Paxil?

[Guest guest]

What are people's experiences with this? (like any energy help?)I've been so

wiped out,sometimes near paralysis, I cannot take my 30, whatever supplements,

or come up with new plan. In this state in 90, small dose of Prozac got me on

feet a bit. But don't want to do it because of awful reports. And it is on NO

list for movement disorder,which I have, but Paxil is not. I feel defeatist

considering either, but can not continue like this---support system is dispersed

and I have to get up---even a little. If I can. next is to pursue Mito damage...

Katrina

[Guest guest]

I took Paxil for about 6 months, and it made me so tired and sleepy

that I slept every chance I could. The doctor kept telling me to

stick with it because the effects would wear off eventually, but they

never did, and I finally said enough with this, it's making me more

tired than I already am. So I got off it. I was taking the lowest

dose possible, and it was just too much.

lindaj@...

> What are people's experiences with this? (like any energy help?)

I've been so wiped out,sometimes near paralysis, I cannot take my 30,

whatever supplements, or come up with new plan. In this state in 90,

small dose of Prozac got me on feet a bit. But don't want to do it

because of awful reports. And it is on NO list for movement

disorder,which I have, but Paxil is not. I feel defeatist considering

either, but can not continue like this---support system is dispersed

and I have to get up---even a little. If I can. next is to pursue

Mito damage...

> Katrina

[Guest guest]

Dear Tiff

Pall suggests that both paroxetine (Paxil) and citalopram reduce

nitric oxide and should be beneficial in cases of FMS. Neither of them did

anything at all for me, neither good nor bad.

The depression associated with FMS is partially reactive, in response to the

awful situation that we find ourselves in, and part is what is known as

" sickness behaviour " which is the bodies response to the surge of

inflammatory cytokines (cell signalling factors such as interlukins etc)

which are associated with illness of all kinds.

The bladder discomfort etc is probably a part of hyperalgesia/allodynia or

oversensitivity to pain rather than an infectious process. Amytriptaline is

often prescribed but I have found that GABA synergists such as low dosage

of apralozam can be better( half a milligram). GABA is the inhibitory

neurotransmitter that lowers the activity of pain sensation (nociception).

You can buy GABA over-the-counter but I'm not convinced of its worth

I have had no success with SSRI antidepressants but have a friend whose

life was turned around by citalopram. The moral of the story, be careful,

start with a lower than normal dose and be ready to stop at the first sign

of adverse effects. You need to look at the package inserts carefully, rule

out any contra-indications and KEEP A DIARY.

Counselling always helps if you have a competent counsellor (I've not had

much luck) but I've been on the other end as a support group worker for 15

years and I find that just talking to people helps enormously. It's nice to

know you are not alone in the world.

Hang in

Regards

R

---- Original Message -----

From: <daisytiff228@...>

< >

Sent: Friday, March 06, 2009 3:47 PM

Subject: Paxil?

>

> I finally went to my doctor today and he wants me to start Paxil 10mg/day

> for fibro. As soon as he heard fibro he kept asking about depression. He

> wants

> me to take paxil, go to a chiropractor, and a urologist for my overactive

> bladder/painful intercourse.

>

> Does anyone know anything about Paxil's success rate with fibro or

> depression... or if it's bad to take? I am afraid to take anti-depressants

> every day

> honestly.

>

> Does fibro cause depression/anxiety, or does depression/anxiety cause

> fibro

> to flare up? Or is it a little of both? Because the depression and anxiety

> feel physically uncontrollable.

>

> I was thinking of just trying that deprex for depression plus the pain,

> going for some counseling first, and see if that helped with the

> depression and

> anxiety. Before I tried the Paxil.

>

> Any suggestions guys? I'm really confused... need some help......

>

> Thanks

>

[Guest guest]

Sorry the right address is www.paxilprogress.org - apologies for that.

Rosie

I finally went to my doctor today and he wants me to start Paxil 10mg/day

for fibro. As soon as he heard fibro he kept asking about depression. He

wants

me to take paxil, go to a chiropractor, and a urologist for my overactive

bladder/painful intercourse.

Does anyone know anything about Paxil's success rate with fibro or

depression... or if it's bad to take? I am afraid to take anti-depressants

every day

honestly.

Does fibro cause depression/anxiety, or does depression/anxiety cause fibro

to flare up? Or is it a little of both? Because the depression and anxiety

feel physically uncontrollable.

I was thinking of just trying that deprex for depression plus the pain,

going for some counseling first, and see if that helped with the depression

and

anxiety. Before I tried the Paxil.

Any suggestions guys? I'm really confused... need some help......

Thanks

**************Worried about job security? Check out the 5 safest jobs in a

recession.

(http://jobs.aol.com/gallery/growing-job-industries?ncid=emlcntuscare0000000

2)

[Guest guest]

My husband is nonCFS/FMS but has inherited clinical depression/panic

anxiety. The first doctor to prescribe anti-depressants for him put him

on Paxil, which actually was a lifesaver at the time. The downside was

that Paxil has a tendency to change your hunger appestat and he gained

100 lbs in the first year on it as he was always hungry. Had another

friend who had the same problem. He is now on Effexor XR and responding

well to this medication and has for years, although he still has issues

with over-the-top panic anxiety which he takes Xanax successfully for.

He needs more counseling; it really helps with a lot of things if that

is difficult. Just remember, the anti-depressants are there to help you

if you really need them, and my husband and a lot of people really do.

My husband has dysfunctional family issues that trigger his depression

and panic anxiety, he did well while in counseling cuz it helped him

understand how he could change his responses a lot of the time, but he

goes back to old patterns of behavior when not in counseling. His

family did a good/bad job on him with conflict confrontation and he is

trying to deal with issues that he needs help with getting over. So

counseling does help. You may not bond with the first counselor, so

remember it's okay to get second and third opinions of help.

From what I have read the anti-depressants help some CFS/FMS people

because it relaxes the body, which seems to help with the rest factor.

I tried trazodone years ago cuz the doc wanted me to, took them at night

before bedtime. My doc of the time felt I was depressed, which I was,

but I was depressed because of the problems with CFS/FMS not the

depression so many are diagnosed with who have emotional issues. The

biggest part I didn't like is that when I got up to use the bathroom at

night I was so woozy I could hardly walk. I did not like that. I

tinkered with the dose so I could sleep, but I went off cold turkey

because I didn't like how I felt on it, didn't feel it helped me. I had

other issues that I wasn't sleeping over (osteo-arthritis in back,

peri-menopause and hot flashes) so found other alternatives that worked

better for me, which include HRT for the hot flashes, Voltaren (used to

be on Vioxx) for anti-inflammatory, melatonin to sleep, food

allergy-rotation diet to help with fibro-fog and other allergic

reactions, Recuperation for energy and muscle cramps, other

minerals/vitamins for muscle health.

You asked, this is my take. You have to decide what is right for you.

Read, do research, read, read, talk to people, ask questions, ask

another doctor if necessary. You have probably heard me say on here

I've read many of us will move on to other doctors if the answer isn't

what works for us, and this is okay, and we will try loads of meds and

nonmeds before we find the right combination.

Best wishes for answers and health. in La Selva Beach CA

Rosie wrote:

[Guest guest]

,

The following phrase in your message says it all:

" ...As soon as he heard fibro he kept asking about depression. He

> wants me to take paxil... "

A lot of doctors are automatically told that Fibro or ME/CFS is treated by

antidepressants and nothing more.

I got depressed in 1995 after 3 years of fibro pain and all the other physical

symptoms and zero support. I am Still am upset by them now. I was given

Seroxat/Paxil in 1996 and it did absolutely nothing for the physical symptoms

and pain. It just helped my depression a little bit.

I have talked to other people and generally it's the same thing, antidepressants

have a resonably good sucess rate with depression, but NOT fibro pain no matter

what doctors and psychiatrists say. *Please do not rely on me for this. I am

just stating personal experiences, not scientific data here.*

Decide for yourself whether your depression is caused by the pain, exhaustion +

physical symptoms or not.

I suspect it is just the pain + physical symptoms that are making you feel

depressed...but I don't know, only you know. Then decide what to do based on

that.

I think that It's better to try the councelling first. Some councellers don't

understand Fibro. Mine kept saying things like " I want to push you to go out

more.. " which made me realise that they did not understand the extent of the

pain and physical symptoms and that it was not lack of willpower. OTH some

councellers are great. It depends on luck. If that does not help then try

something else like talking to others with this illness, hobbies, buying books

with coping techniques.

Go and try the chiropract, just make sure it is a good one from a recognised

university and a member of a proper chiropract society- not someone who just

studied a year at a Micky Mouse University or something

My chiropract has given me much relief. The pain returns after 2 weeks but the

relief is huge. My chiropract told me that a v.large proportion of patients the

average chiropract sees have fibromyaliga so he and others learning with him had

it in their training.

Re:My experiences with Seroxat

Seroxat has stopped me shouting, crying, feeling sorry for myself and I still

need it for depression. OTH There are 2 big disadvantage I've had with taking

seroxat. First a newish pain relief drug has come out for fibro called Ultram

and I really want to take it. I tried Ultram for a day and it helped my pain a

lot but am unable to take it indefinitely b/c together with Seroxat it can cause

serotonin symdrome.

Secondly I have the hassle of having to take a pill every single day without

end. Like I said before it does nothing for my physical symptoms either - which

were and are the cause of my depression in the first place.

I also keep having doctors pressure me to up the dose which I keep refusing

because I feel fine psycologically on the minimum 10mg and am worrid about long

term liver damage.

My advice in summary:

1. Go try the chiropract

2. Antidepressants help depression, not fibro pain and physical symptoms. So

don't take it expecting it to help any other symptoms other than depression. I

was so depressed at the time that it was good for me at then but nowadays I

parly wish I didn't have it.

Be aware the difficulties of getting off it - although slow taper should be O.K.

3. Don't take Seroxat if you plan to try Ultram one day.

--- In , ...>

>

> I finally went to my doctor today and he wants me to start Paxil 10mg/day

> for fibro. As soon as he heard fibro he kept asking about depression. He

> wants

> me to take paxil, go to a chiropractor, and a urologist for my overactive

> bladder/painful intercourse.

>

> Does anyone know anything about Paxil's success rate with fibro or

> depression... or if it's bad to take? I am afraid to take anti-depressants

> every day

> honestly.

>

> Does fibro cause depression/anxiety, or does depression/anxiety cause fibro

> to flare up? Or is it a little of both? Because the depression and anxiety

> feel physically uncontrollable.

>

> I was thinking of just trying that deprex for depression plus the pain,

> going for some counseling first, and see if that helped with the depression

> and

> anxiety. Before I tried the Paxil.

>

> Any suggestions guys? I'm really confused... need some help......

>

> Thanks

>

>

> **************Worried about job security? Check out the 5 safest jobs in a

> recession.

> (http://jobs.aol.com/gallery/growing-job-industries?ncid=emlcntuscare0000000

> 2)

>

>