a and expert doctors

[Guest guest]

I went to a doctor when I first moved to this little town who claims to be a

CFIDS specialist. He has a chelation department and is listed (self listed) on

the internet as an alternative physician specializing in CFS/FM and other poorly

understood diseases.

This man didn't even know the difference between CFIDS and FM. And what was

worse, every time I tried to tell him about a problem I was having he'd start to

LAUGH, tell me that I was weird and ask me WHAT PLANET I WAS FROM! This happened

numerous times while I continued to go to him and look for someone else on the

side. My difficulty was that he was the only doctor I could find who would help

me stay on the vit/min shots for the seizures. Every other doctor wanted to stop

the shots and try another anticonvulsant. Since I nearly died from the first

one, I wasn't willing to do that.

Beware the self-proclaimed CFIDS expert. I suspect there are quite a few

making money off of us who are clueless. Judy R.

The above mentioned doctor was the only one that I ever raised my voice to.

But I did it more than once and would have continued to do so if I hadn't found

the wonderful doctor I'm seeing now.

[Guest guest]

When Bell left Massachusetts, he recommended a doctor in RI.

This doctor knew something about ME/CFIDS but he was a neurologist

with the Freudian mind bent.

The longer I went to him, the worse he got

He actually had the gall to say to me that " life was passing me by

and I better do something about it "

I looked at him while I was in my devastated state and said

" REALLY!!! " ... It dawned on me he was a MORON about this illness

in many ways

Since I can travel, I do have options so I don't have to accept the

abuse.

The PWME who can't travel and have little financial resources

gets bludgeoned by these idiots. Many PWME's are trapped with

these idiots because their options are limited. Being chronically

ill really sucks in ways the average person can't imagine

Fluffy

>

> I went to a doctor when I first moved to this little town who

claims to be a CFIDS specialist. He has a chelation department and is

listed (self listed) on the internet as an alternative physician

specializing in CFS/FM and other poorly understood diseases.

> This man didn't even know the difference between CFIDS and FM.

And what was worse, every time I tried to tell him about a problem I

was having he'd start to LAUGH, tell me that I was weird and ask me

WHAT PLANET I WAS FROM! This happened numerous times while I

continued to go to him and look for someone else on the side. My

difficulty was that he was the only doctor I could find who would

help me stay on the vit/min shots for the seizures. Every other

doctor wanted to stop the shots and try another anticonvulsant. Since

I nearly died from the first one, I wasn't willing to do that.

> Beware the self-proclaimed CFIDS expert. I suspect there are

quite a few making money off of us who are clueless. Judy R.

> The above mentioned doctor was the only one that I ever raised

my voice to. But I did it more than once and would have continued to

do so if I hadn't found the wonderful doctor I'm seeing now.