Guest guest Posted August 8, 2001 Report Share Posted August 8, 2001 Have you thought that after the stress of traveling, especially if you flew, could have been the cause for the bad first day? Then, as you were more relaxed and therefore were in less of a hypervigilant state, your adrenals could have started acting better, producing normal amounts of cortisol and adrenaline. I have always thought that many of us could have avoided this disease if we would have been able to spend 3 months at the beach at the first sign of problems. Just an idea. But I do better on vacation too. Mike > I recently spent a week at the beach. The first day I arrived, I was > completely exhausted with the normal mixed bag of symptoms. They > improved dramatically over time however. My NMH was not nearly as > evident. My myalgias and arthralgias improved. Even my joints stopped > cracking and my neck stiffness was gone at the end of the week. My > sinus infection remained however. > > Upon returning home, the symptoms quickly returned. Nothing really > changed other than my location (ie, diet, sleep, supplements, etc). > > Has anybody else noticed something similar? Is this possibly due to > the elevation? Fewer allergens? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2001 Report Share Posted August 8, 2001 I actually get the opposite effect at the beach - the sun makes me hurt all over, but so do cold and/or rainy weather. I think weather affects all of us, but in different ways. Glad you had a good vacation! Jennie > 13. Beach effect > From: cfspatient@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2001 Report Share Posted August 8, 2001 Absolutely! What you observed is I suspect far more common than people suspect. I have related the story before on this list about my stay in a filtered isolated " allergy ward " in hospital for 7 weeks while they exposed me to many substances to see what caused a reaction. While this process has many critics and has limitations mainly due to the " hypersensitization " that is supposed to occur when you are kept away from everything, it does make some very powerful points. I am eternally grateful for the insight that it gave me into what I could do about many of my symptoms. I discovered that mental confusion - all my brain symptoms - could be caused by exposure to some mound which is commonly ofund in air-con systems. SUre enough this definitely explained my mental difficulties when at work in a building with (they found out later) notoriosly bad air quality. SImilarly many other symptooms including muscle soreness, swollen or sore glands, arthritis, eye function, itches and skin problems, emotional lability and depression, and presumably less obvious things like immune function. SOme of the things that caused problems? Moulds. (mental effects and probably others). Polyester. (mental disturbances including highly colored " visions " ) Fabric treatments. (skin) Volatile organic compounds of many kinds. (glands) Car exhausts. Moulds. Grapes (arthritis and tendonitis), tomatoes (arthritis), broccoli (emotional destruction), milk... ... many foods... Moulds. Moulds. My doctor there tells all his patients like me ... " go and live on the beach " because all forms of pollution are much less there, at least for the time the wind is coming off the ocean! When I go to the beach I am 100,000,000 times better in terms of all my symptoms - except exercise intolerance, sadly, and arthritis. All sufferers of CFS and similar should, IMHO, be very aware of the possible effects of environmental substances. The action of surprising (small molecules) substances can be astonishing and is related to the formation of circulating immune complexes. Needless to say most doctors think (no, they don't think at all, they believe) that such effects are impossible or unlikely. If there is one thing I can say with certainty without any rigorous scientific proof, it is that these effects are VERY real and should be considered seriously. My emphasis on moulds above is because it is I believe one of the most common and insidious. I cannot emphasise enough how much I think these environmental sensitivities contribute to CFS suffering. When I read people telling of their symptoms on lists like this I am sure that many (that is, a ***majority***) of all the symptoms I read about are related to a sensitivity to something. I used to talk about this more for this reason, but it is just too hard to convince anybody who hasn't had the " luxury " of the dramatic proof that I had in this hospital stay. (and my own subsequent experiments to back up the hospital findings in real life). Listen to your body carefully and you will discover many opportunities for reducing your suffering by identifying better and worse environments. Cheers, n At 02:32 08/08/01, you wrote: >I recently spent a week at the beach. The first day I arrived, I was >completely exhausted with the normal mixed bag of symptoms. They >improved dramatically over time however. My NMH was not nearly as >evident. My myalgias and arthralgias improved. Even my joints stopped >cracking and my neck stiffness was gone at the end of the week. My >sinus infection remained however. > >Upon returning home, the symptoms quickly returned. Nothing really >changed other than my location (ie, diet, sleep, supplements, etc). > >Has anybody else noticed something similar? Is this possibly due to >the elevation? Fewer allergens? > > > >This list is intended for patients to share personal experiences with each >other, not to give medical advice. If you are interested in any treatment >discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2001 Report Share Posted August 8, 2001 >From: n <jrobinso@...> >Reply- > >Subject: Re: Beach effect >Date: Wed, 08 Aug 2001 13:10:17 +1000 I absolutely agree. Allergies and devastating effects they can cause are sorely underappreciated in the CFS community. My allergist has treated many people with CFS successfully by finding the foods and other substances they react to. This should be no surprise if CFS patients are TH2 activated. Studies show a much higher allergy rate among people with CFS. CHeney is one ofthe few doctors who recognizes the dramatic effects an allergy free diet can have. > >Absolutely! What you observed is I suspect far more common than people >suspect. I have related the story before on this list about my stay in a >filtered isolated " allergy ward " in hospital for 7 weeks while they exposed >me to many substances to see what caused a reaction. > >While this process has many critics and has limitations mainly due to the > " hypersensitization " that is supposed to occur when you are kept away from >everything, it does make some very powerful points. I am eternally >grateful for the insight that it gave me into what I could do about many of >my symptoms. > >I discovered that mental confusion - all my brain symptoms - could be >caused by exposure to some mound which is commonly ofund in air-con >systems. SUre enough this definitely explained my mental difficulties when >at work in a building with (they found out later) notoriosly bad air >quality. SImilarly many other symptooms including muscle soreness, swollen >or sore glands, arthritis, eye function, itches and skin problems, >emotional lability and depression, and presumably less obvious things like >immune function. > >SOme of the things that caused problems? > >Moulds. (mental effects and probably others). >Polyester. (mental disturbances including highly colored " visions " ) >Fabric treatments. (skin) >Volatile organic compounds of many kinds. (glands) >Car exhausts. >Moulds. >Grapes (arthritis and tendonitis), tomatoes (arthritis), broccoli >(emotional destruction), milk... ... many foods... >Moulds. >Moulds. > >My doctor there tells all his patients like me ... " go and live on the >beach " because all forms of pollution are much less there, at least for the >time the wind is coming off the ocean! > >When I go to the beach I am 100,000,000 times better in terms of all my >symptoms - except exercise intolerance, sadly, and arthritis. > >All sufferers of CFS and similar should, IMHO, be very aware of the >possible effects of environmental substances. The action of surprising >(small molecules) substances can be astonishing and is related to the >formation of circulating immune complexes. Needless to say most doctors >think (no, they don't think at all, they believe) that such effects are >impossible or unlikely. If there is one thing I can say with certainty >without any rigorous scientific proof, it is that these effects are VERY >real and should be considered seriously. > >My emphasis on moulds above is because it is I believe one of the most >common and insidious. > >I cannot emphasise enough how much I think these environmental >sensitivities contribute to CFS suffering. When I read people telling of >their symptoms on lists like this I am sure that many (that is, >a ***majority***) of all the symptoms I read about are related to a >sensitivity to something. I used to talk about this more for this reason, >but it is just too hard to convince anybody who hasn't had the " luxury " of >the dramatic proof that I had in this hospital stay. (and my own >subsequent experiments to back up the hospital findings in real life). > >Listen to your body carefully and you will discover many opportunities for >reducing your suffering by identifying better and worse environments. > >Cheers, > >n > > > >At 02:32 08/08/01, you wrote: > >I recently spent a week at the beach. The first day I arrived, I was > >completely exhausted with the normal mixed bag of symptoms. They > >improved dramatically over time however. My NMH was not nearly as > >evident. My myalgias and arthralgias improved. Even my joints stopped > >cracking and my neck stiffness was gone at the end of the week. My > >sinus infection remained however. > > > >Upon returning home, the symptoms quickly returned. Nothing really > >changed other than my location (ie, diet, sleep, supplements, etc). > > > >Has anybody else noticed something similar? Is this possibly due to > >the elevation? Fewer allergens? > > > > > > > >This list is intended for patients to share personal experiences with >each > >other, not to give medical advice. If you are interested in any >treatment > >discussed here, please consult your doctor. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2001 Report Share Posted August 9, 2001 Hi! Another thing to check when looking for allergy substances is the soap you use to wash your clothes. I'm allergic to Tide and now use Javex or a liquid laundry soap. I've also used Bissell Allergan carpet cleaner. I've checked ever so often to see if Tide still bothers me and the lethargy symptoms re-occur, so for me, it was a major allergen source. I am also allergic to the chesterfield that I would lay on during the day because I was too tired to move. Obviously, it made things worse. Merle n wrote: I discovered that mental confusion - all my brain symptoms - could be > caused by exposure to some mound which is commonly ofund in air-con > systems. SUre enough this definitely explained my mental difficulties when > at work in a building with (they found out later) notoriosly bad air > quality. SImilarly many other symptooms including muscle soreness, swollen > or sore glands, arthritis, eye function, itches and skin problems, > emotional lability and depression, and presumably less obvious things like > immune function. > > SOme of the things that caused problems? > > Moulds. (mental effects and probably others). > Polyester. (mental disturbances including highly colored " visions " ) > Fabric treatments. (skin) > Volatile organic compounds of many kinds. (glands) > Car exhausts. > Moulds. > Grapes (arthritis and tendonitis), tomatoes (arthritis), broccoli > (emotional destruction), milk... ... many foods... > Moulds. > Moulds. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2001 Report Share Posted August 9, 2001 Sorry I wasn't trying to demonstrate mental confusion so accurately with my typos You all probably knew what I was trying to say but just to make sure - I meant to say... I discovered that mental confusion - all my brain symptoms - could be caused by exposure to some mold which is commonly found in air-con systems. >I discovered that mental confusion - all my brain symptoms - could be > > > caused by exposure to some mound which is commonly ofund in air-con > > systems. n Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2001 Report Share Posted August 12, 2001 Hello, When I stay in a different environment, I feel better for awhile, after the shock of travel, unless it is too high an altitude, too hot or cold. My doctor told me it takes two years to become sensitized to local pollens etc. maybe partly explaining locale-change improvement on vacations. I wanted to move to get away from here! I have lived on the beach for many years and been very sick with sensitivities to indigenous pollens, chemicals in the ocean itself and many other things. We get lots of wind and fog here--some from inland, some from off the sea. Damp and can be moldy. KLO New to the internet world. Have had CFIDS for 9 years. Been reading this site where I get a lot of helpful information. Thanks! -- In @y..., n <jrobinso@p...> wrote: > Sorry I wasn't trying to demonstrate mental confusion so accurately with my > typos You all probably knew what I was trying to say but just to make sure > - I meant to say... > > I discovered that mental confusion - all my brain symptoms - could be > caused by exposure to some mold which is commonly found in air-con systems. > > > >I discovered that mental confusion - all my brain symptoms - could be > > > > > caused by exposure to some mound which is commonly ofund in air-con > > > systems. > > > n Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2001 Report Share Posted August 13, 2001 Yes this is true - when I think of the beach I think of warm, so this is often less of a problem! And the mold point is a good one - maybe explains why I am more " desert " located (which is the other common suggestion) here in Canberra. No smog, nothing for thousands of kilometers in the windward direction. n At 13:35 12/08/01, you wrote: >I have lived on the beach for many years and been very sick with >sensitivities to indigenous pollens, chemicals in the ocean itself >and many other things. We get lots of wind and fog here--some >from inland, some from off the sea. Damp and can be moldy Quote Link to comment Share on other sites More sharing options...
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