Re: Is CFS the same as Lyme?

[Guest guest]

> Dear ,

>

> You wrote, " I keep getting people saying that lyme and cfs are the same. Is

> this true? "

>

> No, they are not the same. But the symptoms of Lyme and CFIDS are so similar

> that some people believe you can't tell them apart clinically. The

> difference is that everyone knows what causes Lyme--Borrelia

> burgdorferei--and no one yet knows for sure what causes CFIDS--maybe lots of

> different things.

>

> Sue B.

> upstate New York

I agree with Sue, but would just like to add that an additional problem is that

the tests for Lyme are so unreliable, and a lot of doctors don't know how to

properly diagnose Lyme, that there are a lot of poor people out there who were

diagnosed with CFIDS or Fibro or MS etc. etc. that actually have Lyme disease

aand are not being treated. I had undiagnosed Lyme for 20 years, so it's a bit

of a sore point with me. I had to get reinfected before I got the right

diagnosis...

tansy

>

--

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[Guest guest]

how can you be sure you had lyme for that many years

tho and it was not cfs?

--- Tansy@... wrote:

>

> > Dear ,

> >

> > You wrote, " I keep getting people saying that lyme

> and cfs are the same. Is

> > this true? "

> >

> > No, they are not the same. But the symptoms of

> Lyme and CFIDS are so similar

> > that some people believe you can't tell them apart

> clinically. The

> > difference is that everyone knows what causes

> Lyme--Borrelia

> > burgdorferei--and no one yet knows for sure what

> causes CFIDS--maybe lots of

> > different things.

> >

> > Sue B.

> > upstate New York

> I agree with Sue, but would just like to add that an

> additional problem is that the tests for Lyme are so

> unreliable, and a lot of doctors don't know how to

> properly diagnose Lyme, that there are a lot of poor

> people out there who were diagnosed with CFIDS or

> Fibro or MS etc. etc. that actually have Lyme

> disease aand are not being treated. I had

> undiagnosed Lyme for 20 years, so it's a bit of a

> sore point with me. I had to get reinfected before I

> got the right diagnosis...

> tansy

> >

> --

>

> _______________________________________________

> Get your free email from http://www.mail.com

>

>

> This list is intended for patients to share personal

> experiences with each other, not to give medical

> advice. If you are interested in any treatment

> discussed here, please consult your doctor.

>

>

[Guest guest]

I was working outside in the woods in a Lyme endemic area, and had rashes. The

Western Blot also indicated long standing disease.

tansy

> how can you be sure you had lyme for that many years

> tho and it was not cfs?

> --- Tansy@... wrote:

> >

> > > Dear ,

> > >

> > > You wrote, " I keep getting people saying that lyme

> > and cfs are the same. Is

> > > this true? "

> > >

> > > No, they are not the same. But the symptoms of

> > Lyme and CFIDS are so similar

> > > that some people believe you can't tell them apart

> > clinically. The

> > > difference is that everyone knows what causes

> > Lyme--Borrelia

> > > burgdorferei--and no one yet knows for sure what

> > causes CFIDS--maybe lots of

> > > different things.

> > >

> > > Sue B.

> > > upstate New York

> > I agree with Sue, but would just like to add that an

> > additional problem is that the tests for Lyme are so

> > unreliable, and a lot of doctors don't know how to

> > properly diagnose Lyme, that there are a lot of poor

> > people out there who were diagnosed with CFIDS or

> > Fibro or MS etc. etc. that actually have Lyme

> > disease aand are not being treated. I had

> > undiagnosed Lyme for 20 years, so it's a bit of a

> > sore point with me. I had to get reinfected before I

> > got the right diagnosis...

> > tansy

> > >

> > --

> >

> > _______________________________________________

> > Get your free email from <A HREF= " http://www.mail.com " TARGET= " _new " ><FONT

COLOR= " BLUE " >http://www.mail.com</FONT></A>

> >

> >

> > This list is intended for patients to share personal

> > experiences with each other, not to give medical

> > advice. If you are interested in any treatment

> > discussed here, please consult your doctor.

> >

> >

[Guest guest]

i may have found someone to bring me to a lyme doc.ve

you heard of phillips pr ken ligner

--- Tansy@... wrote:

>

> I was working outside in the woods in a Lyme endemic

> area, and had rashes. The Western Blot also

> indicated long standing disease.

> tansy

>

>

> > how can you be sure you had lyme for that many

> years

> > tho and it was not cfs?

> > --- Tansy@... wrote:

> > >

> > > > Dear ,

> > > >

> > > > You wrote, " I keep getting people saying that

> lyme

> > > and cfs are the same. Is

> > > > this true? "

> > > >

> > > > No, they are not the same. But the symptoms of

> > > Lyme and CFIDS are so similar

> > > > that some people believe you can't tell them

> apart

> > > clinically. The

> > > > difference is that everyone knows what causes

> > > Lyme--Borrelia

> > > > burgdorferei--and no one yet knows for sure

> what

> > > causes CFIDS--maybe lots of

> > > > different things.

> > > >

> > > > Sue B.

> > > > upstate New York

> > > I agree with Sue, but would just like to add

> that an

> > > additional problem is that the tests for Lyme

> are so

> > > unreliable, and a lot of doctors don't know how

> to

> > > properly diagnose Lyme, that there are a lot of

> poor

> > > people out there who were diagnosed with CFIDS

> or

> > > Fibro or MS etc. etc. that actually have Lyme

> > > disease aand are not being treated. I had

> > > undiagnosed Lyme for 20 years, so it's a bit of

> a

> > > sore point with me. I had to get reinfected

> before I

> > > got the right diagnosis...

> > > tansy

> > > >

> > > --

> > >

> > > _______________________________________________

> > > Get your free email from <A

> HREF= " http://www.mail.com " TARGET= " _new " ><FONT

> COLOR= " BLUE " >http://www.mail.com</FONT></A>

> > >

> > >

> > > This list is intended for patients to share

> personal

> > > experiences with each other, not to give medical

> > > advice. If you are interested in any treatment

> > > discussed here, please consult your doctor.

> > >

> > >