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Judy,

Twitching is very common in CFS. I found that an increase in the degree of

my muscle twitching sometimes preceded a downturn in my condition. Steve B.

Re: muscle twitching and cramping

>

> Hi folks,

> After having a normal neurological test and a normal MRI last week I

started

> getting not only the tingling in the limbs which I had for the past month

> (for which they sent me for an MRI in the first place) but now I got

muscle

> twitches, on and off in various places, more my legs than anywhere else,

and

> two days later, muscle cramps or what seems like sore muscles. More in the

> back of my upper legs near my backside. I feel like I exercized too much

> (dont remember that feeling, maybe from pre CFS days...) and it may come

> from having too much twitching of those muscles or something else. I was

> told that lots of people with CFS and Fibro have these sensations and that

I

> should try magnesium and calcium supplements, does anyone recognize these

> symptoms? Particularly after they show up only in my second year of CFS

when

> I was beginning to feel better, have more energy etc? I hope it's not

> something serious...asked one neuro and he said, not to worry , it sounds

> like more CFS stuff, but I will only get to the " specialist " next week to

> double check. Any info?

> Thanks

> Judy B.

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

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Hi folks,

After having a normal neurological test and a normal MRI last week I started

getting not only the tingling in the limbs which I had for the past month

(for which they sent me for an MRI in the first place) but now I got muscle

twitches, on and off in various places, more my legs than anywhere else, and

two days later, muscle cramps or what seems like sore muscles. More in the

back of my upper legs near my backside. I feel like I exercized too much

(dont remember that feeling, maybe from pre CFS days...) and it may come

from having too much twitching of those muscles or something else. I was

told that lots of people with CFS and Fibro have these sensations and that I

should try magnesium and calcium supplements, does anyone recognize these

symptoms? Particularly after they show up only in my second year of CFS when

I was beginning to feel better, have more energy etc? I hope it's not

something serious...asked one neuro and he said, not to worry , it sounds

like more CFS stuff, but I will only get to the " specialist " next week to

double check. Any info?

Thanks

Judy B.

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COngrats on MRI. My muscles were going crazy up and down my legs. After

awhile it just stopped - that was about 8 years ago. Now I have lots of

tingling particularly when I have been exposed to high amounts of chemicals

or molds. Be prepared for other things to come and go.

>From: " judy " <baumelj@...>

>Reply-egroups

><egroups>

>Subject: Re: muscle twitching and cramping

>Date: Thu, 12 Oct 2000 21:10:34 +0200

>

>Thanks Steve, I didnt have it until now, I hear it is very common, I guess

>I

>was lucky not to have it. As for downturn....let's hope for the best, it

>used to be that my " trigger " to know that a downturn was starting was a

>pain

>in the joint in the middle left of my chest, that's actually how the whole

>thing started. Now I dont have that but the twitching and cramp. Oh well,

>never a dull moment...

>Thanks again for the input.

>Judy B.

>

> Re: muscle twitching and cramping

> >

> >

> > >

> > > Hi folks,

> > > After having a normal neurological test and a normal MRI last week I

> > started

> > > getting not only the tingling in the limbs which I had for the past

>month

> > > (for which they sent me for an MRI in the first place) but now I got

> > muscle

> > > twitches, on and off in various places, more my legs than anywhere

>else,

> > and

> > > two days later, muscle cramps or what seems like sore muscles. More in

>the

> > > back of my upper legs near my backside. I feel like I exercized too

>much

> > > (dont remember that feeling, maybe from pre CFS days...) and it may

>come

> > > from having too much twitching of those muscles or something else. I

>was

> > > told that lots of people with CFS and Fibro have these sensations and

>that

> > I

> > > should try magnesium and calcium supplements, does anyone recognize

>these

> > > symptoms? Particularly after they show up only in my second year of

>CFS

> > when

> > > I was beginning to feel better, have more energy etc? I hope it's not

> > > something serious...asked one neuro and he said, not to worry , it

>sounds

> > > like more CFS stuff, but I will only get to the " specialist " next week

>to

> > > double check. Any info?

> > > Thanks

> > > Judy B.

> > >

> > >

> > >

> > > This list is intended for patients to share personal experiences with

>each

> > other, not to give medical advice. If you are interested in any

>treatment

> > discussed here, please consult your doctor.

> > >

> >

> >

> >

> > This list is intended for patients to share personal experiences with

>each

>other, not to give medical advice. If you are interested in any treatment

>discussed here, please consult your doctor.

> >

> >

>

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Thanks Steve, I didnt have it until now, I hear it is very common, I guess I

was lucky not to have it. As for downturn....let's hope for the best, it

used to be that my " trigger " to know that a downturn was starting was a pain

in the joint in the middle left of my chest, that's actually how the whole

thing started. Now I dont have that but the twitching and cramp. Oh well,

never a dull moment...

Thanks again for the input.

Judy B.

Re: muscle twitching and cramping

>

>

> >

> > Hi folks,

> > After having a normal neurological test and a normal MRI last week I

> started

> > getting not only the tingling in the limbs which I had for the past

month

> > (for which they sent me for an MRI in the first place) but now I got

> muscle

> > twitches, on and off in various places, more my legs than anywhere else,

> and

> > two days later, muscle cramps or what seems like sore muscles. More in

the

> > back of my upper legs near my backside. I feel like I exercized too much

> > (dont remember that feeling, maybe from pre CFS days...) and it may come

> > from having too much twitching of those muscles or something else. I was

> > told that lots of people with CFS and Fibro have these sensations and

that

> I

> > should try magnesium and calcium supplements, does anyone recognize

these

> > symptoms? Particularly after they show up only in my second year of CFS

> when

> > I was beginning to feel better, have more energy etc? I hope it's not

> > something serious...asked one neuro and he said, not to worry , it

sounds

> > like more CFS stuff, but I will only get to the " specialist " next week

to

> > double check. Any info?

> > Thanks

> > Judy B.

> >

> >

> >

> > This list is intended for patients to share personal experiences with

each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

> >

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

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>I was told that lots of people with CFS and Fibro have these sensations

>and that Ishould try magnesium and calcium supplements, does anyone

>recognize these symptoms?

Judy,

I started out with FMS and now have both that and CFIDS. I get the

muscle twitching from time to time, usually when I have overdone the

physical activities - too much standing in place or too many stairs etc. I

don't normally crash after it, so it may not happen to you either.

-Theresa

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Sandy,

Cheney never recommended calcium supplementation alone but the

mutivitamin/mineral that he recommends has calcium in it. Steve B.

Re: muscle twitching and cramping

> Hi Judy, Steve, and Everyone,

>

> Muscle twitching is often a symptom of magnesium deficiency which is

> common in PWC's. Judy, you mentioned taking mag and calcium. Calcium

> decreases the amounts of mag in your body, so you want to be sure to

> take

> twice as much mag. Dr. Cheney recommends magnesium glycinate. I'm not

> sure

> what kind of calcium he recommends, if any at all. Steve, (or any

> Cheney

> patients) did he recommend calcium to you? I don't recall it being part

> of his listed treatment protocol, but I'm very interested because after

> 12 yrs of CFIDS including the last four in a wheelchair most of the

> time,

> I was just diagnosed with osteoporosis.

>

> My doctor wants me to start taking Fosamax. Is anyone else dealing with

> thinning bones? If so, I'd be interested in your thoughts on treatment.

> Sandy

>

> " R. Bullock " wrote:

> >

> > Judy,

> > > Twitching is very common in CFS. I found that an increase in the

degree of

> > my muscle twitching sometimes preceded a downturn in my condition.

Steve B.

> > ----- Original Message -----

> > From: " judy " <baumelj@...>

> > >

> > > Hi folks,

> > > After having a normal neurological test and a normal MRI last weere

else,

>

> > > two days later, muscle cramps or what seems like sore muscles. More in

the

> > > back of my upper legs near my backside.

> > I

> > > should try magnesium and calcium supplements, does anyone recognize

these

> > > symptoms? Particularly after they show up only in my second year of

CFS

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

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,

I haven't found any one treatment in particular that gets rid of the

twitching. My twitching dissapeared gradually after a year of treating the

entire illness from every direction. Steve B.

Re: Re: muscle twitching and cramping

> I have muscle twitching and take a lot of Magnesium; it doesn't seem to

> do any good. I don't take calcium supplements because I haven't figured

> out the role calcium plays in this disease yet. I've heard it

> recommended and contraindicated and don't recall the reasons. Anyone

> out there feel like they have a handle on the calcium thing? but,

> really, twitching is the least of my problems and if I could pick one

> symptom to keep if I could get rid of the rest, twitching would be real

> near the top. I do also have a little bit of cramping but infrequent

> and transient.

> E.

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

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Hi Judy, Steve, and Everyone,

Muscle twitching is often a symptom of magnesium deficiency which is

common in PWC's. Judy, you mentioned taking mag and calcium. Calcium

decreases the amounts of mag in your body, so you want to be sure to

take

twice as much mag. Dr. Cheney recommends magnesium glycinate. I'm not

sure

what kind of calcium he recommends, if any at all. Steve, (or any

Cheney

patients) did he recommend calcium to you? I don't recall it being part

of his listed treatment protocol, but I'm very interested because after

12 yrs of CFIDS including the last four in a wheelchair most of the

time,

I was just diagnosed with osteoporosis.

My doctor wants me to start taking Fosamax. Is anyone else dealing with

thinning bones? If so, I'd be interested in your thoughts on treatment.

Sandy

" R. Bullock " wrote:

>

> Judy,

> > Twitching is very common in CFS. I found that an increase in the degree of

> my muscle twitching sometimes preceded a downturn in my condition. Steve B.

> ----- Original Message -----

> From: " judy " <baumelj@...>

> >

> > Hi folks,

> > After having a normal neurological test and a normal MRI last weere else,

> > two days later, muscle cramps or what seems like sore muscles. More in the

> > back of my upper legs near my backside.

> I

> > should try magnesium and calcium supplements, does anyone recognize these

> > symptoms? Particularly after they show up only in my second year of CFS

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I have muscle twitching and take a lot of Magnesium; it doesn't seem to

do any good. I don't take calcium supplements because I haven't figured

out the role calcium plays in this disease yet. I've heard it

recommended and contraindicated and don't recall the reasons. Anyone

out there feel like they have a handle on the calcium thing? but,

really, twitching is the least of my problems and if I could pick one

symptom to keep if I could get rid of the rest, twitching would be real

near the top. I do also have a little bit of cramping but infrequent

and transient.

E.

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Steve E,

I have twitching in one eye that has significantly abated since my messing

with lipoic acid. I think for me it may have chelated some metal out so I

don't know. Got the twitching twice - after amalgams were removed and then

after the Timerasol (organic mercury) debacle recently. I mention bc maybe

it was due to some other thing or property the lipoic has - that I am not

aware of...Mag didn't do a thing.

> I have muscle twitching and take a lot of Magnesium; it doesn't seem to

> do any good.

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Thanks Cort, I assume that a negative MRI and neurological test are the most

important thing. As for symptoms.....I am running out of strength, will

learn to live with all of them and funny enough I have more energy than I

did for most of last year...who knows.

Judy

Re: muscle twitching and cramping

> > >

> > >

> > > >

> > > > Hi folks,

> > > > After having a normal neurological test and a normal MRI last week I

> > > started

> > > > getting not only the tingling in the limbs which I had for the past

> >month

> > > > (for which they sent me for an MRI in the first place) but now I got

> > > muscle

> > > > twitches, on and off in various places, more my legs than anywhere

> >else,

> > > and

> > > > two days later, muscle cramps or what seems like sore muscles. More

in

> >the

> > > > back of my upper legs near my backside. I feel like I exercized too

> >much

> > > > (dont remember that feeling, maybe from pre CFS days...) and it may

> >come

> > > > from having too much twitching of those muscles or something else. I

> >was

> > > > told that lots of people with CFS and Fibro have these sensations

and

> >that

> > > I

> > > > should try magnesium and calcium supplements, does anyone recognize

> >these

> > > > symptoms? Particularly after they show up only in my second year of

> >CFS

> > > when

> > > > I was beginning to feel better, have more energy etc? I hope it's

not

> > > > something serious...asked one neuro and he said, not to worry , it

> >sounds

> > > > like more CFS stuff, but I will only get to the " specialist " next

week

> >to

> > > > double check. Any info?

> > > > Thanks

> > > > Judy B.

> > > >

> > > >

> > > >

> > > > This list is intended for patients to share personal experiences

with

> >each

> > > other, not to give medical advice. If you are interested in any

> >treatment

> > > discussed here, please consult your doctor.

> > > >

> > >

> > >

> > >

> > > This list is intended for patients to share personal experiences with

> >each

> >other, not to give medical advice. If you are interested in any

treatment

> >discussed here, please consult your doctor.

> > >

> > >

> >

>

> _________________________________________________________________________

> Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

>

> Share information about yourself, create your own public profile at

> http://profiles.msn.com.

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

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THis is a complicated disease isn't it? I have more energy and feel better

but now have terrible chemical sensitivities and weird neurological

symptoms. Very bizarre

>From: " judy " <baumelj@...>

>Reply-egroups

><egroups>

>Subject: Re: muscle twitching and cramping

>Date: Fri, 13 Oct 2000 11:12:11 +0200

>

>Thanks Cort, I assume that a negative MRI and neurological test are the

>most

>important thing. As for symptoms.....I am running out of strength, will

>learn to live with all of them and funny enough I have more energy than I

>did for most of last year...who knows.

>Judy

>

> Re: muscle twitching and cramping

> > > >

> > > >

> > > > >

> > > > > Hi folks,

> > > > > After having a normal neurological test and a normal MRI last week

>I

> > > > started

> > > > > getting not only the tingling in the limbs which I had for the

>past

> > >month

> > > > > (for which they sent me for an MRI in the first place) but now I

>got

> > > > muscle

> > > > > twitches, on and off in various places, more my legs than anywhere

> > >else,

> > > > and

> > > > > two days later, muscle cramps or what seems like sore muscles.

>More

>in

> > >the

> > > > > back of my upper legs near my backside. I feel like I exercized

>too

> > >much

> > > > > (dont remember that feeling, maybe from pre CFS days...) and it

>may

> > >come

> > > > > from having too much twitching of those muscles or something else.

>I

> > >was

> > > > > told that lots of people with CFS and Fibro have these sensations

>and

> > >that

> > > > I

> > > > > should try magnesium and calcium supplements, does anyone

>recognize

> > >these

> > > > > symptoms? Particularly after they show up only in my second year

>of

> > >CFS

> > > > when

> > > > > I was beginning to feel better, have more energy etc? I hope it's

>not

> > > > > something serious...asked one neuro and he said, not to worry , it

> > >sounds

> > > > > like more CFS stuff, but I will only get to the " specialist " next

>week

> > >to

> > > > > double check. Any info?

> > > > > Thanks

> > > > > Judy B.

> > > > >

> > > > >

> > > > >

> > > > > This list is intended for patients to share personal experiences

>with

> > >each

> > > > other, not to give medical advice. If you are interested in any

> > >treatment

> > > > discussed here, please consult your doctor.

> > > > >

> > > >

> > > >

> > > >

> > > > This list is intended for patients to share personal experiences

>with

> > >each

> > >other, not to give medical advice. If you are interested in any

>treatment

> > >discussed here, please consult your doctor.

> > > >

> > > >

> > >

> >

> >

>_________________________________________________________________________

> > Get Your Private, Free E-mail from MSN Hotmail at

>http://www.hotmail.com.

> >

> > Share information about yourself, create your own public profile at

> > http://profiles.msn.com.

> >

> >

> >

> > This list is intended for patients to share personal experiences with

>each

>other, not to give medical advice. If you are interested in any treatment

>discussed here, please consult your doctor.

> >

> >

>

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Hi Judy,

I too, have the problem with muscle twitching and cramping, but only after

exposure to chemical substances. Usually I add additional a

magnesium/calcium supplement at night (min 250 mag/500cal). (sorry I

haven't answered your last e-mail, but since I went back to work, I find it

difficult to keep up with the mail).

Hag Sameach

Katrin

Re: muscle twitching and cramping

>Date: Fri, 13 Oct 2000 11:12:11 +0200

>

>Thanks Cort, I assume that a negative MRI and neurological test are the

>most

>important thing. As for symptoms.....I am running out of strength, will

>learn to live with all of them and funny enough I have more energy than I

>did for most of last year...who knows.

>Judy

>

> Re: muscle twitching and cramping

> > > >

> > > >

> > > > >

> > > > > Hi folks,

> > > > > After having a normal neurological test and a normal MRI last

week

>I

> > > > started

> > > > > getting not only the tingling in the limbs which I had for the

>past

> > >month

> > > > > (for which they sent me for an MRI in the first place) but now I

>got

> > > > muscle

> > > > > twitches, on and off in various places, more my legs than

anywhere

> > >else,

> > > > and

> > > > > two days later, muscle cramps or what seems like sore muscles.

>More

>in

> > >the

> > > > > back of my upper legs near my backside. I feel like I exercized

>too

> > >much

> > > > > (dont remember that feeling, maybe from pre CFS days...) and it

>may

> > >come

> > > > > from having too much twitching of those muscles or something

else.

>I

> > >was

> > > > > told that lots of people with CFS and Fibro have these sensations

>and

> > >that

> > > > I

> > > > > should try magnesium and calcium supplements, does anyone

>recognize

> > >these

> > > > > symptoms? Particularly after they show up only in my second year

>of

> > >CFS

> > > > when

> > > > > I was beginning to feel better, have more energy etc? I hope it's

>not

> > > > > something serious...asked one neuro and he said, not to worry ,

it

> > >sounds

> > > > > like more CFS stuff, but I will only get to the " specialist " next

>week

> > >to

> > > > > double check. Any info?

> > > > > Thanks

> > > > > Judy B.

> > > > >

> > > > >

> > > > >

> > > > > This list is intended for patients to share personal experiences

>with

> > >each

> > > > other, not to give medical advice. If you are interested in any

> > >treatment

> > > > discussed here, please consult your doctor.

> > > > >

> > > >

> > > >

> > > >

> > > > This list is intended for patients to share personal experiences

>with

> > >each

> > >other, not to give medical advice. If you are interested in any

>treatment

> > >discussed here, please consult your doctor.

> > > >

> > > >

> > >

> >

> >

>_________________________________________________________________________

> > Get Your Private, Free E-mail from MSN Hotmail at

>http://www.hotmail.com.

> >

> > Share information about yourself, create your own public profile at

> > http://profiles.msn.com.

> >

> >

> >

> > This list is intended for patients to share personal experiences with

>each

>other, not to give medical advice. If you are interested in any treatment

>discussed here, please consult your doctor.

> >

> >

>

_________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

Share information about yourself, create your own public profile at

http://profiles.msn.com.

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

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> I have muscle twitching and take a lot of Magnesium; it doesn't

seem

to

> do any good. I don't take calcium supplements because I haven't

figured

> out the role calcium plays in this disease yet. I've heard it

> recommended and contraindicated and don't recall the reasons.

Anyone

> out there feel like they have a handle on the calcium thing? but,

> really, twitching is the least of my problems and if I could pick

one

> symptom to keep if I could get rid of the rest, twitching would be

real

> near the top. I do also have a little bit of cramping but

infrequent

> and transient.

> E.

In my opinion, it would be a good idea to take calcium, along with

magnesium and zinc. One reason is that they are competitively

absorbed in the gut, so that if you boost the magnesium without

boosting the others, you will go low in them. The other reason is

that many PWCs have elevated citrate. Citrate in the blood will

chelate calcium, just as it chelates magnesium, and will cause them

to

be lost in the urine at a greater than normal rate.

Rich

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> Alpha lipoic acid contains sulfur. That may have been used to tie up

> your mercury and get rid of it.

>

> Rich

>

I think this must be the case as it was an immediate result altho I got

really sick from how much lipoic acid was used. Next time I am thinking to

put 25 mg in the IV bag, (my doc was thinking 50) as the original amount was

400mg.

Rich, do you know if a person shows poor sulfation on a GSDL test whether

that means that they need more sulfur, or cannot tolerate sulfur or both?

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> Steve E,

>

> I have twitching in one eye that has significantly abated since my

messing

> with lipoic acid. I think for me it may have chelated some metal

out so I

> don't know. Got the twitching twice - after amalgams were removed

and then

> after the Timerasol (organic mercury) debacle recently. I mention

bc maybe

> it was due to some other thing or property the lipoic has - that I

am not

> aware of...Mag didn't do a thing.

>

Alpha lipoic acid contains sulfur. That may have been used to tie up

your mercury and get rid of it.

Rich

>

> > I have muscle twitching and take a lot of Magnesium; it doesn't

seem to

> > do any good.

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>

> > Alpha lipoic acid contains sulfur. That may have been used to

tie

up

> > your mercury and get rid of it.

> >

> > Rich

> >

> I think this must be the case as it was an immediate result altho I

got

> really sick from how much lipoic acid was used. Next time I am

thinking to

> put 25 mg in the IV bag, (my doc was thinking 50) as the original

amount was

> 400mg.

>

> Rich, do you know if a person shows poor sulfation on a GSDL test

whether

> that means that they need more sulfur, or cannot tolerate sulfur or

both?

>

>

It means they need more sulfur or they're short on molybdenum. In

CFS, where glutathione depletion appears to be a common etiology,

sulfur depletion is a good possibility, since glutathione contains

cysteine, which is a sulfur-containing amino acid. Others are

methionine and taurine. The normal body has means of converting from

one sulfur-containing substance to another. I suspect that

glutathione depletion can affect sulfation as well as a variety of

other things that use some form of sulfur, such as bile conjugation

by

taurine, proper development hair and nails, which contain cysteine,

and proper operation of joints, which requires sulfate. I think that

if we accurately track the complete biochemistry that follows from

depleting glutathione, we will find a lot of CFS symptoms explained.

Some PWCs report benefit from taking MSM, another sulfur compound. I

think all of this ties together.

Rich

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Thanks Katrin,

Today was the first day in a month that the pins and needles and feeling of

electricity was much less, however I still have the twitching and jumping.

I'm now upping my dosage of magnesium to 6 pills a day (active ingredients

aobut 133 mg per pill) and I take 600 mg. calcium as well. in two dosages of

300 each. I hope for the best.

Hag Sameach,

Judy

Re: muscle twitching and cramping

> > > > >

> > > > >

> > > > > >

> > > > > > Hi folks,

> > > > > > After having a normal neurological test and a normal MRI last

> week

> >I

> > > > > started

> > > > > > getting not only the tingling in the limbs which I had for the

> >past

> > > >month

> > > > > > (for which they sent me for an MRI in the first place) but now I

> >got

> > > > > muscle

> > > > > > twitches, on and off in various places, more my legs than

> anywhere

> > > >else,

> > > > > and

> > > > > > two days later, muscle cramps or what seems like sore muscles.

> >More

> >in

> > > >the

> > > > > > back of my upper legs near my backside. I feel like I exercized

> >too

> > > >much

> > > > > > (dont remember that feeling, maybe from pre CFS days...) and it

> >may

> > > >come

> > > > > > from having too much twitching of those muscles or something

> else.

> >I

> > > >was

> > > > > > told that lots of people with CFS and Fibro have these

sensations

> >and

> > > >that

> > > > > I

> > > > > > should try magnesium and calcium supplements, does anyone

> >recognize

> > > >these

> > > > > > symptoms? Particularly after they show up only in my second year

> >of

> > > >CFS

> > > > > when

> > > > > > I was beginning to feel better, have more energy etc? I hope

it's

> >not

> > > > > > something serious...asked one neuro and he said, not to worry ,

> it

> > > >sounds

> > > > > > like more CFS stuff, but I will only get to the " specialist "

next

> >week

> > > >to

> > > > > > double check. Any info?

> > > > > > Thanks

> > > > > > Judy B.

> > > > > >

> > > > > >

> > > > > >

> > > > > > This list is intended for patients to share personal experiences

> >with

> > > >each

> > > > > other, not to give medical advice. If you are interested in any

> > > >treatment

> > > > > discussed here, please consult your doctor.

> > > > > >

> > > > >

> > > > >

> > > > >

> > > > > This list is intended for patients to share personal experiences

> >with

> > > >each

> > > >other, not to give medical advice. If you are interested in any

> >treatment

> > > >discussed here, please consult your doctor.

> > > > >

> > > > >

> > > >

> > >

> > >

> >_________________________________________________________________________

> > > Get Your Private, Free E-mail from MSN Hotmail at

> >http://www.hotmail.com.

> > >

> > > Share information about yourself, create your own public profile at

> > > http://profiles.msn.com.

> > >

> > >

> > >

> > > This list is intended for patients to share personal experiences with

> >each

> >other, not to give medical advice. If you are interested in any

treatment

> >discussed here, please consult your doctor.

> > >

> > >

> >

>

> _________________________________________________________________________

> Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

>

> Share information about yourself, create your own public profile at

> http://profiles.msn.com.

>

>

>

> This list is intended for patients to share personal experiences with each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

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Hi Judy & E.

For better absorption of magnesium it is recommended to take it together

with calcium in a 1:2 ratio. If you take 800 mg magnesium, you would need

1500-1600 mg calcium.

Boron, vitamin B6 and vitamin C also improve efficiency.

Best regards

Katrin

Re: muscle twitching and cramping

Thanks Katrin,

Today was the first day in a month that the pins and needles and feeling of

electricity was much less, however I still have the twitching and jumping.

I'm now upping my dosage of magnesium to 6 pills a day (active ingredients

aobut 133 mg per pill) and I take 600 mg. calcium as well. in two dosages

of

300 each. I hope for the best.

Hag Sameach,

Judy

Re: muscle twitching and cramping

> > > > >

> > > > >

> > > > > >

> > > > > > Hi folks,

> > > > > > After having a normal neurological test and a normal MRI last

> week

> >I

> > > > > started

> > > > > > getting not only the tingling in the limbs which I had for the

> >past

> > > >month

> > > > > > (for which they sent me for an MRI in the first place) but now

I

> >got

> > > > > muscle

> > > > > > twitches, on and off in various places, more my legs than

> anywhere

> > > >else,

> > > > > and

> > > > > > two days later, muscle cramps or what seems like sore muscles.

> >More

> >in

> > > >the

> > > > > > back of my upper legs near my backside. I feel like I exercized

> >too

> > > >much

> > > > > > (dont remember that feeling, maybe from pre CFS days...) and it

> >may

> > > >come

> > > > > > from having too much twitching of those muscles or something

> else.

> >I

> > > >was

> > > > > > told that lots of people with CFS and Fibro have these

sensations

> >and

> > > >that

> > > > > I

> > > > > > should try magnesium and calcium supplements, does anyone

> >recognize

> > > >these

> > > > > > symptoms? Particularly after they show up only in my second

year

> >of

> > > >CFS

> > > > > when

> > > > > > I was beginning to feel better, have more energy etc? I hope

it's

> >not

> > > > > > something serious...asked one neuro and he said, not to worry ,

> it

> > > >sounds

> > > > > > like more CFS stuff, but I will only get to the " specialist "

next

> >week

> > > >to

> > > > > > double check. Any info?

> > > > > > Thanks

> > > > > > Judy B.

> > > > > >

> > > > > >

> > > > > >

> > > > > > This list is intended for patients to share personal

experiences

> >with

> > > >each

> > > > > other, not to give medical advice. If you are interested in any

> > > >treatment

> > > > > discussed here, please consult your doctor.

> > > > > >

> > > > >

> > > > >

> > > > >

> > > > > This list is intended for patients to share personal experiences

> >with

> > > >each

> > > >other, not to give medical advice. If you are interested in any

> >treatment

> > > >discussed here, please consult your doctor.

> > > > >

> > > > >

> > > >

> > >

> > >

>

>_________________________________________________________________________

> > > Get Your Private, Free E-mail from MSN Hotmail at

> >http://www.hotmail.com.

> > >

> > > Share information about yourself, create your own public profile at

> > > http://profiles.msn.com.

> > >

> > >

> > >

> > > This list is intended for patients to share personal experiences with

> >each

> >other, not to give medical advice. If you are interested in any

treatment

> >discussed here, please consult your doctor.

> > >

> > >

> >

>

> _________________________________________________________________________

> Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

>

> Share information about yourself, create your own public profile at

> http://profiles.msn.com.

>

>

>

> This list is intended for patients to share personal experiences with

each

> other, not to give medical advice. If you are interested in any

treatment

> discussed here, please consult your doctor.

>

>

>

> This list is intended for patients to share personal experiences with

each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

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Katrin,

I was told that if I take Calcium it affects the Magnesium absorption,

therefore I should do the opposite. For a normal dose of Calcium (for me

600mg) I should take 800 mg Magnesium and not the usual 400. That's

different than what you suggest...so I dont understand,

Judy

Re: muscle twitching and cramping

> > > > > >

> > > > > >

> > > > > > >

> > > > > > > Hi folks,

> > > > > > > After having a normal neurological test and a normal MRI last

> > week

> > >I

> > > > > > started

> > > > > > > getting not only the tingling in the limbs which I had for the

> > >past

> > > > >month

> > > > > > > (for which they sent me for an MRI in the first place) but now

> I

> > >got

> > > > > > muscle

> > > > > > > twitches, on and off in various places, more my legs than

> > anywhere

> > > > >else,

> > > > > > and

> > > > > > > two days later, muscle cramps or what seems like sore muscles.

> > >More

> > >in

> > > > >the

> > > > > > > back of my upper legs near my backside. I feel like I

exercized

> > >too

> > > > >much

> > > > > > > (dont remember that feeling, maybe from pre CFS days...) and

it

> > >may

> > > > >come

> > > > > > > from having too much twitching of those muscles or something

> > else.

> > >I

> > > > >was

> > > > > > > told that lots of people with CFS and Fibro have these

> sensations

> > >and

> > > > >that

> > > > > > I

> > > > > > > should try magnesium and calcium supplements, does anyone

> > >recognize

> > > > >these

> > > > > > > symptoms? Particularly after they show up only in my second

> year

> > >of

> > > > >CFS

> > > > > > when

> > > > > > > I was beginning to feel better, have more energy etc? I hope

> it's

> > >not

> > > > > > > something serious...asked one neuro and he said, not to worry

,

> > it

> > > > >sounds

> > > > > > > like more CFS stuff, but I will only get to the " specialist "

> next

> > >week

> > > > >to

> > > > > > > double check. Any info?

> > > > > > > Thanks

> > > > > > > Judy B.

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > > This list is intended for patients to share personal

> experiences

> > >with

> > > > >each

> > > > > > other, not to give medical advice. If you are interested in any

> > > > >treatment

> > > > > > discussed here, please consult your doctor.

> > > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > > This list is intended for patients to share personal experiences

> > >with

> > > > >each

> > > > >other, not to give medical advice. If you are interested in any

> > >treatment

> > > > >discussed here, please consult your doctor.

> > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> >

> >_________________________________________________________________________

> > > > Get Your Private, Free E-mail from MSN Hotmail at

> > >http://www.hotmail.com.

> > > >

> > > > Share information about yourself, create your own public profile at

> > > > http://profiles.msn.com.

> > > >

> > > >

> > > >

> > > > This list is intended for patients to share personal experiences

with

> > >each

> > >other, not to give medical advice. If you are interested in any

> treatment

> > >discussed here, please consult your doctor.

> > > >

> > > >

> > >

> >

> >

_________________________________________________________________________

> > Get Your Private, Free E-mail from MSN Hotmail at

http://www.hotmail.com.

> >

> > Share information about yourself, create your own public profile at

> > http://profiles.msn.com.

> >

> >

> >

> > This list is intended for patients to share personal experiences with

> each

> > other, not to give medical advice. If you are interested in any

> treatment

> > discussed here, please consult your doctor.

> >

> >

> >

> > This list is intended for patients to share personal experiences with

> each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

> >

> >

>

>

>

> This list is intended for patients to share personal experiences with each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

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I have tried to find magnesium glycinate and can't. Where can you get it?

Judy

Re: muscle twitching and cramping

> Hi Judy, Steve, and Everyone,

>

> Muscle twitching is often a symptom of magnesium deficiency which is

> common in PWC's. Judy, you mentioned taking mag and calcium. Calcium

> decreases the amounts of mag in your body, so you want to be sure to

> take

> twice as much mag. Dr. Cheney recommends magnesium glycinate. I'm not

> sure

> what kind of calcium he recommends, if any at all. Steve, (or any

> Cheney

> patients) did he recommend calcium to you? I don't recall it being part

> of his listed treatment protocol, but I'm very interested because after

> 12 yrs of CFIDS including the last four in a wheelchair most of the

> time,

> I was just diagnosed with osteoporosis.

>

> My doctor wants me to start taking Fosamax. Is anyone else dealing with

> thinning bones? If so, I'd be interested in your thoughts on treatment.

> Sandy

>

> " R. Bullock " wrote:

> >

> > Judy,

> > > Twitching is very common in CFS. I found that an increase in the

degree of

> > my muscle twitching sometimes preceded a downturn in my condition.

Steve B.

> > ----- Original Message -----

> > From: " judy " <baumelj@...>

> > >

> > > Hi folks,

> > > After having a normal neurological test and a normal MRI last weere

else,

>

> > > two days later, muscle cramps or what seems like sore muscles. More in

the

> > > back of my upper legs near my backside.

> > I

> > > should try magnesium and calcium supplements, does anyone recognize

these

> > > symptoms? Particularly after they show up only in my second year of

CFS

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

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Hi, our researches say that this ideal ratio you have mentioned applies to

our bodies, but people usually have much more calcium from food, drinks etc

so they recommend now to take more Mg than Ca

Just my 2 cents

Stania

-----Pùvodní zpráva-----

Od: Katrin Pust <katrin@...>

Komu: 'egroups' <egroups>

Datum: 14. øíjna 2000 20:37

Pøedmìt: RE: muscle twitching and cramping

>Hi Judy & E.

>

>For better absorption of magnesium it is recommended to take it together

>with calcium in a 1:2 ratio. If you take 800 mg magnesium, you would need

>1500-1600 mg calcium.

>

>Boron, vitamin B6 and vitamin C also improve efficiency.

>

>Best regards

>

>Katrin

>

> Re: muscle twitching and cramping

>

>Thanks Katrin,

>Today was the first day in a month that the pins and needles and feeling of

>electricity was much less, however I still have the twitching and jumping.

>I'm now upping my dosage of magnesium to 6 pills a day (active ingredients

>aobut 133 mg per pill) and I take 600 mg. calcium as well. in two dosages

>of

>300 each. I hope for the best.

>Hag Sameach,

>Judy

>

> Re: muscle twitching and cramping

>> > > > >

>> > > > >

>> > > > > >

>> > > > > > Hi folks,

>> > > > > > After having a normal neurological test and a normal MRI last

>> week

>> >I

>> > > > > started

>> > > > > > getting not only the tingling in the limbs which I had for the

>> >past

>> > > >month

>> > > > > > (for which they sent me for an MRI in the first place) but now

>I

>> >got

>> > > > > muscle

>> > > > > > twitches, on and off in various places, more my legs than

>> anywhere

>> > > >else,

>> > > > > and

>> > > > > > two days later, muscle cramps or what seems like sore muscles.

>> >More

>> >in

>> > > >the

>> > > > > > back of my upper legs near my backside. I feel like I exercized

>> >too

>> > > >much

>> > > > > > (dont remember that feeling, maybe from pre CFS days...) and it

>> >may

>> > > >come

>> > > > > > from having too much twitching of those muscles or something

>> else.

>> >I

>> > > >was

>> > > > > > told that lots of people with CFS and Fibro have these

>sensations

>> >and

>> > > >that

>> > > > > I

>> > > > > > should try magnesium and calcium supplements, does anyone

>> >recognize

>> > > >these

>> > > > > > symptoms? Particularly after they show up only in my second

>year

>> >of

>> > > >CFS

>> > > > > when

>> > > > > > I was beginning to feel better, have more energy etc? I hope

>it's

>> >not

>> > > > > > something serious...asked one neuro and he said, not to worry ,

>> it

>> > > >sounds

>> > > > > > like more CFS stuff, but I will only get to the " specialist "

>next

>> >week

>> > > >to

>> > > > > > double check. Any info?

>> > > > > > Thanks

>> > > > > > Judy B.

>> > > > > >

>> > > > > >

>> > > > > >

>> > > > > > This list is intended for patients to share personal

>experiences

>> >with

>> > > >each

>> > > > > other, not to give medical advice. If you are interested in any

>> > > >treatment

>> > > > > discussed here, please consult your doctor.

>> > > > > >

>> > > > >

>> > > > >

>> > > > >

>> > > > > This list is intended for patients to share personal experiences

>> >with

>> > > >each

>> > > >other, not to give medical advice. If you are interested in any

>> >treatment

>> > > >discussed here, please consult your doctor.

>> > > > >

>> > > > >

>> > > >

>> > >

>> > >

>>

>>_________________________________________________________________________

>> > > Get Your Private, Free E-mail from MSN Hotmail at

>> >http://www.hotmail.com.

>> > >

>> > > Share information about yourself, create your own public profile at

>> > > http://profiles.msn.com.

>> > >

>> > >

>> > >

>> > > This list is intended for patients to share personal experiences with

>> >each

>> >other, not to give medical advice. If you are interested in any

>treatment

>> >discussed here, please consult your doctor.

>> > >

>> > >

>> >

>>

>> _________________________________________________________________________

>> Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

>>

>> Share information about yourself, create your own public profile at

>> http://profiles.msn.com.

>>

>>

>>

>> This list is intended for patients to share personal experiences with

>each

>> other, not to give medical advice. If you are interested in any

>treatment

>> discussed here, please consult your doctor.

>>

>>

>>

>> This list is intended for patients to share personal experiences with

>each

>other, not to give medical advice. If you are interested in any treatment

>discussed here, please consult your doctor.

>>

>>

>

>

>

>This list is intended for patients to share personal experiences with each

>other, not to give medical advice. If you are interested in any treatment

>discussed here, please consult your doctor.

>

>

>This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

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I thought that lots of people with CFS were told to keep away from dairy,

hence our calcium is low so that we need supplements. Also question: was

told to take zinc on an empty stomach, I tried and almost threw up. The

nausea was so intense and I dont suffer from nausea usually.

Any suggestions?

Judy

Re: muscle twitching and cramping

> Hi Judy, Steve, and Everyone,

>

> Muscle twitching is often a symptom of magnesium deficiency which is

> common in PWC's. Judy, you mentioned taking mag and calcium. Calcium

> decreases the amounts of mag in your body, so you want to be sure to

> take

> twice as much mag. Dr. Cheney recommends magnesium glycinate. I'm not

> sure

> what kind of calcium he recommends, if any at all. Steve, (or any

> Cheney

> patients) did he recommend calcium to you? I don't recall it being part

> of his listed treatment protocol, but I'm very interested because after

> 12 yrs of CFIDS including the last four in a wheelchair most of the

> time,

> I was just diagnosed with osteoporosis.

>

> My doctor wants me to start taking Fosamax. Is anyone else dealing with

> thinning bones? If so, I'd be interested in your thoughts on treatment.

> Sandy

>

> " R. Bullock " wrote:

> >

> > Judy,

> > > Twitching is very common in CFS. I found that an increase in the

degree of

> > my muscle twitching sometimes preceded a downturn in my condition.

Steve B.

> > ----- Original Message -----

> > From: " judy " <baumelj@...>

> > >

> > > Hi folks,

> > > After having a normal neurological test and a normal MRI last weere

else,

>

> > > two days later, muscle cramps or what seems like sore muscles. More in

the

> > > back of my upper legs near my backside.

> > I

> > > should try magnesium and calcium supplements, does anyone recognize

these

> > > symptoms? Particularly after they show up only in my second year of

CFS

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

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Share on other sites

Hi Judy,

When I first was diagnosed with CFS I did a lot of research on the

Internet. All studies that I found (many of them referring to Cheney)

suggest to take between 1000-1500mg of Calcium and between 500-1000 mg

Magnesium. Unfortunately I did not keep these papers, so I cannot give you

these links right now.

At the time I prepared myself a chart, listing the supplements, which were

recommended by various sources and the daily doses. If you are interested,

I can e-mail or fax you a copy of the this chart, which is divided into

treatment for several conditions: CFS, candida, hypothyroidism, etc. and

the suggested nutritional supplements, herbs, etc. with recommended daily

doses.

The two sources I can give you without going through all the files I have

are: Life Extension Foundation, which offers online treatment plans for

various conditions, and the book " Prescription for Nutritional Healing " by

Balch.

Regards

Katrin

Re: muscle twitching and cramping

Katrin,

I was told that if I take Calcium it affects the Magnesium absorption,

therefore I should do the opposite. For a normal dose of Calcium (for me

600mg) I should take 800 mg Magnesium and not the usual 400. That's

different than what you suggest...so I dont understand,

Judy

Re: muscle twitching and cramping

> > > > > >

> > > > > >

> > > > > > >

> > > > > > > Hi folks,

> > > > > > > After having a normal neurological test and a normal MRI last

> > week

> > >I

> > > > > > started

> > > > > > > getting not only the tingling in the limbs which I had for

the

> > >past

> > > > >month

> > > > > > > (for which they sent me for an MRI in the first place) but

now

> I

> > >got

> > > > > > muscle

> > > > > > > twitches, on and off in various places, more my legs than

> > anywhere

> > > > >else,

> > > > > > and

> > > > > > > two days later, muscle cramps or what seems like sore

muscles.

> > >More

> > >in

> > > > >the

> > > > > > > back of my upper legs near my backside. I feel like I

exercized

> > >too

> > > > >much

> > > > > > > (dont remember that feeling, maybe from pre CFS days...) and

it

> > >may

> > > > >come

> > > > > > > from having too much twitching of those muscles or something

> > else.

> > >I

> > > > >was

> > > > > > > told that lots of people with CFS and Fibro have these

> sensations

> > >and

> > > > >that

> > > > > > I

> > > > > > > should try magnesium and calcium supplements, does anyone

> > >recognize

> > > > >these

> > > > > > > symptoms? Particularly after they show up only in my second

> year

> > >of

> > > > >CFS

> > > > > > when

> > > > > > > I was beginning to feel better, have more energy etc? I hope

> it's

> > >not

> > > > > > > something serious...asked one neuro and he said, not to worry

,

> > it

> > > > >sounds

> > > > > > > like more CFS stuff, but I will only get to the " specialist "

> next

> > >week

> > > > >to

> > > > > > > double check. Any info?

> > > > > > > Thanks

> > > > > > > Judy B.

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > > This list is intended for patients to share personal

> experiences

> > >with

> > > > >each

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> This list is intended for patients to share personal experiences with

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Thanks Katrin, I will check it out.

Judy

Re: muscle twitching and cramping

> > > > > > >

> > > > > > >

> > > > > > > >

> > > > > > > > Hi folks,

> > > > > > > > After having a normal neurological test and a normal MRI

last

> > > week

> > > >I

> > > > > > > started

> > > > > > > > getting not only the tingling in the limbs which I had for

> the

> > > >past

> > > > > >month

> > > > > > > > (for which they sent me for an MRI in the first place) but

> now

> > I

> > > >got

> > > > > > > muscle

> > > > > > > > twitches, on and off in various places, more my legs than

> > > anywhere

> > > > > >else,

> > > > > > > and

> > > > > > > > two days later, muscle cramps or what seems like sore

> muscles.

> > > >More

> > > >in

> > > > > >the

> > > > > > > > back of my upper legs near my backside. I feel like I

> exercized

> > > >too

> > > > > >much

> > > > > > > > (dont remember that feeling, maybe from pre CFS days...) and

> it

> > > >may

> > > > > >come

> > > > > > > > from having too much twitching of those muscles or something

> > > else.

> > > >I

> > > > > >was

> > > > > > > > told that lots of people with CFS and Fibro have these

> > sensations

> > > >and

> > > > > >that

> > > > > > > I

> > > > > > > > should try magnesium and calcium supplements, does anyone

> > > >recognize

> > > > > >these

> > > > > > > > symptoms? Particularly after they show up only in my second

> > year

> > > >of

> > > > > >CFS

> > > > > > > when

> > > > > > > > I was beginning to feel better, have more energy etc? I hope

> > it's

> > > >not

> > > > > > > > something serious...asked one neuro and he said, not to

worry

> ,

> > > it

> > > > > >sounds

> > > > > > > > like more CFS stuff, but I will only get to the " specialist "

> > next

> > > >week

> > > > > >to

> > > > > > > > double check. Any info?

> > > > > > > > Thanks

> > > > > > > > Judy B.

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > > This list is intended for patients to share personal

> > experiences

> > > >with

> > > > > >each

> > > > > > > other, not to give medical advice. If you are interested in

> any

> > > > > >treatment

> > > > > > > discussed here, please consult your doctor.

> > > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > > This list is intended for patients to share personal

> experiences

> > > >with

> > > > > >each

> > > > > >other, not to give medical advice. If you are interested in any

> > > >treatment

> > > > > >discussed here, please consult your doctor.

> > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > > >

> > >

> >

> >_________________________________________________________________________

> > > > > Get Your Private, Free E-mail from MSN Hotmail at

> > > >http://www.hotmail.com.

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> > > > >

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> > > > > This list is intended for patients to share personal experiences

> with

> > > >each

> > > >other, not to give medical advice. If you are interested in any

> > treatment

> > > >discussed here, please consult your doctor.

> > > > >

> > > > >

> > > >

> > >

> > >

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> > > This list is intended for patients to share personal experiences with

> > each

> > > other, not to give medical advice. If you are interested in any

> > treatment

> > > discussed here, please consult your doctor.

> > >

> > >

> > >

> > > This list is intended for patients to share personal experiences with

> > each

> > other, not to give medical advice. If you are interested in any

> treatment

> > discussed here, please consult your doctor.

> > >

> > >

> >

> >

> >

> > This list is intended for patients to share personal experiences with

> each

> > other, not to give medical advice. If you are interested in any

> treatment

> > discussed here, please consult your doctor.

> >

> >

> > This list is intended for patients to share personal experiences with

> each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

> >

> >

>

>

>

> This list is intended for patients to share personal experiences with each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

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