Guest guest Posted May 21, 2001 Report Share Posted May 21, 2001 >Me too - dry mouth even before going on any antidepressants, and thirsty. >Tracking input/output at hospital I was going thru 6-7 liters a day of >liquids. > >I think that it comes down to an autonomic dysfunction - same one that >leaves us with low blood volume. The autonomic nervous system doesn't >control the kidneys properly, so they continue in high-output mode even >though we are dehydrated and have low blood volume. >>Jerry Hi, I know a man on another my Mito list who drinks pickle juice when is gets terribly thirsty, and it works for him! But what is more strange is (if he is actually serious!) that then he wants ice cream. I asked him if he were pregnant.. I didn't know autonomic nervous system controled kidney function - always learning. I'm heat intolerant and have been told it is the autonomic nervous system. Also my body can;t make energy properly and O2 isn't utilized. It's all connected..... Take care, Christie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2001 Report Share Posted May 23, 2001 Hi, Christie and all! I have struggled with the same thing-dry mouth, not feeling thirsty exactly, just that body needed water and lower back above hip bones on both sides would begin to ache if I didn't drink alot and often. Is this area where kidneys are located? Can't remember. Just wondering what organs I may be stressing when don't seem to have enough water. Dr. gave me a couple of packets of gookinaid today to try to help with upping blood volume. Had friend who said the gook really helped increase her blood volume, but the citric acid in it bothered her stomach. Question: I have serious hypoglycemic reaction to any sugar at all, even fructose, if in liquid form(like fruit juice), rather than an apple(low in sugar with the fiber to slow absorption) after a meal. Since Gook has glucose and fructose in it, I am concerned about having hypoglycemic reaction to it, so thought I would have a protein/good oil snack and begin drinking slowly after the snack thinking snack would slow my absorption of the sugar, but could still benefit from the gook's effect on increasing blood volume??? #2- Any kind of sugar causes serious immune suppression, so I haven't even been eating fruit lately, since just got over about a 4 mo. bad bout with acute infections. Anyone out there that has same reaction to eating any kind of sugar(I get infection sometimes within a few hours or next day)-and have you also used gookinaid? If anyone has had either serious hypoglycemia or marked immune suppression resulting in infection from sugars or both and had any experience with reaction to gookinaid-please post. Thanks a million! k. > >Me too - dry mouth even before going on any antidepressants, and thirsty. > >Tracking input/output at hospital I was going thru 6-7 liters a day of > >liquids. > > > >I think that it comes down to an autonomic dysfunction - same one that > >leaves us with low blood volume. The autonomic nervous system doesn't > >control the kidneys properly, so they continue in high-output mode even > >though we are dehydrated and have low blood volume. > >>Jerry > > Hi, > > I know a man on another my Mito list who drinks pickle juice when is gets > terribly thirsty, and it works for him! But what is more strange is (if he > is actually serious!) that then he wants ice cream. I asked him if he were > pregnant.. > > I didn't know autonomic nervous system controled kidney function - always > learning. I'm heat intolerant and have been told it is the autonomic > nervous system. Also my body can;t make energy properly and O2 isn't > utilized. It's all connected..... > > Take care, > Christie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2001 Report Share Posted May 24, 2001 If I eat sugars (or refined grains), I get ... a) headache and " off " the next day - which I don't think is infection, and bad itches which I think are due to a skin fungal infection - this would imply a lowered immune suppression of that fungus. c) I do become more susceptible to viruses and urt infections, but not as predictably as you do. I think the link between sugars and some kind of negative effect on the immune system is pretty well agreed by doctors, although not by mine who says he can't see why this would be so. Yeh, well... Cheers, n At 15:43 24/05/01, you wrote: >Any kind of sugar causes serious immune suppression, so I haven't >even been eating fruit lately, since just got over about a 4 mo. bad >bout with acute infections. Anyone out there that has same reaction >to eating any kind of sugar(I get infection sometimes within a few >hours or next day)-and have you also used gookinaid? > >If anyone has had either serious hypoglycemia or marked immune >suppression resulting in infection from sugars or both and had any >experience with reaction to gookinaid-please post. > >Thanks a million! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2001 Report Share Posted May 24, 2001 From the onset of this illness I've noted very erratic (I suppose) kidney function, in that some days I'd constantly be urinating and some days hardly at all, with it not being explainable by liquid intake. Frequency was not usually the result of irritable bladder or ureter: it was accompanied by volume. I've tried to get doctors to look into this; some have but I'm not convinced they've done so comprehensively, which could be very time consuming. Like another on the list I have noticed that when I can't urinate much my pain level increases even though I see no outward signs of swelling. My " remedy " now is drinking lots under these conditions, especially things that I assume are diuretic, including watermelon processed into juice, asparagus, parsely, and maybe ginger. Judith Wisdom ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2001 Report Share Posted May 24, 2001 In a message dated 5/24/01 3:44:40 AM Eastern Daylight Time, aohs@... writes: > so thought I would have a > protein/good oil snack and begin drinking slowly after the snack > thinking snack would slow my absorption of the sugar, but could still > benefit from the gook's effect on increasing blood volume??? > From what I read about Gook, you may be surprised to get no reaction at all like you normally do. Why not just try a small amount of Gook and if your body's cool with it, go to a larger serving. If larger serving bothers you let me know and I'll offer a couple suggestions. I never tried Gook myself. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2001 Report Share Posted May 24, 2001 K and All, My last consultation with Cheney we talked for some time about Gookinaid. One of my test results showed that I have a mild form of Diabetes Incipitus. So Gookinaid is the remedy but He said if I didn't tolerate Gookinaid , I could make a mixture of selszer water and salt to taste( I'll check my tape for the recipe) and this would work almost as well as Gookinaid but Gookinaid is still more precise...take G on empty stomach and sip slowly.... He said the low blood volume is the culprit L >Hi, Christie and all! >I have struggled with the same thing-dry mouth, not feeling thirsty >exactly, just that body needed water and lower back above hip bones >on both sides would begin to ache if I didn't drink alot and often. >Is this area where kidneys are located? Can't remember. Just >wondering what organs I may be stressing when don't seem to have >enough water. > >Dr. gave me a couple of packets of gookinaid today to try to help >with upping blood volume. Had friend who said the gook really helped >increase her blood volume, but the citric acid in it bothered her >stomach. > >Question: I have serious hypoglycemic reaction to any sugar at all, >even fructose, if in liquid form(like fruit juice), rather than an >apple(low in sugar with the fiber to slow absorption) after a meal. >Since Gook has glucose and fructose in it, I am concerned about >having hypoglycemic reaction to it, so thought I would have a >protein/good oil snack and begin drinking slowly after the snack >thinking snack would slow my absorption of the sugar, but could still >benefit from the gook's effect on increasing blood volume??? > >#2- Any kind of sugar causes serious immune suppression, so I haven't >even been eating fruit lately, since just got over about a 4 mo. bad >bout with acute infections. Anyone out there that has same reaction >to eating any kind of sugar(I get infection sometimes within a few >hours or next day)-and have you also used gookinaid? > >If anyone has had either serious hypoglycemia or marked immune >suppression resulting in infection from sugars or both and had any >experience with reaction to gookinaid-please post. > >Thanks a million! >k. > > >> >Me too - dry mouth even before going on any antidepressants, and >thirsty. >> >Tracking input/output at hospital I was going thru 6-7 liters a >day of >> >liquids. >> > >> >I think that it comes down to an autonomic dysfunction - same one >that >> >leaves us with low blood volume. The autonomic nervous system >doesn't >> >control the kidneys properly, so they continue in high-output mode >even >> >though we are dehydrated and have low blood volume. >> >>Jerry >> >> Hi, >> >> I know a man on another my Mito list who drinks pickle juice when >is gets >> terribly thirsty, and it works for him! But what is more strange >is (if he >> is actually serious!) that then he wants ice cream. I asked him >if he were >> pregnant.. >> >> I didn't know autonomic nervous system controled kidney function - >always >> learning. I'm heat intolerant and have been told it is the >autonomic >> nervous system. Also my body can;t make energy properly and O2 >isn't >> utilized. It's all connected..... >> >> Take care, >> Christie > > >This list is intended for patients to share personal experiences with each >other, not to give medical advice. If you are interested in any treatment >discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2001 Report Share Posted May 24, 2001 > If anyone has had either serious hypoglycemia or marked immune > suppression resulting in infection from sugars or both and had any > experience with reaction to gookinaid-please post. > > Thanks a million! > k. K, I haven't tried Gookinaid for exactly the reasons you post. I have serious hives that would go through the ceiling if there was any sugar in my life. I think I get around the blood volume thing bc I get IV infusions every week. Some say the infusions could just be saline and that would help for blood volume at least. FWIW. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2001 Report Share Posted May 25, 2001 Alternative to Gookinaid from my consultation with Cheney 1/2 glass water 1/2 glass seltzer 1/4 to 1/2 teaspoon of sea salt if the mixture tastes too saltly then there is too much salt the carbonation increases the rapidity of the absorption L >K and All, > >My last consultation with Cheney we talked for some time about Gookinaid. >One of my test results showed that I have a mild form of Diabetes Incipitus. >So Gookinaid is the remedy but He said if I didn't tolerate Gookinaid , I >could >make a mixture of selszer water and salt to taste( I'll check my tape for the >recipe) and this would work almost as well as Gookinaid but Gookinaid is still >more precise...take G on empty stomach and sip slowly.... > >He said the low blood volume is the culprit > > L > > > >>Hi, Christie and all! >>I have struggled with the same thing-dry mouth, not feeling thirsty >>exactly, just that body needed water and lower back above hip bones >>on both sides would begin to ache if I didn't drink alot and often. >>Is this area where kidneys are located? Can't remember. Just >>wondering what organs I may be stressing when don't seem to have >>enough water. >> >>Dr. gave me a couple of packets of gookinaid today to try to help >>with upping blood volume. Had friend who said the gook really helped >>increase her blood volume, but the citric acid in it bothered her >>stomach. >> >>Question: I have serious hypoglycemic reaction to any sugar at all, >>even fructose, if in liquid form(like fruit juice), rather than an >>apple(low in sugar with the fiber to slow absorption) after a meal. >>Since Gook has glucose and fructose in it, I am concerned about >>having hypoglycemic reaction to it, so thought I would have a >>protein/good oil snack and begin drinking slowly after the snack >>thinking snack would slow my absorption of the sugar, but could still >>benefit from the gook's effect on increasing blood volume??? >> >>#2- Any kind of sugar causes serious immune suppression, so I haven't >>even been eating fruit lately, since just got over about a 4 mo. bad >>bout with acute infections. Anyone out there that has same reaction >>to eating any kind of sugar(I get infection sometimes within a few >>hours or next day)-and have you also used gookinaid? >> >>If anyone has had either serious hypoglycemia or marked immune >>suppression resulting in infection from sugars or both and had any >>experience with reaction to gookinaid-please post. >> >>Thanks a million! >>k. >> >> >>> >Me too - dry mouth even before going on any antidepressants, and >>thirsty. >>> >Tracking input/output at hospital I was going thru 6-7 liters a >>day of >>> >liquids. >>> > >>> >I think that it comes down to an autonomic dysfunction - same one >>that >>> >leaves us with low blood volume. The autonomic nervous system >>doesn't >>> >control the kidneys properly, so they continue in high-output mode >>even >>> >though we are dehydrated and have low blood volume. >>> >>Jerry >>> >>> Hi, >>> >>> I know a man on another my Mito list who drinks pickle juice when >>is gets >>> terribly thirsty, and it works for him! But what is more strange >>is (if he >>> is actually serious!) that then he wants ice cream. I asked him >>if he were >>> pregnant.. >>> >>> I didn't know autonomic nervous system controled kidney function - >>always >>> learning. I'm heat intolerant and have been told it is the >>autonomic >>> nervous system. Also my body can;t make energy properly and O2 >>isn't >>> utilized. It's all connected..... >>> >>> Take care, >>> Christie >> >> >>This list is intended for patients to share personal experiences with each >>other, not to give medical advice. If you are interested in any treatment >>discussed here, please consult your doctor. >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2001 Report Share Posted May 25, 2001 Just reading this now. I do not tolerate Gookinaid at all for some reason, either the citric acid or hypoglycemia. Makes me nauseous and increases my headache severity. , when you get a chance could you please share the recipe for seltzer water and salt that Cheney gave you? Thanks Donna in NC Re: Re: Dehydrated > K and All, > > My last consultation with Cheney we talked for some time about Gookinaid. > One of my test results showed that I have a mild form of Diabetes Incipitus. > So Gookinaid is the remedy but He said if I didn't tolerate Gookinaid , I could > make a mixture of selszer water and salt to taste( I'll check my tape for the > recipe) and this would work almost as well as Gookinaid but Gookinaid is still > more precise...take G on empty stomach and sip slowly.... > > He said the low blood volume is the culprit > > L > > > > >Hi, Christie and all! > >I have struggled with the same thing-dry mouth, not feeling thirsty > >exactly, just that body needed water and lower back above hip bones > >on both sides would begin to ache if I didn't drink alot and often. > >Is this area where kidneys are located? Can't remember. Just > >wondering what organs I may be stressing when don't seem to have > >enough water. > > > >Dr. gave me a couple of packets of gookinaid today to try to help > >with upping blood volume. Had friend who said the gook really helped > >increase her blood volume, but the citric acid in it bothered her > >stomach. > > > >Question: I have serious hypoglycemic reaction to any sugar at all, > >even fructose, if in liquid form(like fruit juice), rather than an > >apple(low in sugar with the fiber to slow absorption) after a meal. > >Since Gook has glucose and fructose in it, I am concerned about > >having hypoglycemic reaction to it, so thought I would have a > >protein/good oil snack and begin drinking slowly after the snack > >thinking snack would slow my absorption of the sugar, but could still > >benefit from the gook's effect on increasing blood volume??? > > > >#2- Any kind of sugar causes serious immune suppression, so I haven't > >even been eating fruit lately, since just got over about a 4 mo. bad > >bout with acute infections. Anyone out there that has same reaction > >to eating any kind of sugar(I get infection sometimes within a few > >hours or next day)-and have you also used gookinaid? > > > >If anyone has had either serious hypoglycemia or marked immune > >suppression resulting in infection from sugars or both and had any > >experience with reaction to gookinaid-please post. > > > >Thanks a million! > >k. > > > > > >> >Me too - dry mouth even before going on any antidepressants, and > >thirsty. > >> >Tracking input/output at hospital I was going thru 6-7 liters a > >day of > >> >liquids. > >> > > >> >I think that it comes down to an autonomic dysfunction - same one > >that > >> >leaves us with low blood volume. The autonomic nervous system > >doesn't > >> >control the kidneys properly, so they continue in high-output mode > >even > >> >though we are dehydrated and have low blood volume. > >> >>Jerry > >> > >> Hi, > >> > >> I know a man on another my Mito list who drinks pickle juice when > >is gets > >> terribly thirsty, and it works for him! But what is more strange > >is (if he > >> is actually serious!) that then he wants ice cream. I asked him > >if he were > >> pregnant.. > >> > >> I didn't know autonomic nervous system controled kidney function - > >always > >> learning. I'm heat intolerant and have been told it is the > >autonomic > >> nervous system. Also my body can;t make energy properly and O2 > >isn't > >> utilized. It's all connected..... > >> > >> Take care, > >> Christie > > > > > >This list is intended for patients to share personal experiences with each > >other, not to give medical advice. If you are interested in any treatment > >discussed here, please consult your doctor. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2001 Report Share Posted June 5, 2001 on 5/24/01 1:43 AM, aohs@... at aohs@... wrote: > If anyone has had either serious hypoglycemia or marked immune > suppression resulting in infection from sugars or both and had any > experience with reaction to gookinaid-please post. K, I have serious hypoglycemic problems and I'm a regular user of gookinaid. I'd say I've got a good sense of how to use gookinaid without suffering from a hyperinsulinemic/hypoglycemic reaction. For me, the rules are pretty much as follows: 1) Don't drink Gook first thing in the morning. do H20, etc. 2) If you take whey take it certainly a good deal before any gook 3) Make sure you have a good high protein meal before beginning the day's gook. 4) After the meal has digested somewhat then start into a glass of gook and drink it over approx. 15 mins--no faster to start at least. 5) If you want/have to drink it during day, be sure to just sip and not gulp it. 6) Probably due to innate circadian rhythms, I find myself able to tolerate the glucose in the gook best after dinner. from then on until bedtime I'm able to drink 3-4 glasses total without having to observe much caution. But in the day I do. 7) It definitely does produce a hypoglycemic effect in me under certain conditions: If I'm stuck somewhere hot with only a thermos full of cool gookinaid I'll tend to drink it faster and more of it than I should. Then I'll start to feel woozy and sleepy within about 30-60 minutes. 8) Eating some fats might help also before/after the gook to help stabilize blood sugar levels??? Just some thotz, -- Hud (8 >{D) Quote Link to comment Share on other sites More sharing options...
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