Re: flickering eyes, flying sensations

[Guest guest]

I can certainly relate to the bad nerves symptom. I used to

get anxious around my own family!! But I am much better now. One

idea is that if you have any pain, try one of the sedating pain

killers like fiorcet. It has a small amount of barbituate that helps

with the overstimulation. Klonopin will help as will ambien. But

*always* keep in mind what you said, start with a low dose. BTW,

I am 45 w/ CFS for 8 years, and no nerve problems anymore.

Mike

> I am a 30-year-old man suffering with severe M.E for five and a

half years.

> First 18 months bedbound-last 4 years housebound.

> My main problems (apart from obvious fatigue) are: -

>

> 1. Bad nerves, a sense that the nervous system has taken on a life

of it's own,

> causing feelings of over-stimulation and anxiety when there is no

reason to feel

> like this.

> These sensations worsen when trying to watch, read or listen.

]

[Guest guest]

I used to use a drug called meclazine to control the mild vertigo, however my

otologist has said it's caused by herpes infection in ear labyrinth (Meniere's

Disease) and has me on 500 mg famvir 2x

day.

A good otologist will do balance testing and physical therapy to help with this

problem.

Beck

[Guest guest]

Hi,

I don't have real informed replies but I can say this:

1. I believe that many people have increased overstimulation/anxiety

(two different but probably physiologically related sx) on anti-d's, and

benzodiazapem's (anxiolytics) are often recommended to counter that.

I've been told that Zoloft is the one that has the most anti-anxiety

effect of all the SSRIs, so maybe that would be something to try if you

haven't already.

2. I don't have the flying sensation but the illness started with

horrible vertigo and something related that was called " impulsion " in

which when I'd stop walking (to get from the bathroom back to bed, as I

was then bedridden) I felt I was still moving, and that was horrible.

Though I'm pretty sick those symtpms , which I believe are inner

ear-neurological possibly of infectious or allergic or both origin, have

mostly stopped (though I still get vertigo sometimes). However, I have a

gut feeling that the flying thing you describe is very likely related.

I too have problems with meds--very sensitive as many of us are. None of

the common anti-vertigo drugs ever helped. I believe that magnesium did.

And I believe Inderal (a beta blocker used sometimes for migraines) did.

Though my run of lots of bad luck with specialists who know zilch about

this illness makes me reluctant to suggest this to you, finding a good

ENT doc (I have one) and/or a good neurologist might help you. Do not

let them convince you it's atypical depression. Everying they don't

understand the cause of is, among a few other pschiatric diagnoses,

atypical depression. When Tony Komaroff used that term I was very

annoyed but didn't know that it's actually a diagnostic category with a

def and code in the DSM .

Readingi it makes you realize thatscience, clarity of thinking, and many

psychiatric diagnostic definititons have nothing in common! And we take

the heat.

I do hope you find some relief. It sounds miserable.

I'm still trying to figure out the cause and remedy for the

overstimulation. Even it's triggers aren't constantly effective as

triggers but when they are it is horrible.

Best,

Judith Wisdom

On Tue, 18 Dec 2001 00:23:34 -0000 " chris rose " <chris42@...>

writes:

I am a 30-year-old man suffering with severe M.E for five and a half

years.

First 18 months bedbound-last 4 years housebound.

My main problems (apart from obvious fatigue) are: -

1. Bad nerves, a sense that the nervous system has taken on a life of

it's own,

causing feelings of over-stimulation and anxiety when there is no reason

to feel

like this.

These sensations worsen when trying to watch, read or listen.

2. A bizarre sensation of flying when my eyes are closed either sitting

up or

lying down.

The direction and speed of the movement feelings vary, also my eyelids

flicker

uncontrollably when closed.

I assume that these strange symptoms are to do with a disturbance in the

bodies

balance mechanism.

As far as drugs go, try-cyclic anti-depressants improve most of my

symptoms but

worsen the flying and flickering, so much so, that I have to stop them.

Some of the newer anti-depressants have improved the flying sensations,

but

greatly worsen the nervous/anxiety feelings.

I have always approached all drugs very gently, starting with a crumb, as

I am

very sensitive to them.

I have also tried many alternative remedies without great result.

Has anyone else out there experienced these sorts of symptoms? What did

you do

about it?

Any help you could give me would be greatly appreciated.

Thanks for your time.

Chris42@...

[Guest guest]

I have observed that the use of Tricyclic Antidepressants can

make some symptoms worse especially when the problem of low blood pressure

already exists. The reason is simply that Tricyclic Antidepressants commonly

present the side effect of Postural Hypotension, that is low blood pressure

especially when moving from, for example, sitting to standing.

The new Antidepressants, usually Selective Serotonin Re-Uptake

Inhibitors, SSRI's, work on a different principle and I believe do not cause

the effect of Postural Hypotension, that is low blood pressure. For this

reason, drugs such as Lustral can be used where the side effects are less

distressing, and in some cases help with establishing a stable sleep paten.

One of the symptoms that I have experienced with Tricyclic

Antidepressants is that of feeling very faint if I am standing and tilt my

head unwraps. This is almost certainly caused by an unnatural drop in blood

pressure.

During the first period of my illness I did suffer from

unwarranted symptoms of anxiety that were very difficult to tolerate. It

would appear that this was caused through being ill, rather than the anxiety

being the reason for my illness. Fortunately, it eventually passed, but the

unfortunate aspect is that this is a symptom of depression, hence the Doctor

treating me thought my problem was depression, hence the use of Tricyclic

Antidepressants that did not help. It was only when a Danish Doctor

correctly diagnosed my problem being that of ME caused by a chronic fungal

infection that the correct treatment has been administered.

I hope the information helps.

Regards,

Andy Porter

flickering eyes, flying sensations

> I am a 30-year-old man suffering with severe M.E for five and a half

years.

> First 18 months bedbound-last 4 years housebound.

> My main problems (apart from obvious fatigue) are: -

>

> 1. Bad nerves, a sense that the nervous system has taken on a life of it's

own,

> causing feelings of over-stimulation and anxiety when there is no reason

to feel

> like this.

> These sensations worsen when trying to watch, read or listen.

>

> 2. A bizarre sensation of flying when my eyes are closed either sitting up

or

> lying down.

> The direction and speed of the movement feelings vary, also my eyelids

flicker

> uncontrollably when closed.

> I assume that these strange symptoms are to do with a disturbance in the

bodies

> balance mechanism.

> As far as drugs go, try-cyclic anti-depressants improve most of my

symptoms but

> worsen the flying and flickering, so much so, that I have to stop them.

> Some of the newer anti-depressants have improved the flying sensations,

but

> greatly worsen the nervous/anxiety feelings.

> I have always approached all drugs very gently, starting with a crumb, as

I am

> very sensitive to them.

> I have also tried many alternative remedies without great result.

>

> Has anyone else out there experienced these sorts of symptoms? What did

you do

> about it?

> Any help you could give me would be greatly appreciated.

> Thanks for your time.

> Chris42@...

>

>

>