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Re: Re:sinusitis - long

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Hi Judy,

I have also been fighting long bouts of sinusitis.

Most recently I saw Dr Hyam's in London and he

suggested a course of saline solution and Mistribron

(sp?)in a nebuliser.

This sounded very simple and I had about 8 of them.

Since then (fingers crossed) my sinus has been much

better/clearer.

I also tried home saline baths and also steaming to no

lasting effect. With the sinusitis I have had balance

problems and also very " itchy " ears.

Later this month I have an appointment with a specific

E/N/T specialist and will let you know if anything

interesting comes up.

I've also been trying to order the water pik

recommended by other people on this list but no sign

of it so far. UK Customs may be holding it.

Kind regards,

Annette

____________________________________________________________

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Dear Annette,

Many thanks, question - what is a nebulizer, what is Mistibron, and where

can you get it? Perscription only?

Thanks,

Judy

Re: Re:sinusitis - long

> Hi Judy,

>

> I have also been fighting long bouts of sinusitis.

> Most recently I saw Dr Hyam's in London and he

> suggested a course of saline solution and Mistribron

> (sp?)in a nebuliser.

>

> This sounded very simple and I had about 8 of them.

> Since then (fingers crossed) my sinus has been much

> better/clearer.

>

> I also tried home saline baths and also steaming to no

> lasting effect. With the sinusitis I have had balance

> problems and also very " itchy " ears.

>

> Later this month I have an appointment with a specific

> E/N/T specialist and will let you know if anything

> interesting comes up.

>

> I've also been trying to order the water pik

> recommended by other people on this list but no sign

> of it so far. UK Customs may be holding it.

>

> Kind regards,

> Annette

>

>

>

> ____________________________________________________________

>

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Guest guest

Hi and thanks! Will try the vapors, although I think it's too far gone for

just that, but who knows...

Judy

Re:sinusitis - long

> HI again,

> As a p.s. make sure you are not contributing to the congestion

> problem by the foods you are eating. Highest on the list are dairy

> foods. You may consider doing a elimination diet avoiding various

> food groups for several days to see if it helps. Citrus clogs me

> up. Also cheeses. Everybody is different.

> Mark and

>

>

> - In @y..., " judy " <baumelj@m...> wrote:

> > Hi everyone,

> > I seem to be down with a very bad case of sinusitis on my left

> side, the one

> > where the septum deviates, totally stuffed and I had bad pains for

> a week,

> > going down to my throat (which ended up being strep). Anyhow my

> doctor gave

> > me antibiotics for two weeks (augmentin) but I have a strange

> thing. For the

> > past two months, without any connection to the sinuses, I had a

> loss of

> > balance, feeling that my body was being pushed to the left. I went

> to a

> > neurologist who said " inner ear " , no neurological signs, an eye

> doctor who

> > gave me a complete exam including visual field, everything fine,

> again, he

> > said, " inner ear " , the local ear doctor said he didnt see anything,

> but when

> > I spoke to an ear specialist over the phone, he said to me to save

> my money,

> > if the neurologist said it isn't in that direction (had a CAT scan

> a year

> > ago and an MRI six months ago, so as I had no neurological signs

> she said no

> > need to send me for another one, even though the imbalance is more

> recent) I

> > dont even need to go to him, its inner ear, there is nothing to do,

> it takes

> > months and months and then goes away. I think I wrote about this on

> the list

> > a few weeks ago.

> > Anyhow, it was beginning to go away, I had a few days when I felt

> almost

> > nothing, and then with this sinus business it came back in droves,

> not only

> > that but I feel a place on the back middle left of my skull, like

> someone is

> > pressing my head forward and left from there (same side as the

> stuffed

> > sinus). It is very disconcerting, to say the least..I can still

> walk a

> > straight line, no problem seeing, can touch nose with eyes closed,

> etc., but

> > it feels like someone is pushing me all the time.

> > Does this sound familiar to anyone? Any suggestions? What if the

> antibiotic

> > doesn't work? I read somewhere that lots of sinus problems are

> caused by a

> > fungus, not by a bacteria, hence the antibiotics which helped my

> throat so

> > much might not help my nose at all. So what does one do for a

> fungus in the

> > nose? I'm trying to flush my nostrils with saline solution

> (homemade) but it

> > is relieved for a second and not more, then the whole thing stuffs

> up again.

> > Any ideas?

> > Thanks as usual, I dont know what I would do without you people.

> > Judy B.

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

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Please don't take anything I say as an implication that I know

something... I have all sorts of wacky things happen randomly and I'm

convince the brain just does strange things (yesterday my vision was all

messaged up, like a kaleidoscope and I had a blind spot, but it was there

when I closed my eyes too!)

Anyway, I had a lot of sinus problems in my day. There is a sinus called

the sphenoid, which is way in back, kind of in the center of your head.

When all my other sinuses were surgerized and found full of gunk, I

wondered what would happen if that sphenoid one got bad. I don't remember

now if the doctor said this to me or I read it or what, but basically that

would be bad news. My husband had it written down in case I developed a

huge headache or lost consciousness or something, so he could tell the

doctors. So anyway, I have no idea,, but maybe it runs by a nerve that

could cause you to get that feeling?

But also, my ears were often kind of plugged when my sinuses are bad, so

maybe it is your ear but it's caused by your sinus and that's why they're

related.

Anyway, a couple ideas.

Cindi

" judy " <baumelj@...>

06/03/01 04:39 AM

Please respond to

< >

cc:

Subject: Re:sinusitis - long

Hi everyone,

I seem to be down with a very bad case of sinusitis on my left side, the

one

where the septum deviates, totally stuffed and I had bad pains for a week,

going down to my throat (which ended up being strep). Anyhow my doctor

gave

me antibiotics for two weeks (augmentin) but I have a strange thing. For

the

past two months, without any connection to the sinuses, I had a loss of

balance, feeling that my body was being pushed to the left. I went to a

neurologist who said " inner ear " , no neurological signs, an eye doctor who

gave me a complete exam including visual field, everything fine, again, he

said, " inner ear " , the local ear doctor said he didnt see anything, but

when

I spoke to an ear specialist over the phone, he said to me to save my

money,

if the neurologist said it isn't in that direction (had a CAT scan a year

ago and an MRI six months ago, so as I had no neurological signs she said

no

need to send me for another one, even though the imbalance is more recent)

I

dont even need to go to him, its inner ear, there is nothing to do, it

takes

months and months and then goes away. I think I wrote about this on the

list

a few weeks ago.

Anyhow, it was beginning to go away, I had a few days when I felt almost

nothing, and then with this sinus business it came back in droves, not

only

that but I feel a place on the back middle left of my skull, like someone

is

pressing my head forward and left from there (same side as the stuffed

sinus). It is very disconcerting, to say the least..I can still walk a

straight line, no problem seeing, can touch nose with eyes closed, etc.,

but

it feels like someone is pushing me all the time.

Does this sound familiar to anyone? Any suggestions? What if the

antibiotic

doesn't work? I read somewhere that lots of sinus problems are caused by a

fungus, not by a bacteria, hence the antibiotics which helped my throat so

much might not help my nose at all. So what does one do for a fungus in

the

nose? I'm trying to flush my nostrils with saline solution (homemade) but

it

is relieved for a second and not more, then the whole thing stuffs up

again.

Any ideas?

Thanks as usual, I dont know what I would do without you people.

Judy B.

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

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FYI, steam would help my sinus headaches when they got really bad. And

the water pik attachment works great for me for reducing inflamation. But

my 10+ solid years of sinus problems really went away from taking

antibiotics for the last year. Have you been tested for mycoplasma /

chlamydia?

Cindi

Annette Barclay <annette_barclayuk@...>

06/03/01 05:09 AM

Please respond to

cc:

Subject: Re: Re:sinusitis - long

Hi Judy,

I have also been fighting long bouts of sinusitis.

Most recently I saw Dr Hyam's in London and he

suggested a course of saline solution and Mistribron

(sp?)in a nebuliser.

This sounded very simple and I had about 8 of them.

Since then (fingers crossed) my sinus has been much

better/clearer.

I also tried home saline baths and also steaming to no

lasting effect. With the sinusitis I have had balance

problems and also very " itchy " ears.

Later this month I have an appointment with a specific

E/N/T specialist and will let you know if anything

interesting comes up.

I've also been trying to order the water pik

recommended by other people on this list but no sign

of it so far. UK Customs may be holding it.

Kind regards,

Annette

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I know this might sound a little wierd, but I would recommend colloidal silver.

I have chronic sinus problems, and yes, they can be caused by fungus. I

actually wound up with systemic yeast infection after being given a double round

of antibiotics for a stubborn sinus infection because the antibiotics killed off

my normal flora. I've had great luck with colloidal silver. I both drink it

and put a few drops in my nostrils. Within about 3 minutes the symptoms GREATLY

improve. A good and much less expensive source for quality silver product is

www.utopiasilver.com

This stuff has worked so well for me and my family that we're probably going to

buy a generator so that we can make the stuff ourselves. If you want more

information and research that has been done on colloidal silvers a good website

is www.silver-colloids.com

Good luck

Re:sinusitis - long

Hi everyone,

I seem to be down with a very bad case of sinusitis on my left side, the one

where the septum deviates, totally stuffed and I had bad pains for a week,

going down to my throat (which ended up being strep). Anyhow my doctor gave

me antibiotics for two weeks (augmentin) but I have a strange thing. For the

past two months, without any connection to the sinuses, I had a loss of

balance, feeling that my body was being pushed to the left. I went to a

neurologist who said " inner ear " , no neurological signs, an eye doctor who

gave me a complete exam including visual field, everything fine, again, he

said, " inner ear " , the local ear doctor said he didnt see anything, but when

I spoke to an ear specialist over the phone, he said to me to save my money,

if the neurologist said it isn't in that direction (had a CAT scan a year

ago and an MRI six months ago, so as I had no neurological signs she said no

need to send me for another one, even though the imbalance is more recent) I

dont even need to go to him, its inner ear, there is nothing to do, it takes

months and months and then goes away. I think I wrote about this on the list

a few weeks ago.

Anyhow, it was beginning to go away, I had a few days when I felt almost

nothing, and then with this sinus business it came back in droves, not only

that but I feel a place on the back middle left of my skull, like someone is

pressing my head forward and left from there (same side as the stuffed

sinus). It is very disconcerting, to say the least..I can still walk a

straight line, no problem seeing, can touch nose with eyes closed, etc., but

it feels like someone is pushing me all the time.

Does this sound familiar to anyone? Any suggestions? What if the antibiotic

doesn't work? I read somewhere that lots of sinus problems are caused by a

fungus, not by a bacteria, hence the antibiotics which helped my throat so

much might not help my nose at all. So what does one do for a fungus in the

nose? I'm trying to flush my nostrils with saline solution (homemade) but it

is relieved for a second and not more, then the whole thing stuffs up again.

Any ideas?

Thanks as usual, I dont know what I would do without you people.

Judy B.

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Hi,

Isn't colloidal silver dangerous like it would be to ingest any type of

metal?

Judy

Re:sinusitis - long

>

>

> Hi everyone,

> I seem to be down with a very bad case of sinusitis on my left side, the

one

> where the septum deviates, totally stuffed and I had bad pains for a

week,

> going down to my throat (which ended up being strep). Anyhow my doctor

gave

> me antibiotics for two weeks (augmentin) but I have a strange thing. For

the

> past two months, without any connection to the sinuses, I had a loss of

> balance, feeling that my body was being pushed to the left. I went to a

> neurologist who said " inner ear " , no neurological signs, an eye doctor

who

> gave me a complete exam including visual field, everything fine, again,

he

> said, " inner ear " , the local ear doctor said he didnt see anything, but

when

> I spoke to an ear specialist over the phone, he said to me to save my

money,

> if the neurologist said it isn't in that direction (had a CAT scan a

year

> ago and an MRI six months ago, so as I had no neurological signs she

said no

> need to send me for another one, even though the imbalance is more

recent) I

> dont even need to go to him, its inner ear, there is nothing to do, it

takes

> months and months and then goes away. I think I wrote about this on the

list

> a few weeks ago.

> Anyhow, it was beginning to go away, I had a few days when I felt almost

> nothing, and then with this sinus business it came back in droves, not

only

> that but I feel a place on the back middle left of my skull, like

someone is

> pressing my head forward and left from there (same side as the stuffed

> sinus). It is very disconcerting, to say the least..I can still walk a

> straight line, no problem seeing, can touch nose with eyes closed, etc.,

but

> it feels like someone is pushing me all the time.

> Does this sound familiar to anyone? Any suggestions? What if the

antibiotic

> doesn't work? I read somewhere that lots of sinus problems are caused by

a

> fungus, not by a bacteria, hence the antibiotics which helped my throat

so

> much might not help my nose at all. So what does one do for a fungus in

the

> nose? I'm trying to flush my nostrils with saline solution (homemade)

but it

> is relieved for a second and not more, then the whole thing stuffs up

again.

> Any ideas?

> Thanks as usual, I dont know what I would do without you people.

> Judy B.

>

>

>

>

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" bad news " ? How bad are we talking? I was just at the doctor and she told me

that stubborn sinus problems often take two to four weeks of antibiotics.

Also she gave me sudafed to take down the sinus swelling and flixonase to

use as nose spray to heal the sinuses. Hope that it words.

Judy

Re:sinusitis - long

>

> Hi everyone,

> I seem to be down with a very bad case of sinusitis on my left side, the

> one

> where the septum deviates, totally stuffed and I had bad pains for a week,

> going down to my throat (which ended up being strep). Anyhow my doctor

> gave

> me antibiotics for two weeks (augmentin) but I have a strange thing. For

> the

> past two months, without any connection to the sinuses, I had a loss of

> balance, feeling that my body was being pushed to the left. I went to a

> neurologist who said " inner ear " , no neurological signs, an eye doctor who

> gave me a complete exam including visual field, everything fine, again, he

> said, " inner ear " , the local ear doctor said he didnt see anything, but

> when

> I spoke to an ear specialist over the phone, he said to me to save my

> money,

> if the neurologist said it isn't in that direction (had a CAT scan a year

> ago and an MRI six months ago, so as I had no neurological signs she said

> no

> need to send me for another one, even though the imbalance is more recent)

> I

> dont even need to go to him, its inner ear, there is nothing to do, it

> takes

> months and months and then goes away. I think I wrote about this on the

> list

> a few weeks ago.

> Anyhow, it was beginning to go away, I had a few days when I felt almost

> nothing, and then with this sinus business it came back in droves, not

> only

> that but I feel a place on the back middle left of my skull, like someone

> is

> pressing my head forward and left from there (same side as the stuffed

> sinus). It is very disconcerting, to say the least..I can still walk a

> straight line, no problem seeing, can touch nose with eyes closed, etc.,

> but

> it feels like someone is pushing me all the time.

> Does this sound familiar to anyone? Any suggestions? What if the

> antibiotic

> doesn't work? I read somewhere that lots of sinus problems are caused by a

> fungus, not by a bacteria, hence the antibiotics which helped my throat so

> much might not help my nose at all. So what does one do for a fungus in

> the

> nose? I'm trying to flush my nostrils with saline solution (homemade) but

> it

> is relieved for a second and not more, then the whole thing stuffs up

> again.

> Any ideas?

> Thanks as usual, I dont know what I would do without you people.

> Judy B.

>

>

>

> This list is intended for patients to share personal experiences with each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

>

>

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canderson@... wrote:

Have you been tested for mycoplasma /chlamydia?

Annette's reply: I have not been able to obtain an

adequate test on the UK NHS and do not have resources

to pay for one. If I was tested positive there would

then have other hurdles to jump in obtaining

treatment.

Apart from a few private doctors and even fewer NHS

doctors mycoplasma and chlamydia in M.E. are not taken

seriously here. I have printed off all the relevant

info. and done the rounds - been openly laughed at.

I am in my 19th year of ME and most resources now well

and truly gone.

____________________________________________________________

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canderson@... wrote:

Have you been tested for mycoplasma /chlamydia?

Annette's reply: I have not been able to obtain an

adequate test on the UK NHS and do not have resources

to pay for one privately.

I have printed off all the relevant info. and done the

rounds of NHS doc's - have been openly laughed at.

____________________________________________________________

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I got the impression it could be very bad, but I honestly don't remember,

and I don't think it could happen without you having a lot of pain. So if

you happen to get a gigantic headache that feels like it's coming from way

behind your nose, not up toward the front of your face, then I would go to

the ER. Otherwise I really don't think it's something you have to worry

about. I don't want to panic you or anything, but I thought it couldn't

hurt to know this sinus exists and could cause a problem if in fact you do

get a big pain later.

You know, I thought of another thing. My sinuses would always tend to get

inflammed / swollen. Maybe the same type of inflammation is pressing on a

nerve.

There was something on the list a couple months ago or less about a fungal

spray. I am very interested in fungus. During my sinus surgery days, one

of my frontal sinuses hurt like hell all the time, and the doctor couldn't

see anything in the xray. Finally he said maybe there was a shadow and he

went in. To get up there you have to drill through the skull below the

eyebrow. He didn't really expect to find anything, but the whole thing

was over-filled with a hard glob of mucous. He called it a mucocele. Had

to cut it in pieces and take it out through the hole he had dug. Now that

I read about fungus, it sounds like what they're calling a fungal ball.

Cindi

" judy " <baumelj@...>

06/03/01 11:10 AM

Please respond to

< >

cc:

Subject: Re: Re:sinusitis - long

" bad news " ? How bad are we talking? I was just at the doctor and she told

me

that stubborn sinus problems often take two to four weeks of antibiotics.

Also she gave me sudafed to take down the sinus swelling and flixonase to

use as nose spray to heal the sinuses. Hope that it words.

Judy

Re:sinusitis - long

>

> Hi everyone,

> I seem to be down with a very bad case of sinusitis on my left side, the

> one

> where the septum deviates, totally stuffed and I had bad pains for a

week,

> going down to my throat (which ended up being strep). Anyhow my doctor

> gave

> me antibiotics for two weeks (augmentin) but I have a strange thing. For

> the

> past two months, without any connection to the sinuses, I had a loss of

> balance, feeling that my body was being pushed to the left. I went to a

> neurologist who said " inner ear " , no neurological signs, an eye doctor

who

> gave me a complete exam including visual field, everything fine, again,

he

> said, " inner ear " , the local ear doctor said he didnt see anything, but

> when

> I spoke to an ear specialist over the phone, he said to me to save my

> money,

> if the neurologist said it isn't in that direction (had a CAT scan a

year

> ago and an MRI six months ago, so as I had no neurological signs she

said

> no

> need to send me for another one, even though the imbalance is more

recent)

> I

> dont even need to go to him, its inner ear, there is nothing to do, it

> takes

> months and months and then goes away. I think I wrote about this on the

> list

> a few weeks ago.

> Anyhow, it was beginning to go away, I had a few days when I felt almost

> nothing, and then with this sinus business it came back in droves, not

> only

> that but I feel a place on the back middle left of my skull, like

someone

> is

> pressing my head forward and left from there (same side as the stuffed

> sinus). It is very disconcerting, to say the least..I can still walk a

> straight line, no problem seeing, can touch nose with eyes closed, etc.,

> but

> it feels like someone is pushing me all the time.

> Does this sound familiar to anyone? Any suggestions? What if the

> antibiotic

> doesn't work? I read somewhere that lots of sinus problems are caused by

a

> fungus, not by a bacteria, hence the antibiotics which helped my throat

so

> much might not help my nose at all. So what does one do for a fungus in

> the

> nose? I'm trying to flush my nostrils with saline solution (homemade)

but

> it

> is relieved for a second and not more, then the whole thing stuffs up

> again.

> Any ideas?

> Thanks as usual, I dont know what I would do without you people.

> Judy B.

>

>

>

> This list is intended for patients to share personal experiences with

each

> other, not to give medical advice. If you are interested in any

treatment

> discussed here, please consult your doctor.

>

>

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Guest guest

I never actually got tested either. What happened was I was on

antibiotics for a " sinus infection " but every time I stopped the

infection/headache came back the next day. So after being on it for 9

months with this pattern, they just figured I had it. Then I tested

positive for hypercoatulation and when I increased the antibiotic dosage I

got major herxing. So empirically I have it even though I didn't get the

test, because you have to be off antibiotics for 2-3 months to get an

accurate test and I would backslide so far in that time it's not worth it.

If I were you, knowing what I know now, I would try the nasal irrigator

and try to get some fungal spray (not sure what it's called but it's in

the archives.) If that didn't work I would get antibiotics from Mexico or

someplace you don't need a prescription. You would be able to tell in a

month if you have a chronic infection.

Cindi

Annette Barclay <annette_barclayuk@...>

06/03/01 12:23 PM

Please respond to

cc:

Subject: Re: Re:sinusitis - long

canderson@... wrote:

Have you been tested for mycoplasma /chlamydia?

Annette's reply: I have not been able to obtain an

adequate test on the UK NHS and do not have resources

to pay for one. If I was tested positive there would

then have other hurdles to jump in obtaining

treatment.

Apart from a few private doctors and even fewer NHS

doctors mycoplasma and chlamydia in M.E. are not taken

seriously here. I have printed off all the relevant

info. and done the rounds - been openly laughed at.

I am in my 19th year of ME and most resources now well

and truly gone.

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Dear Cindi,

Sounds horrible, so far, though, no pain at all except for a bit of pressure

around the eyebrow.

What is a fungal spray, where can you get it?

Judy

Re:sinusitis - long

> >

> > Hi everyone,

> > I seem to be down with a very bad case of sinusitis on my left side, the

> > one

> > where the septum deviates, totally stuffed and I had bad pains for a

> week,

> > going down to my throat (which ended up being strep). Anyhow my doctor

> > gave

> > me antibiotics for two weeks (augmentin) but I have a strange thing. For

> > the

> > past two months, without any connection to the sinuses, I had a loss of

> > balance, feeling that my body was being pushed to the left. I went to a

> > neurologist who said " inner ear " , no neurological signs, an eye doctor

> who

> > gave me a complete exam including visual field, everything fine, again,

> he

> > said, " inner ear " , the local ear doctor said he didnt see anything, but

> > when

> > I spoke to an ear specialist over the phone, he said to me to save my

> > money,

> > if the neurologist said it isn't in that direction (had a CAT scan a

> year

> > ago and an MRI six months ago, so as I had no neurological signs she

> said

> > no

> > need to send me for another one, even though the imbalance is more

> recent)

> > I

> > dont even need to go to him, its inner ear, there is nothing to do, it

> > takes

> > months and months and then goes away. I think I wrote about this on the

> > list

> > a few weeks ago.

> > Anyhow, it was beginning to go away, I had a few days when I felt almost

> > nothing, and then with this sinus business it came back in droves, not

> > only

> > that but I feel a place on the back middle left of my skull, like

> someone

> > is

> > pressing my head forward and left from there (same side as the stuffed

> > sinus). It is very disconcerting, to say the least..I can still walk a

> > straight line, no problem seeing, can touch nose with eyes closed, etc.,

> > but

> > it feels like someone is pushing me all the time.

> > Does this sound familiar to anyone? Any suggestions? What if the

> > antibiotic

> > doesn't work? I read somewhere that lots of sinus problems are caused by

> a

> > fungus, not by a bacteria, hence the antibiotics which helped my throat

> so

> > much might not help my nose at all. So what does one do for a fungus in

> > the

> > nose? I'm trying to flush my nostrils with saline solution (homemade)

> but

> > it

> > is relieved for a second and not more, then the whole thing stuffs up

> > again.

> > Any ideas?

> > Thanks as usual, I dont know what I would do without you people.

> > Judy B.

> >

> >

> >

> > This list is intended for patients to share personal experiences with

> each

> > other, not to give medical advice. If you are interested in any

> treatment

> > discussed here, please consult your doctor.

> >

> >

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Re:sinusitis - long

> Hi everyone,

> I seem to be down with a very bad case of sinusitis on my left side.....

Judy,

My husband over a period of several years has had what I believe to be

serious sinus problems. About 7 years ago he developed severe vertigo which

absolutely brought him to the ground when they occurred. Fortunately, they

didn't occur frequently, but they still put him out of commission for a good

week at a time. No one could figure out what caused them. He was diagnosed

with " rule out Meniere's disease, which ensured that as a pilot he could not

fly again until he had been symptom free for five years, but to this day he

is still afraid to get back in the air except as a passenger. Then after

about a year and a half, these episodes disappeared, and have not returned.

But he " traded " them in for this wretchedly disgusting smell which emanated

from his nose, but which seemed to come and go, and seemed almost

imperceptible to anyone but me. (I have severe MCS, so maybe am

hyper-sensitive to it). He also got more sluggish, headaches...., but stated

they were from stress associated with my then developing CFIDS, mercury

toxicity, pesticide poisoning....finally, I couldn't stand it any longer,

and had him see my Environmental doctor - this being after all the

traditional docs could find nothing wrong, and no antibiotic he took cleared

it up. My doc tested him for mold allergies, candida allergies, and a few

food allergies. He did a stool culture, and was chock full of candida. So

they put him on Nystatin orally, but also had a compounding pharmacy make up

Nystatin in a nasal spray with aloe and saline. The smell went away, and

stays away except when he eats candida type foods - for him bread,or any

wheat product enhances the smell, and when he doesn't use the nose spray for

a while. I think he stopped the nose spray too soon, and using it only when

the smell comes back now is still not enough. No more dizzy spells and

greatly reduced headaches. Also less complaints of ear pains and ear wax

buildup, which he also had. So I think there are things for fungal sinus

infections, and some people on one of my other lists also mentioned their

sinus problems going away after their amalgams were removed. My husband

still has his (but not many), but does take a product called Demertox by

Nutricology until we can afford to remove his fillings. It's basically

supports the body's detox abilities - has NAC and some other things.

Donna in NC

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My husband would usually detect an odor when my sinuses were bad.

Cindi

" Donna Pruitt " <donnap@...>

06/03/01 03:13 PM

Please respond to

< >

cc:

Subject: Re: Re:sinusitis - long

Re:sinusitis - long

> Hi everyone,

> I seem to be down with a very bad case of sinusitis on my left side.....

Judy,

My husband over a period of several years has had what I believe to be

serious sinus problems. About 7 years ago he developed severe vertigo

which

absolutely brought him to the ground when they occurred. Fortunately, they

didn't occur frequently, but they still put him out of commission for a

good

week at a time. No one could figure out what caused them. He was diagnosed

with " rule out Meniere's disease, which ensured that as a pilot he could

not

fly again until he had been symptom free for five years, but to this day

he

is still afraid to get back in the air except as a passenger. Then after

about a year and a half, these episodes disappeared, and have not

returned.

But he " traded " them in for this wretchedly disgusting smell which

emanated

from his nose, but which seemed to come and go, and seemed almost

imperceptible to anyone but me. (I have severe MCS, so maybe am

hyper-sensitive to it). He also got more sluggish, headaches...., but

stated

they were from stress associated with my then developing CFIDS, mercury

toxicity, pesticide poisoning....finally, I couldn't stand it any longer,

and had him see my Environmental doctor - this being after all the

traditional docs could find nothing wrong, and no antibiotic he took

cleared

it up. My doc tested him for mold allergies, candida allergies, and a few

food allergies. He did a stool culture, and was chock full of candida. So

they put him on Nystatin orally, but also had a compounding pharmacy make

up

Nystatin in a nasal spray with aloe and saline. The smell went away, and

stays away except when he eats candida type foods - for him bread,or any

wheat product enhances the smell, and when he doesn't use the nose spray

for

a while. I think he stopped the nose spray too soon, and using it only

when

the smell comes back now is still not enough. No more dizzy spells and

greatly reduced headaches. Also less complaints of ear pains and ear wax

buildup, which he also had. So I think there are things for fungal sinus

infections, and some people on one of my other lists also mentioned their

sinus problems going away after their amalgams were removed. My husband

still has his (but not many), but does take a product called Demertox by

Nutricology until we can afford to remove his fillings. It's basically

supports the body's detox abilities - has NAC and some other things.

Donna in NC

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

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Here is a forward of a post. If I find more I'll forward it. :

------------------------------------------

>I met a researcher who uses Itraconazole with Beta Glucan in a nasal

spray

>and has had good results with many severe sinusitis patients. I did this

>protocol and have seen some interesting results with the interaction

between

>my sinuses and my gums (i.e. recessesion). I think, if the sinuses can

be

>appropriately infused with the spray, that this would be safer for the

>liver.

>MiDobs

I would be hesitant to use Sporanox = itraconazole in nasal spray ...

( BTW, I have used variety of antifungals as nasal sprays, so there is

nothing

new here, have done it for years, and have written about it even on this

list

and other lists over the yeras, even before the " researchers " started

doing so later on ... )

Have used nystatin, amphotericin B, crushed powder of fluconazole,

liquid citrus seed also as atomized spray, and they are all safer

and more effective to me than Itraconazole = Sporanox which

I tried also back in 1991 when it was not yet available in the US, but

did not use if further because it caused serious and dangerous

vein breakages, took pictures of those, and had them also marked to

my medical records as serious side-effects of itraconazole ...

Now, if Itraconazole would do intra-nasally/sinally the same it caused

systemically to me with the vein breakage, it could potentially cause

eye/sinal/brain vein breakages = stroke in the case of the brains ...

Of course, if someone tolerates itraconazole without the vein breakages

it caused to me, then perhaps, but, it is not any safer than fluconazole

or

ketoconazole, I can tell that from 9+ year experience with all of them.

Regards, Ray S.

" judy " <baumelj@...>

06/03/01 02:17 PM

Please respond to

< >

cc:

Subject: Re: Re:sinusitis - long

Dear Cindi,

Sounds horrible, so far, though, no pain at all except for a bit of

pressure

around the eyebrow.

What is a fungal spray, where can you get it?

Judy

>

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All I can tell you about colloidal silver is what I've read in the research

and the things people have told me who have been taking it for years. According

to the research I've read it's not dangerous as long as you take the correct

form of colloidal silver. It needs to be particulate silver, not ionic, with

particles being no larger than 0.01 microns. The solution should be absolutely

clear with no cloudiness or color - should look just like water.

I understand your concern about ingesting metals. I have the same concerns.

According to what I've read, there are no side effects as long as the correct

form is taken. If the incorrect form is taken you can get something called

Argyria(Sp?) where your skin turns blue (yuck!!). Apparently, this is the only

symptom, no actual physical symptoms. However, I guess it's quite disfiguring.

This happens when the silver particles (bigger than 0.01microns - why you want

the small particles only) get stuck in your cells.

The woman that I know who is taking this has taken it for 1 1/2 years and has

not been sick since she started taking it. She cured her yeast infecion with

it. I first found out about it when an MD told my friend to give it to her 3

1/2 year old son for a yeast infection. I talked to someone else (don't know

him personally who has been taking it for 3 years. According to him, he has not

been sick since he started taking it. The research that I've read says that

your body excretes it readily through the urine. I honestly don't know why

other metals in different forms would be dangerous and this isn't. All I know

is that it seems to be working for me. If anyone knows the difference between

colloidal silver and other metals I'd love to hear what you have to say.

Re:sinusitis - long

>

>

> Hi everyone,

> I seem to be down with a very bad case of sinusitis on my left side, the

one

> where the septum deviates, totally stuffed and I had bad pains for a

week,

> going down to my throat (which ended up being strep). Anyhow my doctor

gave

> me antibiotics for two weeks (augmentin) but I have a strange thing. For

the

> past two months, without any connection to the sinuses, I had a loss of

> balance, feeling that my body was being pushed to the left. I went to a

> neurologist who said " inner ear " , no neurological signs, an eye doctor

who

> gave me a complete exam including visual field, everything fine, again,

he

> said, " inner ear " , the local ear doctor said he didnt see anything, but

when

> I spoke to an ear specialist over the phone, he said to me to save my

money,

> if the neurologist said it isn't in that direction (had a CAT scan a

year

> ago and an MRI six months ago, so as I had no neurological signs she

said no

> need to send me for another one, even though the imbalance is more

recent) I

> dont even need to go to him, its inner ear, there is nothing to do, it

takes

> months and months and then goes away. I think I wrote about this on the

list

> a few weeks ago.

> Anyhow, it was beginning to go away, I had a few days when I felt almost

> nothing, and then with this sinus business it came back in droves, not

only

> that but I feel a place on the back middle left of my skull, like

someone is

> pressing my head forward and left from there (same side as the stuffed

> sinus). It is very disconcerting, to say the least..I can still walk a

> straight line, no problem seeing, can touch nose with eyes closed, etc.,

but

> it feels like someone is pushing me all the time.

> Does this sound familiar to anyone? Any suggestions? What if the

antibiotic

> doesn't work? I read somewhere that lots of sinus problems are caused by

a

> fungus, not by a bacteria, hence the antibiotics which helped my throat

so

> much might not help my nose at all. So what does one do for a fungus in

the

> nose? I'm trying to flush my nostrils with saline solution (homemade)

but it

> is relieved for a second and not more, then the whole thing stuffs up

again.

> Any ideas?

> Thanks as usual, I dont know what I would do without you people.

> Judy B.

>

>

>

>

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I feel so badly for you. I get so mad at doctors that think they know

everything and that their patients can't possibly know anything. I chalk it up

to narrow-minded egotism.

Re: Re:sinusitis - long

canderson@... wrote:

Have you been tested for mycoplasma /chlamydia?

Annette's reply: I have not been able to obtain an

adequate test on the UK NHS and do not have resources

to pay for one. If I was tested positive there would

then have other hurdles to jump in obtaining

treatment.

Apart from a few private doctors and even fewer NHS

doctors mycoplasma and chlamydia in M.E. are not taken

seriously here. I have printed off all the relevant

info. and done the rounds - been openly laughed at.

I am in my 19th year of ME and most resources now well

and truly gone.

____________________________________________________________

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