kutapressin: what symptoms is it for exactly?

[Guest guest]

I hear a lot about kutapressin but what *symptoms* does it help alleviate?

Christa R

[Guest guest]

It is Anti-Viral.

kutapressin: what symptoms is it for

exactly?

I hear a lot about kutapressin but what *symptoms* does it help alleviate?

Christa R

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

My doctor started me on Kutapressin last week after I inquired if he

thought it would be useful for me. He said it's very good for the herpes

family of viruses (I have high CMV titres) and it also shrank a lymphoma

in another patient.

Before he gave me the shot, As I usually do, I first read

the label on the vial and saw that it uses phenol as a preservative.

Now I'm very chemically sensitive and avoid phenol under other

circumstances. Should I let myself be injected with it? I did and I was

immediately sorry.

I also have a serious problem with hyper sensitive sound (I often walk

around with foam ear plugs in my ears and wearing a NoiseBuster [noise

cancelling device]) and I noticed immediately that the sound of the office

assistant's voice was going right through me; I could feel it inside my

body.

It was several days before I recovered from that shot. My doc gave me two

syringes to take home and to self-inject. I shall have to waste them;

there's just no way my body can deal with the phenol.

I very much regret having to forgo the benefits of the Kutapressin (it

also has nutritional benefits of non-bovine crude liver, as well as an

anti-viral).

I was wondering if it could be compounded without the phenol, using

another less toxic preservative, by one of the compounding pharmacies.

Altho I think it's some kind of patented product, only made by Schwarz

Pharma (no web site), I should inquire anyhow, just in case.

Carol

> It is Anti-Viral.

>

> I hear a lot about kutapressin but what *symptoms* does it help alleviate?

>

> Christa R

>

[Guest guest]

In a message dated 11/26/2001 3:18:33 PM Pacific Standard Time,

tcraig1@... writes:

>

helped me a lot with fevers, painful lymph nodes and energy. did nothing for

sleep disorder. it's antiviral and immunomodulating.

[Guest guest]

Carol,

Was it an IM injection and what was the dose? I'm in the same position as

you, in that Dr. Cheney has sent me a prescription for Kutapressin, and then

I saw your post about the kutapressin and your reaction. I too have problems

with phenol and phenolic compounds, and am now quite wary of doing this.

When I called his office today, he said that it was up to me to decide if I

wanted to try it, but that if I did, I should make sure it is a deep IM

injection, and just to take 1/10 of a cc. If I tolerate that, than he

suggested slowly raising it to try to see if I can get to the 2 cc dose. He

thought 1/10 cc would be enough to give a reaction, but not enough to have a

big reaction. Anyone have any thoughts on this? He has suggested the

Kutapressin because my RNaseL retest was still very elevated, and he is

concerned that it is unregulated at present, and he says that Kutapressin

acts as a mild Ampligen, which is the only thing known to help regulate

RNaseL. So he would very much like for me to be able to take it, as would I.

Is there anyone out there who has problems with phenol but has been able to

take Kutapressin?

Also, Carol, it looks like compounding it is impossible more or less for the

reasons you stated.

Donna in NC

Re: kutapressin: what symptoms is it for

exactly?

> My doctor started me on Kutapressin last week....

>

.... the label on the vial and saw that it uses phenol as a preservative.

Now I'm very chemically sensitive and avoid phenol under other

circumstances...

I also have a serious problem with hyper sensitive sound...

.... and I noticed immediately that the sound of the office

assistant's voice was going right through me; I could feel it inside my

body.

>

> It was several days before I recovered from that shot...

I was wondering if it could be compounded without the phenol, using

another less toxic preservative, by one of the compounding pharmacies.

Altho I think it's some kind of patented product, only made by Schwarz

Pharma (no web site), I should inquire anyhow, just in case.

>

> Carol

[Guest guest]

Hi There,

I only could tolerate up to .05 cc sub-cutanus not in

muscle..I do fine, and am phenol sensitive, but I can only guess at these

low doses every 4th day I can get the anti viral benefits and no side

affects to the phenol..we are all so different.

I also now take Transfer Factor 540 for EBV, and 560 for HHV6

Good luck..

I took Kutapressin for 6 years before taking the Transfer Factors. It saved

my life...

Carol

Re: kutapressin: what symptoms is it for

> exactly?

>

>

> > My doctor started me on Kutapressin last week....

> >

> ... the label on the vial and saw that it uses phenol as a preservative.

> Now I'm very chemically sensitive and avoid phenol under other

> circumstances...

>

> I also have a serious problem with hyper sensitive sound...

>

> ... and I noticed immediately that the sound of the office

> assistant's voice was going right through me; I could feel it inside my

> body.

> >

> > It was several days before I recovered from that shot...

>

> I was wondering if it could be compounded without the phenol, using

> another less toxic preservative, by one of the compounding pharmacies.

> Altho I think it's some kind of patented product, only made by Schwarz

> Pharma (no web site), I should inquire anyhow, just in case.

> >

> > Carol

>

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

[Guest guest]

Donna,

The Kut injection was IM with 1 1/2 " needle, so it was deep. The dose was

2 cc which the doc said is a very small dose.

My doc

allergy tested me first (he always does with new things) with a sub-cut

drop on the inside of my arm. No allergic reaction (red raised bump)

after 20 minutes was reassuring. Also, even though there's no overt

allergic reaction, I also look at how I feel: am I suddenly very tired?

do I feel suddently anxious or some other unpleasant emotional reaction?

I frequently refuse something just on that basis.

But since there was no such reaction with the Kut, I took the shot.

Sorry I did, as I said. Oh, well, sometimes that's the only way to know

if something is for you.

Carol

> Carol,

> Was it an IM injection and what was the dose? I'm in the same position as

> you, in that Dr. Cheney has sent me a prescription for Kutapressin, and then

> I saw your post about the kutapressin and your reaction. I too have problems

> with phenol and phenolic compounds, and am now quite wary of doing this.

> When I called his office today, he said that it was up to me to decide if I

> wanted to try it, but that if I did, I should make sure it is a deep IM

> injection, and just to take 1/10 of a cc. If I tolerate that, than he

> suggested slowly raising it to try to see if I can get to the 2 cc dose. He

> thought 1/10 cc would be enough to give a reaction, but not enough to have a

> big reaction. Anyone have any thoughts on this? He has suggested the

> Kutapressin because my RNaseL retest was still very elevated, and he is

> concerned that it is unregulated at present, and he says that Kutapressin

> acts as a mild Ampligen, which is the only thing known to help regulate

> RNaseL. So he would very much like for me to be able to take it, as would I.

> Is there anyone out there who has problems with phenol but has been able to

> take Kutapressin?

>

> Also, Carol, it looks like compounding it is impossible more or less for the

> reasons you stated.

>

> Donna in NC

>

> Re: kutapressin: what symptoms is it for

> exactly?

>

>

> > My doctor started me on Kutapressin last week....

> >

> ... the label on the vial and saw that it uses phenol as a preservative.

> Now I'm very chemically sensitive and avoid phenol under other

> circumstances...

>

> I also have a serious problem with hyper sensitive sound...

>

> ... and I noticed immediately that the sound of the office

> assistant's voice was going right through me; I could feel it inside my

> body.

> >

> > It was several days before I recovered from that shot...

>

> I was wondering if it could be compounded without the phenol, using

> another less toxic preservative, by one of the compounding pharmacies.

> Altho I think it's some kind of patented product, only made by Schwarz

> Pharma (no web site), I should inquire anyhow, just in case.

> >

> > Carol

>

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

[Guest guest]

Dear aab5321,

I too am chemically sensitive, and have that " sound goes right

through me sensation " .

I was wondering, maybe you are deficient in the enzyme Phenol-S-

Tranferase? It reduces phenolic compounds.

I do not know of a lab that test for this, but then again I have not

yet looked. Perhaps, someone else on the list will know more about

it.

Anyway, the PST enzyme is bound up with salicylates and allergies.

This was on a web site (darn I can't remember it now).

Just a thought

Zippy

------------------------------------------------------------------ ---

In @y..., aab532l@l... wrote:

> My doctor started me on Kutapressin last week after I inquired if

he

> thought it would be useful for me. He said it's very good for the

herpes

> family of viruses (I have high CMV titres) and it also shrank a

lymphoma

> in another patient.

>

> Before he gave me the shot, As I usually do, I first read

> the label on the vial and saw that it uses phenol as a

preservative.

> Now I'm very chemically sensitive and avoid phenol under other

> circumstances. Should I let myself be injected with it? I did and

I was

> immediately sorry.

>

> I also have a serious problem with hyper sensitive sound (I often

walk

> around with foam ear plugs in my ears and wearing a NoiseBuster

[noise

> cancelling device]) and I noticed immediately that the sound of the

office

> assistant's voice was going right through me; I could feel it

inside my

> body.

>

> It was several days before I recovered from that shot. My doc gave

me two

> syringes to take home and to self-inject. I shall have to waste

them;

> there's just no way my body can deal with the phenol.

>

> I very much regret having to forgo the benefits of the Kutapressin

(it

> also has nutritional benefits of non-bovine crude liver, as well as

an

> anti-viral).

>

> I was wondering if it could be compounded without the phenol, using

> another less toxic preservative, by one of the compounding

pharmacies.

> Altho I think it's some kind of patented product, only made by

Schwarz

> Pharma (no web site), I should inquire anyhow, just in case.

>

> Carol

>

>

> > It is Anti-Viral.

> >

> > I hear a lot about kutapressin but what *symptoms* does it help

alleviate?

> >

> > Christa R

> >

[Guest guest]

OK , Just remembered it was the Feingold theories on allergies, diet,

and hyperactive kids. http://www.feingold.org

Maybe the guaifenisen therapy is increasing the activity of this

enzyme, and thus helping patients in this way too (or perhaps

avoidance of salicylates is helping keep it from getting knocked down

in suseptible individuals?)

---------------------------------------------------------------------

> My doctor started me on Kutapressin last week after I inquired if

he

> thought it would be useful for me. He said it's very good for the

herpes

> family of viruses (I have high CMV titres) and it also shrank a

lymphoma

> in another patient.

>

> Before he gave me the shot, As I usually do, I first read

> the label on the vial and saw that it uses phenol as a

preservative.

> Now I'm very chemically sensitive and avoid phenol under other

> circumstances. Should I let myself be injected with it? I did and

I was

> immediately sorry.

>

> I also have a serious problem with hyper sensitive sound (I often

walk

> around with foam ear plugs in my ears and wearing a NoiseBuster

[noise

> cancelling device]) and I noticed immediately that the sound of the

office

> assistant's voice was going right through me; I could feel it

inside my

> body.

>

> It was several days before I recovered from that shot. My doc gave

me two

> syringes to take home and to self-inject. I shall have to waste

them;

> there's just no way my body can deal with the phenol.

>

> I very much regret having to forgo the benefits of the Kutapressin

(it

> also has nutritional benefits of non-bovine crude liver, as well as

an

> anti-viral).

>

> I was wondering if it could be compounded without the phenol, using

> another less toxic preservative, by one of the compounding

pharmacies.

> Altho I think it's some kind of patented product, only made by

Schwarz

> Pharma (no web site), I should inquire anyhow, just in case.

>

> Carol

>

>

> > It is Anti-Viral.

> >

> > I hear a lot about kutapressin but what *symptoms* does it help

alleviate?

> >

> > Christa R

> >

[Guest guest]

Hi Zippy,

Thanks for the PST enzyme info. Do you have any ideas of how to repair

a deficiency in this enzyme?

Thanks,

Carol

> Dear aab5321,

>

> I too am chemically sensitive, and have that " sound goes right

> through me sensation " .

>

> I was wondering, maybe you are deficient in the enzyme Phenol-S-

> Tranferase? It reduces phenolic compounds.

>

> I do not know of a lab that test for this, but then again I have not

> yet looked. Perhaps, someone else on the list will know more about

> it.

>

> Anyway, the PST enzyme is bound up with salicylates and allergies.

> This was on a web site (darn I can't remember it now).

>

> Just a thought

> Zippy

>

> > Before he gave me the shot, As I usually do, I first read

> > the label on the vial and saw that it uses phenol as a

> preservative.

> > Now I'm very chemically sensitive and avoid phenol under other

> > circumstances. Should I let myself be injected with it? I did and

> I was

> > immediately sorry.

> >

> > I also have a serious problem with hyper sensitive sound (I often

> walk

> > around with foam ear plugs in my ears and wearing a NoiseBuster

> [noise

> > cancelling device]) and I noticed immediately that the sound of the

> office

> > assistant's voice was going right through me; I could feel it

> inside my

> > body.

> >

> >

> > Carol

> >

> >

> > > It is Anti-Viral.

> > >

> > > I hear a lot about kutapressin but what *symptoms* does it help

> alleviate?

> > >

> > > Christa R

> > >

>

>

[Guest guest]

No, I'm sorry. I don't know how to repair the Phenolic-S-Transferase

Enzyme. All I know is that some things, like saclycilates will knock

down it's efficiency in some people a lot.

That's what I read at the Feingold Site.

--------------------------------------------------------------------

> Hi Zippy,

>

> Thanks for the PST enzyme info. Do you have any ideas of how to

repair

> a deficiency in this enzyme?

>

> Thanks,

> Carol

>

> > Dear aab5321,

> >

> > I too am chemically sensitive, and have that " sound goes right

> > through me sensation " .

> >

> > I was wondering, maybe you are deficient in the enzyme Phenol-S-

> > Tranferase? It reduces phenolic compounds.

> >

> > I do not know of a lab that test for this, but then again I have

not

> > yet looked. Perhaps, someone else on the list will know more

about

> > it.

> >

> > Anyway, the PST enzyme is bound up with salicylates and

allergies.

> > This was on a web site (darn I can't remember it now).

> >

> > Just a thought

> > Zippy

> >

> > > Before he gave me the shot, As I usually do, I first read

> > > the label on the vial and saw that it uses phenol as a

> > preservative.

> > > Now I'm very chemically sensitive and avoid phenol under other

> > > circumstances. Should I let myself be injected with it? I did

and

> > I was

> > > immediately sorry.

> > >

> > > I also have a serious problem with hyper sensitive sound (I

often

> > walk

> > > around with foam ear plugs in my ears and wearing a NoiseBuster

> > [noise

> > > cancelling device]) and I noticed immediately that the sound of

the

> > office

> > > assistant's voice was going right through me; I could feel it

> > inside my

> > > body.

> > >

> > >

> > > Carol

> > >

> > >

> > > > It is Anti-Viral.

> > > >

> > > > I hear a lot about kutapressin but what *symptoms* does it

help

> > alleviate?

> > > >

> > > > Christa R

> > > >

> >

> >