Re: Supplements/Meds I Take

[Guest guest]

In a message dated 6/7/01 2:10:08 PM Eastern Daylight Time, smuzik@...

writes:

> Thanks for the update :-), a

> I wonder if you have any cognitive problems? I didn't notice any supplement

> for brain. May be you do not need them (great!) or you haven't found a

> suitable one?

> Stania

>

Stania,

I have alot of cognitive problems. Which are you thinking of specifically?

a

_________________________________________________________________

" Do me a favor, doc, tell me something good. " - Blair -

~~ The Exorcist ~~

[Guest guest]

Thanks for the update :-), a

I wonder if you have any cognitive problems? I didn't notice any supplement

for brain. May be you do not need them (great!) or you haven't found a

suitable one?

Stania

----- Puvodní zpráva -----

Od: <StarDantzer@...>

I welcome any feedback or

> comments/suggestions. Also feel free to backchannel me with your

> supplement/meds list because as I said I find it interesting.

[Guest guest]

a,

One question and one comment/wonder (and thanks for this):

You say you take Mag Sulfate injections in the dose of 25 mg /day. Can

someone translate that for me (or give the formula for doing so) to cc's

(or, ml's)? I take 2 cc's IM of Mag Sulfate 50% solution (which I assume

is the same as what you're taking because that's what I've always been

given by a number of docs) 3 times per week. I was told (I think on this

list) that Dr. C prefers 1 cc every day but realizes that the pain and/or

tissue injury of going into muscle tissues every day often reduces

compliance, though I " feel " that the injury itself is harmful, because

it's just another form, like what we get from exercise.

Anyway, I'm curious whether your dose is near or far from what I assumed

was recommended.

The other comment is that many of us seem to be unsure which of our

supplements and meds are helping us, though some obviously are at least

about certain of their treatments. This is such a big/important issue.

I for one feel that I'm taking less than I should (for example, I suspect

alpha lipoic acid is important) and worry that if I stop what I'm taking

I'll get sicker even if I'm clearly not getting better.

The only things in my regimen that I can connect with improved well-being

are:

magnesium

vit c

vit B-l2 (hydroxo, as injected)

.. . . BECAUSE when I stop these I get undesirable symptoms. But we know

that observable (by us) symptoms aren't the only measure of the worth of

something, which is where we end up trusting research and clinicians.

Like milk thistle. I feel no different on it yet I fear if I didn't take

it my liver would ultimately go under, given all the drugs and toxins

etc.

Periodically I also worry if any of the things I take are harmful, if

only in the long run. But we are working in a medical system and a

CFS/ME doctor system that hasn't been collaborative and focused on the

collection of data that would help us with this issue. Which, in 21st

century Western society seems outrageous.

BTW, when I stop the C the skin around my fingernails starts cracking

into open, painful wounds. I assume I don't get enuf C in my diet and

must supplement because I think that's a scurvy like symptom; but it

hurts and is open to infection and can't be good.

Judith

On Thu, 7 Jun 2001 10:04:46 EDT StarDantzer@... writes:

For anyone interested in seeing the supplements and meds I am taking

currently please continue reading. I know it always interests me to see

what

my fellow PWC's are doing and why. I welcome any feedback or

comments/suggestions. Also feel free to backchannel me with your

supplement/meds list because as I said I find it interesting.

Medications:

Lovenox 30 mg injection daily (past 2 months w/ little change in sx.)

Doxy 200 mg a day (past 10 months - severe herx at first and gradual

slight

improvement - now at a plateau.)

K Dur 10 meq ( Past 8 months due to testing very low in potassium.)

Injections :

Mag Sulfate 1 gram - daily

Methylcobalamin 25 mg daily

Pyridoxine HCI 100mg/ml - weekly

Thiamine 100mg/ml - weekly

Supplements:

Maxi L-Carnitine 2000mg. Daily (1000 mg a.m w/ CoQ10/1000 mg pm w/CoQ10)

Taurine 1000 mg. (supposed to be good for heart sx and works w/

magnesium.

want to look into getting this in injectable form.)

Lysine 1000 mg. ( works against viruses.)

CoQ10 400 mg.

Isoprinosine Week 1 500 mg. 2x, Week 2 500 mg. 5x, skip Sat . & Sun.(been

doing this for 2 months with no noticeable difference.)

Thisilyn Milk Thistle (for liver.)

Selenium 100 mcg. Anyone know if this should be increased? I read

somewhere

that 600 to 1,000 mcg is recomended.)

Gookinaid Electrolyte Replacement w/ Glucose

Methylcobalimin oral 10 mg. a day

Transfer Factor 4 Life 6 a day ( Anyone know if this 4 Life TF is antigen

specific for EBV? I know someone posted on antigen specific TF (I think

it

was .)

IP6 2 scoops in a.m.

Beta 1,3/1,6 Glucan 4 a day

Soil Based Organisms

Lemon/Olive Oil Drink w/lecithin(going to add BHT when it arrives.)

MGN 3 1000 mg./ day (This has raised my NK cell function from 2 to 12 w/

a

normal range being 8-170.)

Zinc Picolinate 60 mg. (for hair loss, if I go off this for a week I

start

losing my hair again.)

B-50

Multi/ Iron Free

Biotin 5mg.

Alpha Lipoic Acid 200 mg.

Vitamin E 800 mg.

EPA 2000 mg.

Magnesium Glycinate 450 mg.

Salt Capsules 3 x a day

Acidophilus

Immunepro 1 x a day

Immunocal 2 x a day

Fresh Organic Veggie Juice 3 x a day w/ Superfood added

Lots of Garlic - 3 cloves (antviral and anti-vampirE

That's it for me. As you can see most things have not made a significant

difference that I can tell. I looked back over my diary from last year at

this time and I was feeling exactly the same, able to do as much, same

headaches, same heart symptoms. Thousands of dollars and waking up every

day

trying to be hopeful and for what? I suppose I need to be happy that I

did

not backslide....

a

_________________________________________________________________

" Do me a favor, doc, tell me something good. " - Blair -

~~ The Exorcist ~~

[Guest guest]

HI Tania,

Your list was really interesting and I got some ideas from it. i am

interested int the colloidal silver. Where do you get that? I know some ppl

make it themselves. Also, I am going to look into the Peptizyde and HN-zyme

products.

a

_________________________________________________________________

" Do me a favor, doc, tell me something good. " - Blair -

~~ The Exorcist ~~

[Guest guest]

In a message dated 6/7/01 7:17:47 PM Eastern Daylight Time, kmcamp22@...

writes:

> a, very nice of you to post your protocol. My feeling is that

> if you are not benefitting from Doxy after 10 months, it might be

> doing more harm than good. The Lymies will probably disagree, but

> 10 months of any treatment should be enough to determine whether or

> not to continue it. Maybe you should look toward antivirals.

>

>

Hi Mike,

i am going to begin IV cytovene soon - following Dr. Lerners protocol. I am

going to stay on the doxy as I believe Nicholson suggests about 18 months to

see improvement. I may look into OLE and I am taking Isoprinosine although I

see no effects.

a

_________________________________________________________________

" Do me a favor, doc, tell me something good. " - Blair -

~~ The Exorcist ~~

[Guest guest]

In a message dated 6/7/01 4:17:46 PM Eastern Daylight Time, moonju8@...

writes:

>

>

>

>

>

> a,

> Thanks for sharing...

> Have you considered going off doxy, for a while?

I think I will stay on the Doxy as I am still positive for M. Fermentans.

possibly i may switch to Zithromax or Biaxin.

> My doc has me on doxy 6 weeks, then off 6 weeks.

> So far, I feel better when off and worse (herxing?) while on.

> How long has it been since you had your K/potassium levels

> checked since supplementing? My K levels where low, but

> got too high after 6 mths supplements.

I had them tested just about a month ago and they were on the low side of

normal.

> What other things do you do to nurture yourself other

> than supplements? Hobbies, nature, jacuzzi, sauna, massage...?

I have two daughters and two Golden Retrievers. they take up my time happily.

> I take a lot of the same or similar supplements as you

> and I still have achey joints, fatigue, headaches....

My joint pains have lessened through the months. i have very bad headaches

and fatigue though. Also, alot of cardiac symptoms.

> Meds/Supplements I am worse if I go off are:

> 90mg armour thyroid

> 25mg DHEA

> P-5-P Plus (Pyridoxal 5-Phosphate,B6 metabolite w/magnesium)

> 100-200mg 5 HTP (L-5-hydroxy-tryptophan)

> COq10

> probiotics

>

> Take care,

[Guest guest]

a,

Thanks for sharing...

Have you considered going off doxy, for a while?

My doc has me on doxy 6 weeks, then off 6 weeks.

So far, I feel better when off and worse (herxing?) while on.

How long has it been since you had your K/potassium levels

checked since supplementing? My K levels where low, but

got too high after 6 mths supplements.

What other things do you do to nurture yourself other

than supplements? Hobbies, nature, jacuzzi, sauna, massage...?

I take a lot of the same or similar supplements as you

and I still have achey joints, fatigue, headaches....

Meds/Supplements I am worse if I go off are:

90mg armour thyroid

25mg DHEA

P-5-P Plus (Pyridoxal 5-Phosphate,B6 metabolite w/magnesium)

100-200mg 5 HTP (L-5-hydroxy-tryptophan)

COq10

probiotics

Take care, (WA)

> For anyone interested in seeing the supplements and meds I am

taking

> currently please continue reading. I know it always interests me to

see what

> my fellow PWC's are doing and why. I welcome any feedback or

> comments/suggestions. Also feel free to backchannel me with your

> supplement/meds list because as I said I find it interesting.

>

> Medications:

>

> Lovenox 30 mg injection daily (past 2 months w/ little change in

sx.)

>

> Doxy 200 mg a day (past 10 months - severe herx at first and

gradual slight

> improvement - now at a plateau.)

>

> K Dur 10 meq ( Past 8 months due to testing very low in potassium.)

>

> Injections :

>

> Mag Sulfate 1 gram - daily

> Methylcobalamin 25 mg daily

> Pyridoxine HCI 100mg/ml - weekly

> Thiamine 100mg/ml - weekly

>

> Supplements:

>

> Maxi L-Carnitine 2000mg. Daily (1000 mg a.m w/ CoQ10/1000 mg pm

w/CoQ10)

> Taurine 1000 mg. (supposed to be good for heart sx and works w/

magnesium.

> want to look into getting this in injectable form.)

> Lysine 1000 mg. ( works against viruses.)

> CoQ10 400 mg.

> Isoprinosine Week 1 500 mg. 2x, Week 2 500 mg. 5x, skip Sat . & Sun.

(been

> doing this for 2 months with no noticeable difference.)

> Thisilyn Milk Thistle (for liver.)

> Selenium 100 mcg. Anyone know if this should be increased? I read

somewhere

> that 600 to 1,000 mcg is recomended.)

> Gookinaid Electrolyte Replacement w/ Glucose

> Methylcobalimin oral 10 mg. a day

> Transfer Factor 4 Life 6 a day ( Anyone know if this 4 Life TF is

antigen

> specific for EBV? I know someone posted on antigen specific TF (I

think it

> was .)

> IP6 2 scoops in a.m.

> Beta 1,3/1,6 Glucan 4 a day

> Soil Based Organisms

> Lemon/Olive Oil Drink w/lecithin(going to add BHT when it arrives.)

> MGN 3 1000 mg./ day (This has raised my NK cell function from 2 to

12 w/ a

> normal range being 8-170.)

> Zinc Picolinate 60 mg. (for hair loss, if I go off this for a week

I start

> losing my hair again.)

> B-50

> Multi/ Iron Free

> Biotin 5mg.

> Alpha Lipoic Acid 200 mg.

> Vitamin E 800 mg.

> EPA 2000 mg.

> Magnesium Glycinate 450 mg.

> Salt Capsules 3 x a day

> Acidophilus

> Immunepro 1 x a day

> Immunocal 2 x a day

> Fresh Organic Veggie Juice 3 x a day w/ Superfood added

> Lots of Garlic - 3 cloves (antviral and anti-vampirE

>

> That's it for me. As you can see most things have not made a

significant

> difference that I can tell. I looked back over my diary from last

year at

> this time and I was feeling exactly the same, able to do as much,

same

> headaches, same heart symptoms. Thousands of dollars and waking up

every day

> trying to be hopeful and for what? I suppose I need to be happy

that I did

> not backslide....

>

> a

>

_________________________________________________________________

> " Do me a favor, doc, tell me something good. " - Blair -

> ~~ The Exorcist ~~

>

>

>

[Guest guest]

> For anyone interested in seeing the supplements and meds I am

taking

> currently please continue reading. I know it always interests me to

see what

> my fellow PWC's are doing and why. I welcome any feedback or

> comments/suggestions. Also feel free to backchannel me with your

> supplement/meds list because as I said I find it interesting.

>

> Medications:

>

>

> Doxy 200 mg a day (past 10 months - severe herx at first and

gradual slight

> improvement - now at a plateau.)

a, very nice of you to post your protocol. My feeling is that

if you are not benefitting from Doxy after 10 months, it might be

doing more harm than good. The Lymies will probably disagree, but

10 months of any treatment should be enough to determine whether or

not to continue it. Maybe you should look toward antivirals.

Mike

[Guest guest]

Hi, this is Tania. I've had CFS for 3 years now. Have had periods of being

unable to walk from one room to the next, and periods of being able to play

" Marco Polo " with relatives in a swimming pool. These days not feeling too

good, but not horrible. Able to maintain the house for the most part and go on

short walks with my husband. Have started feeling worse since started amalgam

removal, which I guess is to be expected and is temporary. Thank you for the

list of what you're taking. My list is as follows:

1.. T-100 (for hypothyriodism)

2.. Lithinase (containing lithium, Pea Powder, Buckwheat Flour, Millet Flour,

Lentil Powder - for increased energy and to supplement the loss of lithium due

to binding with mercury)

3.. Cod Liver Oil

4.. Lipoic Acid 200mg QD (every day) -strong antioxident, helps regulate blood

sugar

5.. Vitamin C 5000mg QD

6.. CoQ10 200mg QD - helps poisoned mitochondria

7.. NAC 1800mg QD (detoxify the liver)

8.. Colostrum 1tsp QD (really helps in gut healing)

9.. Lactobacillus (probiotic for gut and fighting yeast)

10.. Zinc 70mg QD

11.. Magnesium 1000mg QD

12.. FOS (food for probiotics)

13.. Peptizyde and HN-zyme before meals (helps digest proteins. Allows me to

eat gluten with reacting to it while healing the gut)

14.. Colloidal Silver (hopefully will kill off the yeast and viruses, bacteria

etc. Still experimenting with the dose)

15.. MSM 5200mg

16.. Basic Detox Nutrients which contain

a.. VitA 30,000IU

b.. Vit D 100IU

c.. Vit E 400IU

d.. Vit c1000IU

e.. Thiamine 200mg

f.. Riboflavin 50mg

g.. Niacin 130mg

h.. Vit B6 100mg

i.. Folate 800mcg

j.. vit B12 450mcg

k.. biotin 300mcg

l.. pantothenic acid 400mg

m.. calcium 300mg

n.. iodine 150mcg

o.. magnesium 500mg

p.. zinc 30mg

q.. selenium 200mcg

r.. copper 1.5mg

s.. manganese 15mg

t.. chromium 200mcg

u.. molybdemum 100mcg

v.. potassuim 90mg

w.. boron 3mg

x.. choline citrate 300mg

y.. inositol 60mg

z.. vanadium 100mcg

aa.. green tea extract 50mg

ab.. alpha lipoic acid 100mg

ac.. nac 200mg

ad.. msm 100mg

ae.. siliphos 100mg

af.. broccoli extract 50mg

ag.. dandelion root 10mg

ah.. turmeric extract 100 mg

Re: Supplements/Meds I Take

Thanks for the update :-), a

I wonder if you have any cognitive problems? I didn't notice any supplement

for brain. May be you do not need them (great!) or you haven't found a

suitable one?

Stania

----- Puvodní zpráva -----

Od: <StarDantzer@...>

I welcome any feedback or

> comments/suggestions. Also feel free to backchannel me with your

> supplement/meds list because as I said I find it interesting.

[Guest guest]

Hi a,

That's quite a list. Seems you are going after the immune side of

things quite heavily. Have you considered having your adrenals

evaluated by a saliva test? The palpatations may be related as well

as many of your other symptoms. The other consideration is simply

with everything you are taking there certainly could be reactions to

something along the way. My wife developed sensitivities to

quite a few things and we are always very cautious to note the

effects of supplements,etc. on her and add one thing at a time to

notice reactions. Just a thought, since so many PWC's do have

sensitive bowel health and have developed many sensitivities.

Mark and

> For anyone interested in seeing the supplements and meds I am

taking

> currently please continue reading. I know it always interests me to

see what

> my fellow PWC's are doing and why. I welcome any feedback or

> comments/suggestions. Also feel free to backchannel me with your

> supplement/meds list because as I said I find it interesting.

>

> Medications:

>

> Lovenox 30 mg injection daily (past 2 months w/ little change in

sx.)

>

> Doxy 200 mg a day (past 10 months - severe herx at first and

gradual slight

> improvement - now at a plateau.)

>

> K Dur 10 meq ( Past 8 months due to testing very low in potassium.)

>

> Injections :

>

> Mag Sulfate 1 gram - daily

> Methylcobalamin 25 mg daily

> Pyridoxine HCI 100mg/ml - weekly

> Thiamine 100mg/ml - weekly

>

> Supplements:

>

> Maxi L-Carnitine 2000mg. Daily (1000 mg a.m w/ CoQ10/1000 mg pm

w/CoQ10)

> Taurine 1000 mg. (supposed to be good for heart sx and works w/

magnesium.

> want to look into getting this in injectable form.)

> Lysine 1000 mg. ( works against viruses.)

> CoQ10 400 mg.

> Isoprinosine Week 1 500 mg. 2x, Week 2 500 mg. 5x, skip Sat . & Sun.

(been

> doing this for 2 months with no noticeable difference.)

> Thisilyn Milk Thistle (for liver.)

> Selenium 100 mcg. Anyone know if this should be increased? I read

somewhere

> that 600 to 1,000 mcg is recomended.)

> Gookinaid Electrolyte Replacement w/ Glucose

> Methylcobalimin oral 10 mg. a day

> Transfer Factor 4 Life 6 a day ( Anyone know if this 4 Life TF is

antigen

> specific for EBV? I know someone posted on antigen specific TF (I

think it

> was .)

> IP6 2 scoops in a.m.

> Beta 1,3/1,6 Glucan 4 a day

> Soil Based Organisms

> Lemon/Olive Oil Drink w/lecithin(going to add BHT when it arrives.)

> MGN 3 1000 mg./ day (This has raised my NK cell function from 2 to

12 w/ a

> normal range being 8-170.)

> Zinc Picolinate 60 mg. (for hair loss, if I go off this for a week

I start

> losing my hair again.)

> B-50

> Multi/ Iron Free

> Biotin 5mg.

> Alpha Lipoic Acid 200 mg.

> Vitamin E 800 mg.

> EPA 2000 mg.

> Magnesium Glycinate 450 mg.

> Salt Capsules 3 x a day

> Acidophilus

> Immunepro 1 x a day

> Immunocal 2 x a day

> Fresh Organic Veggie Juice 3 x a day w/ Superfood added

> Lots of Garlic - 3 cloves (antviral and anti-vampirE

>

> That's it for me. As you can see most things have not made a

significant

> difference that I can tell. I looked back over my diary from last

year at

> this time and I was feeling exactly the same, able to do as much,

same

> headaches, same heart symptoms. Thousands of dollars and waking up

every day

> trying to be hopeful and for what? I suppose I need to be happy

that I did

> not backslide....

>

> a

>

_________________________________________________________________

> " Do me a favor, doc, tell me something good. " - Blair -

> ~~ The Exorcist ~~

>

>

>

[Guest guest]

a,

I get the colloidal silver from www.utopiasilver.com. If you want to read

some research about colloidal silver and what to look for in a desirable product

check out the sight www.silver-colloids.com If that doesn't come up try

www.colloids-silver.com I can never remember which it is. According to what

I've read utopia silver meets the criteria for a good product and is relatively

inexpensive $10-15/8oz bottle depending on how much you order. It's still too

early to tell whether I will be able to keep the yeast at bay with it. If it

seems to work I will order a generator (the HVAC). According to the research

done by professor Gibbs, the smaller generators produce particles that are too

big which decreases efficacy and increases the risk of argyria if taken over a

long period of time.

Re: Supplements/Meds I Take

HI Tania,

Your list was really interesting and I got some ideas from it. i am

interested int the colloidal silver. Where do you get that? I know some ppl

make it themselves. Also, I am going to look into the Peptizyde and HN-zyme

products.

a

_________________________________________________________________

" Do me a favor, doc, tell me something good. " - Blair -

~~ The Exorcist ~~

[Guest guest]

I was thinking about nootropics like Piracetam or Ginkgo biloba, lecithin,

antioxidants, B vitamins.etc..the latter mixture is the one that is highly

appreciated by a dr here who is no1 in mito problems here. He says our brain

need all these things together to work properly. If you are interested in

exact composition, let me know (you can backchannel me). Works great for me.

Stania

----- Puvodní zpráva -----

Od: <StarDantzer@...>

Komu: < >

Odesláno: 7. cervna 2001 20:12

Predmet: Re: Supplements/Meds I Take

> In a message dated 6/7/01 2:10:08 PM Eastern Daylight Time,

smuzik@...

> writes:

>

>

> > Thanks for the update :-), a

> > I wonder if you have any cognitive problems? I didn't notice any

supplement

> > for brain. May be you do not need them (great!) or you haven't found a

> > suitable one?

> > Stania

> >

>

> Stania,

> I have alot of cognitive problems. Which are you thinking of

specifically?

>

> a

> _________________________________________________________________

> " Do me a favor, doc, tell me something good. " - Blair -

> ~~ The Exorcist ~~

>

>

>

[Guest guest]

In a message dated 6/8/01 1:34:47 PM Eastern Daylight Time, moonju8@...

writes:

> a,

> Feverfew and 200mg B-2(riboflavin) have helped lessen

> the serverity of my headaches/migraines.

> Do you attribute anything to your lessening joint or muscle pains?

> I take glucosamine/chondroitin and 3000mg MSM to no relief.

>

I think that my lessening joint pains are from treating the Myco Fermentans

and C. pneumoniae with Doxy. I herxxed horribly when I began the Doxy and

both of these bacteria are implicated in arthritic and joint conditions.

a

_________________________________________________________________

" Do me a favor, doc, tell me something good. " - Blair -

~~ The Exorcist ~~

[Guest guest]

a,

Feverfew and 200mg B-2(riboflavin) have helped lessen

the serverity of my headaches/migraines.

Do you attribute anything to your lessening joint or muscle pains?

I take glucosamine/chondroitin and 3000mg MSM to no relief.

> > I take a lot of the same or similar supplements as you

> > and I still have achey joints, fatigue, headaches....

>

> My joint pains have lessened through the months. i have very bad

headaches

> and fatigue though. Also, alot of cardiac symptoms.

>

[Guest guest]

My chiropractor who practices kinesiology (he's been great) tells me that one

source of headaches is liver toxicity. I'm on NAC for that. NAC is also

reduced to glutathione in the body. Maybe this would help?

Re: Supplements/Meds I Take

a,

Feverfew and 200mg B-2(riboflavin) have helped lessen

the serverity of my headaches/migraines.

Do you attribute anything to your lessening joint or muscle pains?

I take glucosamine/chondroitin and 3000mg MSM to no relief.

> > I take a lot of the same or similar supplements as you

> > and I still have achey joints, fatigue, headaches....

>

> My joint pains have lessened through the months. i have very bad

headaches

> and fatigue though. Also, alot of cardiac symptoms.

>

[Guest guest]

I tried feverfew but didn't do well with it - I think an allergic reaction

but it was a long time ago. The neurologist who did my brain MRI to rule out

MS suggested 400 mg B-2 per day. He was a mainstream doc, and for some

reason I wasn't particularly fond of him. Long story short, several months

later someone on one of my other lists said she was taking 400 mg B-2, and

after several months it did indeed stop her migraines/headaches. I am on

lots of things, including Cheney's immunemodulation program, but the

severity of my headaches is greatly reduced. I get a mild headache after

every heparin injection, but stays mild, or goes away. The only ones it

hasn't helped yet are my hormonal Days 1 and 2 of my period migraines.

Donna in NC

Re: Supplements/Meds I Take

>

>

> a,

> Feverfew and 200mg B-2(riboflavin) have helped lessen

> the serverity of my headaches/migraines.

> Do you attribute anything to your lessening joint or muscle pains?

> I take glucosamine/chondroitin and 3000mg MSM to no relief.

>

> > > I take a lot of the same or similar supplements as you

> > > and I still have achey joints, fatigue, headaches....

> >

> > My joint pains have lessened through the months. i have very bad

> headaches

> > and fatigue though. Also, alot of cardiac symptoms.

> >

>

>

>

>

[Guest guest]

wow you are on alot of stuff are you better? what

kind of doc diagnosed you? have you ever heard of

vinpocetine this doc said it was good for the brain?

michelle

--- Tania & <fe38@...> wrote:

> Hi, this is Tania. I've had CFS for 3 years now.

> Have had periods of being unable to walk from one

> room to the next, and periods of being able to play

> " Marco Polo " with relatives in a swimming pool.

> These days not feeling too good, but not horrible.

> Able to maintain the house for the most part and go

> on short walks with my husband. Have started

> feeling worse since started amalgam removal, which I

> guess is to be expected and is temporary. Thank you

> for the list of what you're taking. My list is as

> follows:

> 1.. T-100 (for hypothyriodism)

> 2.. Lithinase (containing lithium, Pea Powder,

> Buckwheat Flour, Millet Flour, Lentil Powder - for

> increased energy and to supplement the loss of

> lithium due to binding with mercury)

> 3.. Cod Liver Oil

> 4.. Lipoic Acid 200mg QD (every day) -strong

> antioxident, helps regulate blood sugar

> 5.. Vitamin C 5000mg QD

> 6.. CoQ10 200mg QD - helps poisoned mitochondria

> 7.. NAC 1800mg QD (detoxify the liver)

> 8.. Colostrum 1tsp QD (really helps in gut

> healing)

> 9.. Lactobacillus (probiotic for gut and fighting

> yeast)

> 10.. Zinc 70mg QD

> 11.. Magnesium 1000mg QD

> 12.. FOS (food for probiotics)

> 13.. Peptizyde and HN-zyme before meals (helps

> digest proteins. Allows me to eat gluten with

> reacting to it while healing the gut)

> 14.. Colloidal Silver (hopefully will kill off the

> yeast and viruses, bacteria etc. Still

> experimenting with the dose)

> 15.. MSM 5200mg

> 16.. Basic Detox Nutrients which contain

> a.. VitA 30,000IU

> b.. Vit D 100IU

> c.. Vit E 400IU

> d.. Vit c1000IU

> e.. Thiamine 200mg

> f.. Riboflavin 50mg

> g.. Niacin 130mg

> h.. Vit B6 100mg

> i.. Folate 800mcg

> j.. vit B12 450mcg

> k.. biotin 300mcg

> l.. pantothenic acid 400mg

> m.. calcium 300mg

> n.. iodine 150mcg

> o.. magnesium 500mg

> p.. zinc 30mg

> q.. selenium 200mcg

> r.. copper 1.5mg

> s.. manganese 15mg

> t.. chromium 200mcg

> u.. molybdemum 100mcg

> v.. potassuim 90mg

> w.. boron 3mg

> x.. choline citrate 300mg

> y.. inositol 60mg

> z.. vanadium 100mcg

> aa.. green tea extract 50mg

> ab.. alpha lipoic acid 100mg

> ac.. nac 200mg

> ad.. msm 100mg

> ae.. siliphos 100mg

> af.. broccoli extract 50mg

> ag.. dandelion root 10mg

> ah.. turmeric extract 100 mg

> Re: Supplements/Meds

> I Take

>

>

> Thanks for the update :-), a

> I wonder if you have any cognitive problems? I

> didn't notice any supplement

> for brain. May be you do not need them (great!) or

> you haven't found a

> suitable one?

> Stania

> ----- Puvodní zpráva -----

> Od: <StarDantzer@...>

> I welcome any feedback or

> > comments/suggestions. Also feel free to

> backchannel me with your

> > supplement/meds list because as I said I find it

> interesting.

>

>

>

>

[Guest guest]

is doctor nicholsons prtocol same as lyme docs?

--- StarDantzer@... wrote:

> In a message dated 6/7/01 7:17:47 PM Eastern

> Daylight Time, kmcamp22@...

> writes:

>

>

> > a, very nice of you to post your protocol.

> My feeling is that

> > if you are not benefitting from Doxy after 10

> months, it might be

> > doing more harm than good. The Lymies will

> probably disagree, but

> > 10 months of any treatment should be enough to

> determine whether or

> > not to continue it. Maybe you should look toward

> antivirals.

> >

> >

>

> Hi Mike,

> i am going to begin IV cytovene soon - following

> Dr. Lerners protocol. I am

> going to stay on the doxy as I believe Nicholson

> suggests about 18 months to

> see improvement. I may look into OLE and I am taking

> Isoprinosine although I

> see no effects.

>

> a

>

_________________________________________________________________

>

> " Do me a favor, doc, tell me something good. " -

> Blair -

> ~~ The Exorcist ~~

>

>

> [Non-text portions of this message have been

> removed]

>

>

> This list is intended for patients to share personal

> experiences with each other, not to give medical

> advice. If you are interested in any treatment

> discussed here, please consult your doctor.

>

>

[Guest guest]

Hi michelle,

I know, it's a lot isn't it. Yes I definately am better and overall seem

to be getting stronger and stronger. It's not to say that I haven't had my

setbacks. This may sound a little grandiose, but I believe I have a 90%

chance of being cured within the next year or two. I actually forgot to put

a couple supplements on the list that I am taking

1. Adrenogen for adrenal support

2. extra molybdnum to counteract the waste products produced by the yeast

in my system

3. 5-HTP helps greatly with anxiety, sleep, and depression. (However,

since I started taking the enzymes, I have started weaning off the 5-HTP

because the enzymes are helping more with these things than the 5-HTP! I

surely didn't expect that to happen. It's amazing the things that start to

happen when your body is getting more of the nurtrients that it needs to

function correctly!)

There may be a couple more that I'm forgetting. I'm planning to add pine

bark extract that basically helps " recycle " all the antioxidents I'm taking

(get more bang for the buck).

My infectious disease doc diagnosed me. He is a western medicine doc who

does not really treat me. He is a wonderful liaison between myself and the

insurance company. I owe the progress I've made to a book called " The Brain

Wellness Plan " and to my chiropractor who practices kinesiology. He

basically tweeks the supplements I'm taking. He tells me that my illness is

due to toxicity from pollution etc. and mercury. I'm in the process of

having all the mercury out of my mouth and chelating the rest of it out of

my body.

Most of these supplements don't provide a quick sense of " now I feel

better " . It's been more of a gradual feeling better as the toxins leave my

body. However, I did feel SO MUCH BETTER within 2-4 weeks of following the

supplements outlined in " The Brain Wellness Program " in the chapter for

those with CFS. I have maintained this improvement ever since then.

When I first got CFS I was housebound and couldn't walk further than from

one room to the next. I couldn't go down into my basement because I knew I

wouldn't be able to get back up the stairs. I really think that, for me

(everyone is different), I'm on the right track.

Good luck, Tania

Re: Supplements/Meds

> > I Take

> >

> >

> > Thanks for the update :-), a

> > I wonder if you have any cognitive problems? I

> > didn't notice any supplement

> > for brain. May be you do not need them (great!) or

> > you haven't found a

> > suitable one?

> > Stania

> > ----- Puvodní zpráva -----

> > Od: <StarDantzer@...>

> > I welcome any feedback or

> > > comments/suggestions. Also feel free to

> > backchannel me with your

> > > supplement/meds list because as I said I find it

> > interesting.

> >

> >

> >

> >

[Guest guest]

, Oops, forgot to answer a couple questions. Yes, I am A LOT

BETTER. I'm still not able to work consistently, but I'm able to have a

life and get out of the house. I still have to be very careful not to over

do or I risk big setbacks. No, I've never heard of vinpocetene. What is

it?

Tania

Re: Supplements/Meds

> > I Take

> >

> >

> > Thanks for the update :-), a

> > I wonder if you have any cognitive problems? I

> > didn't notice any supplement

> > for brain. May be you do not need them (great!) or

> > you haven't found a

> > suitable one?

> > Stania

> > ----- Puvodní zpráva -----

> > Od: <StarDantzer@...>

> > I welcome any feedback or

> > > comments/suggestions. Also feel free to

> > backchannel me with your

> > > supplement/meds list because as I said I find it

> > interesting.

> >

> >

> >

> >

[Guest guest]

who wrote this book? also are you going more by the

book than the docs? i need something for my brain i

cant take it its confused and bad memory and bad

pressure in the forehead

--- Tania & <fe38@...> wrote:

> Hi michelle,

> I know, it's a lot isn't it. Yes I definately am

> better and overall seem

> to be getting stronger and stronger. It's not to

> say that I haven't had my

> setbacks. This may sound a little grandiose, but I

> believe I have a 90%

> chance of being cured within the next year or two.

> I actually forgot to put

> a couple supplements on the list that I am taking

> 1. Adrenogen for adrenal support

> 2. extra molybdnum to counteract the waste products

> produced by the yeast

> in my system

> 3. 5-HTP helps greatly with anxiety, sleep, and

> depression. (However,

> since I started taking the enzymes, I have started

> weaning off the 5-HTP

> because the enzymes are helping more with these

> things than the 5-HTP! I

> surely didn't expect that to happen. It's amazing

> the things that start to

> happen when your body is getting more of the

> nurtrients that it needs to

> function correctly!)

> There may be a couple more that I'm forgetting.

> I'm planning to add pine

> bark extract that basically helps " recycle " all the

> antioxidents I'm taking

> (get more bang for the buck).

> My infectious disease doc diagnosed me. He is a

> western medicine doc who

> does not really treat me. He is a wonderful liaison

> between myself and the

> insurance company. I owe the progress I've made to

> a book called " The Brain

> Wellness Plan " and to my chiropractor who practices

> kinesiology. He

> basically tweeks the supplements I'm taking. He

> tells me that my illness is

> due to toxicity from pollution etc. and mercury.

> I'm in the process of

> having all the mercury out of my mouth and chelating

> the rest of it out of

> my body.

> Most of these supplements don't provide a quick

> sense of " now I feel

> better " . It's been more of a gradual feeling better

> as the toxins leave my

> body. However, I did feel SO MUCH BETTER within

> 2-4 weeks of following the

> supplements outlined in " The Brain Wellness Program "

> in the chapter for

> those with CFS. I have maintained this improvement

> ever since then.

> When I first got CFS I was housebound and couldn't

> walk further than from

> one room to the next. I couldn't go down into my

> basement because I knew I

> wouldn't be able to get back up the stairs. I

> really think that, for me

> (everyone is different), I'm on the right track.

> Good luck, Tania

> Re:

> Supplements/Meds

> > > I Take

> > >

> > >

> > > Thanks for the update :-), a

> > > I wonder if you have any cognitive problems? I

> > > didn't notice any supplement

> > > for brain. May be you do not need them

> (great!) or

> > > you haven't found a

> > > suitable one?

> > > Stania

> > > ----- Puvodní zpráva -----

> > > Od: <StarDantzer@...>

> > > I welcome any feedback or

> > > > comments/suggestions. Also feel free to

> > > backchannel me with your

> > > > supplement/meds list because as I said I

> find it

> > > interesting.

> > >

> > >

> > >

> > >

[Guest guest]

he said it will help my brain im desperate szo i

bought it.

--- Tania & <fe38@...> wrote:

> , Oops, forgot to answer a couple questions.

> Yes, I am A LOT

> BETTER. I'm still not able to work consistently,

> but I'm able to have a

> life and get out of the house. I still have to be

> very careful not to over

> do or I risk big setbacks. No, I've never heard of

> vinpocetene. What is

> it?

> Tania

> Re:

> Supplements/Meds

> > > I Take

> > >

> > >

> > > Thanks for the update :-), a

> > > I wonder if you have any cognitive problems? I

> > > didn't notice any supplement

> > > for brain. May be you do not need them

> (great!) or

> > > you haven't found a

> > > suitable one?

> > > Stania

> > > ----- Puvodní zpráva -----

> > > Od: <StarDantzer@...>

> > > I welcome any feedback or

> > > > comments/suggestions. Also feel free to

> > > backchannel me with your

> > > > supplement/meds list because as I said I

> find it

> > > interesting.

> > >

> > >

> > >

> > >

[Guest guest]

The authors of " The Brain Wellness Plan " areDr Jay Lombard, board certified

Neurologist, and Carl Germano, RD,CNS,LDN

Re:

> > Supplements/Meds

> > > > I Take

> > > >

> > > >

> > > > Thanks for the update :-), a

> > > > I wonder if you have any cognitive problems? I

> > > > didn't notice any supplement

> > > > for brain. May be you do not need them

> > (great!) or

> > > > you haven't found a

> > > > suitable one?

> > > > Stania

> > > > ----- Puvodní zpráva -----

> > > > Od: <StarDantzer@...>

> > > > I welcome any feedback or

> > > > > comments/suggestions. Also feel free to

> > > > backchannel me with your

> > > > > supplement/meds list because as I said I

> > find it

> > > > interesting.

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Is vinpocetene over the counter or prescription?

Re:

> > Supplements/Meds

> > > > I Take

> > > >

> > > >

> > > > Thanks for the update :-), a

> > > > I wonder if you have any cognitive problems? I

> > > > didn't notice any supplement

> > > > for brain. May be you do not need them

> > (great!) or

> > > > you haven't found a

> > > > suitable one?

> > > > Stania

> > > > ----- Puvodní zpráva -----

> > > > Od: <StarDantzer@...>

> > > > I welcome any feedback or

> > > > > comments/suggestions. Also feel free to

> > > > backchannel me with your

> > > > > supplement/meds list because as I said I

> > find it

> > > > interesting.

> > > >

> > > >

> > > >

> > > >

[Guest guest]

its from the health store this one is by thorne

--- Tania & <fe38@...> wrote:

> Is vinpocetene over the counter or prescription?

> Re:

> > > Supplements/Meds

> > > > > I Take

> > > > >

> > > > >

> > > > > Thanks for the update :-), a

> > > > > I wonder if you have any cognitive

> problems? I

> > > > > didn't notice any supplement

> > > > > for brain. May be you do not need them

> > > (great!) or

> > > > > you haven't found a

> > > > > suitable one?

> > > > > Stania

> > > > > ----- Puvodní zpráva -----

> > > > > Od: <StarDantzer@...>

> > > > > I welcome any feedback or

> > > > > > comments/suggestions. Also feel free to

> > > > > backchannel me with your

> > > > > > supplement/meds list because as I said I

> > > find it

> > > > > interesting.

> > > > >

> > > > >

> > > > >

> > > > >