Re: where can i get lastest info on cfs?/Co-Cure list of doctors

[Guest guest]

,

I agree with you - I am so glad that list exists but some of the doctors

there are a little sketchy, and many seem to be fibromyalgia-oriented. I

think a lot of fibro doctors think they know about CFIDS but actually don't -

they know about fibro-related fatigue.

I wonder if there is any way THIS group could compile its own good doctors

list? I think with all of our collective experience, we could give pretty

detailed run-downs on a huge number of doctors out there, which could be very

useful to seeking people.

Anyone interested in this?

Peggy

In a message dated 12/29/01 4:03:32 AM,

writes:

<< Message: 8

Date: Fri, 28 Dec 2001 13:12:12 -0600

From: " " <lindaj@...>

Subject: Re: Re: where can i get lastest info on cfs?

the co-cure list of " good " cfs doctors includes doctors that don't treat

CFS. The doctor listed for my state is a rheumetologist, and the one that

originally diagnosed me with FM, and he told me that he does not diagnose or

treat CFS patients. (And he didn't seem to have any clue who would.) And his

basic treatment for FM patients is to relax, exercise, and learn to just

ignore the pain. He doesn't believe in medications or supplements of any

kind for the treatment of FM, and treats it as though it is just an

emotional thing. When I originally called to set up the appointment, I asked

the receptionist if he approved of alternative medical treatments, and she

said he did. His " approved " alternative treatments seem to be limited to

yoga classes, water aerobics, relaxation therapy, and join a support group.

A long time ago I sent an e-mail to co-cure informing them that they need to

specify what the doctors listed will treat, but they never made any changes.

It makes me warey of any of the other doctors listed. Unless I hear of

someone else who has personally gone to any of these doctors and their

experiences, I don't consider them " good " cfs doctors.

lindaj@...

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