Can I please have a smidgen of encouragement?

[Guest guest]

Hi everyone,

Been offline for a spell. Having tested positive for mycoplasma

fermentans (this was after several tests of negative), Dr.

in Incline Village, NV has put me on a 6 month trial of

Doxyxycline.

I started it in December, but skipped some doses because of the

holidays - just got too crazy, I was traveling back east to see family

and I was sure I wouldn't be able to properly gauge how I was

responding to the Doxy if I was out of my " routine " (which basically

consists of going to work, coming home, and plopping on the couch in a

frazzled, exhausted lump).

So anyway now I am on the daily 2x 100mgs. The damn pharmacy

instructions are terribly annoying. Dont take within an hour of taking

vitamins, dont take within an hour of lying down. blah blah blah. Does

anyone know if these restrictions are to ensure effectiveness or to

minimize risks of side-effects?

I'm really depressed since I just returned from visiting my family

back east. I have been wanting to move back and be closer to them but

since Dr. is here on the West coast, and my living situation

is *somewhat* stable (housing-crisis plagued, eviction heavy San

Francisco here), and my job is *somewhat* tolerable right now

considering my weak condition, I'm trying to work with for as

long as I can, with an understanding between us that if I have to move

back east he will help me find a doctor. The distance from family

doesn't help my depression / anxiety problems at all. I'm lucky to

have a supportive family even if they dont understand it all. But I

only get to see them once or twice a year, everyone's getting older

(my parents, oh how that scares me), the siblings kids are growing up,

just all this stuff I am missing.

So I am giving the Doxycylcine a try. Here goes nothing. I also just

got a note from telling me that my recent HHV6 blood test

came back negative. I tested negative several times before coming up

positive, and I've never felt any different during any of this, so I

dont know how much stock to put in this HHV6 stuff. My spinal fluid

was positive for HHV6 last year. Maybe the blood and spinal fluid are

totally seperate infections?

My doc talked about possibly giving the Transfer Factor a try during

my last visit, but now that I'm " negative " I dont know if this is an

option.

I'm also taking ImmunPro (2 scoops a day). Been doing this for several

months, tried 3 scoops but it goes right through me! Dont know if the

ImmunePro is doing me any good, but I'm taking it for a while longer

before I call it quits.

Gut stuff: I've always suspected my gut may be involved since I had

IBS long before CFS, but the diets I've tried havent helped. Down the

road I'll have to give some more thought to this, but right now I am

doing all I can. Can't stand any more. I hope the antibiotics dont

wreck my gut. Who knows maybe abx will actually help it. I read an

article recently mentioning the possibility of too much bacteria in

the gut causing IBS and other digestive woes.

Sorry so long. Just wanted to reach out to others who are suffering

and EXPERIMENTING. Every single solitary night I fall asleep praying

to God that there be a light at the end of thi

[Guest guest]

Hi Debbie,

I wonder about the 560 TF trial. Do you feel that it helped you to take the

TF? You felt better when your NK cell function was higher? I have been on MGN

3 for about 4 weeks now and my NK cell function has doubled. I have to say

that I do feel better. I am going to start the 560 TF tomorrow morning.

a

_________________________________________________________________

" Do me a favor, doc, tell me something good. " - Blair - The Exorcist

[Guest guest]

hi patrick!

i just wanted to say that your negative hhv6 was probably false. when i

was tested monthly during the 560 TF trial, it was neg/pos/neg/pos etc.,

every other month. it was positive when my NK function was highest

(34), and i was actually feeling a little better, and running around

(for chirstmas 1999). it was negative again the following month. when i

was off the TF (or had reduced it trying to conserve it), was crashed

and feeling bad, and NK was back down to 12.

your brain is likely still swimming in hhv6. i wouldn't believe a neg.

test after you've had a positive. a newer test is supposed to put an

end to false negatives (it's just very difficult to detect in blood).

~~~~~~~~~~~~~~~~~~~~~~~~~

" Would they have found nothing, unless nothing was what they wanted to

find? " - Agent Dales, X-Files

@}{~{<<~~~~~~~~~~~~~~~~~~~~

@}{~{<<~~~~~~~~~~~~~~~~~~~~

debbie s. - dlsherman@...

[Guest guest]

,

It's good to hear from you again. I hope the doxycycline does you

some good. Keep praying, too. I'll pray for you, also. Let's hope

that 2001 is the year you will get a big breakthrough!

Rich

> Hi everyone,

>

> Been offline for a spell. Having tested positive for mycoplasma

> fermentans (this was after several tests of negative), Dr.

> in Incline Village, NV has put me on a 6 month trial of

> Doxyxycline.

>

> I started it in December, but skipped some doses because of the

> holidays - just got too crazy, I was traveling back east to see

family

> and I was sure I wouldn't be able to properly gauge how I was

> responding to the Doxy if I was out of my " routine " (which basically

> consists of going to work, coming home, and plopping on the couch in

a

> frazzled, exhausted lump).

>

> So anyway now I am on the daily 2x 100mgs. The damn pharmacy

> instructions are terribly annoying. Dont take within an hour of

taking

> vitamins, dont take within an hour of lying down. blah blah blah.

Does

> anyone know if these restrictions are to ensure effectiveness or to

> minimize risks of side-effects?

>

> I'm really depressed since I just returned from visiting my family

> back east. I have been wanting to move back and be closer to them

but

> since Dr. is here on the West coast, and my living

situation

> is *somewhat* stable (housing-crisis plagued, eviction heavy San

> Francisco here), and my job is *somewhat* tolerable right now

> considering my weak condition, I'm trying to work with for

as

> long as I can, with an understanding between us that if I have to

move

> back east he will help me find a doctor. The distance from family

> doesn't help my depression / anxiety problems at all. I'm lucky to

> have a supportive family even if they dont understand it all. But I

> only get to see them once or twice a year, everyone's getting older

> (my parents, oh how that scares me), the siblings kids are growing

up,

> just all this stuff I am missing.

>

> So I am giving the Doxycylcine a try. Here goes nothing. I also just

> got a note from telling me that my recent HHV6 blood test

> came back negative. I tested negative several times before coming up

> positive, and I've never felt any different during any of this, so I

> dont know how much stock to put in this HHV6 stuff. My spinal fluid

> was positive for HHV6 last year. Maybe the blood and spinal fluid

are

> totally seperate infections?

>

> My doc talked about possibly giving the Transfer Factor a try during

> my last visit, but now that I'm " negative " I dont know if this is an

> option.

>

> I'm also taking ImmunPro (2 scoops a day). Been doing this for

several

> months, tried 3 scoops but it goes right through me! Dont know if

the

> ImmunePro is doing me any good, but I'm taking it for a while longer

> before I call it quits.

>

> Gut stuff: I've always suspected my gut may be involved since I had

> IBS long before CFS, but the diets I've tried havent helped. Down

the

> road I'll have to give some more thought to this, but right now I am

> doing all I can. Can't stand any more. I hope the antibiotics dont

> wreck my gut. Who knows maybe abx will actually help it. I read an

> article recently mentioning the possibility of too much bacteria in

> the gut causing IBS and other digestive woes.

>

> Sorry so long. Just wanted to reach out to others who are suffering

> and EXPERIMENTING. Every single solitary night I fall asleep praying

> to God that there be a light at the end of thi

[Guest guest]

Please tell me what MGN is ?

Hi Debbie,

I wonder about the 560 TF trial. Do you feel that it helped you to take the

TF? You felt better when your NK cell function was higher? I have been on

MGN

3 for about 4 weeks now and my NK cell function has doubled. I have to say

[Guest guest]

MGN-3 is an extract from chinese mushrooms that reportedly boosts immune

function, NK cell counts in particular.

Re: Re: Can I please have a smidgen of

encouragement?

> Please tell me what MGN is ?

>

>

>

> Hi Debbie,

> I wonder about the 560 TF trial. Do you feel that it helped you to take

the

> TF? You felt better when your NK cell function was higher? I have been on

> MGN

> 3 for about 4 weeks now and my NK cell function has doubled. I have to say

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

[Guest guest]

,

I get it from Whole Foods, the national health food grocer. It's available

at most large health food stores. Needs.com probably sells it and usually

has the lowest prices. I have no info. on most effective dosages. I just

take one pill 2x a day. It's very expensive. Steve B.

Re: Re: Can I please have a smidgen of

encouragement?

> May I have a source of supply and dosage reommendations, please.

>

>

> =============================================================

> MGN-3 is an extract from chinese mushrooms that reportedly boosts immune

> function, NK cell counts in particular.

> =================================================================

>

> > Please tell me what MGN is ?

> >

> >

> >

> > Hi Debbie,

> > I wonder about the 560 TF trial. Do you feel that it helped you to take

> the

> > TF? You felt better when your NK cell function was higher? I have been

on

> > MGN

> > 3 for about 4 weeks now and my NK cell function has doubled. I have to

say

> >

> >

> >

> > This list is intended for patients to share personal experiences with

each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

> >

>

>

> This list is intended for patients to share personal experiences with each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

[Guest guest]

May I have a source of supply and dosage reommendations, please.

=============================================================

MGN-3 is an extract from chinese mushrooms that reportedly boosts immune

function, NK cell counts in particular.

=================================================================

> Please tell me what MGN is ?

>

>

>

> Hi Debbie,

> I wonder about the 560 TF trial. Do you feel that it helped you to take

the

> TF? You felt better when your NK cell function was higher? I have been on

> MGN

> 3 for about 4 weeks now and my NK cell function has doubled. I have to say

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.