Guest guest Posted March 20, 2001 Report Share Posted March 20, 2001 I have been somewhat bothered by fever in relation to CFS. Is there any treatment for this? is there any way to get rid of fever? andreas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2001 Report Share Posted March 20, 2001 Hi, Ever since having CFS (19 months now) I have had a lowgrade fever. It started about 37.5-6 and then went down to 37.2 at the most. I have it every day, its like my natural body temp is up a degree from what it should be. It really bothers me too more than any other symptom. Nothing seems to help. I dont know what it means but as long as it hasn't gone away I know that I am still sick. I have been tested for everything and the only things which are problematic are my slightly high sed rate and slightly low white blood count, but still within normal limits. Judy B. Re: fever and CFS > > I have been somewhat bothered by fever in relation to CFS. > Is there any treatment for this? is there any way to get rid of fever? > > andreas > > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2001 Report Share Posted March 20, 2001 Judy, Please, keep in mind there is no such thing as having " been tested for everything " . Your sx are very indicative of chronic infections, but if you're waiting for a test to tell you.....! Nelly Re: fever and CFS > Hi, > Ever since having CFS (19 months now) I have had a lowgrade fever. It > started about 37.5-6 and then went down to 37.2 at the most. I have it every > day, its like my natural body temp is up a degree from what it should be. It > really bothers me too more than any other symptom. Nothing seems to help. I > dont know what it means but as long as it hasn't gone away I know that I am > still sick. I have been tested for everything and the only things which are > problematic are my slightly high sed rate and slightly low white blood > count, but still within normal limits. > Judy B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2001 Report Share Posted March 20, 2001 Kutapressin controlled my fever (or more accurately, whatever was causing it) when I first had CFS. > Ever since having CFS (19 months now) I have had a lowgrade fever. snip Judy B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2001 Report Share Posted March 20, 2001 I've heard of Kutapressin but was told that 1) it's got lots of side effects and 2) I can't get it in this neck of the world. What is it made of? What does it do? Are there any contraindications? Judy Re: fever and CFS > Kutapressin controlled my fever (or more accurately, whatever was causing > it) when I first had CFS. > > > Ever since having CFS (19 months now) I have had a lowgrade fever. snip > Judy B > > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2001 Report Share Posted March 20, 2001 Dear Nelly, My doctors have tried antibiotics three times and no luck. Considering the candida problems etc. which I have had, I'm not about to go on long term antibiotics unless it is proven that they are the solution. I have seen too many people on this list who have tried the antibiotic route for months and has very little progress. considering that I am not really bedridden, have days with quite a bit of energy, am working and my brain has never had " brain fog " which so many people complain about, I'm very very wary. I know that antibiotics have done you a lot of good and that's terrific, but if it's a viral infection, I'm told it's not the answer. Best Judy Re: fever and CFS > > > > Hi, > > Ever since having CFS (19 months now) I have had a lowgrade fever. It > > started about 37.5-6 and then went down to 37.2 at the most. I have it > every > > day, its like my natural body temp is up a degree from what it should be. > It > > really bothers me too more than any other symptom. Nothing seems to help. > I > > dont know what it means but as long as it hasn't gone away I know that I > am > > still sick. I have been tested for everything and the only things which > are > > problematic are my slightly high sed rate and slightly low white blood > > count, but still within normal limits. > > Judy B. > > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2001 Report Share Posted March 20, 2001 Judy, I didn't say " bacterial " infections, I said " infection(s) " . I just wanted to point out that there is no such a thing as having had all the tests. I am not pushing abx, except I wouldn't mind getting a percentage on future sales ) Nelly Re: fever and CFS > > > > > > > Hi, > > > Ever since having CFS (19 months now) I have had a lowgrade fever. It > > > started about 37.5-6 and then went down to 37.2 at the most. I have it > > every > > > day, its like my natural body temp is up a degree from what it should > be. > > It > > > really bothers me too more than any other symptom. Nothing seems to > help. > > I > > > dont know what it means but as long as it hasn't gone away I know that I > > am > > > still sick. I have been tested for everything and the only things which > > are > > > problematic are my slightly high sed rate and slightly low white blood > > > count, but still within normal limits. > > > Judy B. > > > > > > > > > > This list is intended for patients to share personal experiences with each > other, not to give medical advice. If you are interested in any treatment > discussed here, please consult your doctor. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2001 Report Share Posted March 20, 2001 > Dear Nelly, > My doctors have tried antibiotics three times and no luck. Considering the > candida problems etc. which I have had, I'm not about to go on long term > antibiotics unless it is proven that they are the solution. I have seen too > many people on this list who have tried the antibiotic route for months and > has very little progress. considering that I am not really bedridden, have > days with quite a bit of energy, am working and my brain has never had > " brain fog " which so many people complain about, I'm very very wary. I know > that antibiotics have done you a lot of good and that's terrific, but if > it's a viral infection, I'm told it's not the answer. > Best > Judy Judy, you and I seem to have a similar CFS type. I don't have brain fog and still work, and my white blood cell count is below normal for 7 years now. I decided about one year ago, after I read Cheney's " gut ecology cripple " statement (no offense to those on abx), that I would not take any more abx for any infections. Since then, I have slowly improved. I recently spent a 7 hour day at a six flags, walking the whole time. The main thing is that I am not suffering from chronic constipation which would frequently result in a relapse. I'm not sure if the elimination of abx 'cured' the constipation, but thought I would throw out the idea Mike (My sed rate runs 0-1 though) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2001 Report Share Posted March 20, 2001 In a message dated 3/21/2001 3:08:14 AM Pacific Standard Time, janel@... writes: << Judy, I tend to be very skeptical about this " infectious agent gone-immune syst still turned on " theory. I am not at all convinced that the docs who say this have enough elements to be sure of that. So many infectious agents are not detected by current tests, it is impossible to rule out the simple idea that if it behaves like infection it might be.... guess what? .........INFECTION! Nelly >> I absolutely agree with this. All along, my cfids symptoms have been fevers and swollen lymph nodes. Lab tests for infections turned up negative *until* a test was developed for active hhv6 infection. That did it! And treatments that are antiviral are the things that have *by far* helped me the most. Btw, does anyone know if the test for active hhv6 is now more sensitive? I was lucky and tested positive the very first time, but many people who have this infection could test negative on several tests because apparently the virus goes in and out of the blood stream or something like that. Anyway, I know they have refined the test and wonder if they have reduced their false negative rate? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2001 Report Share Posted March 21, 2001 Right Mike, sounds similar except that my sed rate is between 23-35. We know so little about CFS and we really don't know what it is, what to do, and we keep trying. So let's keep going. Judy Re: fever and CFS > > > Dear Nelly, > > My doctors have tried antibiotics three times and no luck. > Considering the > > candida problems etc. which I have had, I'm not about to go on long > term > > antibiotics unless it is proven that they are the solution. I have > seen too > > many people on this list who have tried the antibiotic route for > months and > > has very little progress. considering that I am not really > bedridden, have > > days with quite a bit of energy, am working and my brain has never > had > > " brain fog " which so many people complain about, I'm very very > wary. I know > > that antibiotics have done you a lot of good and that's terrific, > but if > > it's a viral infection, I'm told it's not the answer. > > Best > > Judy > > Judy, you and I seem to have a similar CFS type. I don't have brain > fog and still work, and my white blood cell count is below normal for > 7 years now. I decided about one year ago, after I read Cheney's > " gut ecology cripple " statement (no offense to those on abx), that I > would not take any more abx for any infections. Since then, I have > slowly improved. I recently spent a 7 hour day at a six flags, > walking the whole time. The main thing is that I am not suffering > from chronic constipation which would frequently result in a relapse. > I'm not sure if the elimination of abx 'cured' the constipation, but > thought I would throw out the idea > > Mike (My sed rate runs 0-1 though) > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2001 Report Share Posted March 21, 2001 Dear Nelly, You have been a terrific help and I certainly know that you don't get any percentage from anything but from a sense of satisfaction if you can help someone! You are right, certainly I have some kind of a viral infection, whether it's still active no one knows, the theory is that you get a virus, a bacteria, it works its course but starts a cascade in the body which it can't turn off. that's how many autoimmune diseases start, even cancers unfortunately etc. So who knows what we have. The feeling here is that why test for viruses apart from the usual as there is nothing to do for them anyway...I know that's not true but that's how Israeli clinical medicine often feels. Take care, Judy Re: fever and CFS > > > > > > > > > > Hi, > > > > Ever since having CFS (19 months now) I have had a lowgrade fever. It > > > > started about 37.5-6 and then went down to 37.2 at the most. I have it > > > every > > > > day, its like my natural body temp is up a degree from what it should > > be. > > > It > > > > really bothers me too more than any other symptom. Nothing seems to > > help. > > > I > > > > dont know what it means but as long as it hasn't gone away I know that > I > > > am > > > > still sick. I have been tested for everything and the only things > which > > > are > > > > problematic are my slightly high sed rate and slightly low white blood > > > > count, but still within normal limits. > > > > Judy B. > > > > > > > > > > > > > > > This list is intended for patients to share personal experiences with > each > > other, not to give medical advice. If you are interested in any treatment > > discussed here, please consult your doctor. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2001 Report Share Posted March 21, 2001 >! You are right, certainly I have some kind of a viral infection, > whether it's still active no one knows, the theory is that you get a virus, > a bacteria, it works its course but starts a cascade in the body which it > can't turn off. that's how many autoimmune diseases start, even cancers > unfortunately etc. Judy, I tend to be very skeptical about this " infectious agent gone-immune syst still turned on " theory. I am not at all convinced that the docs who say this have enough elements to be sure of that. So many infectious agents are not detected by current tests, it is impossible to rule out the simple idea that if it behaves like infection it might be.... guess what? ..........INFECTION! Nelly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2001 Report Share Posted March 21, 2001 But I have absolutely no problems with my lymph nodes, no swollen glands, no sore throat etc. True, I have the slightly high sed rate which means infection, but...my doctors said that there is nothing to do for viral illness unless it's AIDS and then there is what we call the " cocktail " in Hebrew, I bunch of antivirals togehter, but I am told the side effects are so bad that it's not given for anything not deadly. So, what antivirals did you get? Judy Re: fever and CFS > In a message dated 3/21/2001 3:08:14 AM Pacific Standard Time, > janel@... writes: > > << Judy, > I tend to be very skeptical about this " infectious agent gone-immune syst > still turned on " theory. I am not at all convinced that the docs who say > this have enough elements to be sure of that. So many infectious agents are > not detected by current tests, it is impossible to rule out the simple idea > that if it behaves like infection it might be.... guess what? > .........INFECTION! > > Nelly > >> > I absolutely agree with this. All along, my cfids symptoms have been fevers > and swollen lymph nodes. Lab tests for infections turned up negative *until* > a test was developed for active hhv6 infection. That did it! And treatments > that are antiviral are the things that have *by far* helped me the most. > Btw, does anyone know if the test for active hhv6 is now more sensitive? > I was lucky and tested positive the very first time, but many people who > have this infection could test negative on several tests because apparently > the virus goes in and out of the blood stream or something like that. > Anyway, I know they have refined the test and wonder if they have > reduced their false negative rate? > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
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