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Re: DECEMBER 17th

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,

Thank you for the " chiding " ~~ I think it's well to remember that this is NOT

something that's ever going to just up and " go away " for us. Some will do

better with various interventions than others. And I'm pretty sure that if we

had one, and it's not working that well, we'll wish we'd done one of the others.

.. . . A royal crap shoot as I see it. So one studies on the problem as much as

one is able, ponders, plans, and finally put our chips on one or the other or

other. And live with the consequences. . . .

I was laughing the other day reading a scholarly paper defining " regurgitating "

once a day as being quote and unquote " serious " ~~ and wondered what the

authors would make of: after every third swallow? And some days, after *every*

swallow. Perhaps scientifically-oriented brains lack the imagination to imagine

that?

Or perhaps as a country and culture, we've been well fed for so long, that the

possibility of starvation doesn't even register (except possibly with young

girls with eating disorders. . . .)

I for one am glad you've managed the past 20 years as well as you have, and for

your presence here. Like you, I started at the beginning of this board, and so

many have come and gone. I am very grateful to the old timers who stick around

and give the rest of us some perspective.

xox

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I too am grateful for all the knowledgable people that continue to help those of

us that are newly diagnosed and trying to deal with eating, surgical options,

doctors, etc.  Thank you.

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Hello Everyone.

Just to see if anyone can help me understand what is happening. My Doctor is

very nice but I seem to be teaching him at the moment.

I have managed to get to a star where my weight is stabilised at 13 1/2 stone.

Still 35 pounds less than before though. I have been eating about 4500 calories

a day to get to an intake of about 2100. Bit of a pain, but nowhere near the

level of problems some of you are having, which i am grateful for and feel

terribly bad for some of you.

My problem is the GI surgeon wants to do a Myotomy but has found I have Barretts

Esophagus. The initial biopsy came back with signs of dysplasia. They are doing

another Biopsy shortly to check the level of Dysplasia. I have read about it and

if it is high level then i have a bit of trouble ahead. Anyway i will cross that

bridge if i come to it.

The initial issue is he dosnt want to do the Myotomy until they have sorted out

the Barretts. Let us say it is just plain old Barretts. Why can't the Myotomy be

done? I understand if it is more serious that they will be treating that as more

serious in the short term than the Achalasia, but if not what complications can

it cause if they just go head with the Heller?

Anyone out there with some experience of all of this then your opinion may help

to clear the fog for me.

> Stuart McCormick

> Mobile Inventory Program Limited

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Hi

I sure believe in your concept on cleaning out the esophagus.

got me on Coke many years ago, when I was real bad

I went to Mcs every morning and for many minutes or so

drank the fizz off the top of Coke.

Now I can get HOT coffee down, then on my walk home I drink

another cup, sometimes regurgitating it up on the street.

But today I am so much better, BUT WHY? Fiber, Butter, Magnesium

and COKE!!

Each night while watching Leno I drink a 16 oz bottle of water,

this causes any junk to come up. I use a spit up glass.

And twice a day I use Magnesium 250 mg, this seems great for me, seems to open

the LES, and gives a great BM.

For a good BM you need fibre, at breakfast use a cerial 5 gms

of fibre with a lot of Lactade milk. I stand vertical, it goes through great.

Lunch is Bushes baked beans hot with a bit of water and a spoon of real butter

and a toasted English muffin 8 gms fiber loaded with real butter. And a can of

COKE which has a lot of fizz.

Dinner is usually thin soup and bread toasted with a lot of butter,

followed with coffee.

I have had no operation last 6 years. I believe I am so much better than others

who have had the HM. Of course I am retired

so this makes it much easier. Of couse I stay away from meat or

solid items, but I love onion rings ot french fries under the

broler with some added butter.

Ray CA OC 81 old a hell but very active.

>there is probably nothing more important than making every effort >to clear

your esophagus before starting every meal and right after >finishing one, to the

best of your ability and awareness. As a >group we seem pretty evenly divided

as to the usefulness of >carbonated beverages. Some (like myself) swear by it,

while others

>cannot tolerate it.

>

> From: Kim Abrams <xploring37@...>

> Subject: Re: Hey all - need some help

> " achalasia " <achalasia >

> Date: Saturday, December 17, 2011, 1:09 PM

>

>

>

>

>  

>

>

>

> ________________________________

> From: zlmmom1 <mcnairmichelle@...>

> achalasia

> Sent: Friday, December 16, 2011 10:00 AM

> Subject: Hey all - need some help

>

>  

>

> Hey Everyone - I haven't been around for awhile- super busy with life - yea!!

Anyway - my grandmother just got diagnosed with cancer of the E and is on a

liquid diet - didn't someone post a smoothies cookbook or recipes on this site

at one point? We have reason to believe she will be on liquids until the end and

I want to help her have as many options as possible...

> Thanks - this was the first place I thought of when my mom called me with the

news - I don't think there's anyone in my family who is going to understand and

get it like I am.

> Hope everyone is doing well.

>

> ~ in NC

> Achalasia free for almost 4 years! - can you believe it's been that long??

>

>

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