Re: Lyme - CFIDS distinction Hypercussis

[Guest guest]

Sue: on hyperacusis

How have you determined this? If you can't tell the difference between

the two diseases otherwise, how do you know? You aren't saying that

ME/ " CFS " don't get hyperacusis right, just that they don't get it nearly

as bad as Lymies? Cheney mentions sensitivity to noise as a reason to

take klonopin which he seems to put lot's of people on.. Just curious

as to exactly what you're saying, and how you came to this conclusion.

I have Hyperacusis and afterhearing at times, seems to be under control

with klonopin. I would never have called it severely debilitating,

except possibly when around noisy people like kids or loud kitchen

types.

Peggy:

I've heard others say that joint pain is not ubiquitous at all in

lyme. I too got thrown off the lyme track by having such classic

ME/ " CFS " symptoms that It just seemed like I needed to look no further;

a very tempting prospect! But if you start looking at lyme symptom

lists, you will not see much difference between the two. I tend not to

think of ME/ " CFS " as a distinct entity anymore anyhow, so I think it

should be looked at as subsets, and what different infections might be

at the " root " of each- lyme being one. That's just my gut feeling from

accumulation of info and opinions.

E.

<<Dear Peggomatic,

You were wondering about the clinical distinction between Lyme and

CFIDS. Were you on Schweitzer's list when Lynn Shepler, M.D.,

discussed this? She said there is no clinical difference.

My own opinion is that there there might be a difference and it's not

pain or joint problems--it's hyperacusis. I've never heard of anyone

with CFIDS having hyperacusis (inability to tolerate normal noise) that

is as severe and as completely disabling as what some people with Lyme

have.

Sue B.