts or comments on this is greatly appreciated!

> > -Jan

September 14, 2002

> Of course Cheney can tell you if you have lyme. His state of

> learning is where most other doctors was in the past and his advice

> reflected that. He is now using a more advanced lyme test - I cant

> remember what its called - which is much more accurate. Whether hes

> the one to treat you for lyme - thats another question. I can't

> imagine he would be any worse and I do imagine that he would be better

> than most doctors who primarily treat CFS. I cant imagine he would be

> as effective as doctors who specialize in lyme disease.

As I see it, the question is: Why would Cheney want to treat a person

who has lime disease? If he tested someone with the sophisticated

test you are talking about, Cort, and found that the person does

indeed have lime disease, why would Cheney not send that patient on to

a LLD? He has many contacts and could certainly find lime literate

doctor. Moreover, he calls himself a CFIDS specialist and is

researching CFIDS and has CFIDS patients lined up at his door, so,

unless a person with lime disease had absolutely no way of getting to

a LLD, why would Cheney want to treat a person with lime?

September 14, 2002

There are no accurate tests for lyme and the newer tests are not any

better than just getting an old fashion Western Blot. PCR gets about

30% of chronic cases. Even the CDC says that Lyme is a clinical

diagnosis based on symptoms, exposure, rashes, functioning tests,

etc.--blood tests are only supportive--and very often they are

incorrect. I would agree that Dr. Cheney's knowledge would make him

better than 95% of doctors in diagnosing lyme, but in my opinion, if

lyme is suspected, I would find an LLMD.

Kell

> > > Hi all!

> > >

> > > I was looking up some literature and watched last years tape of

> > > Dr. Cheney. He mentions that Chronic Lyme and CFIDS are

> > > indistinguishable. Does anyone know if Cheney has been able to

> > > figure out if you truly have Lyme or truly have CFIDS.

> > > As most of you already know Lyme testing is notorious for being

> > > inaccurate.

> > >

> > > Does anyone know if Cheney has Lyme patients or has treated

Lyme?

> > >

> > > Any thoughts or comments on this is greatly appreciated!

> > > -Jan

September 14, 2002

Do we know for sure that he does treat Lyme Disease? He is having patients

tested for it, and has done a great deal of research into which labs/tests

would best serve his patients, but just because he does that doesn't mean he

in fact attempts to treat them. I don't know. He did this research at my

request, but we did not discuss anything beyond testing. My test was

negative, and I am comfortable with that, so we had no further discussion.

Question really is: Is he attempting to treat his patients for Lyme?

Donna in NC

Re: Cheney-Chronic Lyme is indistinguishable

from CFIDS

If he tested someone with the sophisticated test you are talking about,

Cort, and found that the person does indeed have lime disease, why would

Cheney not send that patient on to a LLD? He has many contacts and could

certainly find lime literate doctor. Moreover, he calls himself a CFIDS

specialist and is researching CFIDS and has CFIDS patients lined up at his

door, so, unless a person with lime disease had absolutely no way of getting

to a LLD, why would Cheney want to treat a person with lime?

September 15, 2002

Perhaps Cheney might be interested in treating a Lyme patient because he

now suspects that a lot of CFS is in fact Lyme or related infections? So

being a CFS specialist means he now has to understand Lyme.

n

>As I see it, the question is: Why would Cheney want to treat a person

>who has lime disease? If he tested someone with the sophisticated

>test you are talking about, Cort, and found that the person does

>indeed have lime disease, why would Cheney not send that patient on to

>a LLD? He has many contacts and could certainly find lime literate

>doctor. Moreover, he calls himself a CFIDS specialist and is

>researching CFIDS and has CFIDS patients lined up at his door, so,

>unless a person with lime disease had absolutely no way of getting to

>a LLD, why would Cheney want to treat a person with lime?

September 16, 2002

I suppose it would depend upon his assessment of his own ability to treat

lyme and whether a person with both CFS and lyme would be better served by a

CFS doctor, a lyme doctor, or both of them working together. I cant imagine

he would treat someone with lyme only and the posts indicate that he

wouldn't. the context I was thinking of was a person with CFS and lyme.

>From: " sherimmm " <sherimmm@...>

>Reply-

>

>Subject: Re: Cheney-Chronic Lyme is indistinguishable

>from CFIDS

>Date: Sat, 14 Sep 2002 21:25:09 -0000

>

> > Of course Cheney can tell you if you have lyme. His state of

> > learning is where most other doctors was in the past and his advice

> > reflected that. He is now using a more advanced lyme test - I cant

> > remember what its called - which is much more accurate. Whether hes

> > the one to treat you for lyme - thats another question. I can't

> > imagine he would be any worse and I do imagine that he would be better

> > than most doctors who primarily treat CFS. I cant imagine he would be

> > as effective as doctors who specialize in lyme disease.