Guest guest Posted November 7, 2001 Report Share Posted November 7, 2001 I take high-dose Neurontin (4800 mg/day), although for Multiple Chemical Sensitivity (MCS) instead of CFIDS. I find that it makes a big difference. It doesn't bring me back to normal, but it does make life much easier. As noted in a previous message, some people don't do well on Neurontin. Others, however, find a lot of relief from CFIDS, Fibromyalgia, and MCS. Terrel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2001 Report Share Posted November 8, 2001 well i cannot verify this but can relay my own experience ..i was sick with what was diagnosed as " exhaustion " about four or five times from age 19-34..i recovered after not working and resting, B12 shots, some vitamins each time in 3-6 months..at 38, however, i got sick again and have been steadily declining after 5 years of disability..it was then i was diagnosed with CFS....perhaps the younger ones recover but who is to say that the disease has not progressed to that point where they will NOT recover..who is to say they will not relapse again and again as they get longer...no studies are being done to track those who " recover " ...just my experience and thoughts...barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2001 Report Share Posted November 9, 2001 They also have less cumulative damage at their tissues,brain, other organs and glands.. Nil Re: completely back to normal > Yes, and I would add that younger PWCs don't have to push themselves > to go to work everday and may be able to get more physical rest and > have less psychological stress. > > Mike > > Quote Link to comment Share on other sites More sharing options...
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