Re: ISAC, HTRP, coagulation

[Guest guest]

on 8/22/01 8:35 AM, mrl@... at mrl@... wrote:

Hi again. I was just rereading your message. Swollen ankles is a

symptom of hypothyroidism (which can cause anemia). And platelet

aggregation can also be caused by low thyroid.

Platelet aggregation can also be caused by high homocysteine levels.

Ever try b12 shots? Perhaps the stinging in your ankles is neuropathy

due to low b12?

And here's a new fun fact for people regarding platelet aggregation.

One of the causes is due to candida. Apparently, aggregation causes

the release of toxins which can kill candida. So if you have a candida

yeast problem, this could be increasing aggregation.

> My name is Leah, I'm a new Exlist member, and I'm going to have

> testing done shortly by Hemex for the coagulation problem since I've

> had clumping platelets for more years than I can remember. I've been

> sick with CFS/FMS for 20 yrs., totally disabled and housebound for

> the past 11 yrs., and on guaifenesin for the last 15 mos. with no

> positive effects other than muscle clearing. So the bloodthinning

> route is the next thing to explore. Got a couple questions regarding

> that if someone would be so kind as to respond...

>

> The other question is...has the heparin or related protocols for the

> coagulation problem done anything to relieve swollen, red and

> stinging feet and ankles? Mine get blotchy and almost purple,

> especially with the warmer weather, and standing gets especially

> painful and impossible after a while. The more I move around the

> worse it gets. I've had testing done to eliminate cardiac and

> related problems and allergy diets and supplement programs haven't

> helped that aspect of the illness for me. Not that anything I've

> tried in these 20 yrs has! lol (Actually this is all far from funny

> but I'm trying to be upbeat here.)

[Guest guest]

I'm kind of surprised Hemex didn't tell you this, but then not in a way because

they are very careful these days about giving medical advice. What they always

used to tell everyone was to take the test in the " current state " , so whatever

supplements and stuff you are taking, keep taking them and be measured. If

you're taking them and still sick, you want to see if you are hypercoag.

On the " swollen, red and stinging feet and ankles " ... I guess I didn't have

exactly this problem, but my feet hurt very badly to stand on them. I also had

orthostatic hypotension bad. Both problems got much better when I started

taking Catapres (a prescription drug worn as a patch) which stabilized blood

pressure. But they got even better still when I started taking heparin.

Doris

ISAC, HTRP, coagulation

Hi,

My name is Leah, I'm a new Exlist member, and I'm going to have

testing done shortly by Hemex for the coagulation problem since I've

had clumping platelets for more years than I can remember. I've been

sick with CFS/FMS for 20 yrs., totally disabled and housebound for

the past 11 yrs., and on guaifenesin for the last 15 mos. with no

positive effects other than muscle clearing. So the bloodthinning

route is the next thing to explore. Got a couple questions regarding

that if someone would be so kind as to respond...

I've been getting about 750 mg. daily of bromelain in my digestive

enzymes. Has anyone stopped it before having the testing done? Hemex

said it was up to my doctor, who hasn't much experience in this.

The other question is...has the heparin or related protocols for the

coagulation problem done anything to relieve swollen, red and

stinging feet and ankles? Mine get blotchy and almost purple,

especially with the warmer weather, and standing gets especially

painful and impossible after a while. The more I move around the

worse it gets. I've had testing done to eliminate cardiac and

related problems and allergy diets and supplement programs haven't

helped that aspect of the illness for me. Not that anything I've

tried in these 20 yrs has! lol (Actually this is all far from funny

but I'm trying to be upbeat here.)

I'd love to get rid of at <least> that one of the multiple symptoms

of this illness. Anyone have any luck with heparin in that respect?

Thanks,

Leah

[Guest guest]

Have you had your platelet count or iron levels checked lately?

Swollen ankles could be related to either. Also, high cortisol levels

can cause swelling of ankles.

By the way, you mentioned you are taking bromelain and guaifenesin.

You should be aware that guaifenesin is also an antiplatelet drug at

high enough levels. So if you have to stop bromelain for the heparin

tests, and if you are taking lots of guaifenesin, I wonder if you

should be stopping guaifenesin also.

> The other question is...has the heparin or related protocols for the

> coagulation problem done anything to relieve swollen, red and

> stinging feet and ankles? Mine get blotchy and almost purple,

> especially with the warmer weather, and standing gets especially

> painful and impossible after a while. The more I move around the

> worse it gets.

[Guest guest]

Hi again. I was just rereading your message. Swollen ankles is a

symptom of hypothyroidism (which can cause anemia). And platelet

aggregation can also be caused by low thyroid.

Platelet aggregation can also be caused by high homocysteine levels.

Ever try b12 shots? Perhaps the stinging in your ankles is neuropathy

due to low b12?

And here's a new fun fact for people regarding platelet aggregation.

One of the causes is due to candida. Apparently, aggregation causes

the release of toxins which can kill candida. So if you have a candida

yeast problem, this could be increasing aggregation.

> My name is Leah, I'm a new Exlist member, and I'm going to have

> testing done shortly by Hemex for the coagulation problem since I've

> had clumping platelets for more years than I can remember. I've been

> sick with CFS/FMS for 20 yrs., totally disabled and housebound for

> the past 11 yrs., and on guaifenesin for the last 15 mos. with no

> positive effects other than muscle clearing. So the bloodthinning

> route is the next thing to explore. Got a couple questions regarding

> that if someone would be so kind as to respond...

>

> The other question is...has the heparin or related protocols for the

> coagulation problem done anything to relieve swollen, red and

> stinging feet and ankles? Mine get blotchy and almost purple,

> especially with the warmer weather, and standing gets especially

> painful and impossible after a while. The more I move around the

> worse it gets. I've had testing done to eliminate cardiac and

> related problems and allergy diets and supplement programs haven't

> helped that aspect of the illness for me. Not that anything I've

> tried in these 20 yrs has! lol (Actually this is all far from funny

> but I'm trying to be upbeat here.)

[Guest guest]

Hi Nina,

Thanks for your input. I've been treated for all those things and

there was no difference to the painful swelling problem. Nor to any

of my other symptoms unfortunately.

Leah

Swollen ankles is a symptom of hypothyroidism (which can cause

anemia). And platelet aggregation can also be caused by low thyroid.

Platelet aggregation can also be caused by high homocysteine levels.

Ever try b12 shots? Perhaps the stinging in your ankles is

neuropathy due to low b12?

And here's a new fun fact for people regarding platelet aggregation.

One of the causes is due to candida. Apparently, aggregation causes

the release of toxins which can kill candida. So if you have a

candida yeast problem, this could be increasing aggregation.

]

[Guest guest]

My platelets though clumped are always deemed adequate in number.

and iron levels are okay. Even when I supplemented with iron it made

no difference to the swelling problem.

I'm using a rather large amount of guaifenesin and it hasn't even

touched the platelet problem, surprisingly. The high cortisol as a

factor in the swelling wouldn't surprise me in the least but all

efforts to bring it under control have failed so far.

Thanks for answering.

Leah

> Have you had your platelet count or iron levels checked lately?

> Swollen ankles could be related to either. Also, high cortisol

levels

> can cause swelling of ankles.

>

> By the way, you mentioned you are taking bromelain and

guaifenesin.

> You should be aware that guaifenesin is also an antiplatelet drug

at

> high enough levels. So if you have to stop bromelain for the

heparin

> tests, and if you are taking lots of guaifenesin, I wonder if you

> should be stopping guaifenesin also.

>