Re: Shelf life of enzymes, rigidity

July 24, 2001

Thanks to everyone who replied to my question about shelf life, and

sorry about the double post. I thought the computer ate my first one!

The samples we got were in a plastic bottle, without a pillow pack. I

think they were designed to be used in the clinical trials, since

they came with forms to send in to ARI. We decided not to participate

in the trial after all because I couldn't be sure about compliance at

school.

I'm also curious if anyone has noticed a decrease in rigidity and

compulsiveness with enzymes. My son is very high-functioning, can

pass for NT in many situations, but still runs into a lot of problems

because he gets so determined to do things his way.

Thanks again!

in NC

(We're in Hillsborough, a few miles north of Chapel Hill.)

July 24, 2001

Hi, Jean

My son is eight, has Asperger's and takes both HNI enzymes. I have

seen a big decrease in rigidity. I don't even know where to start.

He is just easier to deal with in every way. The tension his

inflexibility use to cause me has really lifted. He could still be a

little more " go with the flow " , but in general, is much better now

and I would even say in the " typical " range in that area.

His compulsiveness is better now, too. One of the ways I knew he was

having a food reaction was whenever I had to correct his behavior in

even the teeniest way, he would demand we had to start over. That

meant we had to go back and do the whole situation over the " right "

way. I used to do this on purpose with him to teach correct

behavior, but then he got totally out of hand with it and it became

an obsession. He still sometimes does this, but to a much lesser

degree.

> Thanks to everyone who replied to my question about shelf life, and

> sorry about the double post. I thought the computer ate my first

one!

>

> The samples we got were in a plastic bottle, without a pillow pack.

I

> think they were designed to be used in the clinical trials, since

> they came with forms to send in to ARI. We decided not to

participate

> in the trial after all because I couldn't be sure about compliance

at

> school.

>

> I'm also curious if anyone has noticed a decrease in rigidity and

> compulsiveness with enzymes. My son is very high-functioning, can

> pass for NT in many situations, but still runs into a lot of

problems

> because he gets so determined to do things his way.

>

> Thanks again!

>

> in NC

> (We're in Hillsborough, a few miles north of Chapel Hill.)

July 25, 2001

-

I too, have noticed a decrease in my son, Holden's (age 6 1/2)

rigidity. Example: He no longer has to take " something " , beanie

baby, blocks, toy, etc., on every car ride. For us, this is huge...

never fails when we're late, he couldn't find the whatever. This

behavior is about 2 weeks old, and he's been on the enzymes since the

end of May.

Janet ez

-- In @y..., twogreatboys@n... wrote:

> Thanks to everyone who replied to my question about shelf life, and

> sorry about the double post. I thought the computer ate my first

one!

>

> The samples we got were in a plastic bottle, without a pillow pack.

I

> think they were designed to be used in the clinical trials, since

> they came with forms to send in to ARI. We decided not to

participate

> in the trial after all because I couldn't be sure about compliance

at

> school.

>

> I'm also curious if anyone has noticed a decrease in rigidity and

> compulsiveness with enzymes. My son is very high-functioning, can

> pass for NT in many situations, but still runs into a lot of

problems

> because he gets so determined to do things his way.

>

> Thanks again!

>

> in NC

> (We're in Hillsborough, a few miles north of Chapel Hill.)

July 25, 2001

> Hi, Jean

>

> My son is eight, has Asperger's and takes both HNI enzymes. I have

> seen a big decrease in rigidity.

Thanks for your reply. This is encouraging. So far we haven't had to

resort to medication for any of my son's issues but I've considered

it if the obsessiveness doesn't get better when he's older.(He's now

8.)

I hope you don't mind a few more questions. Is your son on GFCF or

any other special diet along with the enzymes? How long has he been

on them, and how long was it before you saw improvement? Did he

regress at first when you started them?

Thanks again!

in NC

July 25, 2001

My son had been on the gfcf diet for about a year when we started the

enzymes. I had also pulled many other foods. While on the enzymes,

I gradually took him off the diet. We saw improvements within a week

of being on the enzymes with each meal. I did not see any

regression. Our story is in the files. Also, you can search the

archives for our " Three Month Update " which I just posted a few days

ago on the 22nd.

> > Hi, Jean

> >

> > My son is eight, has Asperger's and takes both HNI enzymes. I

have

> > seen a big decrease in rigidity.

>

> Thanks for your reply. This is encouraging. So far we haven't had

to

> resort to medication for any of my son's issues but I've considered

> it if the obsessiveness doesn't get better when he's older.(He's

now

> 8.)

>

> I hope you don't mind a few more questions. Is your son on GFCF or

> any other special diet along with the enzymes? How long has he been

> on them, and how long was it before you saw improvement? Did he

> regress at first when you started them?

>

> Thanks again!

> in NC

July 25, 2001

> -

>

> I too, have noticed a decrease in my son, Holden's (age 6 1/2)

> rigidity. Example: He no longer has to take " something " , beanie

> baby, blocks, toy, etc., on every car ride. For us, this is

huge...

Thanks for your reply! That sounds very familiar. insisted on

carrying a drink in a sippy cup in the car until he was 7.

Fortunately that particular ritual has faded away, but he still has

plenty of other " rules " he insists on. One of which will no doubt be

that he can't take any capsules or enzymes with his school lunch this

year because he's never done it before.

I hope you don't mind a few more questions. Are you using the enzymes

along with a special diet, like GFCF? And did you see any regression

at first? I'd like to try this, but I'm hoping to get any possible

problems out of the way before school starts.

Thanks again!

in NC

July 25, 2001

>

> I'm also curious if anyone has noticed a decrease in rigidity and

> compulsiveness with enzymes. My son is very high-functioning, can

> pass for NT in many situations, but still runs into a lot of

problems

> because he gets so determined to do things his way.

>

> Thanks again!

>

> in NC

> (We're in Hillsborough, a few miles north of Chapel Hill.)

Reduction in rigidity is probably the biggest positive we have seen

so far using enzymes (pep. and zp). Tom (6yo, Aspergers) is even

letting his younger brother play trains (Tom's interest) with him and

move the trains while he tells the story. This is *BIG* news in our

house! Overall, Tom is much better at allowing someone else to have

their way. HTH.

God Bless,

Sally (in NC - Huntersville, just outside Charlotte)

July 25, 2001

Just saw your new questions to the other replies. Tom is not and has

never been gfcf (just realized he was " on the spectrum " this year).

He takes one pep and one zp with each meal and snack. If the meal is

loaded with casein, I will usually give 2 peps. Let us know how it

goes...

God Bless,

Sally

July 25, 2001

Hi

Holden has been GFCF and yeast free since last September. In

addition, he had many food allergies, including soy, corn, eggs,

chicken, pork, green beans, lemons, oranges, grapes, and on and on.

Additionally, we take him to NAET therapy, where we uncovered many

more. We started the enzymes this past May. I have not taken him

off the diet. I can't say I attribute his tremendous progress to the

enzymes alone. The NAET treatments are very helpful, as are all the

supplements he is taking. (If you want to know the whole slew, I'd

be glad to fill you in, just let me know). Before the GFCF diet, he

was extremely compulsive - the most annoying habit was that he had to

have a wet paper towel at every meal and have it PERFECTLY folded in

a square, or he wouldn't eat and of course, he'd have a meltdown.

Now, his compulsive behaviors are few and far between. I also think

putting him on Nystatin helped alot. I think part of the rigidity is

due to " yeast fog " (even though, on his testing, yeast wasn't noted

as a big problem).

With the enzymes, I have felt more comfortable giving him previously

off-limit foods, like corn, chicken, and the ability to cheat the

diet a little - like a little barbecue sauce, tomato sauce. I double

up on the ZP for phenol foods, and that has helped. However, I gave

him GFCF bread with yeast, with multiple enzymes, and the next day he

couldn't find my closet, and was spacey for a day and a half.

Devin had told me that casein, gluten were just 2 of a group called

" exorphins " - proteins that the system needs help breaking down. He

also mentioned that hemoglobin is another exorphin. I think the

enzymes have really helped break down these proteins in red meat.

Hearing some of the stories of how some kids have regressed when off

the diet scares me some, and I'm not willing to take that chance.

Right now, I am grateful for the diet infractions. With all the

healing that has taken place this past year, I am confident that

Holden will outgrow most if not all of his food intolerances. This

Monday, we go to see Dr. Baptist (DAN Dr.) and I am going to have the

ELISA blood test redone for food allergies.

An issue that we still have, is his hypersensitive hearing. Clearing

the yeast has improved this some, but it still causes problems. Any

ideas???

Does this help??

Janet ez

> > -

> >

> > I too, have noticed a decrease in my son, Holden's (age 6 1/2)

> > rigidity. Example: He no longer has to take " something " , beanie

> > baby, blocks, toy, etc., on every car ride. For us, this is

> huge...

>

> Thanks for your reply! That sounds very familiar. insisted on

> carrying a drink in a sippy cup in the car until he was 7.

>

> Fortunately that particular ritual has faded away, but he still has

> plenty of other " rules " he insists on. One of which will no doubt

be

> that he can't take any capsules or enzymes with his school lunch

this

> year because he's never done it before.

>

> I hope you don't mind a few more questions. Are you using the

enzymes

> along with a special diet, like GFCF? And did you see any

regression

> at first? I'd like to try this, but I'm hoping to get any possible

> problems out of the way before school starts.

>

> Thanks again!

> in NC

July 25, 2001

> An issue that we still have, is his hypersensitive hearing.

>Clearing the yeast has improved this some, but it still causes

>problems. Any ideas???

>

> Does this help??

>

> Janet ez

I think everyone who has been reading my posts knows my take on

sensitivity to sounds. Me and Logan both suffer from this, but he is

getting much better through chelation. I assume you are taking the

chelation route (I can't keep up with everyone's back ground and

appologize if you have already mentioned this) since you are seeing a

DAN! doctor. Am I right on this? Anyway, if you were to ask him/her,

I'm sure he/she would tell you it's a classic sign of mercury

poisoning.

All my best,

Kaye

July 27, 2001

We remain gluten and casein free and have seen wonderful results with the

enzymes. I didn't even realize the dramatic results until we ran out for a week,

and her anxiety level rose and energy level went through the roof! We were up at

2 am the other night with her still bouncing off the walls. She had her enzymes

today with lunch and dinner and snacks and she is sitting on the couch drawing

quietly right now! Thank God and Devin for Peptizyde! So I would have to answer

you by saying, yes they will help even if you remain gluten and casein free.

has also been able to go back to eating several foods she previously

tested allergic to with no problems, just not gluten or casein.

Thanks, this does help. is GFCF and I don't plan to change that

anytime soon, but I was wondering if we could still expect to see

benefits. He does seem sensitive to other foods, including corn,

eggs, bananas, and most additives. He also improved a lot on

antifungals, even though his tests didn't show much yeast either.

His hearing sensitivities seem to come and go. They were much worse

when he was younger. He still hides from the vacuum cleaner and

sometimes gets upset over unexpected noises, but he doesn't run from

the mixer anymore. I've heard magnesium is supposed to help, as are

the various AIT and home listening programs. He gets B-6 and

magnesium along with several other supplements, but we haven't tried

any of the listening programs yet.

Thanks again,

in NC

July 27, 2001

> An issue that we still have, is his hypersensitive hearing.

Clearing

> the yeast has improved this some, but it still causes problems.

Any

> ideas???