Thanks to everyone

[Guest guest]

Hi Sherry ,

After reading the post I had shared on the kid who couldn't control

his behavior and had gotten arrested . This was advised from a

parent . It is one of the first things that a parent puts in an IEP

that anyone that comes in contact daily with the child be

knowledgeable about his/her disability . Just thought I throw that

in . We have pro e-friends on this list that will be glad to share

their ideas on what has worked for them . Luck with in

school .

Irma, 13,DS/aSD.

> I just had a chance to read from the group ,thank you for all the

> thoughts and sharing what has worked for you!!1

> Yesterday [wed] I met with stewarts new teacher,her class is for

> kidos with asd . she brought up some groups from the internet and

> said how they might be good for parents but not so good for the

> teachers lol I agreed with her.I felt like this woman was a bit

anal

> andkind of cranky.Is it these peoples job to keep services which

would

> benifit our children from us ? cuz I heard you talking about

behavior

> therapy and home behavior thpy and nothing of the sort was brought

to

> the table.I will have stewarts IEP in oct maybe I could get ideas

from

> you for it .

> Sherry mom to stewie ds/asd spencer strong willed and needy

[Guest guest]

,

Hope you enjoyed your ice cream. Sometimes we need that mental break. I

wanted to ask how your daughter's protein intolerance is t-cell mediated?

I am just curious because I have a niece and nephew who both have fructose

(or any natural sugar) intolerance but it is metabolic in the liver. Their

symptoms are they go into coma/seizures if they ingest any kind of sugars

that they can't have. It is a very rare disease and it just seems like we

have a family of strange diseases. I was just wondering if what your

daughters have and my niece and nephew have could somehow be strangely

related. Thanks. Hope Sara is soon feeling better.

Belinda Rose,

Mom to Allyssa (10) and Cassie, (8), igg immunodeficient, asthma, sinusitis,

IVIG for 6 years, heart condition

[Guest guest]

The best way for her to determine if treatment is absolutely necessary at this time would be for her to have a biopsy . A biopsy is the best way to determine if there is damage in her liver . If there is damage then the wisest decision would be to treat but each of us with the disease have to make the ultimate decision ourselves . But she should know that if there is damage and she waits to long then the side effects of disease will be worsened . My doc seems to feel that the earlier a person treats the easier it is on them to handle the side effects . Your mom should see a specialist and with the doctor discuss which is the best treatment course for her . You should invite your mother to join our group , we would love to help her understand this disease and its treatments .

Thanks to everyone

Thanks to everyone who helped me with my questions. But I have more now. I talked to my mom tonight. I told her about this wonderful group. I hate talking to her about it because she starts to cry. I don't like to see or hear my mom cry. I just want her to be open with me. How can I get her to open up to me and talk to me about her feelings? I just want her to know I am here for her. I have told her over and over that if my tests come back positive that she should not feel bad about it. But I think she thinks that Ill hold it against her. I would never do that because she is my mother. It was meant for me to have it. I don't want her to feel bad. How do you know if treatment is what you need? My mom doesn't think she should try treatment. She has talked to other people and they say they would never do the treatment. I just want her to get back to her self. So please if you can help me out it would be wonderful. I will also be praying for all of you wonderful people. I don't mean you bring my problems in the group. I just need help with under standing my mom. I just want my mom happy. Happy Holidays. Thanks

[Guest guest]

Hi Lee, I gained a little weight too on tx. I think it is because of water retention from the Aranesp shot I do since that is one of the side effects listed. Unfortunately, ever since I started that, I have an increased hunger so have had to watch it. I guess mine is a unique experience since most everyone else seems to lose weight and lose their appetite on tx.

Ally

On 1/16/07, Lee <leecuate@...> wrote:

This group is so important. I can't imagine going through this without a place to ask questions, share experiences and sometimes just vent. There always seems to be someone who knows the answer or has been through the same thing.

There was a post earlier (I can't remember from who) about telling your dentist that you have HCV. I had an routine dentist visit scheduled for about 6 weeks into treatment. I can remember stressing about whether to tell them for weeks, I almost cancelled. Then I realized that it really was none of their business. It had nothing to do with my teeth and they should be taking precautions against all infectious diseases. Most people with Hep C, HIV, or other infectious diseases don't even know that they have them.

Unless there is something they should know (like low white cells) I wouldn't say anything.On loosing weight during treatment, I have gained 8 pounds since I started. I am 6' 1/2 " and weighed 185# when I started now I am up to 193#. I attribute this to taking my Ribo with fatty food. I take my morning pills with cream cheese and my evening ones with a bowl of ice cream. I saw somewhere that it is 70% more effective when taken with fat than on an empty stomach.

The only times that I have had nausia are when I have eaten red meat, so I haven't eaten any red meat since about my second week. I make up for this with pasta, rice, cheese and nuts. I am running out of things to eat with chicken and shrimp. Fish made me sick even before I started Tx.Anyway I am starting to ramble. Thanks you everyone here!Lee

[Guest guest]

Sounds like you are doing GREAT Lee,, and it was me that reminded ya to take your Riba with fat! you have a good memory! Lee <leecuate@...> wrote: This group is so important. I can't imagine going through this without a place to ask questions, share experiences and sometimes just vent. There always seems to be someone who knows the answer or has been through the same thing.There was a post earlier (I can't remember from who) about telling your dentist that you have HCV. I had an routine dentist

visit scheduled for about 6 weeks into treatment. I can remember stressing about whether to tell them for weeks, I almost cancelled. Then I realized that it really was none of their business. It had nothing to do with my teeth and they should be taking precautions against all infectious diseases. Most people with Hep C, HIV, or other infectious diseases don't even know that they have them.Unless there is something they should know (like low white cells) I wouldn't say anything.On loosing weight during treatment, I have gained 8 pounds since I started. I am 6' 1/2" and weighed 185# when I started now I am up to 193#. I attribute this to taking my Ribo with fatty food. I take my morning pills with cream cheese and my evening ones with a bowl of ice cream. I saw somewhere that it is 70% more effective when taken with fat than on an empty stomach.The only times that I have had nausia are when I have eaten red

meat, so I haven't eaten any red meat since about my second week. I make up for this with pasta, rice, cheese and nuts. I am running out of things to eat with chicken and shrimp. Fish made me sick even before I started Tx.Anyway I am starting to ramble. Thanks you everyone here!LeeJackie

[Guest guest]

Hi Colleen,

We are all here for you... Glad things are calming down some for you... Keep up the good work...

((( Comforting Hugs )))Helen

WANT TO SAY THANKS TO EVERYONE--- YOU REALLY HELPED ME DURING A VERY SCARY AND SICKLY TIME. MY DOCTOR STABILIZED THE DOSES OF MY MEDS AND IM STARTING TO FEEL GOOD ENOUGH TO EAT SOLID FOOD AGAIN! I APPRECIATE ALL THE WARM WISHES AND PRAYERS AS THIS WAS SOMETHING I DIDNT HAVE FAMILY SUPPORT FOR AND WAS A SCARY TIME, BUT HAPPY TO SAY ITS ALL RESOLVED NOW. YOU ARE ALL FABULOUS FRIENDS AND THANK GOD FOR THE SUPPORT GROUPS!WARM HUGS COLLEEN C IN KS

"When life's problems seem overwhelming, look around and see what other people are coping with. You may consider yourself fortunate."AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

[Guest guest]

Impressive numbers, I hope my own go down that well and that quickly, you GO, girl! I will second your appreciation of this List, I have already made some rest of my life friends here.. Sheena Beej Bishop <chaboogier@...> wrote: I have posted a couple times and I want everyone to know how deeply I appreciate this group and the support and imformation you share so freely.Started at almost

five mill, went to 53,000 at four weeks, had to drop riba by half and went to 8,550 at nine weeks, boosted the riba and now I cross the fingers and wait for week twelve. Screw Hep C. I hate it.I wanna kick 1b's ass.Just cause I shot up in my wild and wooly youth. (Under 20). I want a beer sooooo bad. (15 at least). But the barfly had to quit (I could drink most...all actually, boys under the table. Things change and I embrace it. Wish I could get funding for the hemo-shots.Prayers to all families at V-tech. I know folks with hep c that opt not for treatment but to drink themselves to death. 8>(Enough rambling..I'm going back to flying the sofa.Bish

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Autos.

[Guest guest]

Bish, I hope that by week 12 you are undetectible,,, sound like you are moving towards that pay off too,, Why did you drop your Riba? Thats the one thing you DONT want to do in the first 12 weeks especially... what about Procrit? Wouldnt that have been a better option than to reduce the very med that is killing the virus????? What genotype are you? Well good luck to you and please keep us posted how things are going! jaxBeej Bishop <chaboogier@...> wrote: I

have posted a couple times and I want everyone to know how deeply I appreciate this group and the support and imformation you share so freely.Started at almost five mill, went to 53,000 at four weeks, had to drop riba by half and went to 8,550 at nine weeks, boosted the riba and now I cross the fingers and wait for week twelve. Screw Hep C. I hate it.I wanna kick 1b's ass.Just cause I shot up in my wild and wooly youth. (Under 20). I want a beer sooooo bad. (15 at least). But the barfly had to quit (I could drink most...all actually, boys under the table. Things change and I embrace it. Wish I could get funding for the hemo-shots.Prayers to all families at V-tech. I know folks with hep c that opt not for treatment but to drink themselves to death. 8>(Enough rambling..I'm going back to flying the sofa.BishJackie

[Guest guest]

as always - it's just so nice to always know you're all here but I really

appreciate the info on blended foods for my grandmother. I haven't seen her

since her dx (cancer of the E) but we've talked several times and it's funny -

even though she understands the liquid diet and we've talked several times about

it - she always wants to talk about it some more - I think she's appreciating

that I know and understand where she is coming from. It's nice to be able to do

that for her.

Hope everyone is having wonderful holidays.

Love you all!

~ in NC