Guest guest Posted December 2, 2000 Report Share Posted December 2, 2000 Dear Group, I have been lurking here for a while too. Having read Margaret and Joyce's posts I felt I needed to let you know I am here as well. The three of us have known each other for a while. I could have written Margaret's story for the most part right down to the hypoglycemia (what I formerly had thought for 10 years was candida). I have done most of the things she has done in vain attempts to get well. Margaret and Joyce were much sicker than I when they started guai and Immunepro. I too have added whey in the form of Immunepro to my guai regimen. I have been on guai since 4-98. I have an older brother on it as well. He too was sicker than I when he started guai. My experience on whey has been a little different that Margaret, Joyce or my brother. I have not gotten as sick on it. I did feel bad for about 3 weeks, kind of like I was getting a cold and I had more fatigue. I have been on it since October 21, 2000 and have worked up to 20 g. a day. Now most of the time I just feel like I have more energy. I must also say that I was not cycling (what you call herxing) nearly as hard as my 2 friends or my brother before starting the whey and my response to the whey has not been as pronounced as theirs either. Since starting the whey when I do cycle, I cycle harder that I did without it and/or feel like I am getting a cold or the flu and I get very tired. When I am not cycling, I have tons of energy. My theory, since reading some of your responses to whey, is that if you have lowered your level of phosphates as per Dr. St. Amand's theory, you will not have such a hard response to the addition of whey. If you have never been on guai or whey and you start whey you will have a stronger response to it as well, in the form of what you are calling herxing. I think like Margaret and Joyce do, that what is actually happening when you take whey is that you are really getting rid of phosphates. Thanks to another person here on your list I have been reading medical research that has shown that phosphate excretion goes up when glutathione levels are up. Phosphate excretion goes down when glutathione levels are low or absent. I think both Dr. Cheney and Dr. St. Amand are onto something here. Gretchen > Subject: Guaifenesin and Immunpro > > Dear Group, > > I have been lurking here since a friend told me about this group. I thought it was time to come out of the closet since a discussion has been started on Guai and whey. > > I have been on Guaifenesin since Novemeber 23, 1997. > > I was dx'd with FM in 1987 and thought my only problem was not sleeping and leg pain. The story of my life is in " What Your Doctor May Not Tell You About Fibromyalgia " by R. St. Amand M.D. and Mareck. I know now that my first flare was at age 19. To make a long story short IBS reared its ugly head, followed by allergies, countless vaginal infections leading to a hysterectomy at age 34, bouts of depression and the list goes on. I can plainly see the waxing and waning over the years of all the symptoms leading to the final crash after a year of unrelenting stress ending with the 93 flu shot. I became very sick two weeks after the shot and kept getting worse. I had also become very sensitive to medications..everything that is used for FM to help symptoms put me in the ER. I had 10 ER visits the first year and evey test for the heart there is since drugs speeded my heart, nothing was found. I also suspect there was reactive hypglycemia involved and it will not show up on a blood test. http://www.tidalweb.com/fms/rhg.shtml > > I then decided to see an herbalist..and I was able to take herbs but after nine months was no better. I traveled to a doctor of Environmental Medicine and did all the usual things..more herb, vitamins, vitamin I.V.s, Armour to try and get the temperature up, yeast and parasite cleanses, colonics, chelation, massage and you name it. I did all this for 6 months or more. I then spent several months with a homeopath and followed his protocol to no avail. I read a book by an FM doctor that seemed to make sense treating everything at once so off I was again and another round of yeast killling. The test showed I had no parasites but yeast was still the high end of normal. I tired NADH, MSM, Creatine, Myers Cocktails, T3 therapy, DHEA, low dose Cortisol and the list goes on. He was the first doctor to do all the necessary tests to rule out Lupus, Lymes, MS, RA, and I can't remember what else. I had started hearing about Guai and asked about it and was told, not yet. Four months later...after no improvement I was told to start Guai. I was told no herbs...but there is more to it than no herbs. It is salicyates in anything put on the skin. Guaifenesin can be blocked at the kidney level by salicylates. > > You may read about the entire protocol on Dr. St. Amand's site www.Guaidoc.com or at the Guai-Support International Site http://www.netromall.com/guai-support/. I was blocking the first three months until I found the Guai-Support website and the education began. The blockage by the mint in toothpaste was not learned for some time so I was partially blocking with that. It is hard to weed out the sals but an absolute must for this to work. > > I also learned that a lot of people with FM are hypoglycemic..some because of heredidty and some because of FM. The body is demanding energy..give me pasta or sugar and I will get energy the brain is saying. I also learned that if you do not release insulin you do not pull phosphates into the cells. Dr. St. Amand has his patients on a low carbohydrate diet for the first two months to jump start them. Most of us have found we feel better with this diet HG or not. > > Dr. St. Amand makes a map of the lumps and bumps in the body. People with CFS, FM and MCS all map out the lumps and bumps. I found a massage therpist here that listened to me. He traveled to a seminar Dr. St. Amand was giving and went to the meeting for professionals and had the opportunity to learn the mappng technique. He was finally ready to map. He mapped me before I traveled to CA for an appointment with Dr. St. Amand. He told me I must be blocking with something, I had gained some deposits and the old ones were harder. I did not think so, I was so sure I was not blocking. Dr. St. Amand confirmed it. It took two weeks to find out the culprit. I knew my mapper knew what he was doing and a hard lesson was learned about salicylates. I had blocked for three months and my map was going backwards fast. I cleared it out in one month and I was on my way again. I am now mapped once a month to be certain of not blocking and that the dose is right. > I have learned that my map strands still at 1800mg Guai so I am taking 2400 at this point. You have to titrate up slowly to find you cycling dose. The instructions are in the book and on the sites. > > A GG group member wrote to me about my progress and mentioned he was taking whey. I was leery about another so called cure. He also sent me a lot of research and I finally decided, why not. I found out NEEDS was having a sale on Immunepro so I ordered some. I started at 1/4 tespoon and started purging phophates in 6 hours. I was not sure if it was a regular cycle or not I knew it was not as I titrated the dose to 1 tsp.over time. I purged constantly for about two months. I am taking about eyes burning, mouth burning, hot coming out of everywhere..bubbles and particles in the urine. It also helps to take Cal-Mag with meals as the calcium binds with the phosphates and takes them out in the stool. > > I have either been dealing with a virus or a huge cycle of sinus and ears clearing the past couple of weeks. I just finished a course of Tequin and Claritin. I had fluid in my ears and vertigo which was not fun. I went off whey then to calm down the cycle. I saw my MT yesterday, he thinks it is due to the heavy cycling in the neck and shoulders and I am feeling much better today after he loosened me up. My maps have been improving all along and yesterday was not my regular mapping day but he felt a lot more changes and we got out the last map. I had completely lost a big shoulder deposit, the right side of my back has totally cleared > a big deposit that was very puffed with fluid and ready to clear last month was gone. My MT will do my regular mapping on December 18 and I will put on a report after. Oh, I had been on Immunepro about one month at my last regular mapping and my MT commented about a change in my muscles BEFORE I told him about taking whey. > > To end, there is NO DOUBT in my mind that wehy is enhancing Guai. I was about 80% when not cycling on Guai after 3 years and some blocking. Guai takes two months for every year of FM and I know now I was born with it. I planned on 5-6 years to remission but whey is going to shorten that time, I am sure of it now.. I tried Guai because nothing else had worked and I had nothing to lose. I belong to the support list that was about 250 or so when I joined and it is now about 2000 strong. > > Oh, one last thing, Guai thins the blood to a certain extent. I remember reading a post about a study on that in the archives of the Guai- Support Group but cannot remember the details. I have read many posts in this group about our thick blood. > > The FAQs on the sites will answer most questions on Guai. > Sincerely, > Margaret Bush..AL > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2000 Report Share Posted December 2, 2000 Well, I just unsubscribed to the list due to energy levels ; however, there is such good information here - even though i don't understand a lot of it So, soon I may resubscribe. Until then, would someone please e-mail me about the whey protein. My question is: Is the pure whey protein powder purchased at the health food stores the same as what all of you are talking about recently? Thanks much. Joan in iL josiefour@.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2000 Report Share Posted December 6, 2000 > So do you think it is possible to rid any excess phosphates with just the > whey. According to the study done on rats 20% more phosphates were released. There is no doubt in my mind now after about 21/2 months on ImmunePro that it in enhancing Guaifenesin for me! I know because I am purging all the time...bubbles, particles and sometimes the urine is so thick the stream stops and starts, it is also milky looking. Oh, did I mention burning. The phosphates turn to phosphoric acid when released. We Guai users even resort to zinc oxide ointment and Bag Balm from the chemical burn from the urine. This has happened with Guai alone but in a more cyclic manner. > I read up on the guai. treatment and one of the blockers was aloe. > Since I am taking glyconutrients (which is aloe) I can't do the guai. It is not at all hard to give up herbals when you have the prospect of getting well.I used everything natural before Guai. I drank gallons of whole leaf aloe. It did nothing for me. Margaret > > Guaifenesin and Immunpro > > > > > > Dear Group, > > > > > > I have been lurking here since a friend told me about this group. I > > thought it was time to come out of the closet since a discussion has been > > started on Guai and whey. > > > > > > I have been on Guaifenesin since Novemeber 23, 1997. > > > > > > I was dx'd with FM in 1987 and thought my only problem was not sleeping > > and leg pain. The story of my life is in " What Your Doctor May Not Tell > You > > About Fibromyalgia " by R. St. Amand M.D. and Mareck. I know > now > > that my first flare was at age 19. To make a long story short IBS reared > its > > ugly head, followed by allergies, countless vaginal infections leading to > a > > hysterectomy at age 34, bouts of depression and the list goes on. I can > > plainly see the waxing and waning over the years of all the symptoms > leading > > to the final crash after a year of unrelenting stress ending with the 93 > flu > > shot. I became very sick two weeks after the shot and kept getting worse. > I > > had also become very sensitive to medications..everything that is used for > > FM to help symptoms put me in the ER. I had 10 ER visits the first year > and > > evey test for the heart there is since drugs speeded my heart, nothing was > > found. I also suspect there was reactive hypglycemia involved and it will > > not show up on a blood test. http://www.tidalweb.com/fms/rhg.shtml > > > > > > I then decided to see an herbalist..and I was able to take herbs but > after > > nine months was no better. I traveled to a doctor of Environmental > Medicine > > and did all the usual things..more herb, vitamins, vitamin I.V.s, Armour > to > > try and get the temperature up, yeast and parasite cleanses, colonics, > > chelation, massage and you name it. I did all this for 6 months or more. > I > > then spent several months with a homeopath and followed his protocol to no > > avail. I read a book by an FM doctor that seemed to make sense treating > > everything at once so off I was again and another round of yeast killling. > > The test showed I had no parasites but yeast was still the high end of > > normal. I tired NADH, MSM, Creatine, Myers Cocktails, T3 therapy, > > DHEA, low dose Cortisol and the list goes on. He was the first doctor to > do > > all the necessary tests to rule out Lupus, Lymes, MS, RA, and I can't > > remember what else. I had started hearing about Guai and asked about it > and > > was told, not yet. Four months later...after no improvement I was told to > > start Guai. I was told no herbs...but there is more to it than no herbs. > It > > is salicyates in anything put on the skin. Guaifenesin can be blocked at > the > > kidney level by salicylates. > > > > > > You may read about the entire protocol on Dr. St. Amand's site > > www.Guaidoc.com or at the Guai-Support International Site > > http://www.netromall.com/guai-support/. I was blocking the first three > > months until I found the Guai-Support website and the education began. The > > blockage by the mint in toothpaste was not learned for some time so I was > > partially blocking with that. It is hard to weed out the sals but an > > absolute must for this to work. > > > > > > I also learned that a lot of people with FM are hypoglycemic..some > because > > of heredidty and some because of FM. The body is demanding energy..give me > > pasta or sugar and I will get energy the brain is saying. I also learned > > that if you do not release insulin you do not pull phosphates into the > > cells. Dr. St. Amand has his patients on a low carbohydrate diet for the > > first two months to jump start them. Most of us have found we feel better > > with this diet HG or not. > > > > > > Dr. St. Amand makes a map of the lumps and bumps in the body. People > with > > CFS, FM and MCS all map out the lumps and bumps. I found a massage > therpist > > here that listened to me. He traveled to a seminar Dr. St. Amand was > giving > > and went to the meeting for professionals and had the opportunity to learn > > the mappng technique. He was finally ready to map. He mapped me before I > > traveled to CA for an appointment with Dr. St. Amand. He told me I must be > > blocking with something, I had gained some deposits and the old ones were > > harder. I did not think so, I was so sure I was not blocking. Dr. St. > Amand > > confirmed it. It took two weeks to find out the culprit. I knew my mapper > > knew what he was doing and a hard lesson was learned about salicylates. I > > had blocked for three months and my map was going backwards fast. I > cleared > > it out in one month and I was on my way again. I am now mapped once a > month > > to be certain of not blocking and that the dose is right. > > > I have learned that my map strands still at 1800mg Guai so I am taking > > 2400 at this point. You have to titrate up slowly to find you cycling > dose. > > The instructions are in the book and on the sites. > > > > > > A GG group member wrote to me about my progress and mentioned he was > > taking whey. I was leery about another so called cure. He also sent me a > > lot of research and I finally decided, why not. I found out NEEDS was > having > > a sale on Immunepro so I ordered some. I started at 1/4 tespoon and > started > > purging phophates in 6 hours. I was not sure if it was a regular cycle or > > not I knew it was not as I titrated the dose to 1 tsp.over time. I purged > > constantly for about two months. I am taking about eyes burning, mouth > > burning, hot coming out of everywhere..bubbles and particles in the urine. > > It also helps to take Cal-Mag with meals as the calcium binds with the > > phosphates and takes them out in the stool. > > > > > > I have either been dealing with a virus or a huge cycle of sinus and > ears > > clearing the past couple of weeks. I just finished a course of Tequin and > > Claritin. I had fluid in my ears and vertigo which was not fun. I went > off > > whey then to calm down the cycle. I saw my MT yesterday, he thinks it is > due > > to the heavy cycling in the neck and shoulders and I am feeling much > better > > today after he loosened me up. My maps have been improving all along and > > yesterday was not my regular mapping day but he felt a lot more changes > and > > we got out the last map. I had completely lost a big shoulder deposit, > the > > right side of my back has totally cleared > > > a big deposit that was very puffed with fluid and ready to clear last > > month was gone. My MT will do my regular mapping on December 18 and I will > > put on a report after. Oh, I had been on Immunepro about one month at my > > last regular mapping and my MT commented about a change in my muscles > BEFORE > > I told him about taking whey. > > > > > > To end, there is NO DOUBT in my mind that wehy is enhancing Guai. I was > > about 80% when not cycling on Guai after 3 years and some blocking. Guai > > takes two months for every year of FM and I know now I was born with it. > I > > planned on 5-6 years to remission but whey is going to shorten that time, > I > > am sure of it now.. I tried Guai because nothing else had worked and I had > > nothing to lose. I belong to the support list that was about 250 or so > when > > I joined and it is now about 2000 strong. > > > > > > Oh, one last thing, Guai thins the blood to a certain extent. I remember > > reading a post about a study on that in the archives of the Guai- Support > > Group but cannot remember the details. I have read many posts in this > group > > about our thick blood. > > > > > > The FAQs on the sites will answer most questions on Guai. > > > Sincerely, > > > Margaret Bush..AL > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > This list is intended for patients to share personal experiences with each > other, not to give medical advice. If you are interested in any treatment > discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2000 Report Share Posted December 6, 2000 Message: 21 Date: Thu, 07 Dec 2000 00:56:53 -0000 From: rogmarg@... Subject: Re: Guaifenesin and Immunpro I personally would not put my entire trust in whey because it is not proven clinically like Dr. St. Amand's treatment. He has been using this treatment in one form or another successfully for 40 years. I have been sick for too long to put all my trust in something I was not sure about. The clinical experience is not there for whey like it is for guai. I agree with Margaret that it definately enhances guai but I choose not to rely on just whey when I KNOW how well guai has worked for me. My brother is taking the same approach. We each have to make choices in our treatment. I choose to stick with what I know works for me. Guai has taken me from house bound back to full life. I have been fortunate that it worked as fast as it did, not everyone gets to feeling better as soon as I have. I still have times I don't feel wonderful but it is still lightyears from where I have been Gretchen > So do you think it is possible to rid any excess phosphates with just the > whey. According to the study done on rats 20% more phosphates were released. There is no doubt in my mind now after about 21/2 months on ImmunePro that it in enhancing Guaifenesin for me! I know because I am purging all the time...bubbles, particles and sometimes the urine is so thick the stream stops and starts, it is also milky looking. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2000 Report Share Posted December 6, 2000 I have a question. If Immunepro works similar to Guaifenesin, do salacylates inhibit Immunepro from working like it does Guaifenesin? lindaj@... Re: Guaifenesin and Immunpro > > > So do you think it is possible to rid any excess phosphates with > just the > > whey. > > According to the study done on rats 20% more phosphates were > released. > > There is no doubt in my mind now after about 21/2 months on ImmunePro > that it in enhancing Guaifenesin for me! I know because I am purging > all the time...bubbles, particles and sometimes the urine is so thick > the stream stops and starts, it is also milky looking. Oh, did I > mention burning. The phosphates turn to phosphoric acid when > released. We Guai users even resort to zinc oxide ointment and Bag > Balm from the chemical burn from the urine. This has happened with > Guai alone but in a more cyclic manner. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2000 Report Share Posted December 6, 2000 > I have a question. If Immunepro works similar to Guaifenesin, do salacylates > inhibit Immunepro from working like it does Guaifenesin? > > > lindaj@h... Good question...I have no idea. Margaret > > Re: Guaifenesin and Immunpro > > > > > > > So do you think it is possible to rid any excess phosphates with > > just the > > > whey. > > > > According to the study done on rats 20% more phosphates were > > released. > > > > There is no doubt in my mind now after about 21/2 months on ImmunePro > > that it in enhancing Guaifenesin for me! I know because I am purging > > all the time...bubbles, particles and sometimes the urine is so thick > > the stream stops and starts, it is also milky looking. Oh, did I > > mention burning. The phosphates turn to phosphoric acid when > > released. We Guai users even resort to zinc oxide ointment and Bag > > Balm from the chemical burn from the urine. This has happened with > > Guai alone but in a more cyclic manner. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2000 Report Share Posted December 7, 2000 are you also on the strict diet armand recommends Fluffy > Message: 21 > Date: Thu, 07 Dec 2000 00:56:53 -0000 > From: rogmarg@d... > Subject: Re: Guaifenesin and Immunpro > > > I personally would not put my entire trust in whey because it is not proven > clinically like Dr. St. Amand's treatment. He has been using this treatment > in one form or another successfully for 40 years. I have been sick for too > long to put all my trust in something I was not sure about. The clinical > experience is not there for whey like it is for guai. I agree with Margaret > that it definately enhances guai but I choose not to rely on just whey when > I KNOW how well guai has worked for me. My brother is taking the same > approach. > > We each have to make choices in our treatment. I choose to stick with what I > know works for me. Guai has taken me from house bound back to full life. I > have been fortunate that it worked as fast as it did, not everyone gets to > feeling better as soon as I have. I still have times I don't feel wonderful > but it is still lightyears from where I have been > > Gretchen > > > So do you think it is possible to rid any excess phosphates with > just the > > whey. > > According to the study done on rats 20% more phosphates were > released. > > There is no doubt in my mind now after about 21/2 months on ImmunePro > that it in enhancing Guaifenesin for me! I know because I am purging > all the time...bubbles, particles and sometimes the urine is so thick > the stream stops and starts, it is also milky looking. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2000 Report Share Posted December 7, 2000 the rats were NOT taking whey. They simply tested glutathione, NOT whey. At 08:45 PM 12/06/2000 -0500, you wrote: >A stupid question - were the rats on guaifenesin before putting them on the >whey? If not, it appears the whey alone does >appear to increase phosphate excretion. > > > > Guaifenesin and Immunpro > > > > > > > > > > Dear Group, > > > > > > > > > > I have been lurking here since a friend told me about this > > group. I > > > > thought it was time to come out of the closet since a discussion > > has been > > > > started on Guai and whey. > > > > > > > > > > I have been on Guaifenesin since Novemeber 23, 1997. > > > > > > > > > > I was dx'd with FM in 1987 and thought my only problem was not > > sleeping > > > > and leg pain. The story of my life is in " What Your Doctor May > > Not Tell > > > You > > > > About Fibromyalgia " by R. St. Amand M.D. and Mareck. > > I know > > > now > > > > that my first flare was at age 19. To make a long story short IBS > > reared > > > its > > > > ugly head, followed by allergies, countless vaginal infections > > leading to > > > a > > > > hysterectomy at age 34, bouts of depression and the list goes > > on. I can > > > > plainly see the waxing and waning over the years of all the > > symptoms > > > leading > > > > to the final crash after a year of unrelenting stress ending with > > the 93 > > > flu > > > > shot. I became very sick two weeks after the shot and kept > > getting worse. > > > I > > > > had also become very sensitive to medications..everything that is > > used for > > > > FM to help symptoms put me in the ER. I had 10 ER visits the > > first year > > > and > > > > evey test for the heart there is since drugs speeded my heart, > > nothing was > > > > found. I also suspect there was reactive hypglycemia involved and > > it will > > > > not show up on a blood test. http://www.tidalweb.com/fms/rhg.shtml > > > > > > > > > > I then decided to see an herbalist..and I was able to take > > herbs but > > > after > > > > nine months was no better. I traveled to a doctor of Environmental > > > Medicine > > > > and did all the usual things..more herb, vitamins, vitamin I.V.s, > > Armour > > > to > > > > try and get the temperature up, yeast and parasite cleanses, > > colonics, > > > > chelation, massage and you name it. I did all this for 6 months > > or more. > > > I > > > > then spent several months with a homeopath and followed his > > protocol to no > > > > avail. I read a book by an FM doctor that seemed to make sense > > treating > > > > everything at once so off I was again and another round of yeast > > killling. > > > > The test showed I had no parasites but yeast was still the high > > end of > > > > normal. I tired NADH, MSM, Creatine, Myers Cocktails, T3 > > therapy, > > > > DHEA, low dose Cortisol and the list goes on. He was the first > > doctor to > > > do > > > > all the necessary tests to rule out Lupus, Lymes, MS, RA, and I > > can't > > > > remember what else. I had started hearing about Guai and asked > > about it > > > and > > > > was told, not yet. Four months later...after no improvement I was > > told to > > > > start Guai. I was told no herbs...but there is more to it than no > > herbs. > > > It > > > > is salicyates in anything put on the skin. Guaifenesin can be > > blocked at > > > the > > > > kidney level by salicylates. > > > > > > > > > > You may read about the entire protocol on Dr. St. Amand's site > > > > www.Guaidoc.com or at the Guai-Support International Site > > > > http://www.netromall.com/guai-support/. I was blocking the first > > three > > > > months until I found the Guai-Support website and the education > > began. The > > > > blockage by the mint in toothpaste was not learned for some time > > so I was > > > > partially blocking with that. It is hard to weed out the sals but > > an > > > > absolute must for this to work. > > > > > > > > > > I also learned that a lot of people with FM are > > hypoglycemic..some > > > because > > > > of heredidty and some because of FM. The body is demanding > > energy..give me > > > > pasta or sugar and I will get energy the brain is saying. I also > > learned > > > > that if you do not release insulin you do not pull phosphates > > into the > > > > cells. Dr. St. Amand has his patients on a low carbohydrate diet > > for the > > > > first two months to jump start them. Most of us have found we > > feel better > > > > with this diet HG or not. > > > > > > > > > > Dr. St. Amand makes a map of the lumps and bumps in the body. > > People > > > with > > > > CFS, FM and MCS all map out the lumps and bumps. I found a > > massage > > > therpist > > > > here that listened to me. He traveled to a seminar Dr. St. Amand > > was > > > giving > > > > and went to the meeting for professionals and had the opportunity > > to learn > > > > the mappng technique. He was finally ready to map. He mapped me > > before I > > > > traveled to CA for an appointment with Dr. St. Amand. He told me > > I must be > > > > blocking with something, I had gained some deposits and the old > > ones were > > > > harder. I did not think so, I was so sure I was not blocking. Dr. > > St. > > > Amand > > > > confirmed it. It took two weeks to find out the culprit. I knew > > my mapper > > > > knew what he was doing and a hard lesson was learned about > > salicylates. I > > > > had blocked for three months and my map was going backwards fast. > > I > > > cleared > > > > it out in one month and I was on my way again. I am now mapped > > once a > > > month > > > > to be certain of not blocking and that the dose is right. > > > > > I have learned that my map strands still at 1800mg Guai so I am > > taking > > > > 2400 at this point. You have to titrate up slowly to find you > > cycling > > > dose. > > > > The instructions are in the book and on the sites. > > > > > > > > > > A GG group member wrote to me about my progress and mentioned > > he was > > > > taking whey. I was leery about another so called cure. He also > > sent me a > > > > lot of research and I finally decided, why not. I found out NEEDS > > was > > > having > > > > a sale on Immunepro so I ordered some. I started at 1/4 tespoon > > and > > > started > > > > purging phophates in 6 hours. I was not sure if it was a regular > > cycle or > > > > not I knew it was not as I titrated the dose to 1 tsp.over time. > > I purged > > > > constantly for about two months. I am taking about eyes burning, > > mouth > > > > burning, hot coming out of everywhere..bubbles and particles in > > the urine. > > > > It also helps to take Cal-Mag with meals as the calcium binds > > with the > > > > phosphates and takes them out in the stool. > > > > > > > > > > I have either been dealing with a virus or a huge cycle of > > sinus and > > > ears > > > > clearing the past couple of weeks. I just finished a course of > > Tequin and > > > > Claritin. I had fluid in my ears and vertigo which was not fun. > > I went > > > off > > > > whey then to calm down the cycle. I saw my MT yesterday, he > > thinks it is > > > due > > > > to the heavy cycling in the neck and shoulders and I am feeling > > much > > > better > > > > today after he loosened me up. My maps have been improving all > > along and > > > > yesterday was not my regular mapping day but he felt a lot more > > changes > > > and > > > > we got out the last map. I had completely lost a big shoulder > > deposit, > > > the > > > > right side of my back has totally cleared > > > > > a big deposit that was very puffed with fluid and ready to > > clear last > > > > month was gone. My MT will do my regular mapping on December 18 > > and I will > > > > put on a report after. Oh, I had been on Immunepro about one > > month at my > > > > last regular mapping and my MT commented about a change in my > > muscles > > > BEFORE > > > > I told him about taking whey. > > > > > > > > > > To end, there is NO DOUBT in my mind that wehy is enhancing > > Guai. I was > > > > about 80% when not cycling on Guai after 3 years and some > > blocking. Guai > > > > takes two months for every year of FM and I know now I was born > > with it. > > > I > > > > planned on 5-6 years to remission but whey is going to shorten > > that time, > > > I > > > > am sure of it now.. I tried Guai because nothing else had worked > > and I had > > > > nothing to lose. I belong to the support list that was about 250 > > or so > > > when > > > > I joined and it is now about 2000 strong. > > > > > > > > > > Oh, one last thing, Guai thins the blood to a certain extent. I > > remember > > > > reading a post about a study on that in the archives of the Guai- > > Support > > > > Group but cannot remember the details. I have read many posts in > > this > > > group > > > > about our thick blood. > > > > > > > > > > The FAQs on the sites will answer most questions on Guai. > > > > > Sincerely, > > > > > Margaret Bush..AL > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > This list is intended for patients to share personal experiences > > with each > > > other, not to give medical advice. If you are interested in any > > treatment > > > discussed here, please consult your doctor. > > > > > > > > > > > > This list is intended for patients to share personal experiences with each >other, not to give medical advice. If you are interested in any treatment >discussed here, please consult your doctor. > > > > > >This list is intended for patients to share personal experiences with each >other, not to give medical advice. If you are interested in any treatment >discussed here, please consult your doctor. Bravo Harvard University Biochemical Sciences Tutorial Office and Library Fairchild 193 7 Divinity Avenue Cambridge, MA 02138 gbravo@... (617)496-5129, (617)495-4106 FAX: (617)496-6148 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2000 Report Share Posted December 7, 2000 I would not not put my entire trust in whey either. I started whey after I had been on Guai nearly 3 years. I know whey is enhancing Guai for me my mappings show faster clearing and I see the purging. There is no dout at all now. I would not do whey alone..that is only 20% release of phosphates in rats. Margaret > > > > Message: 21 > > Date: Thu, 07 Dec 2000 00:56:53 -0000 > > From: rogmarg@d... > > Subject: Re: Guaifenesin and Immunpro > > > > > > I personally would not put my entire trust in whey because it is > not proven > > clinically like Dr. St. Amand's treatment. He has been using this > treatment > > in one form or another successfully for 40 years. I have been sick > for too > > long to put all my trust in something I was not sure about. The > clinical > > experience is not there for whey like it is for guai. I agree with > Margaret > > that it definately enhances guai but I choose not to rely on just > whey when > > I KNOW how well guai has worked for me. My brother is taking the > same > > approach. > > > > We each have to make choices in our treatment. I choose to stick > with what I > > know works for me. Guai has taken me from house bound back to full > life. I > > have been fortunate that it worked as fast as it did, not everyone > gets to > > feeling better as soon as I have. I still have times I don't feel > wonderful > > but it is still lightyears from where I have been > > > > Gretchen > > > > > So do you think it is possible to rid any excess phosphates with > > just the > > > whey. > > > > According to the study done on rats 20% more phosphates were > > released. > > > > There is no doubt in my mind now after about 21/2 months on > ImmunePro > > that it in enhancing Guaifenesin for me! I know because I am purging > > all the time...bubbles, particles and sometimes the urine is so > thick > > the stream stops and starts, it is also milky looking. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2000 Report Share Posted December 7, 2000 > >A stupid question - were the rats on guaifenesin before putting them on the > >whey? If not, it appears the whey alone does > >appear to increase phosphate excretion. > > > > > > > > Guaifenesin and Immunpro > > > > > > > > > > > > Dear Group, > > > > > > > > > > > > I have been lurking here since a friend told me about this > > > group. I > > > > > thought it was time to come out of the closet since a discussion > > > has been > > > > > started on Guai and whey. > > > > > > > > > > > > I have been on Guaifenesin since Novemeber 23, 1997. > > > > > > > > > > > > I was dx'd with FM in 1987 and thought my only problem was not > > > sleeping > > > > > and leg pain. The story of my life is in " What Your Doctor May > > > Not Tell > > > > You > > > > > About Fibromyalgia " by R. St. Amand M.D. and Mareck. > > > I know > > > > now > > > > > that my first flare was at age 19. To make a long story short IBS > > > reared > > > > its > > > > > ugly head, followed by allergies, countless vaginal infections > > > leading to > > > > a > > > > > hysterectomy at age 34, bouts of depression and the list goes > > > on. I can > > > > > plainly see the waxing and waning over the years of all the > > > symptoms > > > > leading > > > > > to the final crash after a year of unrelenting stress ending with > > > the 93 > > > > flu > > > > > shot. I became very sick two weeks after the shot and kept > > > getting worse. > > > > I > > > > > had also become very sensitive to medications..everything that is > > > used for > > > > > FM to help symptoms put me in the ER. I had 10 ER visits the > > > first year > > > > and > > > > > evey test for the heart there is since drugs speeded my heart, > > > nothing was > > > > > found. I also suspect there was reactive hypglycemia involved and > > > it will > > > > > not show up on a blood test. http://www.tidalweb.com/fms/rhg.shtml > > > > > > > > > > > > I then decided to see an herbalist..and I was able to take > > > herbs but > > > > after > > > > > nine months was no better. I traveled to a doctor of Environmental > > > > Medicine > > > > > and did all the usual things..more herb, vitamins, vitamin I.V.s, > > > Armour > > > > to > > > > > try and get the temperature up, yeast and parasite cleanses, > > > colonics, > > > > > chelation, massage and you name it. I did all this for 6 months > > > or more. > > > > I > > > > > then spent several months with a homeopath and followed his > > > protocol to no > > > > > avail. I read a book by an FM doctor that seemed to make sense > > > treating > > > > > everything at once so off I was again and another round of yeast > > > killling. > > > > > The test showed I had no parasites but yeast was still the high > > > end of > > > > > normal. I tired NADH, MSM, Creatine, Myers Cocktails, T3 > > > therapy, > > > > > DHEA, low dose Cortisol and the list goes on. He was the first > > > doctor to > > > > do > > > > > all the necessary tests to rule out Lupus, Lymes, MS, RA, and I > > > can't > > > > > remember what else. I had started hearing about Guai and asked > > > about it > > > > and > > > > > was told, not yet. Four months later...after no improvement I was > > > told to > > > > > start Guai. I was told no herbs...but there is more to it than no > > > herbs. > > > > It > > > > > is salicyates in anything put on the skin. Guaifenesin can be > > > blocked at > > > > the > > > > > kidney level by salicylates. > > > > > > > > > > > > You may read about the entire protocol on Dr. St. Amand's site > > > > > www.Guaidoc.com or at the Guai-Support International Site > > > > > http://www.netromall.com/guai-support/. I was blocking the first > > > three > > > > > months until I found the Guai-Support website and the education > > > began. The > > > > > blockage by the mint in toothpaste was not learned for some time > > > so I was > > > > > partially blocking with that. It is hard to weed out the sals but > > > an > > > > > absolute must for this to work. > > > > > > > > > > > > I also learned that a lot of people with FM are > > > hypoglycemic..some > > > > because > > > > > of heredidty and some because of FM. The body is demanding > > > energy..give me > > > > > pasta or sugar and I will get energy the brain is saying. I also > > > learned > > > > > that if you do not release insulin you do not pull phosphates > > > into the > > > > > cells. Dr. St. Amand has his patients on a low carbohydrate diet > > > for the > > > > > first two months to jump start them. Most of us have found we > > > feel better > > > > > with this diet HG or not. > > > > > > > > > > > > Dr. St. Amand makes a map of the lumps and bumps in the body. > > > People > > > > with > > > > > CFS, FM and MCS all map out the lumps and bumps. I found a > > > massage > > > > therpist > > > > > here that listened to me. He traveled to a seminar Dr. St. Amand > > > was > > > > giving > > > > > and went to the meeting for professionals and had the opportunity > > > to learn > > > > > the mappng technique. He was finally ready to map. He mapped me > > > before I > > > > > traveled to CA for an appointment with Dr. St. Amand. He told me > > > I must be > > > > > blocking with something, I had gained some deposits and the old > > > ones were > > > > > harder. I did not think so, I was so sure I was not blocking. Dr. > > > St. > > > > Amand > > > > > confirmed it. It took two weeks to find out the culprit. I knew > > > my mapper > > > > > knew what he was doing and a hard lesson was learned about > > > salicylates. I > > > > > had blocked for three months and my map was going backwards fast. > > > I > > > > cleared > > > > > it out in one month and I was on my way again. I am now mapped > > > once a > > > > month > > > > > to be certain of not blocking and that the dose is right. > > > > > > I have learned that my map strands still at 1800mg Guai so I am > > > taking > > > > > 2400 at this point. You have to titrate up slowly to find you > > > cycling > > > > dose. > > > > > The instructions are in the book and on the sites. > > > > > > > > > > > > A GG group member wrote to me about my progress and mentioned > > > he was > > > > > taking whey. I was leery about another so called cure. He also > > > sent me a > > > > > lot of research and I finally decided, why not. I found out NEEDS > > > was > > > > having > > > > > a sale on Immunepro so I ordered some. I started at 1/4 tespoon > > > and > > > > started > > > > > purging phophates in 6 hours. I was not sure if it was a regular > > > cycle or > > > > > not I knew it was not as I titrated the dose to 1 tsp.over time. > > > I purged > > > > > constantly for about two months. I am taking about eyes burning, > > > mouth > > > > > burning, hot coming out of everywhere..bubbles and particles in > > > the urine. > > > > > It also helps to take Cal-Mag with meals as the calcium binds > > > with the > > > > > phosphates and takes them out in the stool. > > > > > > > > > > > > I have either been dealing with a virus or a huge cycle of > > > sinus and > > > > ears > > > > > clearing the past couple of weeks. I just finished a course of > > > Tequin and > > > > > Claritin. I had fluid in my ears and vertigo which was not fun. > > > I went > > > > off > > > > > whey then to calm down the cycle. I saw my MT yesterday, he > > > thinks it is > > > > due > > > > > to the heavy cycling in the neck and shoulders and I am feeling > > > much > > > > better > > > > > today after he loosened me up. My maps have been improving all > > > along and > > > > > yesterday was not my regular mapping day but he felt a lot more > > > changes > > > > and > > > > > we got out the last map. I had completely lost a big shoulder > > > deposit, > > > > the > > > > > right side of my back has totally cleared > > > > > > a big deposit that was very puffed with fluid and ready to > > > clear last > > > > > month was gone. My MT will do my regular mapping on December 18 > > > and I will > > > > > put on a report after. Oh, I had been on Immunepro about one > > > month at my > > > > > last regular mapping and my MT commented about a change in my > > > muscles > > > > BEFORE > > > > > I told him about taking whey. > > > > > > > > > > > > To end, there is NO DOUBT in my mind that wehy is enhancing > > > Guai. I was > > > > > about 80% when not cycling on Guai after 3 years and some > > > blocking. Guai > > > > > takes two months for every year of FM and I know now I was born > > > with it. > > > > I > > > > > planned on 5-6 years to remission but whey is going to shorten > > > that time, > > > > I > > > > > am sure of it now.. I tried Guai because nothing else had worked > > > and I had > > > > > nothing to lose. I belong to the support list that was about 250 > > > or so > > > > when > > > > > I joined and it is now about 2000 strong. > > > > > > > > > > > > Oh, one last thing, Guai thins the blood to a certain extent. I > > > remember > > > > > reading a post about a study on that in the archives of the Guai- > > > Support > > > > > Group but cannot remember the details. I have read many posts in > > > this > > > > group > > > > > about our thick blood. > > > > > > > > > > > > The FAQs on the sites will answer most questions on Guai. > > > > > > Sincerely, > > > > > > Margaret Bush..AL > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > This list is intended for patients to share personal experiences > > > with each > > > > other, not to give medical advice. If you are interested in any > > > treatment > > > > discussed here, please consult your doctor. > > > > > > > > > > > > > > > > > This list is intended for patients to share personal experiences with each > >other, not to give medical advice. If you are interested in any treatment > >discussed here, please consult your doctor. > > > > > > > > > > >This list is intended for patients to share personal experiences with each > >other, not to give medical advice. If you are interested in any treatment > >discussed here, please consult your doctor. > > Bravo > Harvard University > Biochemical Sciences Tutorial Office and Library > Fairchild 193 > 7 Divinity Avenue > Cambridge, MA 02138 > gbravo@f... > (617)496-5129, (617)495-4106 > FAX: (617)496-6148 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2000 Report Share Posted December 8, 2000 , It seems to me that salicylates would not be able to block all of the actions of Immunepro, because it supplies the amino acids needed to make glutathione, and glutathione has many other actions in the body beside helping to excrete more phosphate, as Greg Bravo has discovered. Whether salicylates can block the action of Immunepro is helping to excrete more phosphate, I don't know. I don't think we know (biochemically) how guaifenesin acts to increase phosphate excretion, and how salicylates block it. Dr. St. Amand's book suggests that salicylates compete with guaifenesin for a receptor site in the kidneys. I don't know if he has proof for that, or whether it is just a hypothesis. In any case, he doesn't identify the receptor. Perhaps some of the people who have been taking Immunepro and also some form of salicylate can say whether they think they are dumping phosphate, on the basis of the characteristics of their urine. Rich > I have a question. If Immunepro works similar to Guaifenesin, do salacylates > inhibit Immunepro from working like it does Guaifenesin? > > > lindaj@h... > > Re: Guaifenesin and Immunpro > > > > > > > So do you think it is possible to rid any excess phosphates with > > just the > > > whey. > > > > According to the study done on rats 20% more phosphates were > > released. > > > > There is no doubt in my mind now after about 21/2 months on ImmunePro > > that it in enhancing Guaifenesin for me! I know because I am purging > > all the time...bubbles, particles and sometimes the urine is so thick > > the stream stops and starts, it is also milky looking. Oh, did I > > mention burning. The phosphates turn to phosphoric acid when > > released. We Guai users even resort to zinc oxide ointment and Bag > > Balm from the chemical burn from the urine. This has happened with > > Guai alone but in a more cyclic manner. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.