Re: Heparin-my heart

[Guest guest]

My heart flutters and skips alot too . It terrifies me and is always

worse when I am sickest. Have you been diagnosed with Mitral Valve Prolapse?

I have some good info and websites to share on MVP if you would like. Also,

Steve and I have shared some info in recent posts related to CFS and heart

involvement. I wonder though, do you know these symptoms are caused by the

heparin? Have you experienced these symptoms on and off before? Be careful of

stopping the heparin if you feel it is helping. a

[Guest guest]

,

Can you exactly quantify the racing heart -- i.e. what is your pulse resting

and standing up? The reason that I ask is that the heart can be viewed as an

engine - engine sounds change when you change gasoline or oil or .... etc. It

may seem to be racing (compared to what you are accustomed to), or because the

blood flow easier so the beat is easier to detect, you may be aware of it far

more....

Hence, finding out if it is " racing " (beating faster) or just louder

(because the blood flows easier...) or ... what exactly is the physical signs of

what you term 'racing'

M Lassesen, M.S.

ex " Dr.Gui (MSDN) " , " Dr. VB "

cv: http://www.folkarts.com/kenl/ KenL@...

Phone: 360 297.4717 Cell: 360 509.8970 Fax 520 832.6836

Heparin-my heart

Well, my heart is still acting funny. Its fluttering a lot and races too. It

makes me nervous because my heart actually to weak to handle the blood that

has started to move through it since the herparin injection.

[Guest guest]

In a message dated 9/30/00 11:40:24 AM Pacific Daylight Time,

KenL@... writes:

<< aren,

Can you exactly quantify the racing heart -- i.e. what is your pulse

resting and standing up? The reason that I ask is that the heart can be

viewed as an engine - engine sounds change when you change gasoline or oil or

..... etc. It may seem to be racing (compared to what you are accustomed to),

or because the blood flow easier so the beat is easier to detect, you may be

aware of it far more....

Hence, finding out if it is " racing " (beating faster) or just louder

(because the blood flows easier...) or ... what exactly is the physical signs

of what you term 'racing' >>

Hi Ken, I don't really think its so a racing heart(I used that word but it

can better be described at flutthering). I have had fluttering before and

its scary and heck. I really need to get to the bottom of this so I can

continue taking the Heparin.

[Guest guest]

In a message dated 9/30/00 12:23:47 PM Pacific Daylight Time,

StarDantzer@... writes:

<< My heart flutters and skips alot too . It terrifies me and is always

worse when I am sickest. Have you been diagnosed with Mitral Valve Prolapse?

I have some good info and websites to share on MVP if you would like. Also,

Steve and I have shared some info in recent posts related to CFS and heart

involvement. I wonder though, do you know these symptoms are caused by the

heparin? Have you experienced these symptoms on and off before? Be careful

of

stopping the heparin if you feel it is helping. a

>>

Hi a, I have fluttering and a slight murmer most of my life. It just

gets much worse after I take the Heparin. Yes, if you don't mind can you

send me the website info on the MVP. I am sure I have MVP(most likely do to

CFS) but I have never been test for it. What other info did Steve and

yourself share about MVP...you mean the magnesium info? Thank you,

[Guest guest]

,

It sounds like mitral valve prolapse which unfortunately is something PWC's

get more often than the general public. I would see a cardiologist. They

can easily tell with a stethoscope. My cardiologist used to have me come

into his office occassionally so that medical students could listen to my

heart and learn to identify it. Mine went away twice during two brief

remmissions. I'm hoping I can get rid of the damn thing some day. Steve B.

Re: Heparin-my heart

> In a message dated 9/30/00 11:40:24 AM Pacific Daylight Time,

> KenL@... writes:

>

> << aren,

> Can you exactly quantify the racing heart -- i.e. what is your pulse

> resting and standing up? The reason that I ask is that the heart can be

> viewed as an engine - engine sounds change when you change gasoline or oil

or

> .... etc. It may seem to be racing (compared to what you are accustomed

to),

> or because the blood flow easier so the beat is easier to detect, you may

be

> aware of it far more....

>

> Hence, finding out if it is " racing " (beating faster) or just louder

> (because the blood flows easier...) or ... what exactly is the physical

signs

> of what you term 'racing' >>

>

>

> Hi Ken, I don't really think its so a racing heart(I used that word but it

> can better be described at flutthering). I have had fluttering before and

> its scary and heck. I really need to get to the bottom of this so I can

> continue taking the Heparin.

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

[Guest guest]

: Have you checked into the posibility of Heparin Induced

Trombosis (HIT)? This is the potentially serious side effect of heparin

use that happens in a percentage of the population, I think about 3%.

I don't know if it could cause the cardiac symptoms you described, but

I'd certainly check into it with your doctor. HIT basically causes

coagulation instead of the intended thinning of heparin therapy. There

are drugs just for treating HIT. I don't mean to alarm you, and like I

said, I don't know if it could cause what you describe. In fact I don't

know much about it, but I think anyone on heparin ought to be aware that

it can cause very serious side effects in a small percentage of the

population. And might want to find out what to look out for.

Doctors are always saying " that's rare " . Well, ok, how many rare

diseases are there? I think our chances of getting one are not so bad

if you look at them as a whole.

You may want to add magnesium deficiency to your list of potential

heart problem theories. I hope you are taking plenty of magnesium.

E.

" I'd rather be working "

<<Well, my heart is still acting funny. Its fluttering a lot and races

too. It makes me nervous because my heart actually to weak to handle the

blood that has started to move through it since the herparin injection.

I have theories on why the heparin could be bothering my heart this:

1) My heart is to weak to handle the blood all of sudden rushing through

it. It could be weak from years of not pumping right or working over

time.

2) It could be from a virus in the heart

3) It could be from having a calcium/mag/potassium problem, meaning

those minerals aren't balancing right.

4) It could be from not having balanced Amino Acids. My aminos are so

off balance right now, I am getting tested to try to balance them out.

Can somone/anyone please add your input? I finally found something that

could help and now I can't take it because my heart is bothering me when

I take it. Has this happened to anyone else? I really need some

suggestions.

[Guest guest]

Hi ,

I think that you need to look into and researchj Mitral Valve

Prolapse. It seems that there is a subset of CFS that are affected

with MVP. My personal opinion is that three is a connection to

Magnesium deficiency. The Magnesium site has great info on CFS and

MVP. It is worth searching through. Also, I am sending along some

other info specific to MVP.

WWW.MITRALVALVEPROLAPSE.com

The Society for MVPS

P.O. Box 431

Itasca, Il 60143-0431

Phone : 630-250-9327

Let me know where you are writing from and I can give you names and

addresses of support group leaders.

http://www.swiftsite.com/mitralvalveprolapsesyndrome