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  • 3 years later...

Hi everyone,

I am new to this discussion group as well as Achalasia. It started 6 1/2 months

ago with not being able to swallow and then I went in for endoscopy and the

regurgitation started. I have been a patient at Aurora med in kenosha, Wi for a

very long time and they referred me to Froedert Medical College of Wis in

Milwaukee. I just had the graded pneumatic dilation and that helped and I am

able to eat and drink again, within some limits of course.

Just curious if there is anyone being treated at Froedert and just real

interested to hear other experiences with this wonderful disease.

Thanks for listening

Kim

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Hello ,

I read your story on your website and noticed you had surgery at Emory. I'm in

Atlanta and have been referred to Dan - have not seen him yet for

consult. Can you share who you saw here - and what your experience with him/her

was? I would appreciate any info. Considering an HM early next year.

Thanks,

Kim

________________________________

From: Mueller IV <mt4mar@...>

" achalasia " <achalasia >

Sent: Monday, November 21, 2011 3:59 PM

Subject: Re: Achalasia

 

Hello Kim I am sorry that you are dealing with this disease.  I am glad that

you have found this group.  I have not been treated at that location but I have

been therough all you can over the years.  If you have any questions please

feel free to ask.  I have a web site too if you would like to look at.

 www.achalasia.us.

Welcome 

<FONT face= " comic sans ms " color=#ff0000 size=5> in Georgia </FONT><IMG

src= " http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/04.gif " >

________________________________

From: Kim <xploring37@...>

achalasia

Sent: Monday, November 21, 2011 12:40 PM

Subject: Achalasia

 

Hi everyone,

I am new to this discussion group as well as Achalasia. It started 6 1/2 months

ago with not being able to swallow and then I went in for endoscopy and the

regurgitation started. I have been a patient at Aurora med in kenosha, Wi for a

very long time and they referred me to Froedert Medical College of Wis in

Milwaukee. I just had the graded pneumatic dilation and that helped and I am

able to eat and drink again, within some limits of course.

Just curious if there is anyone being treated at Froedert and just real

interested to hear other experiences with this wonderful disease.

Thanks for listening

Kim

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Hi Mike,

I was originally referred to Dr Massey but would have had to wait 2 1/2 months

and just wasn't in good shape then. I ended up seeing Dr Babei and Dr Massey

actually came in to observe the dialation. Thanks for sharing that. Next time I

go back I wanted to meet with him. Dr Babei in their GI dept is good as well but

they actually only treat about 2-3 patients a year with Achalasia. But I would

say for this area the best possibility for treatment.

Are you still a patient at Froedert? 

 

Kim in Kenosha 

________________________________

From: mike in WI <dtfanx@...>

" achalasia " <achalasia >

Sent: Tuesday, November 22, 2011 12:26 PM

Subject: Re: Achalasia

 

I was treated at Froedert for Achalasia.  My surgeon is no longer there, but

Dr. Massey in the GI department is apparently regarded as the number 1 guy in

the state.  I found this out after I moved, and my new GI doctor told me he

refers all dilitations over 20 cm to him.

mike in WI

________________________________

From: Kim <xploring37@...>

achalasia

Sent: Monday, November 21, 2011 11:40 AM

Subject: Achalasia

 

Hi everyone,

I am new to this discussion group as well as Achalasia. It started 6 1/2 months

ago with not being able to swallow and then I went in for endoscopy and the

regurgitation started. I have been a patient at Aurora med in kenosha, Wi for a

very long time and they referred me to Froedert Medical College of Wis in

Milwaukee. I just had the graded pneumatic dilation and that helped and I am

able to eat and drink again, within some limits of course.

Just curious if there is anyone being treated at Froedert and just real

interested to hear other experiences with this wonderful disease.

Thanks for listening

Kim

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I had to move 'up north' a few years ago for a job, so I have not been there

recently.  I do know that if I would need to be dilated again, I will do all I

can to see Dr. Massey.  Once you are a patient of his, it is a lot quicker to

get in to see him.  I just had a second HM at the UW in Madison with Dr. Tracey

Weigel.  She did it robotically, and I am very pleased with the results so far!

mike in WI

________________________________

From: Kim Abrams <xploring37@...>

" achalasia " <achalasia >

Sent: Tuesday, November 22, 2011 8:53 PM

Subject: Re: Achalasia

 

Hi Mike,

I was originally referred to Dr Massey but would have had to wait 2 1/2 months

and just wasn't in good shape then. I ended up seeing Dr Babei and Dr Massey

actually came in to observe the dialation. Thanks for sharing that. Next time I

go back I wanted to meet with him. Dr Babei in their GI dept is good as well but

they actually only treat about 2-3 patients a year with Achalasia. But I would

say for this area the best possibility for treatment.

Are you still a patient at Froedert? 

 

Kim in Kenosha 

________________________________

From: mike in WI <dtfanx@...>

" achalasia " <achalasia >

Sent: Tuesday, November 22, 2011 12:26 PM

Subject: Re: Achalasia

 

I was treated at Froedert for Achalasia.  My surgeon is no longer there, but

Dr. Massey in the GI department is apparently regarded as the number 1 guy in

the state.  I found this out after I moved, and my new GI doctor told me he

refers all dilitations over 20 cm to him.

mike in WI

________________________________

From: Kim <xploring37@...>

achalasia

Sent: Monday, November 21, 2011 11:40 AM

Subject: Achalasia

 

Hi everyone,

I am new to this discussion group as well as Achalasia. It started 6 1/2 months

ago with not being able to swallow and then I went in for endoscopy and the

regurgitation started. I have been a patient at Aurora med in kenosha, Wi for a

very long time and they referred me to Froedert Medical College of Wis in

Milwaukee. I just had the graded pneumatic dilation and that helped and I am

able to eat and drink again, within some limits of course.

Just curious if there is anyone being treated at Froedert and just real

interested to hear other experiences with this wonderful disease.

Thanks for listening

Kim

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  • 5 months later...
Guest guest

I agree. I certainly tried everything under the sun, for years, and most of the

*best* stuff, worked *a bit* ~~ and for those years, a *bit* was enough.

Caffeine, nicotine, fat, magnesium, B150, Hyoscamine, DHEA (for the lady

hormones) -- was looking into acupuncture when the ol' body hit the wall,

despite everything.

The thing is, the scams don't ONLY target Achalasians, but lots of other people

with much more toxic diseases than we have. That there are people ready willing

and able to prey on people, and possibly even kill them for a damned dollar

simply outrages me. It isn't a *game*. . . .

xox

> >

> > Hi everyone,

> >  

> > My mother is really into treating whatever you can homeopathically. Has

anyone ever tried this?

> >

> >   

> >

> > http://www.lasnofax.com/

> >

> >

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Guest guest

Kim wrote:

>

> http://www.lasnofax.com/

>

I have discussed these kind of sites before. There is also a blogger,

called, " One Sick Mother, " who has written much more than I have about

these sites. The lasnofax is a product from Healing Plants Ltd..

According to her they offer other products often with the same

ingredients for other conditions. Here is a quote from her blog:

" Again, we also see that the same formulations of herbs are re-used

several times to treat vastly different conditions. According to these

guys, Uveitis, Keratosis Pilaris, Abdominal Adhesions, Achlasia,

Peyronie's Disease, and Myasthenia Gravis can all be treated with " clear

improvement within days " by taking their special formulation, which is a

mixture of: ... "

If you want to read more see:

http://onesickmother.typepad.com/my_weblog/2009/08/healing-plants-ltd-scam.html

As to the possibility of these products actually being true homeopathic

products I see little chance. A lot of people use the term homeopathic

to mean all kinds of things but it actually has a very specific meaning.

Homeopathy has two main beliefs, that things become stronger by diluting

them (contrary to science) and you treat symptoms with things that cause

those symptoms (homeo=like, pathy=disease). I don't see that product

fitting any of that.

notan

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