Guest guest Posted January 1, 2001 Report Share Posted January 1, 2001 I really appreciated the posts from and Jo (vogel?) on Dec 29, in reply to my post on being prescribed Quercetin for anti- histaminic use, since I no longer can tolerate Benadryl. I think when I wrote I was wise enough to be sanguine about the very intial relief from the severe increase in pain I'd been experiencing for a while, and which we had some reason to think might have been histamine mediated. I haven't written since because I got VERY big time sick on day 2, though I can't say for sure it was the Quercetin--but I'm off it for now until I can rethink, look at notes, talk to my doc, get other feedback, and simply " recover " myself. reported increased pain while on it (4 caps / day) for about a year, with a decrease in pain when she stopped it a few weeks ago, though other symptoms, which it might have been effective against, worsened. (A familiar story!) And given what she thought was the explanation has gone back on it once per day and see if it helps without hurting. Jo is taking another bioflavinoid, Hesperiden, and report the Q didn't work as well for her, but reported crampyiness with H if not taken with food. Here's what happened: Day 1 I took 2 caps of Q 350 mgs. I don't remember if I took it with food. I don't remember any ill effect and noticed a huge DECREASE in pain. Day 2 I took 4 or 5 caps. But before I took the full amount my pain returned full force, maybe worse, dunno. But my neck went into spasm, a reaction I've gotten very specifically to certain things, like grapefruit (the only citrus I've dared try in years) and Ben Gay, which helps my pain lots, and I had to stop. For, neck spasms, aside from the discomfort, cause the rest of the body to get tense and in me ALWAYS produce a migraine. By the end of the day I was full of pain and a migraine was well established. And I was exhausted. So exhausted I couldn't make dinner and had to get into bed. But was hungry so ate a chocolate muffin from a local bakery that I often use. I do eat chocolate with no problem. But there was something I tasted in this muffin that (don't laugh) made me feel " allergic " and within seconds I started to get very congested in the throat, and started to fear this was the beginning of anaphalaxis. Friday night, snowstorm coming, me in pain and exhaustion. I couldn't face an emergency room or just the getting there. I took maybe too much baking soda, which docs have told me will break an histaminic allergic response. I have an EpiPen but never used it and was afraid of all that epinephrine, as my heart was racing from I guess the fear. Apparently the baking soda was effective, but whatever the congestion was broken. I got very nauseated and upchucked (not typical of me) and that gave me additional relief. That of course wore me out further. I had to cancel all plans. I've cut back on all but the safest foods. No Q of course and I'm gonna try to look at my diary, which I realize should be kept more neatly for situations like this to make info retrieval easier. And hopefully my overly busy doc will have some time to give me by phone Tuesday or Wednesday. I am of course still in a lot of pain, have been able to do little. AnAm trying to drink a lot. And, again, keeping my diet simple: meat, rice, broccoli and a few other things I've not felt to be an issue. I've cut out wheat for the nonce. I've been eating it for a long time, but about 2 months ago I stopped. I felt no better and after 2 months went back on it. The first few days I had no additional problems. The confusing thing is that the reaction occurred only several days after wheat was re- introduced, though up till that day I was eating only one fairly simple form of it. I don't think if wheat caused the allergic response it would have kicked in on the third or fourth day after reintroducing it (coincident with the muffin). But who knows. This post has whalloped me. I can't write anymore. But if anyone has any info that they feel could help, please do so. Otherwisem, I do think I'm doing the wise thing and hope my doc can help further. Thanks. Judith Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2001 Report Share Posted January 1, 2001 Judith, Some of the things that I'm allergic to have delayed allergic reactions. For example, Amoxicillin, the antibiotic, makes me break out in hives on the fourth or fifth day of using it. Some foods I may have an allergic reaction to within minutes or hours, and at other times, the same foods may be four or five days after ingesting them. It makes it really tricky to try to track down an allergy. Having an allergic reaction 48 hours seems to be the most common amount of time for me. lindaj@... Unhappy Quercetin Update > I really appreciated the posts from and Jo (vogel?) on > Dec 29, in reply to my post on being prescribed Quercetin for anti- > histaminic use, since I no longer can tolerate Benadryl. > > I think when I wrote I was wise enough to be sanguine about the very > intial relief from the severe increase in pain I'd been experiencing > for a while, and which we had some reason to think might have been > histamine mediated. > > I haven't written since because I got VERY big time sick on day 2, > though I can't say for sure it was the Quercetin--but I'm off it for > now until I can rethink, look at notes, talk to my doc, get other > feedback, and simply " recover " myself. > > reported increased pain while on it (4 caps / day) for about a > year, with a decrease in pain when she stopped it a few weeks ago, > though other symptoms, which it might have been effective against, > worsened. (A familiar story!) And given what she thought was the > explanation has gone back on it once per day and see if it helps > without hurting. > > Jo is taking another bioflavinoid, Hesperiden, and report the Q > didn't work as well for her, but reported crampyiness with H if not > taken with food. > > Here's what happened: > > Day 1 I took 2 caps of Q 350 mgs. I don't remember if I took it with > food. I don't remember any ill effect and noticed a huge DECREASE in > pain. > > Day 2 I took 4 or 5 caps. But before I took the full amount my pain > returned full force, maybe worse, dunno. But my neck went into > spasm, a reaction I've gotten very specifically to certain things, > like grapefruit (the only citrus I've dared try in years) and Ben > Gay, which helps my pain lots, and I had to stop. For, neck spasms, > aside from the discomfort, cause the rest of the body to get tense > and in me ALWAYS produce a migraine. > > By the end of the day I was full of pain and a migraine was well > established. And I was exhausted. So exhausted I couldn't make > dinner and had to get into bed. But was hungry so ate a chocolate > muffin from a local bakery that I often use. I do eat chocolate with > no problem. But there was something I tasted in this muffin that > (don't laugh) made me feel " allergic " and within seconds I started to > get very congested in the throat, and started to fear this was the > beginning of anaphalaxis. > > Friday night, snowstorm coming, me in pain and exhaustion. I > couldn't face an emergency room or just the getting there. I took > maybe too much baking soda, which docs have told me will break an > histaminic allergic response. I have an EpiPen but never used it and > was afraid of all that epinephrine, as my heart was racing from I > guess the fear. > > Apparently the baking soda was effective, but whatever the congestion > was broken. I got very nauseated and upchucked (not typical of me) > and that gave me additional relief. > > That of course wore me out further. > > I had to cancel all plans. I've cut back on all but the safest > foods. No Q of course and I'm gonna try to look at my diary, which I > realize should be kept more neatly for situations like this to make > info retrieval easier. > > And hopefully my overly busy doc will have some time to give me by > phone Tuesday or Wednesday. > > I am of course still in a lot of pain, have been able to do little. > AnAm trying to drink a lot. And, again, keeping my diet simple: > meat, rice, broccoli and a few other things I've not felt to be an > issue. I've cut out wheat for the nonce. I've been eating it for a > long time, but about 2 months ago I stopped. I felt no better and > after 2 months went back on it. > > The first few days I had no additional problems. The confusing thing > is that the reaction occurred only several days after wheat was re- > introduced, though up till that day I was eating only one fairly > simple form of it. I don't think if wheat caused the allergic > response it would have kicked in on the third or fourth day after > reintroducing it (coincident with the muffin). But who knows. > > This post has whalloped me. I can't write anymore. But if anyone > has any info that they feel could help, please do so. Otherwisem, I > do think I'm doing the wise thing and hope my doc can help further. > > Thanks. > > Judith > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
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