Re: Stages @ and Lee

[Guest guest]

@ & Lee

 

-- I have had Achalasia since 1978.  When you say you get viral pneumonia

frequently, I am wondering do you sleep elevated and if so to what degree? 

That is a major factor in controlling this disease and not eating at least 3

hours before going to bed.  I have had the myotomy without the fondo. 

 

@Lee -- I have the vigorous version and I am wondering if the vigorous version

is the " achalasia variant " that you are talking about.  Vigorous means lots of

spasms.

 

Another big key to surviving is eat bland, bland, bland, with as much ground

meats as possible and fish and stay away from bread (I substitute corn for

flour products). 

 

Best Regards

Sharon Cline

 

> > > http://findarticles.com/p/articles/mi_7453/is_200704/ai_n32226898/

> > >

> > > > >

> > > > > Hi all:

> > > > >

> > > > > Is there a link to a site that describes the 'stages' of achalasia

> > > > and,

> > > > > (perhaps) their symptoms?

> > > > >

> > > > > I so appreciate the education and support in this discussion group.

> > > > I

> > > > > have what my specialist calls an 'achalasia variant', and am doing

> > > > well

> > > > > after many years of manageable swallowing problems helped by a

> > > > botox

> > > > > injection last summer. I notice folks describing being

> > > > in 'endstage'

> > > > > achalasia (which I assume means no peristalsis, a non-working LES

> > > > and a

> > > > > badly stretched esophagus), and it makes me wonder if the stages of

> > > > > achalasia are delineated in writing anywhere.

> > > > >

> > > > > Thanks in advance...

> > > > >

> > > > > Lee in NJ

> > > > >

> > > >

> > >

> > >

> > >

> > >

[Guest guest]

that is scarey. what Kim said,, " One of the nurses at Froedert did tell me

something kind of scary though. She said that if you get food stuck in your

Esophagus for anywhere between 6-24 hours, necropsis sets in and then the tissue

where the food is stuck dies. And once it is dead you can't get it back. If this

is true I am sure we all have that problem and don't even know it. "  

i hope that isnt true, i had the myotomy w/0 the fundo and i just ate some

grouper and potato salad for lunch and it feels like it is still in there sort

of. i have found that my spitting up is rare. i had the myotomy in sept of this

year. i have lately  felt a little weird  sort of like before i had the myo....

but hoping for the best... Bwat of Health to you all, Kim

[Guest guest]

Absolutely NOT true. I'd been having that problem for years. (spitting up two-

and three-day-old food that wouldn't go down). When they did my endo, no sign

of ANY problem: just shiny pink esophagus. The inside mucosal lining of the

esophagus is pretty dang strong -- consider that it takes years for people with

GERD to have changes in the lining, and their esophagus is being bathed in ACID.

Most of the peeps I dealt with in the hospital, including doctors and nurses

were *massively* confused about Achalasia. E.g., two of the four drugs I was

prescribed when leaving the hospital were for GERD. . . .

>

> that is scarey. what Kim said,, " One of the nurses at Froedert did tell me

something kind of scary though. She said that if you get food stuck in your

Esophagus for anywhere between 6-24 hours, necropsis sets in and then the tissue

where the food is stuck dies. And once it is dead you can't get it back. If this

is true I am sure we all have that problem and don't even know it. "  

>

> i hope that isnt true, i had the myotomy w/0 the fundo and i just ate some

grouper and potato salad for lunch and it feels like it is still in there sort

of. i have found that my spitting up is rare. i had the myotomy in sept of this

year. i have lately  felt a little weird  sort of like before i had the myo....

but hoping for the best... Bwat of Health to you all, Kim

>

>