FDA Rare Disease Patient Advocacy Day

[Guest guest]

Please plan to join this webcast or visit in person.   Ask your doctors to

attend on behalf of the multitudes who have achalasia. If any of you can attend,

and speak this would be wonderful.  see the links below to register and get

more information

Carolyn Holmes

mom to Cameron

myo'd and fundo'd in 05

FDA Rare Disease Patient Advocacy Dayhttp://tinyurl.com/4wygaab

http://tinyurl.com/6m22as2

The

Food and Drug Administration’s (FDA) Office of Orphan Products

Development is announcing the following meeting: FDA Rare Disease

Patient Advocacy Day. This meeting is intended to enhance the awareness

of the rare disease community as to FDA’s roles

and responsibilities in the development of products (drugs, biological

products, and devices) intended for the diagnosis, prevention, and/or

treatment of rare diseases or conditions. The goal of this meeting is to engage

and educate the rare disease community on the FDA regulatory processes.

This

educational meeting will consist of a live and interactive simultaneous

Web cast of presentations provided by FDA experts from various Centers

and Offices, as well as from outside experts. The interactive meeting

will include two general panel discussion sessions, as well as afternoon

breakout sessions for more indepth information on the roles of FDA. In

addition, onsite attendees will have an opportunity during lunch to

engage with FDA and outside experts in a small group setting.

For more information please visit: FDA Rare Disease Patient Advocacy Day

[Guest guest]

Hi Carolyn,

I was wondering if you would be attending this. And also if you know anyone else

who is attending. Thank you,

in philly

________________________________

From: Carolyn <wooleeacre@...>

achalasia <achalasia >

Sent: Thursday, December 22, 2011 10:09 AM

Subject: FDA Rare Disease Patient Advocacy Day

 

Please plan to join this webcast or visit in person.   Ask your doctors to

attend on behalf of the multitudes who have achalasia. If any of you can attend,

and speak this would be wonderful.  see the links below to register and get

more information

Carolyn Holmes

mom to Cameron

myo'd and fundo'd in 05

FDA Rare Disease Patient Advocacy Dayhttp://tinyurl.com/4wygaab

http://tinyurl.com/6m22as2

The

Food and Drug Administration’s (FDA) Office of Orphan Products

Development is announcing the following meeting: FDA Rare Disease

Patient Advocacy Day. This meeting is intended to enhance the awareness

of the rare disease community as to FDA’s roles

and responsibilities in the development of products (drugs, biological

products, and devices) intended for the diagnosis, prevention, and/or

treatment of rare diseases or conditions. The goal of this meeting is to engage

and educate the rare disease community on the FDA regulatory processes.

This

educational meeting will consist of a live and interactive simultaneous

Web cast of presentations provided by FDA experts from various Centers

and Offices, as well as from outside experts. The interactive meeting

will include two general panel discussion sessions, as well as afternoon

breakout sessions for more indepth information on the roles of FDA. In

addition, onsite attendees will have an opportunity during lunch to

engage with FDA and outside experts in a small group setting.

For more information please visit: FDA Rare Disease Patient Advocacy Day