We're Sitting on the Answer -Coalition

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11 May 2002

Editorship : j.van.roijen@...

Outgoing mail scanned by Norton AV

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From: cesar quintero <sezar99q@...>

Wednesday, May 08, 2002

It's 3:15 am and I awake with a start. I can no longer put off

writing this letter and sharing this horrific story. The reason

-- it involves all of us. Unlike a fictional thriller, this is

real, daunting, alarming, and much too silent. We are all

touched by this story to some degree, and with the passing of

time, it will move from the sixth degree to the first degree for

the entire population! A story so complicated to tell, but so

simple in reality. A story that needs to be headlined

internationally, so that we can put our heads, hearts, and

pocket books together to reverse this nasty robber of our

future.

Many, no, numerous articles have been published and aired about

Autism, especially in the past five years. While I am thankful

for the campaign for Autism awareness, I am reminded of what

awareness campaigns did and did not do for Chronic Fatigue

Syndrome sufferers in the 80's. It's just not enough.

The information is incomplete, has missed its mark, and is

misleading. We are reading and viewing that " Autism is sharply

rising in epidemic proportions " . One in 10,000 were diagnosed

with this disorder 10 years ago, and now, conservatively, it's

at 1 in 300. Chronic Fatigue Syndrome (CFS) growth records

indicate a parallel in statistics. And surprisingly (or not

surprisingly), Attention Deficit Disorders (ADD) and Learning

disorders (LD's) are increasing at a similar rate.

Doctors and others are questioning, " is it just better

diagnostic techniques? " Were these autistic children missed in

the past? I think NOT! No one can MISS a child with Autism. At

the very least, they would have been grouped into another

disability. Past and present statistics will dispel that theory.

Other disabilities are increasing as they always have at a much

slower rate (a small percentage equivocal to the increase in

population).

People (adults and children alike) with CFS are stigmatized as

lazy, not wanting to work, plagued by a self wrought

psychological disorder, in other words, a hypochondriacal farce.

However, the majority of folks diagnosed with this disease are

type A's- hard workers, intelligent, goal oriented, leaders

and top contributors in their field. The causation of ADD in

children is often blamed on poor parenting. But when neuro-spect

scan results show a decrease in the blood and oxygen flow to

their brains, yielding brain damage effecting the very areas

corresponding to their impairment, that opinion falls apart.

Does anyone want to know the real story? The connection between

these misunderstood diseases, (yes DISEASES, not psychological,

not developmental, not purely neurological disorders!), why they

are growing at such an alarming rate, and what can be done to

stop them today? If not, stop reading HERE.

Autism, ADD, LD's and CFS are common words used in my home.

, my 10-year-old daughter with liquid brown eyes and lacy

lashes, bears the Autism diagnosis. Meghan, my bouncing blonde

13 yr old stepdaughter is labeled with ADHD, Learning

disabilities, and Chronic Fatigue Syndrome. And as if that's

not enough, I was diagnosed with dyslexia as a child, and have

been plagued with CFS and autoimmune disease for the past 12

years (It just feels like I have the flu most of the time!). My

family refers to all of these checklist disorders as

(Neuro-Immune Dysfunction Syndromes). We believe they are one

and the same, and here's why:

Simply, the three of us have overlapping signs and symptoms

(headaches, low grade fevers, bowel problems, sleep problems,

cognition difficulties etc, etcâ€|you get the picture). Our

blood work indicates common abnormality markers (viral

activation, low natural killers, high lymphocytes, etc.).

Our medical histories are colored with similar pre-dispositions

(for starters my father: ulcerative colitis, sister: bi-polar

manic depression, 's dad and half brother: ADD, Meghan's

birth mother, Anxiety disorder, food intolerances, and suspected

CFS). And, we are all three using the same treatment protocol,

which has been the only safe, successful medical intervention

for us.

Oh, but we are not unique. I receive several calls each week

from different families who echo this situation. Families, who

like us, struggle to survive physically, emotionally and

financially. Families who are constantly tugging with the

education systems, state and federal disability service

providers and medical insurance companies who refuse to cover

many needed services. Families with chronically ill adults

raising disabled children!

So, the problem: diseases growing at an alarming compounded

rate-crunch the numbers for Autism alone, and we are looking at

a likely increase to one in 25 in the next ten years? Stay tuned

for the answer to the problem.

OK, so what exactly is ? Well, if I were teaching a course

in 101, I'd introduce you to this phenomenon with a paper

entitled " The Myth of Autism " , by Dr. Goldberg (see

attached). Your textbook would be " The Virus Within, A Coming

Epidemic " by Regush. And your assignment would be to

fund the cure. No, I didn't mean, " FIND " the cure, I meant

" FUND " it.

Let me introduce you to Dr. Goldberg (www.NeuroImmuneDr.com). He

is a clinical pediatric practitioner in Tarzana, California.

Elyse, his lovely and gifted wife who was diagnosed with CFS

years ago, is his primary motivation. Autism, ADHD, LD's and CFS

are his specialty - only he labeled them appropriately as

(Neuro-immune Dysfunction Syndromes) and classifies as a

disease. He is currently providing patients some relief with a

safe, effective interim treatment. This treatment protocol is

not a cure, but provides hope for patients until a cure is

available.

" Can't have an epidemic of genetic causation, " he says (and

rightly so), " has to be a disease process. " Science backs that

claim. Dr. G. is not alone in this mindset. Other prominent

researchers and clinicians are arriving at the same conclusion

independently, internationally. Fortunately, Dr. G. has pulled

some of these noted professionals together to form an assault

team (in my humble opinion, the navy seals of the medical

profession!)

The Research Institute and Coalition includes this assault

team as the " Medical Advisory Board " . The attached "

Hypothesis Statement " explains and backs their collective stand

on these diseases. Families effected by and other

professionals comprise the " Coalition " part of this entity. The

Coalition is incorporated with a board of directors.

I'm one of them. Now, for the big news... the Research

Institute has designed a plan to investigate immune modulators

as a cure for these diseases - yes a plan which has us ready to

start clinical trials NOW! (Dr. G's major goal is " to cure THIS

generation! " He says that these kids are " tomorrow's leaders " ,

so there's no time to waste). The Coalition's job is to

FUND it. Remember that word?

So, we've identified the problem, we're sitting on the answer,

and all we need is money to put it in motion. We have both a

for-profit and a non-profit plan and pharmaceutical companies

ready to participate. 6 million dollars will get us going and

about 18 million will complete the task. A large but undaunting

amount when you consider the huge savings to our society.

Housing, food, Medicare, social security, special education,

etc. present enormous lifetime costs if these people go untreated.

Not to mention, reversing the effects of this disease will

reverse dependent citizens to producing taxpayers.

But most importantly, sufferers were NOT born this way

--these are NOT developmental disorders or birth defects. First

hand, I can tell you that not only are kids and adults

sick, but most of them feel sick as well. These illnesses are

physically painful, and emotionally and financially draining-

tearing apart families and devastating lives.

How can you help? Spread this information and FUND the immune

modulators project. We can all pull together to change our

medical destiny!

How can we help you? Contact us at: www..net. E-mail me

(Tina Hendrix) at Cure2000@a... or telephone at

(707)538-2193 in Santa , CA.

Tina M. Hendrix

Cure2000@a...

Vice-President, California Coalition

Neuro-Immune Dysfunction Syndromes

Autism Spectrum Disorder, ADD/ADHD, Learning Disorders,

Hyperactivity, CFS, etc.