Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 Rich Is guai a herb? Can it be bought at healthfood stores. What are the recommended dosages? Best web sources? We have no one in Singapore who does the mapping stuff so it will be a shot in the dark along with Bravo theory Email: justinho@... Re: Update on response to stress > Ken, > > Sorry to hear about the major stress episode and the bacterial > flare, but glad things are back under control. I don't know if you > have read about Greg Bravo's recent accomplishment, connecting > glutathione depletion to excess phosphate reabsorption. I know > that you have taken nondenatured whey protein to boost the > glutathione, but what about guaifenesin to rid yourself of phosphates? > I'm wondering whether you may have some abiding high phosphate levels > in your bones. I'm still hopeful that there will be some way to boost > your immune system so that the bugs will be permanently under control, > without having to resort to antibiotics again. > > Glad to hear that you're planning to go to the Seattle AACFS > meeting. I'm sure you meant January, not June. I'm planning to, > also, and look forward to meeting you " in the flesh " as opposed to " in > the virtual. " > > Rich > > > > The last 10 days has been an experience. A week ago, Saturday, I > received > > notice of a criminal charge against me based on a bogus complaint by > someone > > who is in need of some serious professional help. The same person > that is > > responsible for giving Laurie three TIA (mini-strokes) last April > from her > > harassment phone calls. > > > > Needless to say, stress went thru the roof with both Laurie and > myself. > > Within 12 hours, I had developed a dry stress cough (by Monday AM, I > was > > coughing every 5 seconds - literally) that had also preceeded my > sudden > > onset 2 years ago, and my earlier mild CFIDS session some 27 years > ago. This > > dry cough is typical of community acquired pneunomia (Mycoplasma > pneumonia, > > chlamdia pneunomia etc). > > > > On Monday, we were in contact with out MD who authorized us both to > go on > > antibiotics immediately. The first day on the antibiotics had me > with dry > > heaves as the antibiotics apparently finding a large colony of > bacteria had > > appear in my stomach. About 6 days later, the dry cough started to > wane. > > > > Laurie had a similar scenario - but with joint and back pain being > the > > symptomns. > > > > We appear to be over the health issues. Have a seasoned lawyer who > is > > handling the criminal charges. Stress level is back to normal. > > > > --------------------------------------------------------------- > > What have we learnt? Well, the recent article about mycoplasma etc > having a > > 4000x growth rate in the presence of adreneline appears to be 100% > correct > > from our experience. If there is any stressful events in our lives, > we will > > likely be quickly on a short course of antibiotics quickly > (especially since > > we have a cooperative MD). I know that I am likely to be researching > > antibiotics that are particularly effective against chronic > community > > acquired pneumonia. > > > > ------------- > > More later, as an FYI to all, planning to be at the Seattle CFIDS > > conference (our MD is attending too), on June 26-29th, 2001 > > > > Ken > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 , Guaifenesin originally came from the bark of the guaiac tree. Now it is synthesized and comes in tablet form, as well as an active ingredient in expectorants such as Robitussin, for helping to clear mucus out of the lungs. I recommend that you check Dr. St. Amand's web site at www.guaidoc.com He gives sources for guaifenesin, and also talks about doses. Rich > > > The last 10 days has been an experience. A week ago, Saturday, I > > received > > > notice of a criminal charge against me based on a bogus complaint by > > someone > > > who is in need of some serious professional help. The same person > > that is > > > responsible for giving Laurie three TIA (mini-strokes) last April > > from her > > > harassment phone calls. > > > > > > Needless to say, stress went thru the roof with both Laurie and > > myself. > > > Within 12 hours, I had developed a dry stress cough (by Monday AM, I > > was > > > coughing every 5 seconds - literally) that had also preceeded my > > sudden > > > onset 2 years ago, and my earlier mild CFIDS session some 27 years > > ago. This > > > dry cough is typical of community acquired pneunomia (Mycoplasma > > pneumonia, > > > chlamdia pneunomia etc). > > > > > > On Monday, we were in contact with out MD who authorized us both to > > go on > > > antibiotics immediately. The first day on the antibiotics had me > > with dry > > > heaves as the antibiotics apparently finding a large colony of > > bacteria had > > > appear in my stomach. About 6 days later, the dry cough started to > > wane. > > > > > > Laurie had a similar scenario - but with joint and back pain being > > the > > > symptomns. > > > > > > We appear to be over the health issues. Have a seasoned lawyer who > > is > > > handling the criminal charges. Stress level is back to normal. > > > > > > --------------------------------------------------------------- > > > What have we learnt? Well, the recent article about mycoplasma etc > > having a > > > 4000x growth rate in the presence of adreneline appears to be 100% > > correct > > > from our experience. If there is any stressful events in our lives, > > we will > > > likely be quickly on a short course of antibiotics quickly > > (especially since > > > we have a cooperative MD). I know that I am likely to be researching > > > antibiotics that are particularly effective against chronic > > community > > > acquired pneumonia. > > > > > > ------------- > > > More later, as an FYI to all, planning to be at the Seattle CFIDS > > > conference (our MD is attending too), on June 26-29th, 2001 > > > > > > Ken > > > > > > > > This list is intended for patients to share personal experiences with each > other, not to give medical advice. If you are interested in any treatment > discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2000 Report Share Posted December 6, 2000 Ken, 1. I might have missed this before since I simply am not able to read all posts, but could you refer me to where I can learn of the source/reasoning for the term " community acquired " as you use it with respect to mycoplasma infection. 2. Are you planning to also attent the CFSCC conference being held, I believe, at the close of the AACFS conference? Judith On Tue, 5 Dec 2000 06:52:05 -0800 " Ken Lassesen " <KenL@...> writes: > The last 10 days has been an experience. A week ago, Saturday, I > received > notice of a criminal charge against me based on a bogus complaint by > someone > who is in need of some serious professional help. The same person > that is > responsible for giving Laurie three TIA (mini-strokes) last April > from her > harassment phone calls. > > Needless to say, stress went thru the roof with both Laurie and > myself. > Within 12 hours, I had developed a dry stress cough (by Monday AM, I > was > coughing every 5 seconds - literally) that had also preceeded my > sudden > onset 2 years ago, and my earlier mild CFIDS session some 27 years > ago. This > dry cough is typical of community acquired pneunomia (Mycoplasma > pneumonia, > chlamdia pneunomia etc). > > On Monday, we were in contact with out MD who authorized us both to > go on > antibiotics immediately. The first day on the antibiotics had me > with dry > heaves as the antibiotics apparently finding a large colony of > bacteria had > appear in my stomach. About 6 days later, the dry cough started to > wane. > > Laurie had a similar scenario - but with joint and back pain being > the > symptomns. > > We appear to be over the health issues. Have a seasoned lawyer who > is > handling the criminal charges. Stress level is back to normal. > > --------------------------------------------------------------- > What have we learnt? Well, the recent article about mycoplasma etc > having a > 4000x growth rate in the presence of adreneline appears to be 100% > correct > from our experience. If there is any stressful events in our lives, > we will > likely be quickly on a short course of antibiotics quickly > (especially since > we have a cooperative MD). I know that I am likely to be researching > antibiotics that are particularly effective against chronic > community > acquired pneumonia. > > ------------- > More later, as an FYI to all, planning to be at the Seattle CFIDS > conference (our MD is attending too), on June 26-29th, 2001 > > Ken > > > > -------------------------- eGroups Sponsor > > This list is intended for patients to share personal experiences > with each other, not to give medical advice. If you are interested > in any treatment discussed here, please consult your doctor. > ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2000 Report Share Posted December 6, 2000 For 'Community Acquired Pneumonia' see http://uhs.bsd.uchicago.edu/uhs/topics/pneu.html - What I found very interesting is the range of Etiologic agents (see table). I suspect CFIDS's Etiologic agents may be a mirror of the agents in 'Community Acquired Pneumonia' . The term 'Community Acquired' is a reference to it being 'passable' - thus acquired from the community [exact same scenario as may happen with CFIDS] Yes - I will probably attend the CFSCC... Ken > Ken, > > 1. I might have missed this before since I simply am not able to read > all posts, but could you refer me to where I can learn of the > source/reasoning for the term " community acquired " as you use it with > respect to mycoplasma infection. > > 2. Are you planning to also attent the CFSCC conference being held, I > believe, at the close of the AACFS conference? > > Judith > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2000 Report Share Posted December 6, 2000 There are two things called stroke: * transient ischemic attacks (TIA)- what Laurie had... * Full Stroke See http://www.americanheart.org/Patient_Information/sstroktia.html The symptoms matched, anticoagulants had a major effect. Our MD have our Hemex results and knows from talking with Berg that TIA and Stroke are probable... hence our MD has no problem with the TIA. TIA, after they occur may leave no physical signs -- they are transient. If they left permament damage, it becomes a stroke. > ken how did they no laurie had 3 strokes? i asked my > neurologist cause my syptoms seem like that but he > said no they did a mri last month and he said that a > few more spots should up then 2 years ago but it is > nothing is this true? michelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2000 Report Share Posted December 6, 2000 There are several classes of antibiotics that will CAUSE many of the bacteria associated with CFIDS to grow rapidly: Cortisone, sulfonamides, penicillin See http://www.folkarts.com/idef/pencillin.htm Others will surpress these bacteria, many have no effect. So it is true that 'antibiotics cause cfs' if a MD gives the wrong one... It is also true that 'antibiotics cures cfs' if a MD gives the wrong one. Just as we can say that 'cars kill people' and 'cars saves people's lives (ambulances)' Some antibiotics are also anticoagulants and vasciodilators. > ken when they say antibitics cause cfs is this not > true? also can this treatment cure your cfs? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2000 Report Share Posted December 7, 2000 Ken should i take my nerulogists word that the white spots are nothing and i did not have a stoke our should i see a different doc if so can you refer me to one that could help me. alot of other people that have cfs said they feel like they had stokes to thanks michelle --- KenL@... wrote: > There are two things called stroke: > * transient ischemic attacks (TIA)- what Laurie > had... > * Full Stroke > > See > http://www.americanheart.org/Patient_Information/sstroktia.html > > The symptoms matched, anticoagulants had a major > effect. Our MD have > our Hemex results and knows from talking with Berg > that TIA and > Stroke are probable... hence our MD has no problem > with the TIA. > > TIA, after they occur may leave no physical signs -- > they are > transient. If they left permament damage, it becomes > a stroke. > > > > ken how did they no laurie had 3 strokes? i asked > my > > neurologist cause my syptoms seem like that but he > > said no they did a mri last month and he said that > a > > few more spots should up then 2 years ago but it > is > > nothing is this true? michelle > > > > -------------------------- eGroups Sponsor > > This list is intended for patients to share personal > experiences with each other, not to give medical > advice. If you are interested in any treatment > discussed here, please consult your doctor. > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.