Guest guest Posted November 27, 2011 Report Share Posted November 27, 2011 Thank you Dana for the nice note about ... It has been a while since you have been around... Great advice and encouragement!!! Happy Thanksgiving to you as well Carolyn mom to Cameron fundo'd and myo'd in 05 From: danamills5 <danamills@...> Subject: update about , now 11 achalasia Date: Sunday, November 27, 2011, 8:14 PM Â Hello Group, happy be-lated Thanksgiving. age 11 now. had problems at age 7, formally diagnosed at age 8 had surgery heller w/ DOR fundo at age 8 @ Cleveland Clinic w/ Dr Rice seems to be doing GREAT!! WE still avoid hotdogs, and ketchup. Other dense meat has to be cut into " toddler bite-sized " portions. Medicines are taken chewable or liquid. ( Remember adults can go to childrens section to get liquid over the counter medicines, like vitamins, etc.) sleeps with a many pillows ( elevated).( others have put wedges/blocks under the head side of the bed) For foods to avoid, check things that cause reflux ( opens the esphagus) if experiencing heartburn. Anyone worried aboout adding calories, you can add vanilla slimfast to a shake, ( to boost the calories), and add extract from the baking aisle to make new flavors. ( banana shakes are good). Anyone who bakes, you can add the slimfast into cookies, like pizellas and that will boost the calories. The shakes and pizelles I used when my daughter was really losing weight, we also allowed ice-cream for breakfast when things were really bad. soups pureed seemed to be good , too. crunchy foods that turn into " sand " were good like cherrioes, and corn chips. Keep M & M's or hard candy ( both to suck on)handy, when you don't eat you get low blood sugar and can faint or black out. I tried to make alot of things from scratch, less processed it did seem to help. If there are any new children patients I would like to extend a hand. Of course, I will answer anyone's questions. It is hard being the care-taker role and guessing what is going on, especially kids who just feel crappy and weak all the time. So, I've tried about everything. All I can say is I'm proud of everyone for standing up for yourself and seeking the support and information to maybe make your lives a little better. Hang-in there, and I still pray for Technology and Science to catch up. Dana ( mother) in VA. Quote Link to comment Share on other sites More sharing options...
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