Re: Provigil - Cheney says it fries your brain

[Guest guest]

Joyce,

I was offered Provigil by a neurologist I had been seeing who is reads a

lot but is in my book, drug happy.

I didn't take it after reading up on it because drugs that give me false

energy ( a term I use to mean energy like from strong coffee--uppers)

inevitably either make me feel crazy or ultimately wear me out big time

because I'm working on energy my basic metabolism, which is undone by

this illness, cannot afford.

Since some people on the list seem to be okay with it depending on your

reactions to uppers (I think it can be considered that, frankly) you

might want to try it.

I wish I had more info on the " brain frying. " What specifically does

Cheney mean? Why does he claim it? What evidence or basic science

reasoning? It's obviously important yet hard to " carry " to other docs.

And many ME/CFS patients are on SSRIs for depression, which untreated

doesn't exactly help ME or any illness.

What does Cheney do/recommend?

Anyway, fry or no, re the brain I would be very cautious trying Provigil.

I have heard of others (not on the list) who felt nuts from it or got

overly fatigued ultimately.

Judith W

On Sat, 16 Jun 2001 22:01:43 -0500 " SIEVERLING " <lsieverl@...>

writes:

Provigil was one of the stimulants that Cheney lumped together with

SSRI's when he was talking about drugs that may provide some benefit in

the short run, but " fry your brain cells " over a period of years.

See the article (Cheney on SSRI's & Stimulants: " Frying the Brain " ) in the

Cheney section at www.virtualhometown.com/dfwcfids

Take care. Carol

[Guest guest]

It doesn't work like uppers, such as ritalin, and dexadrine. It's totally

different. It won't make you do too much and then get sicker. I take it..

[Guest guest]

And for what Dr, Cheney really recommends, be sure to look at the Klonopin

section of the dfwcfids site, which is:

http://virtualhometown.com/dfwcfids/medical/cheney.html

The SSRI brain frying info is one of the Cheney topics here too, along with

many others..

Mort Caldwell

CFS since 1994

----------

From: Judith F Wisdom[sMTP:judithwisdom@...]

Reply

Sent: Monday, June 18, 2001 4:28 AM

Subject: Re: Provigil - Cheney says it " fries your

brain "

Joyce,

I was offered Provigil by a neurologist I had been seeing who is reads a

lot but is in my book, drug happy.

I didn't take it after reading up on it because drugs that give me false

energy ( a term I use to mean energy like from strong coffee--uppers)

inevitably either make me feel crazy or ultimately wear me out big time

because I'm working on energy my basic metabolism, which is undone by

this illness, cannot afford.

Since some people on the list seem to be okay with it depending on your

reactions to uppers (I think it can be considered that, frankly) you

might want to try it.

I wish I had more info on the " brain frying. " What specifically does

Cheney mean? Why does he claim it? What evidence or basic science

reasoning? It's obviously important yet hard to " carry " to other docs.

And many ME/CFS patients are on SSRIs for depression, which untreated

doesn't exactly help ME or any illness.

What does Cheney do/recommend?

Anyway, fry or no, re the brain I would be very cautious trying Provigil.

I have heard of others (not on the list) who felt nuts from it or got

overly fatigued ultimately.

Judith W

On Sat, 16 Jun 2001 22:01:43 -0500 " SIEVERLING " <lsieverl@...>

writes:

Provigil was one of the stimulants that Cheney lumped together with

SSRI's when he was talking about drugs that may provide some benefit in

the short run, but " fry your brain cells " over a period of years.

See the article (Cheney on SSRI's & Stimulants: " Frying the Brain " ) in the

Cheney section at www.virtualhometown.com/dfwcfids

Take care. Carol

[Guest guest]

Being someone who has enormous respect for

Cheney and also having read the site you mention, I still feel there

remains the question as to what reasons he has for saying it fries the

brain and even what that term really means. Besides that, what he feels

patients should substitute for SSRIs since so many of them are taking

them and getting presumably some relief. Provigil I have reason from

reading about it and hearing some stuff not to trust, but that's not as

essential for the bulk of ME/CFS patients as are his comments about the

SSRIs.

Judith W

On Tue, 19 Jun 2001 04:01:45 -0400 caldbio <caldbio@...> writes:

And for what Dr, Cheney really recommends, be sure to look at the

Klonopin

section of the dfwcfids site, which is:

http://virtualhometown.com/dfwcfids/medical/cheney.html

The SSRI brain frying info is one of the Cheney topics here too, along

with

many others..

Mort Caldwell

CFS since 1994

----------

From: Judith F Wisdom[sMTP:judithwisdom@...]

Reply

Sent: Monday, June 18, 2001 4:28 AM

Subject: Re: Provigil - Cheney says it " fries

your

brain "

Joyce,

I was offered Provigil by a neurologist I had been seeing who is reads a

lot but is in my book, drug happy.

I didn't take it after reading up on it because drugs that give me false

energy ( a term I use to mean energy like from strong coffee--uppers)

inevitably either make me feel crazy or ultimately wear me out big time

because I'm working on energy my basic metabolism, which is undone by

this illness, cannot afford.

Since some people on the list seem to be okay with it depending on your

reactions to uppers (I think it can be considered that, frankly) you

might want to try it.

I wish I had more info on the " brain frying. " What specifically does

Cheney mean? Why does he claim it? What evidence or basic science

reasoning? It's obviously important yet hard to " carry " to other docs.

And many ME/CFS patients are on SSRIs for depression, which untreated

doesn't exactly help ME or any illness.

What does Cheney do/recommend?

Anyway, fry or no, re the brain I would be very cautious trying Provigil.

I have heard of others (not on the list) who felt nuts from it or got

overly fatigued ultimately.

Judith W

On Sat, 16 Jun 2001 22:01:43 -0500 " SIEVERLING " <lsieverl@...>

writes:

Provigil was one of the stimulants that Cheney lumped together with

SSRI's when he was talking about drugs that may provide some benefit in

the short run, but " fry your brain cells " over a period of years.

See the article (Cheney on SSRI's & Stimulants: " Frying the Brain " ) in the

Cheney section at www.virtualhometown.com/dfwcfids

Take care. Carol